Posted by: rayandmave | June 15, 2012

Living with Mesothelioma My Diary –A big storm heading our way


Gosh we are in for a really bad storm the worse for 50 years

http://www.telegraph.co.uk/topics/weather/9331919/50-year-storm-heading-for-Britain-bringing-downpours-and-70mph-winds.html

’50 year storm’ heading for Britain bringing downpours and 70mph winds

England and Wales are back on flood alert as Britain braces for a “once in 50 years” storm which could bring a month’s worth of rain in 24 hours and 70mph winds.

Persistent heavy rain is on the way
My friends in the USA wont see this as bad as they are  use to Hurricanes but we are an island so the whole country is covered in one go and they say the Jet Stream that is bringing the  rain is going to stay all summer –so summer is cancelled this year.
It has been a lovely sunny day yesterday though so the calm before the storm.
We went out for a walk as usual and enjoyed the warmth. My friend Marie was busy cutting the grass in her Caravan site and she couldnt hear us call out to her as we passed by.
When I looked on her face Book she had said —Ok so today is warm enough for shorts but the grass is too wet to walk the dog in trainers so Wellies and shorts it was lol x
Wonder why I was getting strange looks? —I wished I had taken a photo now.
The afternoon was taken up by a phone call and an interview for British Lung Foundation and a National Paper. As the interview progressed the reporter was very enthusiastic and we got on fine as she realised what a big story this could be and I was so happy to talk as I began to realise   just how much knowledge I have gained on the subject in 3 years.
Ray did a great interview as a carer he had me in tears as he told of what is like to look after me and all his thoughts of knowing I was going to succumb to this dreadful disease.
Photo: How small is asbestos? Thanks to help from the Asbestos Hunter you can See for Yourself:
How can something so pretty do so much damage to a person and take their life.
Anyway a photographer will be coming in the next few days to take our Photos and I will report back when it is published.
I also mentioned my dear friend Christine Winters and her Husband who Run IATP and arranged for her to be interviewed as well as they have so much knowledge about the subject.
Independent Asbesto Training Providers
 So a very productive day raising awareness of the plight of  contact with Asbestos and how it has played a part in ruining peoples lives, and bring so much pain and destruction.
Copied from  the Mesothelioma UK update, many thanks x

Asbestos Action Tayside
Asbestos Action Tayside are holding their annual Mesothelioma conference in Dundee on Friday 6th July for
members and their families. Speakers will include a respiratory consultant, an oncologist, a psychologist and
a lawyer.
This will provide sufferers and their families with an opportunity to meet others in the same position as well
as being able to find out more information on the illness and ask questions of the speakers.
We will also be remembering the members who have lost their lives to mesothelioma and releasing a large
balloon at the end of the conference.
For more information Tel. 01382 225715.
Sheffield And Rotherham Asbestos Victim Support
Sheffield And Rotherham Asbestos Victim Support Group (SARAG) is holding a meeting from 11.00 – 1.00
on Friday 6th July 2012 at the Memorial Hall, Sheffield City Hall, Sheffield. Speakers include the Lord Mayor
Councillor John Campbell, Paul Blomfield MP, Denis Doody UCATT, Mr John Edwards, Dr Gurnam Basran,
representatives of the June Hancock Mesothelioma Research Fund.
The Lord Mayor will open the event at 11.00 when all dedications to remember people killed or suffering
asbestos-related diseases across South Yorkshire & North Nottinghamshire will be read out at the front of
the City Hall, Barkers Pool, Sheffield. Meeting, speakers and refreshments in the Memorial Hall from 11.30 -
1.00 everyone welcome. All donations collected for the event will go to mesothelioma research.
For more information Tel. 01709 360 672
Merseyside Asbestos Victims Support and
Cheshire Asbestos Victims Support
MAVS have once again teamed up with the Cheshire Asbestos Victims Support Group to host this event
starting at 11am Friday 6th July 2012 at Liverpool Town Hall. The focus of this year’s event will be on the
campaign for a global ban on the use of asbestos.
11.00am – 11.15am     Start & Introductions. Welcome from Civic Dignitaries
11.15am – 12noon                 Lecture from Dr. Chris Warburton – Clinical Director/Consultant
Respiratory Physician at Aintree Chest Centre
12noon – 12.30pm        Release of sponsored doves (subject to weather conditions)
 12.30pm – 1.45pm            Refreshments & Stalls/Van
1.45pm – 2.30pm          Lecture from Bernie Sanders – Macmillan Information & Support Manager
2.30pm – 3.00pm   Lecture from Laurie Kazan-Allen – Editor of International Ban Asbestos Magazine
3.00pm – 3.15pm    Closing remarks and thanks from John Flanagan/Brian Delaway
For more information Tel: 0151 236 1895
Greater Manchester Asbestos Victims Support Group
Action Mesothelioma Day
Release of Sponsored Doves
12.30pm in Lincoln Square (Brazennose Street Opposite Manchester Town Hall)
In memory of all those who have died from mesothelioma
Public Meeting 13.00 – 14.00 in Manchester Town Hall
“Global Ban of Asbestos”
Speakers: Kathleen Ruff – Canadian writer and campaigner
For more information Tel: 0161 636 7555
Hampshire Asbestos Support and Awareness Group
Hampshire Asbestos Support & Awareness Group (HASAG) is hosting this year’s Action
Mesothelioma Day in Southsea.
Dove release to increase awareness and raise much need funds for mesothelioma
research will be held on Friday 6 July at 12 noon in the gardens of The Queens Hotel.
Followed by a public meeting in Queens Hotel, Clarence Parade, Southsea
Speakers include Vanessa Bridge from the June Hancock Mesothelioma Research Fund,
Dr. Adrian Dobbs, Senior Lecturer in Organic Chemistry School of Biological & Chemical
Sciences Queen Mary University of London and Mesothelioma Warrior Debbie Brewer
All money raised will be donated to Mick Knighton Mesothelioma Research Fund & The
June Hancock Mesothelioma Research Fund.
Light refreshments will be served following the public meeting
For more information Tel. 02380 010 015
Derbyshire Asbestos Support Team and
Mesothelioma UK Event
Friday 6th July 2012
‘A Reflection of the Celebration of Life’
St Martin’s Cathedral
21 St Martin’s, Leicester, LE1 5DE
Commencing 3.30pm
Arrival 3.00pm
The reflection will be led by the Rev Maggie Sharpe followed by a Dove release. Tea and coffee will be
served in the Cathedral
This year we are asking for messages on Roses as a reflection and celebration of life.   Money raised will be
donated to Mesothelioma UK to support victims of Mesothelioma.
The message can be to remember a loved one or it can be about raising awareness about the dangers of
exposure to asbestos; or hope in finding a cure or the need for a Research Centre.  (It can be anything you
wish).  You can either send your Rose with an enclosed donation or bring it along to the event.
Alternatively (if you do not have a rose) please write your message below and return to DAST,
 34 Glumangate, Chesterfield, S40 1TX with your donation.  Suggested minimum donation £2.00
For more information contact the
Derbyshire Asbestos Support Team (DAST) on 01246 380415 or Mesothelioma UK on 0800 169 2409
South West Mesothelioma Group
Friday 6th July 2012
From 10 til 12
at
Saltram House, Plympton, Plymouth
For a cream tea and a short gathering at the memorial tree. Please feel free to lay a single
stemmed flower at the tree if you wish.
Please contact Kate Lansdell on 01752 763665 or email:
plh-tr.Mesothelioma-Nurses@nhs.net  for more information and to confirm attendance
(Cream Tea – £2.50)
Mick Knighton Mesothelioma Research Fund
Newcastle Upon Tyne
A Tree of Hope will be placed in St Nicholas Cathedral in the centre of Newcastle upon Tyne, to mark
Action Mesothelioma Day to hold messages and memories of those who have lost their lives to the
asbestos related cancer, mesothelioma.
The Tree of Hope will form part of a Memorial service, taking place at 11.00am on Friday 6th July to
honour the victims of the disease while raising money for vital research studies into the disease.
People who wish to add a tribute are invited to make a donation to the Mick Knighton
Mesothelioma Research Fund.  The Research Fund will help you honour the people chosen to be
remembered on the branches of the Tree of Hope.
For more information contact Mick Knighton Mesothelioma Research Fund on 0191 2637386.
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