I couldn’t sleep last night, tossing and turning that at 1.15am I gave up and got up.
Played games on the computer until 3.15am and took Paracetamol and went back where ray was snoring his head off and Louis was laying flat out on his mat.
I crept in and laid down and managed 3 hours but my head was so thick that nothing seemed real. nature must have taken over and filled my head with cotton wool so that I couldnt think any more thoughts.
We got up and showered took Louis for a walk in the wind and the very grey morning.
It was no good we set off even if it meant being early for the appointment but we were both on edge.
We managed toget a parking space –only about 3 left though as its so busy in the mornings.
Booked in but Karen soon came to see me and told me that the Oncologist from Canterbury had been in and was very interested in having me back in K&Canterbury. So then I knew My Mesothelioma was defiantly growing back.
Would I be going back to St Barts , no I said as I have given trials a go now it is down to serious chemo.
Ray and I sat and had a coffee and waited to be called in, Karen soon did that so off to the room to be greeted by my Doctor.
I said I can see on your faces things are going wrong, it is showing so just go for it, tell me what it is.
Well my Mesothelioma has all grown back and I was shown on 2 scans each tumour and how big they had individually grown, but there was no new tumours and it hadn’t broken into my tummy through the diaphragm.
So it has gone rampant yet so we still have time to zap Mr Nasty (only its a lot of Mr Nasties )
The Oncologist from K&Canterbury has agreed to have me back and we will proceed with Alimta/Cisplatin chemotherapy regimen which is the first Food and Drug Administration (FDA) approved treatment specifically for malignant pleural mesothelioma. This is currently considered the most effective first-line treatment for mesothelioma patients who are not surgical candidates. A multi-targeted antifolate drug, Alimta works by blocking the enzymes necessary for DNA copying and cell division. During the clinical trial process, Alimta/Cisplatin improved median survival for pleural mesothelioma patients by approximately three months over treatment with Cisplatin as a single agent.
It worked before Please let it work again.
We said our goodbyes and Karen gave me a cuddle as we have become such friends, everyone has been wonderful and I cannot fault the NHS with the way I have been treated.
Ray and I were so numb we went to the staff cafe for a lovely pork roast dinner. Some people when worried don’t eat –I do ha ha !!!
We didnt really start talking until we got into the car and was traveling home again –the last time from Maidstone hospital.
On the way home we called at Brogdale to buy ciders for Christmas and present for a friend
Brogdale Farm at Faversham are very proud of their Ciders
“Cider has been a very important drink from the Norman Conquest –
at one time the main fruit growers were the monasteries and about 96
per cent of the apples were made
into cider because it was much safer
to drink than the water,”
“Up until the 1920s in Kent and Somerset, part of a farm labourer’s wage would be paid in cider and
at harvest time the daily
allowance was half a gallon.”
Apple trees are surprisingly quick
to establish, too: from planting a maiden tree you get your first fruits
in the third year and you’ll be in full production by the seventh. Definitely time to get home and start planning
a mini orchard…
We made for home when we have bought our wares and was so pleased to get the kettle on.
What a day.
After a coffee we took Louis out for a walk again down to the Harbour, the wind was so rough as we walked around so we were glad to get back to the car and get home again where I did cat nap for a while.
Tea done and relaxing –the end of a very nerve racking day so now I wait for appointments to come through the letterbox.
http://mesoandme.wordpress.com/2011/11/29/a-day-of-hope/ rays blog xx