Mesothelioma My Diary– A great letter from Maidstone Hospital, shopping day and the Candles are lit for the Mesowarriors and burning around the world.

Off we went today for a bit of fresh air and walk the dog around Sturry well the sales are on so that was a good excuse.

Ray did some shopping while I walked Louis around

He is back to being Louis again as his hair has grown well.

When Ray got back I told him I had found a great shop that has been open since August bank Holiday and I didnt know. I thought it was a furniture shop but we shut Louis in the car and went in to have a look. It sold everything, and had painting and art for Ray. he was in his glory and had a good look round. I bought a small Vacuum Cleaner for my Flowbee as it wasn’t cutting very well  so before i paid out and bought a new one we thought it might be the fault of my Dyson, as it looses power when you use the hose so we bought a 2000w which was a bargan.

We had a good look round as there was everything to look at, what ever you could think of it was there. Im so pleased I have found The Range.

When we got home i tried my Flowbee and it cut well with the new vacuum so we were pleased we hadnt wasted our money and I can start cutting my hair again.

When we did get in a letter was on the map from Maidstone Hospital. It was the copy they sent to K&C and it was really sweet.

After saying that things were regrowing etc etc Dr Shah says Iam not making further appointment to see Mrs Nye again but of coarse would be very happy to do so if requested. I want to thankyou very much for referring her to me and I wish her the very best for the future. Everyone at Maidstone has been very impressed with her fighting spirit –Yours sincerely

I thought that was a very nice thing to say.

All the hospitals I meet up with all end up saying similar things, but its my positive attitude and a love for life that is getting me through this. I find all Mesowarriors have it bless them and today we are lighting Candles around the world to honour them.

The Mesothelioma Warriors’ Flames of Hope and Courage Burn Brightly

Please join us in our Mesothelioma ACOR longstanding tradition, as we light candles online  and in our homes in memory of those we have lost on December 28th and in honor of those still in the fight on January 4th.

We will light a candle from 7:00 PM until 8 PM local time.  With Warriors from around the world, we can have candles lit for the entire 24 hours.

To add your loved one’s name to our 2011 list, please email

Linda was my Secret Santa and she sent me, Bangles, a lovely silk scarf and a silk Makeup bag they were so lovely xx Thanks Linda I will treasure them xx

Debbie has lit My Christmas present to her it is a candle burner with our Dragonfly on I love it but it does look good hanging in a tree in the summer x

Our Candles are burning Linda 

Mesothelioma My Diary Wow what a present my dream ride on the Orient Express xxx This has been a mad Christmas xxx

Well I have been unable to write on my blog as we have been so busy travelling to my Sons and DIL to have Christmas with them and Dan my Grandson.

We arrive on Christmas Eve and it has been one wow of a time.

They wouldn’t let me lift a finger and Dan cooked

empire roast chicken


For the chicken and marinade
• 1.4kg free-range chicken
• 1 heaped tablespoon each
finely grated garlic, fresh
ginger and fresh red chilli
• 1 heaped tablespoon
tomato purée
• 1 heaped teaspoon each of
ground coriander, turmeric,
garam masala and ground cumin
• 2 heaped teaspoons
natural yoghurt
• 2 lemons
• 2 level teaspoons sea salt

For the gravy
• 1 stick of cinnamon
• 3 small red onions, peeled
• 10 cloves
• 3 tablespoons each of
white wine vinegar and
Worcestershire sauce
• 3 level tablespoons plain flour
• 500ml organic chicken stock
• optional: natural yoghurt,
to serve

For the Bombay-style potatoes
• 800g new potatoes
• sea salt and ground pepper
• 1 lemon
• 2 or 3 tablespoons olive oil
• a knob of butter
• 1 heaped teaspoon each
of black mustard seeds,
cumin seeds, garam masala
and turmeric
• 1 bulb of garlic
• 1 fresh red chilli, deseeded
and finely sliced
• 2 tomatoes, roughly chopped
• 1 small bunch of fresh coriander

Slash the chicken’s legs a few times right down to the bone. Get a roasting tray slightly bigger than the chicken, then add all of the marinade ingredients and mix together well. Put on a pair of clean rubber gloves, then really massage those flavours over and inside the chicken so it’s smeared everywhere. Don’t be shy! Ideally marinate overnight in the fridge.

Preheat the oven to 200°C/400°F/gas 6 and organize your shelves so the roasting tray can sit right at the bottom, the chicken can sit directly above it, right on the bars of the shelf, and the potatoes can go at the top. Halve any larger potatoes, then parboil them in a large pan of salted boiling water with a whole lemon for about 15 to 20 minutes, or until the potatoes are cooked through. Drain the potatoes then let them steam dry. Stab the lemon a few times with a sharp knife and put it right into the chicken’s cavity. Move the chicken to a plate.

Roughly chop the onions and add to the roasting tray along with the cinnamon stick, cloves, vinegar and Worcestershire sauce, then whisk in the flour. Pour in the stock or water, then place this right at the bottom of the oven. Place the chicken straight on to the bars of the middle shelf, above the roasting tray. Cook for 1 hour 20 minutes.

Put another sturdy roasting tray over a medium heat and add the olive oil, a knob of butter, the mustard and cumin seeds, garam masala and turmeric – work quickly because if the fat gets too hot the mustard seeds will pop everywhere. Halve a bulb of garlic and add it straight to the pan, with the sliced chilli and chopped tomatoes. Add your drained potatoes to the tray, mix everything together, then season well. Finely slice and scatter in the coriander stalks, and keep the leaves in a bowl of water for later. After the chicken has been in for 40 minutes, put the potatoes in.

Once the chicken is cooked, move it to a board and carefully peel off the dark charred bits to reveal perfect chicken underneath. Pass the gravy through a coarse sieve into a pan, whisking any sticky goodness from the pan as you go. Bring to the boil and either cook and thicken or thin down with water to your preference. Put it into a serving bowl and drizzle over a little yoghurt. Get your potatoes out of the oven and put them into a serving bowl, then serve the chicken on a board next to the sizzling roasties and hot gravy. Sprinkle the reserved coriander leaves over everything and serve with any condiments you like. Life doesn’t get much better.

Recipe from:

It was the best dish I have ever tasted and Dan served it to us as he would have at work. as he works at a DE Ver Hotel –I was really proud of him.

We all went to bed and in the morning we had a knocking on the Patio windows where when I looked Terry was riding his bike around the garden as he said all children were riding their bikes today.

Little monkey, but it did take me back years to when he was a little boy –bless!!

We had bought a bike rack for him and had used it to bring 2 bikes to them so they are very happy with their presents.

After Coffee’s and washes we opened our presents. They gave me a diary and a calender and left me to last for my envelope, which held a voucher for the Orient Express.

I could not speak and just burst into tears as it was what I always have wanted to do for many years. I have seen it as it traveled through  Maidstone and now I have a ticket.

When I looked up everyone was crying even Terry had tears streaming down his face.

I said I cant talk yet, lets just carry on, when I could talk I thanked them very much and cuddled them.

Its in Feb so I dont have to wait to long.

We managed to calm down and had a brilliant Day lots of good food and drink

My grown up Grandson

Working hard cooking the dinner xx

Terry opening the choc's

Louis had presents too

He gets his nose right into it xx

We went off to the Local Park by car and Louis had a brilliant run with the men throwing sticks.

It has been a great time and next day was calmer and lazier. but we were so sorry when bedtime came and then today we had to say bye bye.

They are trying to met us for New Years Eve.

Mesothelioma My Diary Christmas is really here now tomorrow is Christmas Eve

Well so here it is merry christmas
everybodies having fun
look to the future now
it’s only just begun

I hope you all have a wonderful Christmas with your families  and we look forward to a very Happy New year.

A very Merry Christmas from Louis as well, he has had a Christmas bath and is now resting to get his strength for the parties –bless!!

Dont forget to hang your stocking up. xxx follow Santa as he delivers around the world. Rays Blog

Mesothelioma My Diary -a busy day today its nearly Christmas eat drink and be merry!!!

The winter solstice occurred this morning, marking the start of winter and the shortest day of the year.

As National Geographic explains, ancient people observed that after half a year of slowly creeping along the horizon, the sun appears to rise and set in almost exactly the same spot for several days – hence the word “solstice,” which comes from the Latin words for “sun” and “to stand still.” The sun’s winter halt happens around Dec. 21, though the date fluctuates between Dec. 20 and 23.

The winter solstice actually occurs at a precise moment. In the northern hemisphere, it’s when the tilt of the hemisphere on the Earth’s axis positions us as far away from the sun as we’ll be all year.

On the east coast of the U.S., the solstice happened at 12:30 a.m. today, Dec. 22. That means today is the shortest day of the year, and winter has officially begun.

It’s a dark day, certainly, but you can take some comfort in knowing that the days will start lengthening now until the summer solstice on June 21.

And at least you don’t live in, say, Alert in Canada’s territory of Nunavut. Like all towns north of the Arctic Circle, it’s currently experiencing 24 hours of darkness.

The shortest day today and boy it feels like it as there has been so much to do today. But I made a list of jobs and worked through and that did help.

Louis had a walk in the wonderful sunshine and we got back to lunch and to carry on working around the house to make sure we had everything done  for Christmas.

I haven’t heard many Carol Singers– in the days gone by we had the Salvation Army come around but that doesnt happen anymore

Debby has been playing again

We are still getting sad news as we loose another Mesowarrior –Mesothelioma doesn’t give any respite over Christmas it just carries on carrying out the misery to our families.

Linda Reinstein said on her page in Facebook
With great sadness and respect, please remember Rachel, a Korean mesothelioma victim, in your prayers. Rachel courageously represented mesothelioma victims throughout Asia and the world. I will remember her beaming smile from my last visit with her in India, her strong voice, and her deep love for family forever. Rachel, you will be remembered forever. Xoxo Linda

RIP Rachel and thank you for all your braveness in fighting this disease xx

Candles have been lit  xx  Rays Blog bless!! he is so excited his secret santa came at last whoopee!!!

Mesothelioma My Diary –A trip to Town

Merry Christmas from The Meso Warriors

Debbie has been playing around again on Facebook –she has me laughing all the time.

It was a wet start to the day but so mild so it was very pleasant really as that cold wind wasnt about.

Housework done we  went to Whistable with the Louis and parked up and walk to the High Street. I had to buy some more Raffle Books for New year as I have been asked to do a raffle for my Charity Mesothelioma UK year which will come to an end then.

I then bought some Kentish Cheese Stilton

English Blue Stilton (200g)

and Chedder which is made locally, we are having a Cheese, Wine and quiz night also at new year.  It amazes me what is around us and Im surprised that cheese is made locally like this and sold by our Local Rook’s Butcher

Ashmore Kentish Cheeses

Hand made farmhouse cheese made from unpasturised cows milk.

Learn something new every day.

We had a walk through the High Street but it wasn’t very Christmasy the days have gone where High Street butchers where packed with Turkeys hanging everywhere.

At night the Christmas lights do twinkle away and the town looks so pretty

Florist Jane at Graham Greener in Harbour Street.

Florist Jane at Graham Greener in Harbour Street.

My brother phoned me tonight to see what I do with my old stamps from the post –Well I have been throwing them out and  fancy phoning me now when I have thrown all my Christmas Cards envelopes away now.

He collects the stamps for charity  Leprosy Mission (TLM)_ Our mission is to minister in the name of Jesus Christ to the physical, mental, social and spiritual needs of individuals and communities disadvantaged by leprosy; working with them to uphold human dignity and eradicate leprosy. Send to:26 Drift Road, Clanfield, Waterlooville, Hants, PO8 0JL

The charity is LEPRA – the British charity for the worldwide relief of leprosy and kindred diseases. Any stamps and anything philatelic, plus postcards,used or unused are acceptable. David Fagence; 43 Fairway; Carshalton; Surrey; SM5 4HR; United Kingdom

I will have a box and collect through the year.

People think Asbestos is not around nowadays well how wrong they are  and here is a good case to prove that.

Roofer is fined £8,000 after materials were dumped

Trusted article source icon
Wednesday, December 21, 2011

Profile image for Plymouth HeraldPlymouth Herald


A ROOFER from Yelverton has been ordered to pay more than £8,000 in fines and costs after 60 bags of asbestos roof tiles and other materials were found dumped in Roborough.

Roger Edward Bromley, aged 42, of Abbey Meadows, Crapstone, pleaded guilty to three offences relating to his transporting and disposing of waste including failing to register as a waste carrier with the Environment Agency.

  1. asbestos


Torquay Magistrates heard that Bromley, who trades under the name of B and C Roofing, had carried out roofing repairs at a property in Lower Street, Dartmouth.

He bagged up the asbestos roof tiles and transported them in his van to a lockup in Plymouth.

He then paid another man to dispose of the waste.

His offences were related to his failure to confirm that the person taking the asbestos tiles was properly certified as a waste carrier and this in turn enabled the fly tipping to take place.

Bromley had not fly tipped the material himself but in failing to fulfil his duty of care he had enabled the third party to do so.

Additionally, Mr Bromley was also convicted of not being a registered waste carrier himself.

It was made clear to the court that the third party who had carried out the fly tipping had let Bromley down very badly and caused him to be brought before the court.

Officers from South Hams District Council were alerted to the fly tip in Bickleigh Down Road, Roborough, in early March.

Bromley was fined £2,250 for each of the three offences, ordered to pay £711 investigation and legal costs, together with £552 compensation towards the Councils’ clear up costs, and a victim surcharge of £15.  Rays Blog Love this site of my home town.


Mesothelioma My Diary Christmas gets nearer

Well we are working hard to Christmas as so many people are in every household.

You have to make the extra effort for things to be normal for the family. We have to wipe away the tears of pain what ever the pain is. A lost one, or pain your’s, or someone you love is suffering.

Me Im hiding my pain of Mesothelioma as it keeps trying to get me but it will not win, well not that fast, and my Mr Nasty and his family is going to be bombarded again in the new year.

He keeps kicking me to let me know where he is and I have the strangulation feeling back, as there are 2 tumours 1 above the heart and 1 underneath.

I have my appointment for My Kidney function test on the 16th January which I must pass as I have only 1 kidney and that has suffered by the first Chemo, so I pray it can carry me through again, or I will have the decision to chance it and go on Dialysis if it fails.

Decisions, Decisions ——

So lets have a wonderful Christmas lets make it the best we can and just cuddle our families who love us dearly.

We had a snack at 11 and went off in the car to the Local Park where we gave Louis a run chasing his ball but he already had a great play indoors as he found his secret Santa and got all the squeaky toys and ran mad around the house throwing them all around. Naughty boy we have had to wrap them up again.

We got back home and I walked the neighbours cards around to deliver them all, came back and had lunch, that spoilt dog had Pate  and dog biscuits and that was it he slept all afternoon worn out.

Ray was painting all afternoon the picture is coming together well.

Rays Blog

Mesothelioma -My Diary as i wait for the next round of Chemo. A trip to Herne Bay and shopping

It was a very Icy world we woke up to today. The roads were Icy and even my garden gate had a frost and Ice over it.

I worked at the computer until 9am and then carried out some household chores before going off in the car to Herne Bay.

Louis had an accident in the middle of the busy road as we walked to the High Street on the Crossing. I said how can I pick it up in a doggy bag I will get killed and I was so embarrassed. I just had to leave it there. Gosh dont your dogs get you into problems.

We walked into the high street and then Louis wanted to ply with another Jack so he pulled backwards out of his harness, gosh it was my day with him.

I manged to get his harness on while the other dog looked on, looking like 2 naughty boys they said goodbye to one another and we carried on so that Ray could buy some more Acrylics for his art.

We had a uneventful walk from there on and went back to the car park for the car going through a little park we noticed they had repainted some houses and they really looked nice.

Some elegant houses by the park

After playing with Louis it was a very wet dog we put into the car.

Called in at Sainsbury and bought a little food, I cant get used to not buying loads and loads as I have always entertained the family over the years, going away for Christmas really is making a weird change for me.

So we got the shopping home and the postman bought me a lovely bouquet of flowers from good friend Tony and his wife, a lovely surprise on such a wet day

A wonderful surprise Tony xxx

Thankyou xxxx Rays Blog xx

Mesothelioma My Diary as I wait for Chemo. Its getting exciting as we go into the count down for Christmas


My family have been to  

Dusseldorf’s Christmas Market which has been a great time and a treat before Christmas.

Duessldorf Christmas Market

I cant wait to see what they have bought but I will have to wait until Christmas Day.

They had a meal in the tower The Rheinturm Düsseldorf is a 240.5 metre high concrete telecommunications tower in Düsseldorf, Germany, capital of the federal state (Bundesland) of North Rhine-Westphalia. Construction commenced in 1979 and finished in 1981. The Rheinturm carries aerials for directional radio, FM and TV transmitters. It stands 174.5 metres high and houses a revolving restaurant and an observation deck at a height of 170 ..

¤{B} -Düsseldorf der Fernsehturm im Mittelpunkt

Its lovely to know they have had a great weekend Somewhere where Ray and I have had a great time as we have toured Germany and Europe in our younger days.

We have had a very quiet day although we went out with Louis for a walk as usual but was glad to get back in doors in the warm. Lots of my friends were telling me it was snowing but we manged to get out of that but it has been a right mix up with Sun and Rain and very black clouds came into night.

Ray has been busy on his painting, this is a challenge and he loves it, I can see it coming together very well and I know he will be proud of it when he has finished.

I watched the film Jack Frost with a box of tissues by my side -it was lovely 

I made a lovely Beef stew today with carrots and onions and we have enough over to make a Beef Curry tomorrow.

I have made a list of shopping and things to get done before next Saturday Its getting very exciting now as we start the count down to Christmas.

Merry Christmas

Rays Blog

Mesothelioma My Diary As I fight it all over again. Delivery of presents and Debbie has been honoured By ADAO in the USA xx

Busy day today so got up and showered early and took Louis for a walk, it was cold damp but the sun was shinning after a very frosty start. The pavements had black Ice on so now and again my foot slipped.

No roads have been salted so I hope there was any accidents on the roads.

We came back home and got ready for my Brother and Sister in Law to visit as we always exchange Presents before Christmas as we both go away or have family visit on the Day so we like a peaceful time to wish  each other merry Christmas.

They stayed and had fruit cake with us and Louis greeted them and then went to sleep.

So now all the presents are around the tree

We said goodbye to my brother as they had to go  shopping and then we had a phone call from a friend who said it was so cold and they are in Canterbury so Ray said dont worry we wont go out then come and have dinner here, So I had to rustle up a meal and lucky enough I had a large Shepherds Pie in the freezer and so I added carrots, broccoli and gravy and made rhubarb and custard and we have had a feast of comfort food.

Iv sneaked in here, to the Den to writes this, while they all wash up.

We had a lovely surprise last night when Debbie wrote in her blog

Alan Reinstein award.

 Emily, Linda and Alan Reinstein.

I am very honoured and proud to accept the Alan Reinstein award for commitment to education, advocacy and support to countless patients and families.

Alan Reinstein was diagnosed in 2003 and died in 2006, since his death, his widow, Linda, has fought tirelessly to change and educate the world about asbestos.
To have an award in her husbands name is a wonderful tribute, I am following in the footsteps of many wonderful and inspirational people.

This award belongs to all the warriors as without them I wouldn’t have the support I need to continue with what I do.
I am not sure if I can get to America to recieve it, I would love to but will have to speak to my oncologist as I may be having chemo in February/ March.
Thank you so much Linda for this award, it is a pleasure and honour to accept it : )
Well done Debbie and so richly deserved you work so hard in your support to us Meso Warriors xxxx

Found a good video to explain What is peritoneal mesothelioma?

Rays Blog

Mesothelioma My Diary -A very wet, windy day today

The weather has been very bad today across the country. My friends on facebook were telling us how they had snow so I was able to track it from Wales, Guildford  and Bromley very good fun so long as it didnt reach here.

We missed the snow but had a wet and windy day.

I had a long chat to Kat in Australia this morning which was very good

Kat Wake-BurgeKat

Kat – I was born and bred in Balaklava South Australia.

I worked as a boot maker for 32 years with RM Williams. I retired in 2001 and began doing volunteer work with Vietnam Veterans Northern sub branch as a Pensions and Welfare Officer. I found that there were a number of ex-military and, in particular, Navy people who had been exposed to asbestos, and while looking for information into this I found the Asbestos Victims Association I now also help in the office, and in any other way I can with Asbestos Victims.

She works for AVA and we share all our info across the world.

We had to go to the chemist to get a pill holder as I was tidying up my draws and realised Im the worlds worse pill taker, so I need to get a grip and take them better on this next Chemo.

We wrapped up warm and I had a hat on and a scarf round my face I looked like i was going to rob a bank!!!!

A wet cold day

Came back and had home made soup again for lunch –so warming and then I filled up my Pill box with my tablets Im on for pain control, but that only keeps me sleeping.

Ray has been on his new painting so he is keeping busy.

I have some lights for Christmas,  but as we are going to be away for this one I cant get enough interest up in stringing them in the garden like I normally do every year.

The evening went dark very quickly and then I remembered we are coming to the shortest day, winter solstice and midwinter are the colloquial terms used to describe the 24 hours around an annual astronomical event which occurs around the 22nd December. The shortest day marks the point when the days start to get longer and the nights shorter. click on this link and then on the binoculars and see where asbestos is in a house.  rays blog