We got ready and took Louis for a walk early as he had to stay home alone today.
Ray went to the Bone cracker and the lovely lady on reception nattered away to me and her husband was there and told me he worked at Chatham Dockyard and he had lived in Chatham.
The next road down from my Mothers house and where I lived until i got married. What a small world !!!
Ray wasnt in there very long as he has done so well so it is now just top up care.
We were soon on our way to the Hospice in Canterbury.
I was down on a list so it took a time to find where I should be which was on the Home visiting system.
The lady that was trying to find what list I was on was very sweet and talked to me about the owrk of the Hospice and gave me a tour.
The care Pilgrims Hospices provide also extends to emotional support and practical advice to help you cope.
I was shown the day room which was all very nice.
They have a wonderful Garden with many plants in and they have just laid a path with the names of people who have died on each brick. Sad but so nice.
Gwen came and took Ray and I to a room and I answered all the questions on my health and how I felt. Didnt know that my ankles being swollen from fluid my kidneys cant cope with can infact become infected and leak –not nice. So I will be watching for that.
She told me That quality of Chemo not Quantity is very important and infact if I do have to stop it, I could live a bit longer than if I did have a Chemo that I was so badly allergic to that it makes me very ill.
I have come away with a lot of thought in my head.
Im very well at the moment so there is no treatment that they can offer me –until the tumours regrow and then I can see they will be able to sort all the painkillers etc etc.
I have stated I want to stay in my own home and she said thats what Im under the visiting nurses.
Another question she asked was about my being resuscitated –Oh dear !! my answer was Im sure Ray can be trusted with making that decision for me . He will know if I should or shouldnt be resuscitated.
Im sure we can sort that out nearer the time.
Dont we have to talk about such awkward things.
I can see that Ray can find some help but I believe he can also help with the experience he has had as a Carer.
I have an appointment for a months time to discuss the results of my next scan and thats how we will go on.
I will sort out anything that is nice that they do. Yoga etc etc and if i can help on fun days I might join in but I dont feel ready for all this -but I might not have a choice if my scans say growing back.!!!!
Jubilee Weekend lays in front of me –I need some fun fun fun.
I just have to put this on here —