Gosh it rained heavy again yesterday.
We got dog walks in but then I had to go to K & Canterbury to a East Kent locality meeting.
We got soaked as we had gone round and round the Car park’s looking a space there wasnt one. So had no hope of a Disabled spot.
I saw a man go to his car so told Ray to go round but when we got there the man got a sheet of paper and closed his door again.
We traveled to another area and yes I saw a space and we got in it.
Ray went to the hut and told the man we didnt know how long we would be so he said put the Blue Badge up and a £2.00 ticket and that covers us. We have done this before when I had Chemo so it is a rule for all the time.
We walked to the education block and that when the heavens opened even more and we were like two drowned rats when we got there.
Ian who is the Chairman of the meets welcomed Ray and I and how did I like the LUNG DOG meet. I said how impressed I was that the NHS are doing well in our Area with a difficult Government and he then asked me would I be interested in putting my views at a meeting about transferring Thoracic Surgery from London to our hospital. I said yes of coarse so he is arranging for me to attend the meeting. I whispered to Ray they dont see me as a very ill woman they include me in everything and I do appreciate that.
Well the meeting got underway.
We talked about The Tool Kit which is a series of cards that show the list of things to look for when a patient is ill.
With Lung it is a cough etc etc and these will be hung up in places like the GP’s surgery as they have to bring things out into the public eye.
This is because they want to prevent illness at see it at an earlier stage as too many are seen to late when a disease has got hold –more to prevent than cure.
The did one for the Testicular cancer -get it out and check it out and went to the local Army barracks with it. it was a great success that the Army are now going to use it in all there Barracks.
So visual cards will work. you will see them in your surgeries and Chemists. We suggested toilet doors and there is talk of on waste bins in the street.
There is a cook book in progress for recipes when in treatment and they want recipes so I will get my Warriors to tell me theirs.
Every Gp has a Patient Liaison Group we heard so we should try and get on those if we want to get out point of view across.
It came to Dog meets and I got asked first which through me as I hadnt prepared anything but I fumbled through a talked about the
statistical conclusions of the east kent and it proves we are meeting targets. I also spoke about the solicitor there saying they are not
Ambulance chasers that Mesothelioma is a Industrial disease and as such incur’s so much expense of travelling and heating etc etc that money is needed by a patient.
The Health and well being Mandate for the NHS came out this week and will be Enforced fully by 2014 with a dramatic cut in money So there are hard times ahead that is no fault of the NHS but the Government.
Then the carpark was talked about but not as I thought it was about the charges that people on chemo and radiotherapy have to pay so now they can buy a ticket for a week for £2.00.
The actual car parking will never be resolved as the more they provide the more it is full up. They provided a park and ride for the staff with its own bus running but there is now a 2 year wait for a pass for that.
So that was the end of the meeting and we just wanted to get home but called in to shop so we didnt get in until gone 7pm.
Our warrior friend that died has had a lovely story printed in the Hospice news letter I must share with you xx
My Tribute to Peter who Died last week –good night Peter RIP
Date posted: 20 November 2012 | No comments
Peter Stevens, a patient of Pilgrims Hospice Canterbury, was joined by 20 family members and friends to see his sons Michael, Darren and
their respective fiances Debby and Lisa receive a pre-wedding blessing from chaplain Revd Liz Chapman on Friday 16 November.
“Peter was able to be at the very centre of this joyous family celebration which included two young bridesmaids who very nearly stole the show,”
said Revd Liz.
“Organising this special occasion is very much a part of Pilgrims philosophy of enabling
every patient to live life to the full while they have life.
“I would like to thank the team members for all the hard work they put in to help me decorate the chapel and for arranging extra flower
s for the occasion at short notice,” she added.
The ceremony was followed by a small celebration in the garden room, included champagne and wedding cake.
The occasion is believed to have been the first time a pre-wedding blessing has been held in the chapel. Another patient with
two young grandaughters was able to share in their christenings in the chapel nearly 14 months ago.
Elaine account of the day was so lovely and I have her permission to copy it here as a tribute to her lovely husband and wonderful family xx
I wanted to tell everyone about the lovely day we had last Friday at the hospice. The year before last our eldest son Darren and partner
Lisa were planning to get married. They already had Kayleigh who is six and then found out they were expecting Archie, so plans were
put on hold. When Peter started deteriorating they realised that when they did get married it wouldn’t be the same without him and really
wanted him to be there. Unbeknown to us Lisa contacted Liz the chaplain at the hospice to ask if it would be possible for them to get married
in the hospice chapel. She didn’t hold out much hope as the premises are not licensed but that she would contact the Bishop. With great excitement
Liz rang Lisa with the good news that the Bishop had granted permission for a pre-wedding blessin
g as it was special circumstances. Liz checked with the doctors that it would be ok for plans to go ahead and there was a week to organise the
celebration. Liz was fantastic – she organised everything – flowers, service sheets, photography etc. Our younger son Michael and his fiancee
Debby have a wedding planned for next August and this will still be going ahead but Darren thought it would be nice if Michael and Debby
joined in with the pre-wedding blessing. They too thought it would be lovely for Peter and one celebration became two. Our elder daughter
Samantha has two children – Kieran and Lucy and there was a mad dash to get outfits and dresses for the two girls who were to be bridesmaids.
Samantha also made sponge cakes which I dashed home to ice on the Thursday and went back to the hospice to be with Peter for the night
(I stayed every night). The next morning I popped back home, bought crisps, nibbles and soft drinks had quick shower and hairwash and dashed
back to the hospice with Peter’s clothes. The staff were fantastic – they gave Peter a full wash and brush up, dressed him in his finery, hoisted him
in to a special chair and it was so lovely to see him, handsome as ever even though a little short on hair. I changed myself, applied a little war paint
and then people started to arrive. Lisa had only ever wanted an understated wedding and only immediate family were presen including our younger
daughter Juliette. We went in to the chapel and the marketing manager had offered to take all the photographs which was a lovely gesture. Liz had
decorated the chapel beautifully with flowers and fairy lights – really magical. We had a lovely afternoon and Darren and Lisa had their wish for
Peter to be there. They treated it as their wedding day and have booked the registry office for 10 December just to make it legal and sign on the
dotted line. They will be taking just two witnesses and the children. Such a lovely thing for them to have done. Here is a link to the hospice magazine entry
Rays Blog http://mesoandme.wordpress.com/2012/11/26/monday-22/