Living with Mesothelioma -My Diary- Water was shut off. A ride out and a nice dinner to be cooked.

24 hour animation loop of Earth as seen from a geostationary satellite orbit

Another very grey day greeted us as we woke up today. I thought it was milder but as I I took Louis out to the garden the wind is still there with its icy fingers hitting you in the face.

The water went off at 10am as the valve had to be mended that blew last week.

We put water in the kettle and a saucepan and then I forgot I wouldn’t be able to shower. Oh dear I had to wait 2 hours for the water to come back on.

I worked on the computer with Debbie trying to sort out where to send Prof Vogl’s Paper which was great as we learnt who to contact for funding trials in the Uk, all interesting reading.

Until a research ethics committee approves a clinical trial, researchers cannot ask any participants to join it.

The committees are independent both of the researchers whose work they are reviewing and of those who pay for the research.

The ethics committees that review clinical trials in the NHS are part of the National Research Ethics Service. This service is beginning to publish plain-language summaries of clinical trials that are understandable by anyone.

Before they start a trial, researchers have to submit a detailed plan of their proposed research (protocol) to a recognised research ethics committee. They may also need approval from other regulators.

All clinical trials of medicines need to be authorised by the Medicines and Healthcare products Regulatory Agency(MHRA), as do studies on medical devices.

An online system called the Integrated Research Application System allows researchers to use a single set of information to apply to the research ethics committee and to other regulators.

Great info and I have learnt such a lot from researching -The whole of googling is great Education and I sit for long hours into the night reading so much.

Animated girl gives a quick friendly wink of an eye

My Second Book is coming along as well –bit by bit pages come together. It is so very hard to sit down and write about your life as sometimes life is just a day to day doing the same thing. I try to do things we love but sometimes just to sit and watch telly is so nice.

My Just giving page has had money entered into it so that has been really growing for 2013, All very exciting.

Ray is strumming away on his guitar now and Louis is asleep on the armchair.

We have been into Faversham and parked at the Recreation field. Louis Ran off lead and played with his ball as we walked. I love to see him when he is finding freedom.

Nowadays we have to be so careful though in case the dogs run off and nasty people pick them up and do the most rotten of things.

It is a sad world at times. I wish they would make the punishment fit the crime.

The Recreation Ground was created in 1860 and covers some 20 acres. The cost of providing “the Rec” was met mainly from the bequest of the great Faversham benefactor Henry Wreight, but also by subscriptions from townspeople. 

The central area is bounded by lime avenues and there is a Victorian keeper’s lodge and summer house, used and cared for by Faversham Rugby Club.

The recreation ground is also used by local football clubs, Faversham Recreation Bowling Club and Faversham Tennis Club.

It has an enclosed playground for children and a skate park, which is free to use 24 hours a day.

I had written to DFRA and asked if they were now chipping all dogs could the have a tracker in the chip.

I had a reply today.

My Email from DEFRA Dear Ms Nye,
Thank you for your email of 13 February about microchipping. I have been asked to reply.
We are not aware of the sort of tracker you are inquiring about. Such a tracking device would need a power source which would likely be fairly large, and much too large to fit on a microchip which is only the size of a grain of rice.
Yours sincerely,
Adam Broderick
Defra – Customer Contact Unit

So I have to agree to that .

What to do for dinner tonight

Butterbean butterboom

  • 1 x green, red and yellow peppers, chopped
  • 1 x red onion, chopped
  • 1 x courgette, chopped
  • 250g cherry tomatoes, halved
  • Low calorie cooking spray
  • 400g canned butterbeans
  • Herbs eg basil, rosemary
  • 1 tbsp red pesto
  1. Preheat the oven to 200°C/180°C Fan/Gas 6. Spread the courgette, onion, pepper and tomatoes in a shallow roasting tin and spray with low calorie cooking spray. Season with salt, freshly ground black pepper and a sprinkle of herbs. Cover the tin with foil and cook for 30 minutes – or until the vegetables look juicy and tempting to eat.
  2. Meanwhile, heat the butterbeans as per the instructions and drain. Stir in 1 level tbsp red pesto, the roasted vegetables and serve.

Tip: Delicious served warm with rice, pasta or jacket potatoes. Equally as delicious enjoyed cold in a lunch box.

Yogurt for Sweet and thats me happy but not Ray so I will have to cook a pork chop and a Roast Potatoes and drawl over it.

Rays Blog

Living with Mesothelioma-My Diary-Have I at last woken up to why its important to diet.

Came to the conclusion today that my dieting through my life created the starvation that Cancer doesnt like. I was 10 and a half stone just after I retired and I got a gold badge at weight watchers and then i couldn’t stop the weight going off.

I had  sniffed in asbestos at 20 and it didn’t show until I was 68 so that’s a lot of years so maybe just, maybe, dieting was the brake on things.

Cancer is caused by faulty metabolism within the cancer cell, they say, and we can control it by restricting the fuels that cancer cells use to generate energy—glucose and glutamine, a common amino acid . Rather than eating carbohydrates and even protein, people with advanced, metastatic cancers should turn to low calorie, high fat diets instead. This will force the body to produce compounds called ketones that regular cells can use for energy but that–and here’s the clencher–tumor cells cannot metabolize for fuel.     

That’s the view proposed by Boston College biology professor Dr. Thomas N. Seyfried in his new book “Cancer as a Metabolic Disease” and landmark article as well as by other eminent scientists, including those from Memorial Sloan- Kettering and Harvard. 

carrit soup

So I made a ginger and carrot soup for lunch and Tuna and Jacket Potato with cabbage and leek. Yogurt for sweet


We have been talking also today about the supplements we take and I take Thistle and Turmeric so I think I must be doing something right.

We did go out but it seems to get colder and colder so I went in the warm shop on my own. Hoped I wouldnt do my famous fall over, but I had the trolley in front of me  and did well getting all the fresh vegetables and fruit and yogurts.

Watched the frozen cabinet’s and people are being very cagey and reading all the things on the side of the packet. It has made people really think.

I was pleased to see baskets with fresh food in. If you buy cheap frozen meals you do run a risk, and you find out why they are so cheap.

making your own isn’t that dear and you know what your eating.

Ray was walking Louis around outside and they had been for a long walk together.


Ray took this and I didnt know I came out with a man ha ha !!! was that with Tesco points.

We came home and snuggled in after I put the shopping away.

And the cooked dinner.

Very proud of Micheal Lees from AIS  Asbestos In Schools.

26 February 2013

The Education Committee will hold an evidence session on Wednesday 13 March 2013 on Asbestos in Schools.

Venue and Witnesses

Committee Room to be announced

At 9.30am

  • Michael Lees, Asbestos in Schools Group
  • Julian Peto, London School of Hygiene and Tropical Medicine
  • Julie Winn, Chair, Joint Union Asbestos Committee
  • A school leader [name to be aanounced]

At 10.30am

  • David Laws, Minister of State for Schools
  • David Ashton, Director of Field Operations Directorate, Health and Safety Executive

Purpose of the Session

This is a one-off oral evidence session on the issues relating to asbestos in English schools. The first panel of witnesses gives the Committee the opportunity to explore the issues raised with interest groups, experts in the field and individuals with direct experience of the problem. This will be followed by evidence from the Schools Minister and the Health and Safety Executive on relevant Government policies.

At Last we are getting somewhere with the fight to get our Schools sorted out.

Rays Blog its very good today xx

Living With Mesothelioma-My diary- Message from Mesothelioma Uk and A Survey for Mesothelioma Patients and Carers to complete Please

Woke up very early so laid there and then got up for 5am Louis came and laid at my feet but then decided it was to earlyand went back to bed but when Im up Im up. grrr!!

I pottered around until Ray got up and then we had breakfast together.

Usual housework was done as Ray took Louis out for his walk.















Ray had to go for his last needle appointment so we went with him and I walked Louis around again –that dog has us on a string









We got cold so came back and waited in the car.

There is a survey from British Lung Foundation if you would like to fill up. It is to find out how informed we are on diagnosis.

The British Lung Foundation, in partnership with the Mick Knighton Mesothelioma Research Fund, would like to try and get a better picture of people’s experiences of living with mesothelioma. We are asking you to fill out the enclosed survey, which covers diagnosis, asbestos exposure and the legal process, as well as some general questions. All responses will be treated as anonymous.

Also When I got home I had a email from Mesothelioma Uk and a Newsletter that was of interest

An article written by Dr Jeremy Steele at Barts, London.
Published in the latest Mesothelioma UK newsletter, Spring 2013.

Nonselective Transarterial Chemoperfusion: A Palliative Treatment for
Pleural Mesothelioma. By T Vogl, S Lindemayr, N Naguib, J Gurung, N
Nour-Eldin, S Zangos, E Mbalisike. Goethe University, Frankfurt, Germany

Over several years Professor Thomas Vogl and his team
in Frankfurt have been treating patients with pleural mesothelioma with a technique called ‘Nonselective Transarterial Chemoperfusion’. This is a new way of
delivering cytotoxic chemotherapy to patients with pleural mesothelioma. It is an extension of similar techniques used
in the treatment of cancers in other parts of the body, notably the liver.
Techniques similar to that described in this article are in use in the NHS in the UK, but not for patients with
mesothelioma. Professor Vogl’s technique has been the subject of interest in the UK, especially from patients with mesothelioma who, understandably, want to hear about
all possible treatments. Doctors and nurses caring for people with mesothelioma have also been interested to hear more about this treatment. British doctors have had to be cautious about recommending treatment with nonselectivetransarterial chemoperfusion to patients because no full results for patients with mesothelioma have been available until now.
Professor Vogl’s team have now presented results on 39 patients treated with transarterial chemoperfusion.
The median survival time from first
treatment was 17 months, with a mean
progression-free survival time of 2.6
months (i.e. 79 days). Progression-
free survival is a key measure in a trial
of this type as it is sometimes used
to determine the likely benefit of a
By comparison, the progression-free survival in the clinical trial of Pemetrexed and Cisplatin for previously untreated
patients (published in the Journal of
Clinical Oncology by Vogelzang, 2003)
was 5.7 months. An even closer comparison is with
patients treated with Pemetrexed and Cisplatin as second-line chemotherapy (as in Vogl’s trial). According to the
results, these patients had a median survival time of 15.3 months (Manegold,
Annals of Oncology, 2005). And in the randomised ‘MARS’ trial conducted in the UK, the median survival for patients not treated with radical surgery (i.e. with intravenous chemotherapy only)
was 19.5 months (Treasure, Lancet Oncology, 2011).
Professor Vogl and team say the following about transarterial chemoperfusion: ‘This procedure could be of benefit in the treatment of this tumour in stages when it is
unresectable’ and, ‘that our study results will open up the horizon for more studies to be performed.’ Professor Vogl concludes that transarterial chemoperfusion may have the potential to yield positive results and response
in the treatment of recurrent and/or unresectable pleural mesothelioma.
What needs to be done is a randomised trial of transarterial chemoperfusion versus intravenous chemotherapy.
Only a randomised trial can show if transarterial chemoperfusion offers any benefits to patients above and beyond what we can already do. The results presented in the recent article cannot confirm or deny such a benefit.

Consultant Medical Oncologist Barts and the London NHS Trust
Nonselective Transarterial Chemoperfusion: A Palliative Treatment for
Pleural Mesothelioma. By T Vogl, S Lindemayr, N Naguib, J Gurung, N
Nour-Eldin, S Zangos, E Mbalisike. Goethe University, Frankfurt, Germany


Rays Blog

Living With Mesothelioma -My Diary-A trip to the Harbour

It was slightly warmer today thank goodness but only because the wind was kinder. It was raining early this morning.

My new dress arrived today and its so pretty for the summer –Oh yes we will have summer’.


I cant wait to wear it so pretty and my favourite colour well rays really he has always loved blue. I have hidden it in the wardrobe and will surprise him when the sun comes out.

Ray had to go to the Docs to have a blood test so I went with him and walked Louis around the Harbour while Ray went into the surgery









We had a walk around and then got back to the car just as Ray got there so we came home and rested.

I made Veronicas Kitchen Sweet and Sour

Very tasty diner again.

We had Chocolate Cake for sweet  naughty but nice!!

Debbie went home from the hospital so she is back on the road to Chemo in March. I hope she rests and gets stronger.

Well I have sat and rested all day even if it means on my computer, taking tablets every 4 hours has eased the silly pains off.

We do get wound up when we feel pain as we know things can change so  quickly from being ok to chest infection and then we are in real trouble.

But Im ok again so by tomorrow will be back to normal.-What ever normal is ha ha !!

On my Facebook this did make me laugh

Photo: 'I like their tiny trunks!': Great-great-great-grandmother, 105, puts long life down to her love of... saucy calendars

This lovely lady said she reached 105 because she looks at men on calenders so I have said I will be Ok as I look at men in catalogues in their underwear ha ha !!

Bless long may she live as she looks wonderful for 105

Rays Blog

Living With Mesothelioma -My Diary- Chocolate Cake Day

Boy am I fed up with the cold weather. My chest is really hurting as I breath The In is good but the out makes me feel like I have to push the air out after half way.

It means the stale air is staying in the pockets so I really need some exercise to sort it out -Or I think I do.

We Meso patients get a lot of pain in the lungs and it gets worse as the day goes on. To much time on my hands to think about it. I need a new hobby as all my hobbies are finished and Im not a good reader.

I do all my reading on the computer and keep researching new treatment in the hope there is a new trial to consider.

We did get out in the cold again and went in the car to tesco so that Ray went in and got Louis some chews and I walked Louis we had a lovely walk as the wind wasnt so strong or cold there and my little pal trotted along and was so happy.

Everyone I passed said “good morning and isn’t it cold” but Louis and I were were having a good walk and we weren’t so cold.

I got back just in time to see Ray just coming out of the shop.

We traveled back and we had some lunch.

I then started baking as I had the Pork joint cooking in the oven. I made a great chocolate cake, mmm















The good housekeeping recipe is always a winner in our house so ray had a birthday cake after all.

Then it was a Roast Pork dinner to cook just so great on a cold day

Roast pork with braised red cabbage, pears and juniper

I cooked the red cabbage with apple and it was very tasty So all in all a lovely Sunday Dinner.

I m shattered now as I wait for Mr Selfridge, i will miss this when it finishes as I adore Mr Selfridge, Its his voice. So dreamy xx

Mr. Selfridge

I dont usual put things like this on my blog but they are really messing with the NHS and none of us know how it is going to turn out
































Rays Blog

Living with Mesothelioma-My Diary- It snowed early morning so I made a Artic Roll !!















Well if it this cold at Lake Garda we dont stand any chance do we’

Snow and sleet hit parts of the country today as freezing winds continue to sweep Britain, sending temperatures plummeting to levels on a par with the Arctic.

Forecasters at the Met Office said temperatures across much of the country were hovering at or just above freezing, the equivalent of Hammerfest, in Arctic Norway, which recorded a temperature of 1C today.

Swathes of the north of England awoke under blanket of snow this morning, and the cold snap gripping the UK shows no signs of abating as forecasters predict temperatures could plunge as low as minus 11C in northern Scotland in the days to come.

Read more:–need-wrap-Wednesday.html#ixzz2LkgAIgcE


The man of the north looks so cold in my GGrandads home County.

Ray had got out of bed in the early hours and saw our snow but lucky when i got up it had disappeared.

It was so cold though with a bitter wind.

Ray sneaked out with Louis for his early walk while I worked on the computer and made sure Debbie had got to hospital and she started her new treatment so we know she will be out of harms way for a week.

Siobhan received her flowers for being such a good carer to her Mum. The carers do get forgotten as they have all the hard work to do and it is a lonely job sometimes, but when it is someone so young it is so much harder. i know love comes into it but that doesn’t mean we couldn’t show her our  appreciation.

So the Flower Warriors went to work

flowers siob

She was surprised and thought they were for her Mother so that was good.

I did put my coat on and wrapped up very warm to walk Louis. It wasn’t to bad the wind only blew now and again  so we did get round but was so pleased to get back into the warm and watch a film.

I ad a beef curry cooking in the slow cook all day so the house as smelt of curry all day and we couldn’t wait to eat it, then had a Artic Roll. Gosh they have been going rund for years haven’t they and I still love a slice.

My recipe I love

My sponge that I made yesterday wasn’t as even as the recipe one but it did work.  But I didn’t take a photo ha ha !! But it was lovely anyway>

Linda Reinstein sent me a message. I just finished your tribute for the Asbestos Disease Awareness Organization (ADAO) conference program. It’s a surprise – so you will have to wait one month to read it! Congratulations for being the 2013 Alan Reinstein Honoree.

So I will have to wait –excited now.

 Mavis Nye, a mesothelioma patient, will be recognized with the Alan Reinstein Award for her commitment to education, advocacy, and support to countless patients and families.

My part will be on video and I will keep reporting on all that happens as we lead up to the exciting Day.

Rays Blog

Living With Mesothelioma -My diary- Ray is 75 today and he gets a free present from the Government !!

Animated moving clip art picture of soft flaming line gif

Feel the warmth as it has been a very cold day today and every time we go out we freeze.

It has tried to snow all day but has ended up just with little flurries. This weather just hurts the breathing so it was scarfs around the mouth and then you feel like you look like your ready to rob a bank.

Well today was Rays birthday so its been a happy day. 75 today and he gets a free TV licence gosh if he was getting something free it could have been free gas or electric but free TV well !!!  No there are somethings that are good to watch so I wont moan ha ha !!!

Slice of birthday cake with flower decorations and one single candle burning

We had a walk with Louis and froze all the way round so back indoors and stayed in the warm



I have bought him a guitar stand as that was what he wanted.

Debbie is still in hospital and they are finding another Antibiotic that they can get into her. I know she has had enough of prodding and poking and not sleeping at night as its to noisy.

We are boosting her up and making her stay put for the weekend until they have sorted he out.

Oh well she is home now and going back for treatment tomorrow so I hope she stays warm and hope she feels better tomorrow.

Tess who is under the same hospital as me has had he Chemo and Im very interested  in her treatment as this is what I will have, when I need 4th line chemo.

I have been so lucky that I finished chemo last march and have had stable for almost a year but we live on a egg timer. The sand is running out -it is so nerve racking as you want to block the sand from falling through the hole, maybe if I sellotape it up I can live for ever.

So when I asked about carboplatin I was told no as it was in use and now it is so Im really pleased there is something waiting for me. Things change all the time.

Rays Blog

Living With Mesothelioma –My Diary- Oh no! Snow flurries for the weekend. A water leak so no water this afternoon.

It was a very cold morning that greeted us today. I took Louis into the garden and the water in the bucket from the downpipe was frozen. brrr

The forecast is for very cold this weekend brrr Snow flurries are due.

More house work done, gosh when you think I have been married since 1960. How many plates have I washed, cleaned the house, and cooked dinners in that time. Dont add it up please The figure would be to much. ha ha !!

I had to play with word and works today on my computer to sort out a good programe to open documents sent to me.

I haven’t got much patients as I like everything to work first time, if it plays around I tear my hair out. It went right in the end.

It was my Cancer Network Information that came through and I have a form to fill up to say I still wish to carry out my duties as a Patient Rep under the new Regime so I will agree and send the form back. I have to keep Mesothelioma on the Agenda and fight in our corner.

I have been reading about  Asbestos in Schools and parents right to know Currently, parents do not have the Right to Know if asbestos is present in their child’s school. In the age of freedom of information, and given the dangers related with asbestos.

A central database is required so we can assess the extent of the asbestos issue in our schools, manage the asbestos and plan for the future. This is essential for our children, all those who work or visit our schools. When will they learn??? I think never as I have also read how Young people still don’t understand.

 The Health and Safety Executive (HSE) believes that many young workers do not understand the huge dangers posed by asbestos.

Although the construction material has been banned for more than a decade in the UK, many buildings that were erected before 2000 are likely to contain the substance.It has been commonly used in the trade since the 1950s, when there was very little information on the massive health problems it can cause.

Around 4,000 people die every year in Great Britain because of asbestos-related diseases and the HSE thinks that 1.8 million tradespeople are still at risk of exposure to the material.

The HSE has launched an event in Clydebank aimed at raising awareness of the regulator’s e-learning package that teaches youngsters about asbestos and the severe conditions it can lead to.

It has been jointly organised by Clydebank College, the Federation of Master Builders and the Scottish Centre for Healthy Working Lives and is predominantly targeted at apprentices who may not have been in the construction industry for long.

“This event continues HSE’s drive to tackle ignorance about Britain’s biggest industrial killer,” commented HSE principal inspector Archie Mitchell.

“Many young tradespeople believe that, because asbestos is no longer used in buildings, it’s no longer a threat to them. But that simply isn’t true.”

The HSE continues to take a hard line against companies that are found guilty of breaching Control of Asbestos Regulations 2012.

Earlier this month, it fined a Birmingham builder £4,000 after the individual was discovered to have removed asbestos from a property in Castle Bromwich illegally.

All work that may involve asbestos needs to be thoroughly planned and, in some cases, only licensed organisations are permitted to handle the substance.

In this particular incident, the man was taking out asbestos insulation boards, which should not be touched by unaccredited workers.

The fibres and dust that derive from these boards can cause a number of life-threatening lung diseases if they are inhaled.ADNFCR-2134-ID-801543610-ADNFCR

We have a long way to go in raising awareness.
Made a Lamb dish from a Sainsbury Recipe for dinner tonight
 Oven-baked Lamb Chops with Onion and Rosemary Sauce
Debbie is a lot better today and hope she is home soon. she hasnt rested though as she has been on face book and messaging me but its good to see her so cheery.
As Ray has said our water went off and there was a fountain of water in the park as a valve blew.
I had just enough water in the kettle to make a coffee to keep us warm as the heating went off –no water.
It was soon sorted thank goodness.

Living With mesothelioma -My Diary- Turkey Tikka for dinner on a cold day.

A very quiet day again today as it was so cold outside after the milder weather we have had.

Ray took Louis out early as I cleaned around and made the beds.

Worked on the computer and then went out to get some sauces I had forgotten, and some warm tights.

We walked Louis around to let him have a run.

Came back to the warm house and watched a little telly before making the dinner. A Turkey Tikka  with stir fried vegetables.

It was very delicious.

Debbie is doing very well and will soon be out and back home, I hope she rests as she is always running around and doesn’t give her body time to  recover.

We will be nagging her that’s for sure. Other than that it has been a quiet day in the meso warriors world.

I had to write a biography for ADAO  and attach a photo but my word program had crashed so we had to load a new one on and lucky enough it picked up everything I had written in the old broken program.

Gosh sitting here I have realised it is Rays birthday in 2 days time .I will have to get my thinking cap on and buy a present.















Here is advice to make you laugh and yet it explains why it is unsafe for me to fly when we have a bad Lung with air trapped in it.

Flying increases flatulence according to an article published friday in the peer reviewed New Zealand Medicl Journal

and passengers should release the gas- or risk painful medical consequences.

Lead author Dr. Jacob Rosenberg, professor of surgery at the University of Copenhagen, said he always wondered why he had more flatulence flying than when on the ground. Then, after a recent trip, he opened his bag and noticed a water bottle “almost smashed by the change in ambient pressure,” said Rosenberg. “And then I thought of the mechanisms of increased bowel air volume when flying.”

It’s simple. When altitude increases, pressure decreases. According to the thermodynamic principal known as the “ideal gas law,” as pressure drops, volume increases. While cabins are pressurized to compensate, the mechanisms can only do so much. When the plane is at a cruising altitude of 33,000 feet, inside it’s still the equivalent of 8,000 feet above sea level. That’s a lot of physics bearing down on your intestines.

There’s a clear medical rationale for releasing the gas. Holding back flatulence can lead to “discomfort and even pain, bloating, dyspepsia and pyrosis,” according to the article, titled “Flatulence on Airplanes: Just Let it Go,” which surveyed previously published research and studies. It also notes that holding back flatulence has been suggested as a major risk factor for diverticular disease, a condition where pouches develop in the wall of the colon.

But just try telling that to your seatmate.

Instead, Peter Post, a director at Emily Post institute and author of “Essential Manners for Men,” recommends that travelers “hold it in until they have the opportunity to get up and release the gas in the restroom.”

If you can’t get to the lavatory in time, for instance, if there’s turbulence and the fasten seat belt light is on, “be as discreet as possible” and release the gas, said Post. “People understand the situation and let it go.”

Unfortunately, no graceful phrase or gesture exists to completely smooth over the social awkwardness of releasing your personal flatulence inside a confined space where 50 percent of the air is recirculated. An “excuse me” can really only go so far. It can even draw its own unwanted attention.

“Almost anything you say can create embarrassment and make the situation more difficult,” said Post. “Your best bet is to keep your mouth shut.”

The article’s authors suggested airlines install seats embedded with active charcoal, which can absorb intestinal gases. Carriers could also pass out blankets with the odor-absorbing compound sewn in.

Travelers could also be subjected to a methane breath screening and those with higher methane content could be assigned seats in a restricted area of the plane near the lavatory. Another proposed solution involved the use of rubber pants with air containers to collect passed gas.

As for passengers, they could wear underwear lined with active charcoal, the article said.

Rosenberg said that though the paper had “a humorous direction,” it’s based on published research. “The background is serious,” he said.

But fliers prone to gas should take preventative measures.

Rays Blog

Living With Mesothelioma -My Diary- Debbie went back into hospital again. and a report on my Meeting at Cancer Network

I have come down to earth with a bump today as Debbie has been back into hospital but thank goodness it isnt her Mesothelioma that is the problem but her TOF

Tracheo-Oesophageal Fistula (TOF)

In Tracheo-Oesophageal Fistula (TOF), the bottom end of the baby’s oesophagus is joined to its trachea (windpipe). Without surgical intervention, this causes air to pass from the windpipe to the foodpipe and stomach. It can also allow stomach acid to pass into the lungs.

Child with TOF/OA Child without TOF/OA

Debbie only discovered as she got older which makes hers even rarer.

It causes her to have infection and then she gets  pneumonia . The antibiotics made her sick and ahe started again so was taken back in last night.

We wish her well and have been chatting all day to the warriors as they asked how she was.

She will carry on with Chemo when she is back to normal, but she never rests.


Well I promised I would talk about my meeting yesterday at the Cancer Locality meet.

The NHS from the 1st May 2013 has made the Cancer Network employees Redundant and they have been finding new jobs.

The Cancer will carry on but in a different form. It will be mixed in with every other Medical  illness. Like Kidney and Liver and all other cancers.

So we will carry on meeting in groups but not as we know it now.

I feel it will spoil things and I will hang on in as I feel Mesothelioma will get lost -I might be wrong but I don’t feel Iam at the Moment.

If they realise they have made a mistake they will have lost their expertise as they will all be sorted out into new employment.

GP will be leading this so all Networks will be Amalgamated.

But one thing that is wonderful they are putting together our records and the whole path we are on in treatment on the computer and this will than be shared by the Doctors. So they will always have our records on hand and we wont have to keep repeating who we are and what is wrong with us.

Oh gosh the times we have to repeat to each Doctor. well that will be gone. from 2015.

There will be acute Oncology care so we will be involved in better treatment. Fast track will be used to get us into Chemo and Radiotherapy  and GP Support line.

The have gained all the info from the “In your shoes” this was a great success and they used the same process in every Department, even the surgeons were asked to take part so they now have a clear path to work to and info is being pulled together.

I asked if the Patient records could then go from Our Hospital to other hospitals where we travel for treatment and I was told yes that is what they want to achieve.

The Goverment has given all hospitals Money for software and from 27th February our hospital will be replacing all Radiotherapy machines. And a big And we will have the new Imaging Treatment for Cancer. This targets the tumours better.

On 1st May I have been invited to a Talk on Lung Cancer and a  Demonstration of the new Lung Shuttles in the Radiotherapy.

So Im looking forward to this.


Not a lot has happened today, its been a wonderful sunny day after a very frosty start.

I have been baking cakes and bread and a Shepherds pie for dinner tonight.

Walked the dog and washing all done and put away.

Ray went out as he explained in his blog.

Shepherd's pie

Rays Blog