Living With Mesothelioma – My Diary- A trip to London -More Chemo I Can Have More Chemo !!!


What a day of emotional up and downs.

Set off by train from Whitstable changed at Bromley South and caught the City Thames Link Well thank you Tess for this great idea, it saved us all the horrible journey on the underground and long walks for Ray.

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And then when you get off your at the back of Barts right where we needed to go to out patients.

Thanks Tess xx

We booked in at reception and it was ok I was on the list only I couldn’t produce a letter as it had all be arranged in email.

I sat down and then it was my turn to be weighed. Sat down and then I saw Dr Steel Jeremy is Co-Director of Bart’s Mesothelioma Research. He is a Consultant in Medical Oncology at St Bartholomew’s Hospital, the Royal London Hospital and the London Chest Hospital. He qualified in medicine at St George’s Hospital, London in 1989. After training in general medicine and intensive care, he moved to the Royal Marsden Hospital where he treated his first mesothelioma patient.

Then I saw my Hero

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Dr Peter Szlosarek MD, PhD Centre: Molecular Oncology Fellowships: Clinical Research Fellowship (CRUK)Clinician Scientist Fellowship (CRUK) Job Title: Clinical Senior Lecturer Email: p.w.szlosarek@qmul.ac.uk QMUL DirectoryResearch Interests Dr Peter Szlosarek’s main research themes are in Lung Cancer/MesotheliomaOvarian Cancer,Senior Researcher and Skin Cancer/Melanoma
We sat and talked through everything, why I was there and he read the Scan report.

I have been given an appointment to have chemo but I have to ask my Onc if I can have Gemcitabine and Carboplatin here at Canterbury, if not to carry on and have it at Barts. He has done a blood test as he says Cisplatin has done damage to my kidney Peter didnt like my swollen ankles and the dry skin o my shin. These 2 chemos wont harm the kidney but they do work on the bone marrow hard so infection is a worry.
So I have a future again.
Yes another reprieve — there is time for me to have chemo and  when Im really desperate to back to a trial , He said not many have got to 4 chemos and he has only 1 that has got to 5 years he wants me to get there –he is so sweet.

http://www.macmillan.org.uk/Cancerinformation/Cancertreatment/Treatmenttypes/Chemotherapy/Combinationregimen/GemCarbo.aspx

GemCarbo chemotherapy is usually given to you as a day patient. Before you start treatment, you’ll need to have a blood test on the same day or a few days beforehand. You’ll be seen by a doctor, specialist nurse or pharmacist. You’ll also have tests to check how well your kidneys are working as the chemotherapy can affect them. These may include collecting your urine for 24 hours, or having a specific blood test known as an EDTA test. If the results of your tests are normal, the pharmacy will prepare your chemotherapy drugs. All of this may take several hours.

The nurse will put a thin, flexible tube (cannula) into a vein in your arm or hand. You may find this uncomfortable or a little painful, but it shouldn’t take long. Some people have their chemotherapy given through a thin, plastic tube that is inserted under the skin and into a vein near the collarbone (central line), or through a vein in the crook of their arm (PICC line). Your doctor or nurse will explain more about this to you.

Before the chemotherapy, you’ll be given some anti-sickness (anti-emetic) drugs. These are usually given by injection through the cannula, which is connected to a drip (infusion), but some anti-sickness drugs can also be taken as tablets.

The chemotherapy drugs are then given separately:

  • Gemcitabine (a colourless fluid) is given as an infusion that lasts for about half an hour.
  • Carboplatin (a colourless fluid) is given as an infusion, lasting for about 30-60 minutes.
  • So we have  left it at that and shook hands and said bye and now its for me to sort out K&C to get them to see there are more Chemos they can us on us Mesowarriors, I just hope My Oncologist can use them as it will save me having to get to London, twice in first week and then again on the 4th week for 6 months. Traveling after Chemo could be hard but I will do it if I have to.
  • It was a good journey home so I suggested going to Weatherspoons in Whitstable at the Peter Cushing and had a very nice roast dinner.
  • It was very busy which is great to see people enjoying the place.
  • A young girl that look about 10 was celebrating 18th birthday, she really didnt look old enough.
  • As we drove home the sun was just going down, our beautiful Whitstable Sunsets and Im going to see more of them. I was so down last night and now I have been lifted up a real roller coaster.
  • IMG_0089
  • Home at last we put the heating on as it is getting very cold again
  • What a day !!!!!

http://mesoandme.wordpress.com/2013/04/26/friday-47/  Rays Blog  x

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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One thought on “Living With Mesothelioma – My Diary- A trip to London -More Chemo I Can Have More Chemo !!!

  1. Great news , have been waiting to hear , fingers crossed it can all be sorted at Canterbury. So good to have access to Barts , we think they are great
    Amanda

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