Living With Mesothelioma -My Diary- A windy Thursday, Showdown at the Plenary,Beccy Lewington is so pleased the BBC News has picked up her protest

We have had a lovely day today.

My Doctor emailed to say he had passed over to the chemist stronger nerve blockers for my pain   so I will be able to relax now.

They were delivered this afternoon -very good service there.

I worked in the house and then after lunch we took Louis to his field. I made Ray sit in the car as the wind was getting up and its very exposed from the sea as it overlooks the River Swale and we can see the Isle of Sheppey.

I pulled my jacket collar up and was able to throw the ball with the ball thrower (dont know what they are really called) Without any effort you can throw the ball for a long way and he runs like made to fetch it back. Only Louis isnt a fetcher he is a marker. So he sits by the ball and I have to go to fetch it –I have got something wrong here.

We came back and I worked on the computer writing and Facebook a little bit of telly watching and a little cat-nap. We have been whiling away the hours to Rays appointment tomorrow.


I hope the wind doesnt spoil my Elephant Ears and Bluebells they have been waiting for spring to come out and shoe themselves off to me ,

Beccy Lewington is so pleased the BBC News has picked up her protest of the New Compensation mentioned in the Queens Speech this week.

We have a great Mesothelioma Awareness warrior in Beccy so more power to her elbow !!!

Larrie and Rebecca Lewington

Larrie Lewington, 65, from Eynsham, Oxfordshire, was exposed to asbestos in his 20s while working as a lagger.

He was diagnosed with mesothelioma in August 2012, so he will be eligible for compensation under the new scheme, but his daughter Rebecca told the BBC the 70% cap on compensation was “insulting”.

She said: “When my dad was working with asbestos the government at the time knew it was dangerous and they need to take some responsibility.

“For them to do this scheme and then say they are going to cap it is incredible. It’s insulting.

“My dad worked his whole life, paid all his taxes and his national insurance, and he never borrowed a penny. Now, through no fault of his own, he’s got this disease.

“It’s been devastating. We’re a very close family and it’s ruined our lives.

“I wish I could go into Parliament and face them and they could see the pure pain that I’ve got.

“It’s as good as murder what they’ve done, allowing this substance to be used and now, to put it bluntly, it is going to kill my dad.”

Because of the delay in developing symptoms, some workers who were negligently exposed to asbestos at work find it difficult to trace an employer or insurer who is liable to pay compensation.

On Wednesday, the government announced a Mesothelioma Bill, which will set up a payment scheme aimed at addressing this “market failure”.

The proposal is to offer all victims using the scheme a flat-rate payout set at 70% of the average compensation paid out by insurers to those victims not using the scheme.

It will be paid for by a levy on insurance companies which provide employers’ liability and is expected to cost the insurance industry £300m over the next 10 years while helping more than 300 sufferers a year.

But campaigners say the scheme does not go far enough in compensating victims, and thousands who suffer from other asbestos related diseases, such asbestosis and pleural thickening, will not receive anything.

The proposed 70% cap on compensation is also a “red line” for campaigners.

Tony Whitston, chairman of the Asbestos Victims Support Group, said: “What appears to be a great deal brokered by government, and costing the insurance industry a small fortune, is in reality something entirely different.

“This scheme excludes 50% of asbestos victims, pays ‘average’ compensation only to victims dying from the cancer mesothelioma and then slashes average compensation by 30%.

“This scheme is not what we expected. It was presented as a fait accompli to asbestos victims and saves the insurance industry a small fortune at huge cost to asbestos victims.

“The bill needs to be unpicked and repackaged if the victims’ best interests are going to be truly at its heart.”

‘Life is a mess’There have also been concerns that only those who are diagnosed after 25 July 2012, when the government first announced details of the scheme, will be eligible for compensation.

Arthur Butts, an electrician who is now his 70s and was diagnosed with the disease two years ago, told BBC Radio 4’s Today programme that there was “no sense” in the cut-off point.

Read all the write up here

Another very good write up today is

Rotterdam Convention Conference of the Parties (COP6): Day 3
by Laurie Kazan-Allen

Showdown at the Plenary
During the morning plenary session today (May 9), the President of the Rotterdam Convention asked the Parties which opposed listing of chrysotile to confirm their final positions following intensive discussions this week in contact groups, regional groups and side meetings.
Russia, Zimbabwe, Kyrgyzstan, India and Kazakhstan confirmed their vetoes on including chrysotile in Annex III.
As we listened to a torrent of Russian asbestos industry propaganda, it became patently clear that a coup d’état had taken place. A few well-resourced stakeholders had succeeded in trashing the basic premise of a UN protocol intended to protect populations from harmful substances.
Kyrgyzstan went as far as recommending that the chrysotile issue be deleted from the agenda of future meetings. This, said the President, would not happen; at COP7, the matter will be revisited.
The Convention’s impotence allows the status quo to continue; the global trade in deadly asbestos will remain unregulated and unfettered by any global agreement for the foreseeable future.
Finally, the President gave the floor to the Australian delegation. Spokesman Andrew McNee made a succinct and cogent argument (see: text of Australian Statement) that highlighted the immense economic and human cost to Australians of his country’s asbestos heritage.
The impact of this intervention spread around the chamber as one country after another raised their flag to express support for Australia’s position. Those that stood up to be counted included: the European Union, Switzerland, Norway, New Zealand, Cameroon, Gabon, Kenya, Costa Rica, Liberia, Nigeria, Venezuela, Sudan, Israel, Benin, Paraguay, El Salvador and Qatar.
Following a recommendation by Costa Rica, which was seconded by El Salvador, countries were requested to raise their flags if they wished to show support for the Australian motion. This “virtually unprecedented” action made clear the overwhelming desire of the majority of Convention Parties to designate chrysotile as a hazardous substance.
May 9, 2013

Time and time again the greed shines through and they do not think of the suffering we go through and the future Mesothelioma sufferes will go through as it is always -it wont be in our term of office . Why cant people stand up and be counted and BAN ASBESTOS AROUND THE WORLD Please.

Rays Blog for Thursday


One thought on “Living With Mesothelioma -My Diary- A windy Thursday, Showdown at the Plenary,Beccy Lewington is so pleased the BBC News has picked up her protest

  1. amyitriploline is what brought on an acute stroke…. starting with a blood clot in lower left calf BEWARE

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