Living With Mesothelioma -My Diary- East Kent Locality Meet at the NHS as a Patient Carer


I had a great afternoon in our Cancer Locality Meet. It was the first one under the new NHS Trust.

We learnt that All Libraries will hold Information Books on Alternative Therapy.

A young man from Macmillan talked to us about diet and alternative therepy and he said to contact him and he will give me a set diet for me which I will follow up.

The End of life Info that Patients wishes are being asked for will be kept by the hospices so the Ambulance people will be able to assess, so I bought up the fact that it will waste time when in and emergency it will take time. I was then assured that the hospice  will have it all available  on their computers for easy access.

The cost cutting is on going.

ASDA will make a room available for Cancer groups to hold meetings in all ASDA stores free of charge which is a wonderful gesture and one we will take advantage of

Emergency treatment for Cancer is being fast tracked.

We  had the lady who runs the Cross Roads Care report how the scheme is going.

A carer is someone of any age who provides unpaid support to family or friends who could not manage without this help. This could be caring for a relative, partner or friend who is ill, frail, disabled or has mental health or substance misuse problems.

Carers may even be juggling paid work with their unpaid caring responsibilities at home. The term carer should not be confused with a care worker, or care assistant, who receives payment for looking after someone.

If you are a carer, your local Crossroads Care scheme can offer you support. Our core service sees a trained carer support worker coming into the home to take over the caring responsibilities. Each local scheme is an independent charity, which has its own funding streams and is therefore able to provide additional services according to funding and demand at a local level.

They go in and help and assist on respite care on a daily basis and help in anyway they can, shopping, housework, etc etc

Thanet Earth has become interested and donate some of their crops.http://www.thanetearth.com/

She shared some with us Cucumbers and Peppers

Today’s technology meets traditional horticultural expertise at Thanet Earth. Our site is home to three vast greenhouses. Inside them we grow tomatoes, peppers and cucumbers; our crops destined for the shelves of some of Britain’s biggest retailers.

Each greenhouse is a power station too, generating electricity for the National Grid. We keep our plants warm by making use of the waste heat from our cutting edge Combined Heat & Power technology which also provides us with the extra CO2 our plants need to grow to their potential. This means that our produce doesn’t just taste delicious, it has a very low carbon footprint too. So to the consumer, you get delicious crops, grown and packed in Kent, from a grower with an excellent environmental record.

http://www.carers.org/local-service/east-kent

So we learnt and discussed a lot more but that is the rough notes.

We then went on a tour of Radiotherapy where everything was explained to us.

The way the machines work and we learnt we have 4 machines that cost 1/2 million pounds each.

They still have not been able to get on that would hit Mesothelioma as we have to many tumours so they would damage to much of our lung. and it works on One or two tumours.

So we came away after thanking the staff for staying on .

Came home only to go back today for the start of my Chemo treatment which is signing in and have bloods taken a discussion of my treatment. It cant come to soon as the pains are growing and break through pain killers so Mr Nasty need hitting now.

 

 

 

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