Living With Mesothelioma -My Diary-4th Line Chemo Ray is beginning to really need the Heart Stent


dance

Its been a lovely day again and I have  really enjoyed it. Except Ray had a bad pain when he walked Louis  this morning. He seemed to have had to use the spray to many times.

I was defrosting the fridge as I wanted to get some shopping and Ray wanted to get to B&Q but taking Louis meant he couldn’t be sat in the car as it was far to hot. I took Louis round the Rugby Club field.

Off lead meant he ran and got to hot so we ended up after running, by walking and he cooled down. I took him back to  the car and Ray came along and took him for a walk around the car park.

I went shopping. I cant believe how the prices are going up and up but I do work on the idea that you get what you pay for, so I close my eyes to the price and buy what we like and try and keep it healthy.

So that is it I haven’t done any garden work as IM waiting to see if my bloods are Ok tomorrow.

Ray has got better during the day but I cant wait to get him into that hospital and know he is safe and just get the Op done bless him.

A cyber friend has messaged me — Your ears must have been burning today.. I was at my counselling session at the macmillan centre, we were talking about feeling guilty when someone passes over etc.. I was telling  Councillor  about how much chemo you have had, the strong yet resilient manner in which you raise awareness of asbestos, trials and your general support for everyone without it being about raising your own profile plus your fund raising. Wendy said you sound like the sort of lady who is respected by a lot of people… YOU are xxx

That is a the sweetest thing and it has lifted my spirits  and I feel like the girl I put at the beginning.

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A reader to my blog left a Piece about Debbie which is so nice .http://www.mesotheliomalungs.org/a-tribute-to-debbie-brewer-loving-mother-asbestos-campaigner

I share it here as it deserves to be shown xxx

 

JUNE 13, 2013 A Tribute to Debbie Brewer Loving Mother and  Asbestos Campaigner

A few years ago I was researching information concerning asbestos as I believed that I may have worked with it as a teenager. 35+ years later, and I can still hear my dad’s voice saying to me “ What the Eck are you working there forYou’ll end up with lung cancerif that stuff gets on your lungs”. I had only just only just 16, fresh out of school, and didn’t have a clue what he was talking about.

The company was in Armley, in Leeds. They produced industrial gloves, i.e. for firemen and other industries where protective work clothing was required. For decades – although what my dad had said to me was etched on my sub-conscious memory, I had never worried about it and knew very little about the dangers of asbestos.

What prompted my research was because I developed lung problems and what my dad had said to me previously, suddenly rang alarm bells in my mind!  Although a visit to the GP confirmed that it was Asthma, I still couldn’t help being paranoid about the possibility that I had worked with asbestos and I may at dome stage  develop cancer. Also as asbestos related cancer has a very long latency period, i.e. 20 -50 years, I still have nights where I lie awake trying to visualize the stiff coarse  material I worked with and match it to asbestos products on Google images.

After putting all the relevant asbestos key words in Google – I came across Debbie Brewer’s blog and read her story; that she had developed mesothelioma,  that was caused by inhaling asbestos dust on her father’s overalls as a little girl. I contact Debbie through Facebook and she was very open to chat to me. I told her about my concerns about my possible contact with asbestos, and she was very supportive.

Over the few years that I was blessed to know Debbie – I noted how incredibly giving she was. I decided to create a blog on mesothelioma, and if any other sufferers contacted me – I would talk to Debbie and she’d say “Give them my contact if you like”.  and she would soon take them under her wing, support and advice them.

Despite her ongoing battle with mesothelioma, she even cared about other people’s more trivial day-to-day problems. I.e. On one occasion I posted (what was considered a minor problem compared to what Debbie was facing) on my Facebook page, and she in boxed me asking me if I was OK. That’s the sort of person Debbie was,  and I didn’t just see her as this asbestos ambassador and campaigner, but this wonderful kind-hearted, generous, and self-sacrificing lady.

Sadly – Debbie, age 53 passed away on Sunday 8th June. What I will miss most is seeing her regular posts pop up on Facebook, they were full of love, dignity, and humour, and incredibly inspiring.  I think that a lot of the time I thought that she was invincible, because she was so fiercely strong and determined to fight mesothelioma, and I am sure that it was her fighting spirit that instilled so much hope into others.

I have no doubt that Debbie’s legacy in the fight for asbestos awareness will continue. She planted so many seeds and touched thousands of hearts across the globe, and even though she isn’t with us, many people that come across her story will still continue to grow strength from her.

We still have to be mindful that beyond her mesothelioma, Debbie was a devoted mum to 3 children, and I am sure that foremost – they will be grieving the loss of their mother, and not the mesothelioma warrior she was.  So please be sensitive to this fact, and particularly in the forthcoming months.

My thoughts are with her 3 children at this time. I lost my mum to cancer at the age of 14, and I just hope that they will receive all the love and support that they need. . .

http://www.mesotheliomalungs.org

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