What a great and tiring day yesterday was I was shattered when we got home and so was Ray.
It started with the normal get up breakfast and dog walk. the we had to get all dressed up and drive to the station to get a London bound train.
Arriving in London we got the train to the Houses of Parliament as we had a date with many people that are concerned about Asbestos.
At the gates I showed my Invitation to speak in Committee room 18.
We were let through security – I have never had a frisking down by a woman before but we laughed and joked as my handbag went through the scanner. Thank goodness I had cleaned my bag out that morning !!
All done we got our visitors badge and headed straight for the cafe for a chelsea bun and a wonderful cup of coffee.
We were joined by Judith and Lind T and they too wanted something to eat.
We made our way to through the visitors way in into the Great hall
As it nearer to 2pm we found Room 18 and there were so many I already knew but it was so great to meet Mary Hesdorffer from the USA we have been on Skype and Facebook messages but it was lovely to be able to hug hello.
We settled down and I sat next to Siobham Debbies Daughter who so bravely wanted to speak in place of her mother, she wated to be her voice. They did talk about Debs and honoured her with a photo that they presented to Siobham I thought was brilliant.
The speeches begun
ALL PARTY PARLIAMENTARY GROUP ON OCCUPATIONAL SAFETY AND HEALTH
Chair: Jim Sheridan MP Hon Secretary: Ian Lavery MP
Objectives: featuring a mesothelioma patient, a union representative, a mesothelioma physician and a member of the Welsh Assembly. The objective of the meeting is to keep asbestos issues, including the need for increased funding for mesothelioma research high on the agenda of the Parliament of the United Kingdom
This meeting of MPs and invited guests is intended to:
Keep asbestos high on the UK agenda;
Explore and discuss topical UK issues such as asbestos contamination in schools and the timely delivery of equitable compensation to the injured;
Examine UK asbestos developments in light of news from abroad.
2:00 Welcome: Chair Jim Sheridan MP.
2:05 EU Asbestos Initiative – Rolf Gehring, European Federation of Building and Woodworkers, Belgium. Rolf was sitting next to me and he spoke about what was going on in Europe.
Rolf Gehring, Secretary for Health & Safety of the European Federation of Building and Woodworkers (EFBWW), co-organisers of this event, can be reached at: +32 478 84 0660. EFBWW is running the campaign: “Europe 2023 – Asbestos Free” – see also: http://www.efbww.org
The Rotterdam Convention is a multilateral United Nations protocol under which vulnerable populations are provided a modicum of protection from dangerous substances. When a consensus has been achieved regarding the hazardous nature of a designated chemical or pesticide, that substance is included on the prior informed consent list of the Convention. This listing is not a ban; it is however a requirement that exporting nations provide documentation on the nature of the substance so that importers can make informed decisions as to whether or not they are capable of using it safely.
2:35 Mobilizing for a Mesothelioma Cure – Mary Hesdorffer, Nurse Practitioner and Executive Director, Mesothelioma Applied Research Foundation, U.S. Mary spoke about what is going on in the USA with trials for Mesothelioma
“The Mesothelioma Applied Research Foundation serves the international community and this trip will strengthen the collaborative nature of our relationships,” continues Ms. Hesdorffer.
The Mesothelioma Applied Research Foundation has independently funded over $8.2 million in peer-reviewed mesothelioma research to date.
Mesothelioma is a malignant tumor of the lining of the lung, abdomen, or heart known to be caused by exposure to asbestos. Medical experts consider it one of the most aggressive and deadly of all cancers. Approximately 3,000 Americans are diagnosed with mesothelioma every year and an estimated one-third were exposed while serving in the Navy or working in Navy shipyards.
Malignant Pleural Mesothelioma: An American Perspective – Daniel Sterman, Associate Professor of Medicine, University of Pennsylvania Medical Center, U.S.
In this video, Dr. Daniel Sterman discusses current findings from experimental mesothelioma treatment research at the University of Pennsylvania. There have been recent reports about mesothelioma patients who have experienced a spontaneous regression in the disease. Dr. Sterman talks about recent advances in immunotherapy research and ways that immunotherapy can be used to harness the body’s immune system to fight mesothelioma tumor growth.
Read more: http://www.mesothelioma.com/treatment/doctors/dr-daniel-sterman.htm#ixzz2Y3Yv4QOc watch a video on thie link
3:35 Report from the UK Mesothelioma Frontline – Mavis Nye, Mesothelioma Patient and Siobhan Brewer, daughter of Debbie Brewer.
I will put a video on when we have uploaded to You tube. but a print out of mt speech is here.
“The controls specified by ILO Convention 162 are frequently absent, especially in smaller companies. Even when these firms are aware of the risks, they continue to treat asbestos as just another raw material; no safety measures or protective equipment are used. Employers prefer to pay fines which are cheaper than adequate controls. The highest fine ever imposed for infringement of safety and health regulations is US$3,000. It is very cheap to kill and injure Brazilian workers. Another serious problem in Brazil is asbestos waste; as it is expensive to dispose of this waste appropriately, many companies dump it in secluded spots such as abandoned warehouses and derelict buildings.”
4:15 Questions and Answers:
4:30 Conclusion: Chair Jim Sheridan.
So that was it all over and a very interesting time. I said my goodbyes to all the people especially Micheal Lees of AIS as you know Schools and Asbestos is my passion. It just should not be and something must be done about it. There are inroads happening.Protecting our young ones from this disease is a must.
Then it all went wrong we got in the wrong train on the underground but it was going to Waterloo so OK we will catch a train from there. Loads of walking to Waterloo East Jumped on a train to Ramsgate and it set off. Errr next station was SevenOaks so we had to stay on. But the train was going to call at so many stations we had to call a halt to this.
We spoke to the Guard who advised us to get off the train and catch the next one to Ramsgate as that would get there before the train we were on as it didnt go all round the coast.
We did this and the next train although went to Ramsgate I saw it went to Canterbury so I said to Ray we could salvage the day by getting a taxi to Whitstable Station and collect the car.
We did this and the fare was £15.00 so we was so pleased to pay that as we so relived to see the car.
Got home exhausted and so was the dog as he greet us and was at last able to go out for a wee.
That was the day a very exhausting day to be really honest with all the walking to and in stations wrong trains my breathing got really bad and I now know how hard my lung is trying to work. But Im on Chemo which I keep having to remind myself and I did the breathing exercises I have been taught so I got through it all x
I will report with all the photos and my video latter as I get them.