Well today is a day I didn’t think would happen but I have reached a big decision day. My scan is showing regrowth in some areas . The Chemo did get some areas stable in the scan 3 months ago but the report is showing that it cant hit all the areas.
Ct Thorax Abdomen , pelvis with contrast.
There has been a definite deterioration in features when comparison is made with a previous study of 15/07/2013. Nodular opacites in the line of the pleura on the left are again noted these all appear to have increased in size. A marker opacity in the line of the oblique fissure inferiorly now measure about 36/22mm in size previously 31/17mm. A pramediastinal opacacity at the level of the aortic arch has increased from 20x17mm in size up to 27x20mm. no new right sided pulmonary abnormality in the retroperitoneum is identified. The small hyperplastic right kidney is noted. no destrutructive bony lesion is seen.
Comments there has been significant deterioration in features when compared with previous study 15/07/2013.
This is mainly in the form of an increase in the pieural based masses previously noted on the left.
No evidence to suggest disease activity below the diaphragm is seen
So that’s it the Oncologist asked me what do I want to do and I said. Well let my body have a rest and have another scan in 2 months and lets see if it is growing slow or fast. She was relieved as she thought i was going to say more Chemo and she doesn’t know what to give me, but I said don’t worry I want a rest, and lets see if the chemo is still working it just might be, she agreed.
There is a first line Trial coming out with Vinorolbine and a new drug. I said but its first line and she said –now listen to this Mesowarriors —1st line trials are for us whatever line we are !!!!! That is new to me. so there is hope with trials then.
I shook her hand ans said I’m sorry I have let you down and she said don’t be silly We will talk again after the next scan.
I went down to the Chemo room in a daze I couldn’t really think. I couldn’t happy or sad but I needed my PICC Line out. All the nurses said hello and how are you. Errr its still growing. Well the reaction of sadness and Im sorry and we all had tears in our eyes. They all came over as the PICC line was removed and I realised they were dress in pink. Pink ribbons and pink tights as they are supporting breast cancer. Wouldn’t it be nice if they did that for Mesothelioma we are so the underdog.
So with the PICC line out and a two month reprieve we came home. We were both very disbelieving but I said right this has to be a great Christmas so there is a lot of planning happening. Im so pleased I threw away so much yesterday and that’s the way I will carry on –throwing away all the rubbish in my mind and in my head. I will carry on with the blog daily and this starts a new chapter, a new fight. When I have got it all straight in my head.
I forgot to say I told her of all the pain I was in so I suspected the news would be bad and she was amazed that I had been right and so she defo wants me on pain management. I said with Morphen and she said lets hang on as you have nerve blockers so 2 Paracetamol and 1 strong codeine every 4 hours lets see if that helps first. I have taken 1 lot and yes it does help.
Rays blog for Thursday he has got round to today with his thoughts http://mesoandme.wordpress.com/2013/10/24/thursday-66/