Living With Mesothelioma -My Dairy- Lazy days – Talks and warning of Asbestos in foreign toys !!

Weather is defo getting colder but I did manage a good walk yesterday with ray Dog and walking stick. I dont need it until I have walked past the shop and then I can feel the legs going on a wobble. by the time I got to the back door I was walking on jelly. ha ha !!  I stand in then and I had done the washing and collected from the dryer. I love the smell of newly dried sheets so they have gone under the bed waiting for me to use again soon.

I love getting into the bed with clean sheets wrapped around me . Ray had helped me to change them I couldnt wait to climb in and sink into the cosy bed but I finally did that after watching come dancing and X Factor .

On the whole and as long as I stay  in doors Im doing well. Tablets keep the pain at bay and I try and shut it all out -thats not easy though as i care what is happening to the other warriors.

Tess is doing so well on 3rd line and the drain out so she is really happy and enjoying little mini breaks.

Steve Wride is also doing so well and is coming up to another scan soon so hope he has a great result. In the mean time he lives a crazy life, so busy I get tired just reading Lindas  blogs.

We have been having hits on our pages from Lawyers -the Ambulance chasers. We have to be very quick to stop them. There is to much Money attached to Mesothelioma. Everyone wanting to make money out of us. We have top lawyers that work for us and do a no win no fee type  investigation.

I dont know if this will change when the New Bill comes in but it is before the House of Commons again  The date of the Meso Bill has been scheduled for 2 December.  That will be its Second Reading (first stage of debate).  The Committee (where it goes through each clause) will follow shortly after.

We shall see what happens then.

A battle we seem to be winning is the one we backed  Lord Saatchi  when his wife died and he wanted these changes after his wife died.

Good news is always welcome

Allowing doctors to test innovative drugs on patients without the fear of being sued would be a “huge stride forward” in the quest to find cures for cancer, Lord Saatchi said yesterday.

Jeremy Hunt, the Health Secretary, is considering changing negligence laws to make it easier for doctors to make medical breakthroughs.

Lord Saatchi called for the changes after his wife, the novelist Josephine Hart, died, aged 69, of rare ovarian cancer in 2011.

I have to pass on this warning as it comes to Christmas that toys from China must be looked at careful

My dear friend in Australia did say —Rod Smith Good Morning (here) Mavis, this toy may not be available in the UK, but as it was/is? being sold online who would know. Asbestos in toys is a never ending problem. The Chinese love the stuff, mufflers in kid’s motorbikes, brakes in remote controlled cars etc are just some of the worries!

So yes we have Relations in Aussie who might send the toy or we buy on ebay or Amazon –we have to always keep an eye out .

—-A magic toy sold at the Royal Melbourne Show and online could expose consumers to potentially deadly asbestos fibres, authorities are warning.

The Australian Competition and Consumer Commission (ACCC) says so-called fire wallets, which look like regular leather wallets but produce a large flame when opened, have been sold as novelty or magic props.

The ACCC tested a small number of fire wallets after receiving a complaint from a member of the public, and discovered some contained asbestos.

‘The wallets were sold by an eBay trader and at a stall at this year’s Royal Melbourne Show,’ the ACCC said on its website.

‘Consumers are warned that these fire wallets may contain asbestos and therefore may be hazardous.’

The eBay trader, All Media Collectables, has told the ACCC it has recalled the fire wallets and plans to contact all affected customers.

Anyone who has purchased one of the wallets has been warned to double-bag it in durable plastic bags, store it well out of reach of children, and contact the ACCC for advice about safe disposal.

iatp speech

Christine Winter made a very stirring speech at the DAST meeting on friday Christine is trying to get the Awareness to . Mr and Mrs  Public. I think this is the way to go Pye charts and figures dont sink in to the ordinary public. We dont want to scaremonger either but they need to know that asbestos is around today and it seems to by more dangerous as ever as we are hearing of children as young as 8 so it doesnt even have time to sit the festering like It did with me-It was 30/40 years but something is hap penning and people are dieing  sooner.

Christine’s speech ————-

I share it here IATP Speech at DAST Conference yesterday Good Morning Ladies & Gentlemen. My name is Christine Winter and I am here today representing the Independent Asbestos Training Providers – IATP.
IATP is an umbrella organisation for companies that deliver asbestos training; presently IATP represents 90 individual training companies.
Since inception in April 2009 IATP has recognised that we as an organisation have a responsibility within the sector to raise asbestos awareness and demonstrate that we as part of the asbestos industry sector have a social conscience and contribute to organisations who work with, support and care for those impacted by exposure to asbestos.
You are all aware of the devastating effects of asbestos exposure and I am not going to go through well known facts, figures and statistics, the focus has to be on a global effort to Ban Asbestos, ,mining, export and use of in products, Education / Training is vital for the prevention of exposure. We are very lucky in the UK, our legislation and regulations dictate the standards required for asbestos training. This protects our work forces, however there is no legislation covering Mr & Mrs Public, homeowners. Properties built before 2000 in the UK have the potential to host asbestos containing materials (ACM’s) there is no official estimation of the number of properties ..

As training providers how can we educate the public, it is very difficult as there is no requirement or legislation covering home owners or DIY. So this year IATP Partnered with the British Lung Foundation for phase 2 of the Take 5 & Stay Alive Campaign, which is directed at the trades and the public.

To date our Members have distributed 30.000 pocket books and to their credit the meso warrior community UK and AU have been distributing in Gp Surgeries, Hospitals, Hospices, Post Offices, everywhere that members of the public use. Pocket books have been taken to the Senate USA by our partner ADAO and presented to the authorities in the Netherlands.

For the last 2 years IATP has supported DAST by hosting fund raising events, our 1st Annual Dinner, Awards and Auction took place in 2013, Casino Royale, where we mixed fun and fundraising with a serious twist.

It is important that industries are aware of the other side of asbestos, the fall out. We have a very special annual award called the Meso Warrior Award, this year it went to Mavis Nye, Mavis is 73 and has mesothelioma, she campaigns relentlessly and has released a video via the BLF called Prevention. Mavis came into contact with asbestos by washing her husband’s clothes. Our other special award is Global Impact which this year went to USA Based ADAO, Linda Reinstein. The other categories are, Industry Innovation. Lifetime Achievement. Making a Difference and Outstanding Contribution. All the awards are sponsored.

Mavis delivered a powerful speech at Casino Royale, never have I seen a room full of business men and women so moved, she stole their hearts, and importantly she changed perceptions. She is somewhat, our National Treasure.

To mark mesothelioma UK day IATP organised a sponsored balloon release to raise funds, the event was sponsored by UNITE and Thompsons Solicitors, the venue was sourced and arranged by the GMB. Our members, individuals and organisations from as far away as the USA sponsored balloons in batches of 10. A small team of volunteers from IATP and our Events Team blew up and transported the cargo from Redditch to Derby. It was a great success, well covered by the media, however all of us who participated have made a solemn vow that we will never do balloons again, it took weeks for our fingers to recover!

Our next event is the Great Gatsby in March 2014, these events pay entirely for themselves and raise funds for DAST. Importantly they bring the business community face to face with Charities, sufferers, widows and widowers. Yes we all know about asbestos, we train it every day or work in one sector or another, rarely does our sector have the opportunity to meet the reality face to face. We hope some of you will join us.

We have partnered with many organisations; our positive relationship with the UK Unions is invaluable, Charitable organisations and campaigning groups in the UK, US, AU, Netherlands. The message is the same, educate to manage it safely, work on it safely and deliver the best training to ensure safe work practises. Presently prevention is the only option available to stop asbestos exposure, IATP promotes education and training, by working together it’s an opportunity to make a bigger difference.

Asbestos isnt an appealing subject, however I would like us to take a look at how the way we communicate is changing via visuals and art.
In addition to training and raising awareness other countries are looking at innovative ways of not only involving communities, educating communities. In AU this month 4 live shows will be performed, DUST!

With powerful visuals, music, dance, participation from sufferers. You can access the trailer via You Tube. This has been driven by the legacy from Hardies Industries, much like we have a fall out from Turner and Newall and Cape, to name a few.

Another young artist has produced a powerful asbestos print called “The Female Face of Britain’s Asbestos Catastrophe” we are lucky enough to have one of the limited editions donated by Laurie Kazan Allen (IBAS) for the Annual Dinner Fundraising auction. We also have a unique piece of art work donated by ADAO. Justice has no Timeline.

Another powerful visual is “The Female Face of Meso. Dying to be heard”. From right to left. Lou Williams-AU. Heather Von St James-USA. Debbie Brewer-UK. Janelle Bedal- USA mesothelioma warriors who tirelessly campaign to raise asbestos awareness via social media and organisations, and strikingly it shows that asbestos-mesothelioma does not discriminate between young or old. Sadly Debbie in her 50’s and Janelle in her 30’s lost their fight with mesothelioma this year.

The Last Mile by Barbie Minty McQueen, another artistic visual journey of her last mile with husband Steve McQueen, who died of mesothelioma. We are lucky to be in possession of a signed copy for the 2014 auction.
Asbestos isn’t an appealing topic, engaging the arts, performers is an innovative way of engaging the public and getting the message out there.

& That is what it’s all about, getting the message out to the majority.
Together Change is Possible
Thank you for listening and Thanks to DAST for inviting IATP to attend.

Rays Blog

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