Living With Mesothelioma -MY Diary- More Storms. and a Stormy Discussion in Parliament on Tuesday with the Mesothelioma Bill

Well Saturday was a very quiet day for us as we woke up to heavy rain again So windy but thats how it has been for many days now so we are getting used to it.

The seas have created such wonderful pictures but not so good if you live by coast with Wales being very damaged now.

In the south we are loosing our cliff’s into the seas.


Its been the height of the waves that have amazed us. People still walked out on jetty’s and promenades some with little children.

There is a slide of very amazing photos here.

Its funny when you live in the UK that if you took away the conversation about the weather we would have  nothing to talk about, where ever you are, in a shop, on a bus, on a train, if you talk about the weather it breaks the Ice and you are talking away like your old friends. Love being English.

Yesterday Jan and I made the google report of news on Mesothelioma. We both had our blogs together which is a first time I believe.

Jan is getting on great and returning back to a clear head and to a plan which has put her back on the right Pathway.

We did get a great to tip that if you are in a wheelchair or sitting all day or in bed, Bubblewrap can help with pressure points so helping not to get bed sore. What a great idea.

I still use my foot machine and I have it higher to really work the muscles as Im shocked at how bad I walk now. Last year I was out on dog walks and now because of falling over I can be trusted to go out on my own. Im getting really bad pain in the nail bed of my big toes. It only comes on now and again and in the night it breaks through my already doped, sleep.

The nails are going like a plastic. I have had this before and then I have lost the nails. They do grow again.

It is all to do with the chemo killing the good cells. Like my thinned hair but I keep that very short so it looks thicker when I blow dry it after I have showered and washed my hair.

We have a few Warriors getting into trouble and the Mesothelioma is gaining ground. Something I know my slow grower is doing, but some are growing faster now and taking over and trying to win.

It gets discussed about Hospices, whether we should or should not use them.

I use them when I need advice as I have over breathing and making sure I breath right when out walking up hills etc etc.

They have all the facilities for excising and health and diet information and make sure that healthy food is being eaten.

But I have seen first hand how they help with pain control and also with the end of life. They are so peaceful and the patients family can sit with their loved ones for as long as they like.

So many kind people so the patient is shut away in their bedroom at home but in a room with other people to talk to.

Something I want to look into is  Complementary  therapies given in the hospice are truly holistic, helping to ease physical pain, anxiety, and spiritual distress.

Therapies are given free of charge as part of the medical care at Pilgrims Hospices and are offered to all patients, whether they are in one of the hospices or at home. They are also available for carers.

There is a day service where you dont stay in so you go back home each evening.

My one has a good web site as will all the others through the country.

We have woken to a wonderful sunny day today but also know it is the calm before the storm as we have a huge storm on its way before the end of the day.

We will have to batten down again.

We have the Mesothelioma Bill back in Parliament on Tuesday. We will be watching the Debate again.

A good write up in the Rochdale News :-

Specialist lawyers from Irwin Mitchell are urging MPs to amend the Mesothelioma Bill currently going through Parliament to ensure sufferers of the terminal asbestos-related cancer receive ‘fairer’ settlements.

The Mesothelioma Bill, is undergoing a final revision process and is set to be debated once again in the House of Commons on Tuesday 7 January 2014.

However, current proposals set out in the Bill would provide those sufferers from the asbestos-related disease who cannot trace a relevant employers’ liability insurance policy with just 75 per cent of an average civil compensation payout – something lawyers and victims believe is unfair.

Now campaigners, including the Forum of Asbestos Victims Support Groups-UK, law firm Irwin Mitchell and MPs across all parties are urging the Government to agree a last minute amendment raising this payment to 80 per cent. Irwin Mitchell’s research shows that if payouts are capped at 75 per cent of average compensation, mesothelioma victims may miss out on around £43,000 based on a typical settlement.

Expert lawyers at the firm, who have written to MPs of all parties about the Bill, say victims are very disappointed that settlements, which would be paid out under the new scheme, are to be limited to victims of mesothelioma only, and are intended to be 25 per cent lower than the current average compensation for people suffering from the asbestos-related cancer.

These funds provide some financial security for loved ones as well as paying for care, aids and equipment during the final stages of the illness.

Geraldine Coombs, a specialist asbestos lawyer at Irwin Mitchell in Manchester who has represented many victims, said: “It takes decades from the initial exposure to asbestos for symptoms of a related illness to appear, but once they do the consequences are devastating for those families affected.

“In some situations it is impossible to find evidence of victims’ employers’ insurance records where firms have ceased to exist many years ago. While the Government has tried to address this issue with the promise of a scheme to help those who cannot trace a relevant employers’ liability insurance policy, many asbestos victims will be left high and dry by the technicalities in the proposals.”

It is understood that the 75 per cent figure is to prevent the insurers passing on the costs to businesses in the form of higher premiums for employers’ liability insurance, but over the long term, a payment of 80 per cent of average compensation would keep the payments below a threshold identified by the insurance industry and should prevent them passing on costs to businesses.

Coombs added: “Obviously, receiving 75 per cent of the average compensation is better than nothing but by only providing victims and their families with a fraction of the typical amount means mesothelioma victims will miss out on tens of thousands of pounds.

“This also doesn’t take into account that no two cases are alike and the individual circumstances of each person and their family are completely different. It is particularly hard to understand when the Financial Services Compensation Scheme provides 90 per cent compensation.

“Mesothelioma cases by their very nature are complex, often going back 40-50 years and involving very detailed investigations. Mesothelioma victims have faced many legal challenges in recent years. This is yet another one. What they really deserve is full and fair financial security for their families.”

It is estimated that more than 300 mesothelioma sufferers a year miss out on compensation solely because their former employer’s insurers cannot be traced as a result of serial failures by the insurance industry to keep proper records. From January 1972 it was compulsory for employers to have Employers’ Liability insurance cover and the evidence is that the overwhelming majority of businesses had it before then.

I have emailed my Local MP to make sure he votes for us, and Tracey Crouch is going to be there bless her she really has worked so hard -I dont know if they have brought her back on the working Committee again I do hope so.

Rays blog


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