Living With Mesothelioma -My Diary- Im excited about the House of Lords Monday to the Launch of the Lord Saatchis Bill


I have been asked to Attend on Monday to the Presentation Of Lord Saatchi Bill at The House of Lords

I have invited one Warrior  and of course Ray and then Prof Fennel ask to join me and Verastem Director and they run the Command trial. I sent in my question and then I get an email as they have become very interested in my 5 year survival and no treatment available. I have been able to write about all our problems we have, and teach them about Mesothelioma.

Raising an eyebrow he has just asked me if Ray was a miner ——just when I thought Mesothelioma was understood. ???

I also on Monday Afternoon doing an Interview with  Prof Fennel  and Verastem Director for IATV. A busy day I have no time to be ill !!!!

Here also is the details of the  lobby of Parliament on 25th March in the House of Commons 4pm-6pm. We are looking for patients, and/or their families, to attend with their constituent MP so that we can get this issue onto the agenda of backbenchers.cate MPS  I have to attend  on the with my MP so I have asked if mine is going ‘

So if you can attend send a Invitation to your MP and lets make sure there are plenty on PM’s  in the room.  xxxx

Call to Action

On 21st January, in the House of Commons, Geoffrey Clifton-Brown MP chaired a discussion with Empower: Access to Medicine and the Health Minister, Earl Howe. Leading minds from the medical, political, pharmaceutical and patient advocacy world came together to debate the barriers that prevent medicines from getting to those who need it.

We are currently in the process of producing a report summarizing the discussion, so keep an eye out for it on our news page. In the meantime you can read this blog by Steve Bates, CEO of the BioIndustry Association, who took part in the debate.

Although the Minister was clear in his commitment to life sciences and admitted his frustration at the pace of progress, what was less clear was the timescales behind the Government’s ambition for accelerated access. The fact remains that lives are at stakewhile we wait for action.

How do we make progress?

We need to demonstrate to the Government and Parliament that this is more than a policy issue; the lack of progress in drug development affects real people and real lives.

That is why we are hosting a lobby of Parliament on 25th March in the House of Commons 4pm-6pm. We are looking for patients, and/or their families, to attend with their constituent MP so that we can get this issue onto the agenda of backbenchers.

If you would like to get involved, or support the event financially please contact the campaign team through the website www.accesstomedicine.co.uk.

This lobby of Parliament will hear from leading politicians, pharmaceuticals and patient advocates to explain how and why things can be done differently.

It is through educating our elected representatives that we can really bring pressure to bear to ensure that we change the system for the better.

http://www.accesstomedicine.co.uk/

 

Please sign the Petition here as well —  http://www.accesstomedicine.co.uk/

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