Living With Mesothelioma-My Diary- Bad News But I expected it really. So Royal Marsden Here I come.


I have been to the hospital today and we were so nervous as we travelled by car and then the hospital bus.

Good to see they have started the work in the New Dover Road Park and Ride for the New Motorhome Aire it looks big but we have to wait and see what it looks like.

So we got to the hospital in plenty of time but My Oncologist was late anyway. A couple went in first and I was really getting worked up.

At last it was our turn and we had a good old chinwag about my exploits at the House of Commons and how I got to be sitting on Lord Satchie’s panel. We all relaxed and laughed and then I remembered why I was there. I asked if it was still growing. Yes it was. Icm in 3 months in every area. No new growth. That means the marker tumour is 46mm.Thats why Im in pain you just know whats going on.

I was given a prescription for water tablets as my ankles are so bad and I said I cant keep sitting down with my legs in the air as you cant keep me sitting in one place for long.

My Oncologist said that Im at a stage where I dont need Scans as it is now down to how well I look.

I said I will always like scans so ok I will have them.

I said is it time for the Royal Marsden as I have talked to so many Mesothelioma Specialists and no one has anything for 5th line. In Fact one did suggest the Royal Marsden to me.

My Oncologist was so pleased I did suggest as she had trained there so knows how they work. It is kind off like a Hospice with the treatment there. They do practise Innovation there which truly pleases me.  So I have to wait for the Letter of referral and the answer.

We shook hands and that could be the last Im a patient under her wing. I did give an extra squeeze of her hand as Im so grateful for all the 5 years of help we have been through a lot.

I will see her again as Im still a patient rep and I see her at the Lung Dog Meets. I should be able to bring new ideas to the table now.

So we have worked out that we can get there by car easily from Kent. It is accessible by train if we change at Victoria and then catch the underground to Sutton Surrey so Ray is content there.

The Royal Marsden's Chelsea hospital

The Royal Marsden is a world-leading cancer centre, providing treatment and care for more than 50,000 cancer patients every year.

It is also at the forefront of cancer research. Its work influences how all cancer patients are treated and cared for, not just in its own hospitals but all over the world.

The Royal Marsden Cancer Charity supports this pioneering work. Thanks to our supporters, we are able to help The Royal Marsden continue to push boundaries and raise standards of excellence.

When people support us, they help everyone who benefits from the work of The Royal Marsden. Scientists searching for cures. Doctors who depend on the latest cancer treatments and technologies. And, of course, cancer patients and their families.

Together, we can keep making life better for people with cancer and keep striving towards a future without it.

http://www.royalmarsden.nhs.uk/diagnosis-treatment/cancer/pages/lung.aspx

They do so much in Mesothelioma I will have to wait until my appointment to find out what it all means.

http://www.royalmarsden.nhs.uk/cancer-information/patient-information/booklets/eating-well.pdf

Great information on diet at this link to eat and keep healthy.

They also say —–In recent years, there has been a lot of interest in diet and cancer,

and, in particular, ‘complementary’ and ‘alternative’ diets. Some
people have claimed to cure or control cancer using a diet and
people are often confused as to whether or not they should follow
one of these.Eating well when you have cancer
There have been few clinical trials or research studies to see if these
diets do what they claim. To date there is no specific evidence to
support claims made by complementary or alternative diets. It is
unlikely once you have cancer that any change in diet will have a
similar benefit as the medical treatment.

So I now have a plan to work by as we all wonder how to eat with Cancer.

So thats all my news for today. I have had my Family on the phone and I can hear their sadness and yest Im very excited as I have a new pathway to follow when I thought I had none.

Rays Blog http://mesoandme.wordpress.com/2014/04/03/thursday-84/

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3 thoughts on “Living With Mesothelioma-My Diary- Bad News But I expected it really. So Royal Marsden Here I come.

  1. I don’t know whether to rate this as 5* or not. It’s -5* for the actual news, but +1000000* for your positivity. It’s still a hell of a ride … 🙂

  2. Mavis – sorry to hear that, but the people at the Marsden will do everything they can for you. Viv had great support there, they are the best. if you need any help with details of the various departments, or getting there, let me know. Bus 211 goes directly to Fulham road, stops outside the Brompton (next door to marsden), and it’s only about 200yds walk to the outpatients side entrance of the marsden. Direct from Waterloo and Victoria stations.

    • If you go to Victoria on South Eastern trains you can out of the far side entrance (Buckingham palace road) rather than the main front entrance. Buses go from outside the fancy hotel!

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