Living With Mesothelioma-My Dairy- Police Helicopters flying over head–The Saatchi Bill we only have a few more days please sign

A very slow day yesterday so a lazy weekend. We wanted to go away but I just cant raise the mojo to pack the Motorhome. I cant let each day roll into another like this. I cant waste the precious time, and yet time with Ray and Louis is never wasted as we live another day together.

I think Im on edge about the hospital appointment. I will chase things tomorrow. All this waiting for appointments, scans, treatment, help with our illness it is wasting time I dont have.

I enjoy tidying up everyday and playing housewife better than a patient though. I managed to get everything done while Ray walked Louis, they seemed to tke longer. I like being able to get on, then I think they are taking a long time, and then I start to panic. What if a car has hit them etc etc , the mind goes into over drive. Then I see them coming up the road and Ray says Oh I bumped into so and so we had a chat.

I like nothing has happened, Oh thats nice.

We went to bed last night, I dropped of in my drugged state and was dreaming about a noise that went on and on. I woke up and I wasn’t dreaming.

Lights were shining in my bedroom window so I leaned out and twisted the pole to open the blinds.

A helicopter was very low, very very low.

He was traveling over the homes in huge swoops and so noisy.

This went on for ages and Ray never even stirred.

I wonder who they were looking for. We do get lorries stop  in a layby and they drop off Immigrants so they work on a farm by us.

We do have an estate by us that have naughty young people.

Cars get stolen and they race along the Thanet Way so whether they were being chased and the dump the car and ran for it. All that happens just like the telly but we have to lay in the dark to try and drop off again wondering if the person they are looking for is in your garden.

The mind works overtime on so much doesnt it.

Little Bit amazed at the fact Noel Edmonds is trying to buy the BBC. How strange as out of the blus the story reached us yesterday.

(The BBC should be run as a not-for-profit organisation with adverts and product placement, Noel Edmonds has claimed.

The ex-BBC star turned Channel 4 presenter said the licence fee was “no longer appropriate” and the corporation was “sleepwalking towards total disaster.”)

It would do away with having to pay the licence fee I suppose.

I do love his Deal or no Deal but to see him taking over Strictly come dancing when Bruce finishes.

Weird times this .

Noel Edmonds on Alan Carr Chatty Man

“It’s been fascinating who’s approached me in political circles, people within the BBC, members of the public and some very wealthy people in institutions say this is not the maddest idea ever. It needs a change in the Royal Charter of course but it’s coming up for renewal and unless the politicians do something we are going to have a situation where how much of the BBC is going to be cut apart?

We live in Crazy times so anything is possible

With only a few days to go would you please sign for the Bill if you havent alreadyRight now, the government is deciding whether to pass a new law, the Medical Innovation Bill, that will help doctors to find new treatments safely and responsibly for cancer and other diseases.


lord saat

For Harrison, 8, who has Duchenne — a 100% fatal condition — and those with cancer and other diseases it is a matter of life and death.

Standard treatments for rare cancers and other less common diseases often don’t work. And in many cases they haven’t changed or been improved for years.

This leaves the patient with a terminal illness no hope, no choice and no chance. 

The law makes it hard for doctors to try new treatments — even when they know that standard procedures are not going to cure the patient.

Offering only the standard procedure guarantees the doctor will not be sued. 

Safely trying something new leaves the doctor open to litigation and the loss of his or her job. 

This is why current law is a barrier to innovation — it creates a culture of defensive medicine in the NHS. 
The Medical Innovation Bill will remove this barrier and help doctors innovate safely on behalf of their patients. 

Jeremy Hunt, Health Secretary, said he would pass the Bill into law but only if the public say they want it. 

Hunt said: “The government should do whatever is needed to remove barriers that prevent innovation which can save and improve lives. The Medical Innovation Bill…correctly identifies the threat of litigation as one such barrier.

There are 33 days left of the Department of Health public consultation and we need your voice.

Help us ensure the Government keep their promise.

“The Bill seeks to support doctors who endeavour to act in the best interest of their patients without the fear from litigation.

“It deters from irresponsible experimentation but encourages a much needed attitude change of innovation in the provision of care to patients.” 

Professor Ahmed Ashour Ahmed, Professor of Gynaecological Oncology, Consultant Gynaecological Oncology Surgeon and Scientist, University of Oxford

Click. Sign. Change medical history.

More info:
The Bill, inspired by Lord Maurice Saatchi has been drafted with help from eminent clinicians, lawyers and judges including Lord Woolf, Former Master of the Rolls and Lord Chief Justice, Baroness Butler-Sloss, former Lord Justice of Appeal and leading Professors from the Oxford School of Medicine, among others.

Rays Blog


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