Living With Mesothelioma – My Diary- cnm training Christine Winter is my guest blogger this week

Im all for trying something new so I have asked a dear friend to be a guest blogger as we have worked together I as a Patient and Christine in the world Of Asbestos Training.

We will never rid Asbestos totally from our lives as the problem is to huge and to expensive so we have to live along side it and  manage it.

Education and training is needed and to a high standard. Mark and Christine run a very successful Company

Christine is with us Mesowarriors on Facebook and I always ask her advice when it comes to understanding the law on Asbestos.

I thought it would be great to see understand her views.

















Q3- What is the back ground –when did you two meet and where ?

I met Mark at Orange (Darlington) in 2000, I was a trainer and Mark worked in logistics. His office was in the building we used to train in. I was telling my colleagues about a wonky shelf my friend and I had put up, Mark offered to come round and fix it and cook dinner! How could a girl resist?

Q2 – When did you start working together in other words when was cnm born ?

2002 we both took voluntary redundancy from Orange and cnm property solutions was born (renovating properties). I went to work for ACAD (Asbestos Control & Abatement Division) ACAD soon realised Mark was an ideal trainer and he commenced a short stint of delivering their asbestos training. cnm training solutions limited evolved in 2004, we waved a cheery Goodbye to PAYE and we haven’t looked back since.

Q3–Why did you start and who thought of it. Was Mark already in Asbestos and did you have a reason to come into the Training?

Mark left the UK when he was 19, he emigrated to South Africa to work, he then emigrated to Australia where he worked in varied sectors including construction / which included asbestos products, he also trained a raft of apprentices which obviously accounts for his ability to deliver training and instruction. He returned to the UK in 1999, already exposed to asbestos and exposed to cyanide poisoning. We kind of fell into the asbestos training sector, I think you either love it or hate it, you have to have a passion and drive in this sector, it is a small niche industry sector with a huge responsibility to deliver quality training about a subject matter that is not particularly appealing to many people. There are 3 types of asbestos training. asbestos awareness, non licensed (for trades people) and licensed for those companies that hold a license from HSE to remove asbestos. We specialise in non-licensed and licensed, which is heavily regulated by HSE.

Q4-How successful is the business, what problems Occur with HSE?

Asbestos training in the UK is the law, there is a legal requirement to refresh training every year, apart from asbestos awareness. Unless the law is changed I think the good training providers will survive. Although the sector for licensed contractors is getting smaller and the trades have not fully embraced their requirement to be trained. HSE has taken massive cuts to their budget with more being forecast 2014/15, the temptation to allow the sector to self regulate must be strong, however self regulation may not necessarily be the best solution for the asbestos sectors.

Q5– Personally I would like the government to extend the Duty to Manage Asbestos to people’s homes. Millions of homes across the UK contain asbestos. There is an assumption that because asbestos is banned in the UK that the problem no longer exists. How surprised were we when we had our kitchen ceiling artex tested and it came back positive for chysotile (white asbestos) potentially our nation of DIY’ers could be exposing themselves and their families to a deadly carcinogenic. Asbestos products can be worked on, you just need to know how to do it safely, you need to know how it can be identified, what you can and cannot work on and what needs to be dealt with by the experts! & when you do hire an expert ensure that they have been trained and come with recommendations.

I would also like to see the very concerning situation of asbestos in schools addressed, our children are our future. The youngest person to die of Mesothelioma in the UK was 17. To think that we are exposing our children to asbestos in schools, an environment that parents believe to safe is complete complacency and totally irresponsible.

Most of all, I wish there was a cure for all cancers, & especially asbestos related cancers. It is heart-breaking to watch your friends, acquaintances and the warrior community battle with treatment, in some cases for treatment, too loose their lives to a totally preventable disease. We as part of the sector have a lot to answer for, one day we will achieve a worldwide ban, and that is just the beginning, a worldwide clean-up will be a challenge, for all countries.

Christine Winter cnm training solutions limited.






Living With Mesothelioma -My diary- Still no news of the Saatchi Bill – A doctor has died of Mesothelioma and a Mesowarrior is asked for her comments

Yesterday was a very normal damp day. Summer ???
I had a busy time on my Computer in the morning some days are like that as help is needed by warriors and I have to research for answers to problems but we get there in the end.
I love researching as I find new knowledge for my self as well. We are always looking at new trials and drugs as the Saatchi Bill will soon be in but at the moment it has gone quiet so it must be very time consuming getting the Law right and rewriting the Bill.
I closed the Den and had lunch as we had decided to go shopping and fill the freezers up so that we dont have to worry next week. The Royal Marsden is getting closer again. They should have my results in 2 days time and be deciding if Im in the trial I want or at least what trial Im suitable for.
I did the washing and the fur seat covers for the Motorhome but I had left a plastic bag in there so when it was all finished spinning the bag held water and the cover was soaked. I thought I would clean out the filter and got the hand book and was following instructions. It said put a cloth down to catch the excess water. Ha ha !!! not good. A gallon of water shot out.
I had to mop it all up. The machine had to be pulled out and I kept telling Ray let me do it but no he had to do it. Crack went his back. Guess what it has cured his pain in his back and he could stand upright. Well that was a surprise. I moped all the water up and we pushed the machine back. I was able to spin the cover dry.
There is another report of a Doctor’s death in the papers and Beccy was invited to share her thoughts by the Oxford news.
Beccy is a Mesowarrior having lost her father to the disease last year. We first met in 9th May 2013 and her father passed away so quickly with Beccy fighting hard for his treatment.She said in May last year –  Yeah he is doing well, he’s got a bit of a cold at the minute so he’s feeling a bit rough, but other than that he’s been good, how is yours, are you well xxBy the September Beccy messaged me —doc came round & told me she’s been watching dad closely & thinks he’s deteriorating rapidly, she said she thinks that it won’t be long after we get home Monday, even tho I know things aren’t good, me & my sister just can’t seem to accept it  feel so emotionally & physically drained xxxIt shows you how fast the disease goes at the end.Now she is talking in interviews that is so brave of her. I admire her courage and her Awareness of asbestos and Mesothelioma

A DOCTOR from Wallingford died after years of exposure to asbestos when he was a medical student, a court heard.

Oxford Mail: Andrew LawsonAndrew Lawson

Andrew Lawson, 55, who died from the cancer mesothelioma in February, contracted the disease as a consequence of training at Guy’s Hospital, London, from 1976 to 1982.

Oxfordshire assistant coroner Peter Clark ruled yesterday that the father-of-three died of the industrial disease.

Dr Lawson’s wife, Juliet Lawson, 53, who is also a doctor, said in a statement: “Andrew could not think of any significant source of asbestos … except for the underground tunnels at Guy’s.”

She said that after her husband, who lived at Thame Road, Wallingford, was diagnosed with the inoperable disease in 2007, he was contacted by a professor who had also worked at the hospital and had contracted mesothelioma.

A statement made by Dr Lawson before his death was read out as evidence at Oxfordshire Coroner’s Court.

He said he was exposed to asbestos-coated steam pipes in underground tunnels that connected the medical school and the hospital.

He added: “There were always people doing repairs.

“Typically, I would make three or four return trips each day.”

Dr Lawson reached an out-of-court settlement with the hospital and medical school in 2009, which included a confidentiality clause.

His solicitor, Andrew Morgan, told the Oxford Mail: “Dr Lawson is one of a number of tragic cases for mesothelioma we have brought on behalf of former medical and dental students. But we know there are other cases across the country.”

Calls have been made for more research into the issue.

Rebecca Lewington, 31, whose father Larrie Lewington died from mesothelioma last October, after being exposed to asbestos while working for Witney-based Kidlington Insulation in the 1970s, said: “It’s a horrible disease from which there’s no coming back.”

Miss Lewington, who lives in Eynsham, added: “There’s got to be more research being put into this, especially considering this is a man-made disease. These people didn’t need to die.”

A spokeswoman for Guy’s and St Thomas’ Hospital said: “We didn’t accept liability at the time the claim was made. We are very sorry to hear that Dr Lawson has died, and extend our condolences to his family.

“The asbestos in the basement area concerned was removed in the 1990s.”

After being diagnosed, Mr Lawson was forced to retire at the age of 48 from his job as a consultant in anaesthesia and pain management at the Royal Berkshire Hospital in Reading.

Rays Blog

Rays Puzzle

Living With Mesothelioma -My Diary- Rain again boring !!!

rain 2







Oh no another day of rain yesterday and the roads are flooded as the water doesn’t drain away. The water table must be full.

It was a stay indoors boring sort of day but so pleased we came home from camping a day early as the field we were camping in must be very wet and we had already sunk into the grass so that must be very soft by now.

I had a very painful day yesterday the old lung was really playing up so popping pills sent me to sleep yesterday afternoon. The drilling pain in the shoulder is so annoying and the ribs hurt. Im really ready to give the trial ago as I cant let Mr nasty get the better of me. So many of us Mesowarriors are trying to fight but the Meso keeps winning. I know I haven’t anywhere near the pain of some of our brave warriors but time is running out.

I have had this lovely message from a friend —-Dear Mavis.
My father-in-law passed away last May from mesothelioma. He had worked in the petro-chemical industry for thirty years where he was exposed to asbestos.
My mother-in-law died of lung cancer back in 1990. Neither of them smoked. I wonder now whether she too suffered as a result of washing his clothes? We will never know.
The reason i write is to try and enlist your support. I admire what you are doing and feel it’s vital we raise awareness of this condition and the hazzards of asbestos.
I am a lecturer and have written several novels. One of which, Eden Relics is available as a Kindle download or as a paperback. I am donating all author royalties to Mesothelioma charities – for the rest of my life anyway.
I have donated some funds to Mesothelioma UK and have set up a Just Giving page for another worthy charity.
I’d be grateful if you could bring it to the attention of your groups.
Best wishes,

Eden Relics (A Zac Woods novel #1)
Every day I keep watching for news from the Saatchi Bill but it is all very quiet at the moment. The new edition must be taking some time to write up. I hope we have more news soon.
Always believe the answer is in the plant world to find a cure for cancer. There is so much power in plants.
(NaturalNews) Hospital antibiotics have become one of the most over prescribed “medicines” today. As a result people have ruined their digestive systems, and ironically, have lowered their natural immunity to all types of infections in the future. Get rid if infections without the digestive destruction, with these five powerful natural antibiotics.


Garlic has been used medicinally by cultures around the world for thousands of years. In fact, it was used in the 1700s to ward off plague.

Garlic possesses potent antibiotic, antiviral, antifungal, and antimicrobial properties and is able to help protect and facilitate removal of unfriendly bacteria. It is also very high in natural antioxidants that destroy free radicals, which also supports a strong immune system.

The active ingredient in garlic, allicin, is the key component to killing and warding off harmful bacteria. Crush it to activate these compounds, and eat it raw, in a warm tea, or in lightly cooked food.

Colloidal silver

Colloidal silver has been known as an effective antibiotic for centuries. In the early 1900s, Alfred Searle, founder of the Searle pharmaceutical company, discovered that it could kill the most deadly pathogens.

Searle stated that applying colloidal silver to human subjects has been done in a large number of cases with astonishing results. The main advantage was that it was rapidly fatal to microbes without toxic action on its host.

Recent research has also stated that colloidal silver can destroy antibiotic resistant microbes like MRSA, the bird flu, and SARS.

Oil of oregano

Oil of oregano takes care of pathogenic bacteria without disrupting beneficial bacteria. It is also antiviral and antifungal which makes it a powerful three-in-one combination that rivals pharmaceuticals while not encouraging antibiotic resistance.

The key antimicrobial ingredient in oil of oregano is carvacrol. You should ensure that your source is at least 70 percent carvacrol content in order to be effective.


Echinacea has been used to treat a wide variety of infections for hundreds of years. Traditionally, it was used to treat open wounds, diphtheria, blood poisoning, and other bacterial related illnesses.

Today, this potent herb is used mostly for colds and flu, due to its ability to destroy the most dangerous forms of bacteria such as staphylococcus aureus, which causes deadly MRSA.

Manuka honey

Perhaps the most palatable antibiotic comes in the form of manuka honey. Applied topically it can kill a wide range of pathogens including MRSA and flesh eating bacteria. It was also found that the treated bacteria did not build up any resistance, which would eventually render manuka honey ineffective.

This is certainly not an exhaustive list of natural antibiotics, but a great start for an all natural pharmacy. Also consider reishi, pau d’arco, una de gato, olive leaf extract, cloves, turmeric, and even lemons to round out your antibiotic arsenal.

Learn more:

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Rays Puzzle


Living With Mesothelioma -My Diary – A visit to Hole Park. A friends book is published raising money for Mesothelioma UK

A bank Holiday has past and the weather changed to wet. What a shame so many families were out and about trying to skip the rain.

I had cancelled going to Hamble as I had the appointment for Marsden and then the Marsden cancelled their appointment. So we just went local to the Camping and Caravan Club rally at Hole Park Rolvenden.

That was an easy journey for Ray who soon has to keep driving to the Royal Marsden  every week.

We arrived to a field full of Caravans and Motorhomes in three fields so it is a very popular site where you can hold more than one group.

The weather was good and we sat in a circle of members chatting and keeping up with each others news.

Saturday was really hot so living out doors was easy.

We walked Louis in lovely countryside with the sheep all bleating away

Sunday as we got up and set off for a walk with Louis a 4×4 drew up and the owner of Hole Park had a chat with us. He was so nice and friendly. He said how he and his wife run it all. His wife does all the cooking. He has a black Labrador that walks all over the grounds, what a lovely life for a dog and so much to walk through. he visited the children who then walked him around it looked like the Piper of Hamelin. so funny.














He is so proud of his family home. It is the Barnham family who have owned the house for 4 Generations.

 Tucked away in the Weald of Kent, between the pretty village of Rolvenden and the charming town of

    Cranbrook, (www.cranbrook.orglies Hole Park Gardens which has to be one of the best gardens in Kent.

    An attractively laid out, privately owned 15 acre garden, Hole Park is often referred to as a hidden gem, and

    there are plenty of treasures to be found within its walls and hedges.

    Hole Park has been owned by the Barham family for the past four generations and is set in over 200 acres of
superb classic parkland. The colourful gardens enjoy far reaching views over the hills, woods and fields of the
picturesque Kentish Weald. They are a skilful mix of formal design and more
 naturalised planting, giving colour
throughout the seasons.

The house, which is a private family home and therefore not open, was largely reconstructed in 1959 and is now
little more than a quarter of its previous size. It resembles the house as it used to be before additions in the
Elizabethan style were built in 1830.

The Gardens are so pretty although because spring was early we have missed the best of the Rhododendrons which was a shame. but there was still plenty to see.

hole park



The Coach House gives an idea of how large the original house was.


The smaller house is a replica of the very grand house that stood on the land. Maybe this is a great idea for all our old houses to follow as the crumble and are so expensive to repair.



Saturday night the heavens opened and the rain beat down, when we woke up though it was still a lovely day and our family called in to see us which was great.

It seemed central for a lot of families as they arrived to see their Mums and Dads.

Monday we woke up to a cloudy day so we decided to come home and so pleased we did as in the afternoon and just after we got indoors it threw it down again. So we snuggled in.

I found I couldn’t eat my dinner I was so tired. I really must stop cooking so much and do smaller dinners for myself. More like light lunches. A little and often is the rule now as my Meso is progressing.

Please Royal Marsden tell me my Bi-Op is good for go. I cant wait for the 4th of June to find out Im so screwed up inside.

Rays blog

I have had this lovely message from a friend —-Dear Mavis.
My father-in-law passed away last May from mesothelioma. He had worked in the petro-chemical industry for thirty years where he was exposed to asbestos.
My mother-in-law died of lung cancer back in 1990. Neither of them smoked. I wonder now whether she too suffered as a result of washing his clothes? We will never know.
The reason i write is to try and enlist your support. I admire what you are doing and feel it’s vital we raise awareness of this condition and the hazzards of asbestos.
I am a lecturer and have written several novels. One of which, Eden Relics is available as a Kindle download or as a paperback. I am donating all author royalties to Mesothelioma charities – for the rest of my life anyway.
I have donated some funds to Mesothelioma UK and have set up a Just Giving page for another worthy charity.
I’d be grateful if you could bring it to the attention of your groups.
Best wishes,

Eden Relics (A Zac Woods novel #1)

Living With Mesothelioma -My Diary- Take a Break Summer Special NO 2 is out and they have done us proud.

Yesterday was a very quiet day as we were both so disappointed that I hadnt been able to go for my appointment. We both seemed to have it on our mind

Ray wrote a small blog —


Well A surprise today last week I bought a Double Sleeping bag for the camper. But at the weekend when we tried it out only one side zipped up. disappointed. And recently having a shock at the cost of returning an item we decided to live with it. But sitting here today I thought sod it nothing ventured nothing gained, so I posted a note to seller that I did not agree that his item was perfect.
I was astonished to get a response within an hour apologizing and offering me full refund and he pays return postage. No quibble . Now that certainly was not expected. There are some reputable sellers out there.

I have now re wrapped it up readfy for posting back tomorrow. I may venture  later to buying another one.

Well its voting day tomorrow. I must admit I am not busting a gut to  vote. None of them keep a promise .

I dont think Ive done a lot today and as its raining  ,not  been to the park. Ive not even had a nap .  See so I dont sleep every afternoon.


We had a good nights sleep and we seem to be happier today.

Off to the polls to vote which I think I have done it wrong as we seem to have so many people to vote for.  It was a long sheet of  it and so I was wondering it the European elections were on there as well. Very strange.

We did go and buy up the local shops stock of Take a Break Summer Special no 2.

Yes our story is in there and Im so pleased with it.

take a break



So off to the post office and sent the naughty sleeping bag back although the postmaster wasn’t happy about the size of it, but at least that has gone back and I had washed our old one and that has come up great so maybe it was an omen that we didnt need a new one. Ii is easy when making the bed up at night just to throw a sleeping bag on. A double one of coarse.

So onward through Whitstable and through by the Gorral Tank (the local Parking area. It was empty no market and I remebered they are having to repair it. It must be hard for visitors to find somewhere to park though.

Council transport bosses have joined forces with the Whitstable Gazette after the shock closure of one of the town’s biggest car parks.Southern Water closed the Gorrell Tank car park on Monday following an inspection which revealed urgent repairs were needed to prevent it from collapsing.

Engineers say supporting concrete columns have rusted across the entire 245-space site which operates at near-full capacity during busy weekends.

The Gorrell Tank car park which has been closed during one of the busiest times of the year

The car park is sited on top of a large rainwater holding tank, which helps to prevent flooding when heavy rain combines with high tides. The tank is owned by Southern Water and they lease the area to the council for car parking.

Having recently carried out an inspection of the tank, Southern Water have informed the council that the car park must be closed from this date while they carry out important repairs to the concrete columns that support the car park. This work is likely to take many weeks.

So the chaos this Bank Holiday will be very bad

We travelled on and parked in or usual Car Park at Tankerton and that was full of Holiday coaches where day trippers had arrived.

I got out my walker and I was able to have a longer walk to the shops and then carry the shopping in my little bag. I wish I had bought one alone time ago. (Kat you was right )

A walk then back along the sea front back to the car.

Got back home and the skies were black and heavy with rain and we got back just in time.

Now the sun is shinning again so the weekend looks good.

Living With Mesothelioma – My Diary- Oh no Appointment Cancelled -not

Oh what a day. After  waiting all day ans as the hours passed I thought. great no phone call so my appointment must be on. WRONG!!! the phone has just gone 5.40 and a very nice lady was saying so my results are not back. until 31st of May.

Frustrated Woman Pulling Her Hair Out

I tried to sound calm and sweet as well but inside I was so unhappy as I had worked myself up to the fact we had to get up early tomorrow.

It does mean I can fit in days out as I have had my life on hold as I was so worked up about it all

In the meantime Mr nasty is growing on. We Warriors keep putting on such a brave face but we are covering up what is going on  getting bigger and bigger.

So there is just not anything I can do but wait and try and get over the disappointment.

Victory Wood

We took Louis round to our park to let him run off some energy.

He has been so barky all day. He can hear other dogs barking and they are his friends so he thinks he has to answer. When the postman came he runs and skates along the floor on the mats

Planted to commemorate the bicentenary of the Battle of Trafalgar, Victory Wood links two areas of ancient woodland that have not been linked since the mid 20th century.

With information about The Battle of Trafalgar, newly planted woodland and spectacular views over the Isle of Sheppey and Thames Estuary, there is plenty to see and do at Victory Wood, part of the largest continuous wooded area in Kent

It was lovely walking around in the warm although black clouds were rolling in from the west but no rain yet.

This made me laugh today on facebook.

Poor ray this isnt good for him either we are both so disappointed Im going to eat Chocolate tonight or hoover that home out



Living With Mesothelioma -My Diary- A trip to a wonderful farm Shop – A good write up of the new trial Im getting into

Summer still beams on us this is so good for us all. The heat from early morning until late at night – lovely.

Spent a while Skyping to Australia  which was so nice to have a chat to someone so far away.

Ray was still sleeping as he had got up with a painful back so early. He went on the settee and was able to catch up.

We went to Macknade today I never knew it was there at Faversham. I know now.

Macknade’s roots delve right back to the pages of the Doomsday book, where it is declared that in 1084 the Manor of Makenade was part of the possessions of Odo, the Bishop of Baieux…and we all know the importance that men of the cloth, especially French, place on all things gastronomic!!!

Frederick Neame H Wicks Hop Pickers

Macknade has been in our family for well over 150 years.

We have always been at the very forefront of the high quality food and drink sector: from the 1st Fredrick Neame starting to farm traditional Kentish crops, such as apples, pears and hops, in 1847 to Renato Cuomo developing his market garden in 1979, to grow courgette flowers, mangetout and purple raspberries.

The next generation is now on board and into our third century we have developed our food hall still further, added a second in-town grocers, taken on more caterers, pubs and restaurants through our wholesale arm and breathed life into old farm buildings through allowing the development of like-minded business on our site.

With the support of our loyal customers and partners we look to the future with excitement, confidence and a great deal of pleasure.

We have two stores – our Flagship Foodhall at Faversham and a more intimate, traditional grocers in the heart of the town.

Macknade's Selling Road store - click to view larger image

Further directions and details for all our stores can be found below.

Our main store is conveniently situated less than two minutes from the M2 on Selling Road. It’s on the outskirts of Faversham and is surrounded by beautiful countryside in the heart of the Garden of England. With a large car park immediately outside, shopping at Macknade Fine Foods couldn’t be easier! On the site of our main store there is also a Fishmonger, a Coffee Shop, an adjacent garden centre and the Hercules Wine Warehouse. Coach parties are always welcome – but by prior arrangement please.

All very good and I bought lots of new things to try.

Life saved by PD-1 melanoma drug ... Ron Walker / Picture: Jay Town

A good article was published about my trial—Life saved by PD-1 melanoma drug … Ron Walker / Picture: Jay Town Source: News Limited

THE experimental wonder drug that saved Australian F1 Grand Prix boss Ron Walker’s life will be offered to Australia’ sickest melanoma patients.

Hailed a miracle treatment by oncologists, the PD-1 drug will be given free to patients who have no other options.

Following pleas from Mr Walker, cancer doctors, support groups and drug company Merck Sharp and Dohme, the Therapeutic Goods Administration has approved a limited release of the drug even though it is not yet registered for use.

Results so far show up to half of advanced melanoma patients receiving the PD-1 drug known as MK-3475 respond to the treatment, compared to between 10 and 20 per cent using the most effective current treatment, Yervoy.The treatment will be granted to a handful of extreme cases each month. Mr Walker said it was an amazing feeling, knowing others would be given a shot at life. “Without the drug I wouldn’t be here,” he said. “It is absolutely so simple.

“Before I had the drug and I was diagnosed I had a group of four doctors talk to me … and the consequences were very clear: It was just a matter of time.

“I was offered the opportunity to be part of the experiment and I seized upon it straight away, and just look at what happened to me.

“It won’t be 100 per cent successful, but it provides ­people with a chance and that is what they deserve — a chance to get better.

“Melanoma is the fastest growing cancer in Australia, it is everywhere, so people deserve to have the latest technology.”

Mr Walker had his lifesaving treatment in the US as part of a clinical trial last year, then appealed to his friend Prime Minister Tony Abbott, Health Minister Peter Dutton and drug companies to improve cancer drug access here.

The US Food and Drug Administration fast-tracked the drugs’ availability there.