Living With Mesothelioma -My Diary- I have had a positive result so Im in my Trial MK3475- Wonderful Weekend Sun Sea and a good Wine -IATP Newsletter is so interesting

I have had a great weekend away at Palm Bay School Clifton Ville.

I needed this -sun sand and a good wine.








We all parked up in the playground and chatted away on a lawn we found.










Still love my little M/Home xx









Time for a read.











People were having fun in the blue sea.










This sailor couldn’t get his boat to start









He did make it in the end.











Louis had a chase up and down with the waves and now we are home he is worn out and fast asleep.

It has been a wonderful weekend.












There is so much happening I cant keep up with it so a bit at a time.

No 1 is I have had a phone call to say my bi-op test was Positive. I really broke down in tears Friday To the Doctor. I think hth Junee realised how pleased I was .

So I have had a lot of info sent to me and still not what the Trial is really about in it official capacity. I dont think its been written up yet as it is all to new. That doesn’t Phase me. I wanted to be the first and that is such good news to me.

I will have a  scan after the second dose to see what is happening. lets hope something is working so I can go on to the end of the trial.

So Wednesday I go to sign more paperwork and to sort so more tests ie a scan etc etc.

Then I will be given my start date.

Ray and I have been sorting out the fact I have to go in and stay a night when the drug is given to me so thats all sorted and wont be a problem.

I have had a email and all the train times to also give a talk in Manchester at an Oncology Forum that is looking good.for the 19th June and I have to write a piece about Mesowarriors and how we all came about so I will do that tomorrow. Its all very busy at the moment and I just love it.

I love the IATP News letter this month. Not because Im in it but because Bernie Banton Foundation is and a report about their plans for the future.

We all know our Aussie Rod as I have often talked about his through my 5 Years of skyping and we have had long chats through the night.

Mobile Asbestos Education and Awareness UnitThe Bernie Banton Foundation’s Mobile Asbestos Education and Awareness Unit has been developed as a mobile one-stop asbestos education and awareness shop.It has been created to take the subject of asbestos to the masses and make it a topic people are interested to know about!To save on touring costs the unit has rudimentary living quarters, office facilities [including printing and brochure making equipment] and storage area.

It is fully self-contained, and will be able to be set up literally anywhere within minutes.  It has a large roll out awning, and its own power source (12 volt battery powered aided by solar power, with 240 volt silenced generator backup).  Internal natural light and ventilation is via roof skylights (with fan assist) above the sleeping, living and office/storage areas.  This was done to allow clear space on the sides of the unit for promotional branding, without having to allow for windows, etc.

In addition to the mobile unit, to allow added flexibility, it is equipped with two ‘stand alone’ (joinable) 3×3 metre (10ft x10ft) heavy duty ‘branded’ marquees (suitable for indoor and outdoor use) with matching branded banners.

To add to the ‘wow’ factor, it is also equipped with two BBQ hotplates, a coffee machine, as well as an ice chest for cold drinks.

All promotional equipment has been designed to be multifunctional, allowing for use indoors or outdoors.  Equipment carried includes: tables and chairs; fold up display lecterns; A4 leaflet/brochure display stands holding an extensive array of literature; desk; 2 x 12 volt/240 volt video screens with inbuilt DVD players (with own power packs); and a projector with screen for use in indoor venues.

Editorial contributed by Rod Smith BBF Director & Operations Manager

The Asbestos Lie

The Asbestos Lie

The shock waves from the May 22, 2014 European elections continue to reverberate. For someone who sees much of the world’s news through an asbestos filter, the success of the United Kingdom Independence Party (UKIP) is very worrying. In 2013, a UKIP Member of the European Parliament (MEP) Richard Helmer denounced plans to safeguard EU citizens from the asbestos hazard stating that there is “zero risk from white asbestos.” He accused “ambulance-chasing lawyers” of underwriting the attempt by politicians, trade unions and asbestos victims’ groups to implement measures to protect public and occupational health. Unsurprisingly, he cited a paper by scientists working for asbestos defendants to substantiate his claims. There is no shadow of a doubt that with 24 UK MEPs, 31% of the total UK allocation, more attempts will be made to roll back EU asbestos directives.

It was some comfort that at the same time as the developments discussed above were unfolding, news was received that a seminal work about Europe’s asbestos catastrophe had finally been published in English. The original German version of the book – Die Asbestluge [The Asbestos Lie] – by Swiss journalist Maria Roselli had appeared in 2007; it was followed the next year by the French version: Amiante & Eternit: Fortunes et Forfaitures [Asbestos & Eternit: Fortunes & Forfeits]. The Asbestos Lie was published in hard copy and also uploaded to the web by the European Trade Union Institute this month (May 2014).1 While a leading academic has agreed to produce a detailed review of this translation for the IBAS website, it is nevertheless appropriate at this time to point out that one of the asbestos lies highlighted in this book is the attempt by industry stakeholders to “whitewash” chrysotile asbestos. Ms. Rosselli writes:

“The asbestos lobby is still using its old tricks in developing and emerging countries that they used here thirty or forty years ago to interfere in the political process to thwart a solution: there are still the in-house or subsidised studies from ‘scientific’ institutes close to the industry purporting to substantiate the harmlessness of chrysotile. At scientific symposia organised and controlled by asbestos companies pseudo-experts play down the dangers of white asbestos… In this way it’s possible for national governments to still swallow the lie of ‘controlled use’ – risk-free use of asbestos.”

Some months before she died, UK mesothelioma sufferer Debbie Brewer reached out to Richard Helmer to tell him about her deadly battle with asbestos cancer. In his dismissive response, the MEP informed Ms. Brewer that: “the fact that you suffer from this disease is not evidence that it was caused by white asbestos. There is clear government research showing that white asbestos (as distinct from blue/brown asbestos) poses no measurable health risk.” Helmer is categorical that his priority is:

“the huge and unnecessary costs that would be inflicted on the British economy generally (and in particular on farmers, who often have large corrugated asbestos cement buildings) if they were required to replace this material.  I am particularly incensed that this whole attempt to vilify white asbestos is driven by commercial interests seeking to profit from the wholly unnecessary and egregious economic damage they propose to inflict on thousands of businesses and the economy generally.”2

It seems that in the world according to UKIP, the thousands of lives sacrificed to asbestos count for nothing just so long as UK plc can off-load its liabilities and increase its profits.

Contributed by Laurie Kazan-Allen IBAS
I had to draw these two Write ups out to share but please go in and read the whole Newsletter as it is so bright and informative for UK reading



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