Living With Mesothelioma -My Diary- a stormy Morning and a muggy day created a very thoughtful day for me.


We had a wonderful sunny day yesterday so worked so hard in the garden. i will be back into treatment so garden becomes a no no with all the germs in the soil. I do cheat and wear protective gloves but I wanted to get all the hard work out of the way. Ray helped so we did it all.

We woke up to a lovely day but the clouds rolled in and a storm appeared and the heavens opened. just as Ray and Louis went for a walk

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Ray wasnt happy

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he really wasnt happy

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Louis was covered by a warm towel

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He was soon happy again

We have been out when it all dried up again but it is so muggy.

Now we are all settled home again and will watch Britains got Talent Final.

I have been Having a bit of a thoughtful day this weekend. The one where you go deep within yourself and then want to do a lot of changes.

As I work within the NHS as a Patients Rep I wanted the changes of Innovation and I have worked on that and to my mind it has reached the fruition.

I have a lot more work to do within the Cancer Network to keep the patients view and teach the NHS how  wish things to happen. The Phase 1 trials are rolling in fast under Fast track and Innovation will help others to the trials even when there is no more treatment for them and Im pray that never will others have to face the worry that we Mesowarriors have had in the past.

Money is being spent on better equipment for Radiotherapy and Scanners are always being updated, well they are in East Kent Cancer Network although what surprises me the money is often raised by Charities.

I hope all this continues  well into the future.

We do have a great cancer support in this country with Macmillan’s  http://www.macmillan.org.uk/Cancerinformation/Cancerinformation.aspx

Macmillan —  In 1911, a young man named Douglas Macmillan watched his father die of cancer. His father’s pain and suffering moved Douglas so much, he founded the ‘Society for the Prevention and Relief of Cancer’.

Douglas wanted advice and information to be provided to all people with cancer, homes for patients at low or no cost, and voluntary nurses to attend to patients in their own homes.

Today much of Douglas’ legacy lives on. We are still a source of support for people living with cancer today and we are a force for improving cancer care.

Macmillan milestones

1911

 Douglas Macmillan establishes the ‘Society for the Prevention and Relief of Cancer’, providing information on recognising, preventing and treating cancer to patients, doctors and members of the public.

1924

We become a Benevolent Society and change our name to ‘National Society for Cancer Relief’, providing practical help to patients and their families.

1930

The first paid member of staff is appointed.

1934

The first local Committee is formed in Bath.

1969

We begin to support in-patient care, making our first contributions towards building hospices.

1975

We fund our first Macmillan nurses.
We build and equip the first Macmillan cancer care unit.

1978

We appoint our 10th Macmillan nurse.

1980

We invest £2.5 million to expand Macmillan nursing teams throughout the UK.
We launch an educational programme to train doctors, nurses and students in advanced pain control and cancer care.

1986

We fund the first Macmillan doctor.

1989

We change our name to ‘Cancer Relief Macmillan Fund’.

1991

We launch the Macmillan Nurse Appeal to raise £20 million.

1993

Our 1,000th Macmillan nurse is appointed.

1994

We pioneer ’10 minimum standards of care’ as part of a nationwide campaign about breast cancer.

1995

We develop the first Directory of Breast Cancer Services in the UK, distributing it to GPs.

1996

We develop six ‘minimum standards’ for a gynaecological cancer campaign.

1997

We change our name to ‘Macmillan Cancer Relief’.
Our Information Line opens in December.

1998

We open our new Macmillan National Institute of Education (MNIE), with 10 lecturers for training specialist cancer care professionals. The Information Line helps more than 11,000 people during its first year of operation.

1999

Macmillan launches ‘a voice for life’ to give people with cancer the chance to have their voices heard.
Macmillan successfully lobbies The Oxford English Dictionary to change its inaccurate definition of cancer.

2000

We fund our 2,000th Macmillan nurse.

2001

Macmillan merges with Cancerlink, a national charity providing support to people affected by cancer, particularly those in cancer self help and support groups.
Our first mobile Macmillan cancer information centre visits 51 sites across England, bringing information and support to more people than ever before.
We finish our 100th building project, a day centre at Craigavon in Northern Ireland.

2002

Our Macmillan CancerLine is launched, integrating the existing Macmillan Information Line and Cancerlink’s information services.

2003

We implement our social care strategy, focusing on supporting carers and helping people financially.

2004

We launch our biggest ever campaign, A Better Deal, which calls for a better financial deal for people dealing with cancer. We launch the Macmillan Benefits Helpline, offering advice by telephone for people with cancer across the UK who need help to access benefits and other kinds of financial support.

2005

The number of Macmillan health professionals rises to more than 3,500 and includes nurses, doctors, radiographers, dietitians, occupational therapists and many other specialisms to provide more integrated care to people with cancer.

2006

We change our name to Macmillan Cancer Support to help people better understand what we do.

2008

We merge with Cancerbackup , allowing us to provide high quality, expertly developed information about cancer, and make it available to everyone who needs it.

2009

Our integrated phone service launches, allowing people affected by cancer to call just one number for medical, financial, practical and emotional support.

We are voted number one in the Charity Brand Index.

2011

We celebrate our centenary with a star-studded gala.

2012

The University College London Macmillan Cancer Centre opens its doors.

2013

We are once again voted number one in the Charity Brand Index.

We also have Mesothelioma UK http://www.mesothelioma.uk.com/

They are building up nurses through the country that specialise in Mesothelioma.

 

 

http://www.mesothelioma.uk.com/information-and-support/

This all adds up to a lot of help if you just know where to look.

Ray and I started a Web Site that is becoming very Popular, this has amazed us and we have many patient contact through this site

http://onestopmesothelioma.co.uk/

It seems what ever we try there are so many people needing our help.

I do guide everybody to MesoWarriors on facebook as that is a real Social Media and so proud of Debbie Brewer who started this and lost her life to Mesothelioma a year ago Monday 9th June.

She guided me on how to go on with her work and I hope she is proud of the way I have  continued.

Its not always easy as it is spread across the world and so the help is different in other Countries

IATP are the future as they are the group of Asbestos Trainers . This is needed to make sure the Industry keeps to the rules of HSE

Christine Winters was my Guest Blogger

https://rayandmave.wordpress.com/2014/05/30/living-with-mesothelioma-my-diary-cnm-training-christine-winter-is-my-guest-blogger-this-week/.

Bernie Banton run by Rod Smith and Karen Banton is Australia’s main Support Group and help

http://www.berniebanton.com.au/asbestos-awareness

ADAO fights for Asbestos banning in the US with the help of Lou Williams Australia and Yvonne Waterman Holland http://www.asbestosdiseaseawareness.org/

MARF Covers the Research in US run by Mary Hesdorffer.

http://www.curemeso.org/site/c.duIWJfNQKiL8G/b.8598593/k.D685/Homepage.htm

All these names are familiar to us Warriors on Facebook and Twitter.

I hope you can see we are building up knowledge together around the Globe

Rays Blogs http://mesoandme.wordpress.com/

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