Living With Mesothelioma -MY Diary- Another Scan Appointment ??? M25 Usual Friday Night Blockage


Yesterday was a very quiet day with no problems even Ray couldnt find anything to blog.

My younger brother phoned to see if he could visit Saturday so yes of coarse. Louis had a walk in the park and there was so many sheep at the gate to the field we couldnt push through so we had a play in what I call the garden area. An area they have fenced off.

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Amazing how many groups there were so we didnt want to disturb them

Today has been busy on the computer as I have had so many emails and messages to sort out info for Mesowarriors which I love doing. We share so much Information and it has become a support group for all of us.

We are always hunting for the latest trials as we need hope.

I cant believe the phone went and The Royal Marsden phoned to give me my appointment for another scan. She said it was for the trial every 4 weeks a scan.

I said I was waiting for a PICC Line to be fitted and they use a scan but she said thats not what she is booking so she will get in touch with the PICC Line Dept and check. That really puzzled me so we took Louis out for a walk and it bugged me all the time. I came straight back and phoned my Drug Development Unit and the nurse on duty said there was nothing on the system yet so phone Monday.

So at the moment I have an appointment for next Friday for another scan.

Scanxiety so many times -every 4 weeks will really make me scatty ha ha !!

The weather has been so showery made up of heavy rain and sunny periods. It is very windy though and I realise I will still be breathless when walking through the Autumn.

I have a friend caught in the M25 friday tail back, you know how I hate the M25

M25 Kent – Queuing traffic and three lanes closed on M25 anticlockwise at A282, Dartford River Crossing toll booths, because of an accident involving a lorry and a car and a fuel spillage. Congestion to J4, A21 (Orpington).

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linical trials are vital for improving cancer treatments and making them available to patients. We support more than 250 clinical trials across the UK, and our groundbreaking research has saved the lives of many thousands of people in the UK and all over the world.

Are you looking for a clinical trial because you or someone you know has cancer? Find all clinical trials recruiting in the UK on our clinical trials database.http://www.cancerresearchuk.org/our-research/our-research-by-cancer-subject/our-research-on-clinical-trials

What we’re doing now
We’re working on more effective, kinder drugs, and developing new therapies for rarer and hard-to-treat cancers, such as brain tumours.

We support more than 100 drug discovery projects across the UK. For example, at the Cancer Research UK Centre for Cancer Therapeutics at The Institute of Cancer Research, Professor Paul Workman and his colleagues are studying faulty molecules in cancer cells and developing new drugs to target them.

And Dr Martin Drysdale in Glasgow and Dr Donald Oglivie in Manchester lead two of our pioneering Drug Discovery programmes, searching for molecules that could become the breakthrough treatments of the future.http://www.cancerresearchuk.org/our-research/our-research-by-cancer-subject/our-research-on-cancer-drugs

But the best news today was this

Thousands more cancer patients will be given greater access to innovative drugs not routinely available on the NHS, following a £160m boost to the Cancer Drugs Fund (CDF) over the next two years.
With an annual budget of £200m, now rising by 40% to £280m, the CDF has delivered important benefits for more than 55,000 patients since it began in 2010.
Alongside the multi-million pound injection of funds to help patients, cancer experts at NHS England have pinpointed two new cutting-edge drugs which will be added to the fund. These are:
Xtandi (enzalutamide) for prostate cancer.
Revlimid (lenalidomide) for a new group of patients with myelodysplastic syndrome, a rare blood condition.
Health secretary Jeremy Hunt said: “It’s vitally important that as many people as possible have access to these pioneering, life-enhancing drugs, and we need to continue to focus our efforts on increasing access to these innovative treatments, whilst ensuring that all patients continue to receive the effective drugs which are right for them.”http://www.nationalhealthexecutive.com/Health-Care-News/rare-cancer-drug-availability-boosted-in-nhs

 

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14 thoughts on “Living With Mesothelioma -MY Diary- Another Scan Appointment ??? M25 Usual Friday Night Blockage

  1. That sounds like a busy week. Good luck with the scan, you are so brave… I love the term scanxiety by the way, that’s a good way to describe it, and I also love how you must give so much support to many others going through this too…

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