I was asked by Linda Reinstein if I had a video on my speech at Mesothelioma UK. I sneaked it over on a PM and wow!! she shared it into here facebook and Twitter. I will now buck up courage and place it here
I was so so emotional and slipped a couple of times. I had just told me that I was the first in the world to have such a huge result and the world is waiting for my results so that they can carry on.—I was shakened as that is a huge responsibility I just want the Warriors to have a chance. and Liz came over and hugged me –everyone said I was so human and they loved it but I haven’t put it around yet.
There has been some great comments on the IATP Newsletter against the HSE App so I think tomorrow when they are back at work things will really be hotting up.
We really do need something like ADAO a charity run in the US who fight for Asbestos. I thought we had the HSE but feel let down now.
IATP do a great job training the Industry and we have Asbestos In Schools so its left to these to fight our corner about Asbestos.
Iatp have told me Mesothelioma UK, DAST, AASC etc, they all fragmented though, dont work together, US doesnt have the same as us in the charity sector.. Linda is tackling 2 fronts, banning US and supporting patients / families, we dont have the same issues here’
HSE is the governing body, however they outsourced the campaign to a private company, that obviously has not expertise or experience with anything asbestos related. I do believe we will get the campaign changed to fit for purpose and regulations or ditched.. Big difference between us and US is that we banned asbestos 1998, they still import and use in products.
ADAO is on a loose loose until they ban it completely.
We also have IBAS.. Laurie is a huge positive for the UK and the UNIONS who are absolutely awesome and Hazards. we have a lot going for us UK
Laurie wrote http://www.ibasecretariat.org/lka-blog.php
Lessons to be Learned: The Fight for Asbestos Justice in Italy
People whose lives have been scarred by exposure to asbestos have a right to see their abusers punished. Unfortunately, in the UK the great asbestos barons escaped with their pensions intact and their liberty unaffected. Where our judicial system has failed, the Italian one has succeeded. The 2012 jail sentences handed down by a Turin Court to former asbestos businessmen Stephan Schmidheiny and Jean-Louis de Cartier de Marchienne were landmarks in the global fight for asbestos justice.
Last week (September 25 and 27, 2014), the Italian press reported the latest prosecution for asbestos crimes. Public prosecutors Lorenzo Boscaglio and Gabriella Viglione have indicted thirty-nine defendants, all of whom were former owners or Chief Executive Officers of the Olivetti company; many of these individuals were well-known Italian businessmen. According to the press reports, asbestos contamination was rife at the Olivetti plant in Ivrea, thirty-five kilometres from Turin. A particularly worrying source of exposure was the talc used in the manufacturing process; it was contaminated with tremolite asbestos.
Sixty-eight year old Olivetti office worker Bruna Luigia Perellohas has mesothelioma. She never worked with asbestos but believes her exposure took place when she visited the shop-floor. Since she was diagnosed in 2011, she has had two surgical interventions. She is determined to see the people who caused her terminal illness in court. Commenting on the case, her husband Orfeo Maozin, who worked in Olivetti’s IT department, said: “We thought Olivetti was a safe place, we never thought it would end like this.”
Fundamental facts which will be examined by the prosecutors during the trial include the following:
- the risk posed by tremolite contamination at the plant and the existence of a 1981 Turin Polytechnic report which highlighted the hazard;
- the presence of asbestos in the canteen;
- the delay in decontaminating the factory which was, it was alleged, due to corporate cost-cutting;
- allegations that measurements of airborne asbestos fiber dispersion were deliberately adjusted and falsified;
- failure to prioritize the health and safety of workers.
Mrs. Perellohas has a right to her day in court so too do asbestos victims in Britain and elsewhere. It remains a grave injustice that outside of Italy, few judicial systems have the ability or desire to stand up for the injured. As the case against the Olivetti executives progresses, we await the time when British asbestos executives, directors and owners find themselves facing criminal charges for the harm they have done.
Asbestos: Shared Legacy, Divided Response
One thing is certain – where asbestos is used, a trail of avoidable death follows. In developed countries, the dire consequences of hazardous human exposures are recognized. As a result, the future use of asbestos has been banned or seriously restricted.
This week the Governments of Israel and France announced million dollar budgets to remove asbestos from national infrastructures, with France’s Housing Minister Sylvia Pinel declaring war on asbestos in public housing. Her actions are both warranted and proportionate; last month, (France’s) High Council of Public Health predicted that between 2009 and 2050, up to 100,000 French citizens could die from asbestos-related diseases such as mesothelioma and cancer of the lungs, larynx, and ovary. That equates to the elimination of the population of a city the size of Nancy, Montreuil, Nanterre or Avignon.
The consequences of inaction are known. The tragic situation of a Canadian Professor with the deadly asbestos cancer mesothelioma is featured in the current issue of the CAUT trade union bulletin.1 Sixty-two year old Patricia Martens is a distinguished research scientist in the University of Manitoba’s faculty of medicine. She believes that workplace exposure to asbestos caused her disease. She is not the first of her colleagues to be affected; anthropology Professors William Morgan and John Matthiasson died shortly after receiving mesothelioma diagnoses in 1994 and 2001 respectively.
And yet, it seems even in the face of the personal tragedies of these and other Canadians, lessons have not been learned. Today (September 24, 2014), it has been reported that refurbishment work at Nunavut Arctic College in the Northwest Territories has been carried out with a complete lack of protection for the workers as well as staff and students who continued using the premises during the deadly renovations.2No risk assessment was carried out even though it was known by the authorities that the 1950s building was constructed with a range of asbestos-containing materials including drywall, ceiling tiles and vinyl flooring.
Who knows what the consequences for those exposed to asbestos during this incident will be. In a country where asbestos was once king, it seems that policy makers and government officials continue to turn a blind eye to the killer dust. It doesn’t need to stay this way. Canada, for so long a part of the problem, could become part of the solution. The first step is to outlaw the use of asbestos! The next is to work with federal, provincial and municipal stakeholders to develop an integrated and detailed program to address the country’s asbestos legacy. An asbestos-free future is possible – even in Canada!
The Asbestos Disease Awareness Organization (ADAO) is the largest independent asbestos victims’ organization in the U.S. It was founded in 2004 to give asbestos victims and concerned citizens a united voice, to raise public awareness about the dangers of asbestos exposure and to work towards a global asbestos ban. ADAO is dedicated to preventing asbestos-caused diseases through national and international education, advocacy, and community initiatives. http://www.asbestosdiseaseawareness.org/about-adao
Run by Mary Hesdorffer who is a Research Nurse Executive Director at Mesothelioma Applied Research Foundation.
Mary Hesdorffer received her undergraduate degree at the College of New Rochelle in NY and went on to receive her Masters of Science at the same institution. She is fully credentialed as a Nurse Practitioner and has spent 16 years actively treating patients with mesothelioma.
Mary has an expertise in the development and implementation of clinical trials. Her work has been published in peer-reviewed scientific journals and she has lectured nationally on the topics pertaining to mesothelioma with particular emphasis on clinical trials as well as symptom and disease management.
Mary has been a strong voice in urging increased transparency to the medical and legal issues surrounding mesothelioma with a strong emphasis on ethics.
She is passionate in her commitment to the treatment and management of this disease and hopes to increase awareness of the need to advance the science that will lead to a cure. She is available via phone or email to assist patients and caregivers as they move from chaos to control of this new situation they find themselves thrust into.
These three women will be at the Cape Town, South Africa from 21 – 24 October 2014 for the 12th International Mesothelioma Interest Group Conference – the world’s premier medical congress on mesothelioma. Our theme is the ongoing quest for cure. It will be hosted by the South African Mesothelioma Interest Group (SAMIG), and held at the Cape Town International Conference Centre (CTICC) which is optimally situated in the city bowl, with the Table Mountain amphitheatre as the backdrop
We have a lot of Mesothelioma Nurses attending this meeting.
The aims of SAMIG include:
1. To establish a South African interest group with the necessary infrastructure to host the
International Mesothelioma Interest Group (IMIG) conference of 2014 to be held at Cape
Town International conference Centre.
2. To establish an accessible panel of SA specialists with a particular interest in this disease who
would be able willing to provide information and support for sufferers and their families as
well as medical advice to their managing clinicians.
We will have to see how this week pans out and what the HSE will do to rectify the damage they will cause im the Industry and the home. You can see we are very disjointed here in the Uk and this really needs looking at. We have banned Asbestos her in the UK but who would have thought it is still causing such an uproar. I hope that it can be resolved and that Asbestos dangers are not made so light.
MY MESSAGE TO THE HSE
ASBESTOS KILLS US NOT NOW BUT IN MANY YEARS. DONT LET MY HARD WORK AND STRUGGLE FOR LIFE TO BE IN VAIN. THERE IS NO TIME LIMIT TO EXPOSURE. IN 1/2 MIN IT WOULD BE ENOUGH TO KILL IN LATER LIFE. PLEASE KEEP THE INDUSTRY SAFE AND THE CITIZENS OF THE UK.
PLEASE CORRECT YOU APP BEFORE SOMEONE HARMS THEMSELVES.
Here are the comments so far on the IATP Newsletter.
http://www.iatp.org.uk/iatp-weekly-update-blog/ IATP have hade mainy emails as well