Living With Mesothelioma-My Diary- A meeting at Bluewater and Christmas Presents all bought. The iMig Conference in S Africa is over


Had a great day yesterday.

We got all showered and dressed and with the dog walked we set off to Blue Water for my date.

NYX

 

 

 

 

 

 

 

 

 

We arrived early so we do some Christmas Shopping before meeting Chris Ward  Director of Award Health & Safety Ltd.

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You can walk miles and miles in these shopping Malls and you can spend a small fortune.

We sat doen outside John Lewis and Ray went for a coffee when across the room came Chris, all smiles and we had a good welcoming hug. I told him go and tell Ray what you want, which he did and then came and sat by me. We ghad a lon long chat about everything and I was so pleased to hear how busy he is. He has a full diary of Training sessions. Award Health & Safety Ltd are an Award winning ‘Highly Commended’ Small Business of the Year, in the Portsmouth Business Excellence Awards 2010 & 2011, Trading Standards Approved, health & safety consultants that offer a full health and safety advice service. Everything from a broad range of safety audits, to health and safety training, Corporate Manslaughter Awareness Training, Fire Safety Awareness Training in English or Polish with all the required health and safety documentation. Our full range of Asbestos services include asbestos surveys & asbestos management IATP approved asbestos awareness training. A fully licensed asbestos removal service can be arranged if required.

Chris showed me some of his presentations and there is photos of me and Ray, as he he said people say they cant believe taking the Asbestos dust bake home on their clothes can harm their family and Chris show ray and I as a good example of that fact.

A lady sat down, she had a travel agency badge on and poure a glass of wine. She kept listening to our conversation and when she got up I said sorry we talking so medicale, we had been talking about lungs and the damage Ray has. She said she had been so interested as her father died of lung cancer, Ray asked where had he worked and she said, he was in the navy. Well there you are all the Asbestos in the boats it could have been Mesothelioma.

Chris yesterday tested me and was asking me what was I doing Christmas and was I planning on lots of camping next year. I was answering away and he said -See last year you kept saying “I dont know if I will still be here, now your telling me you are going to this and that, you have a future and your telling me about it.” so yes I have changed.

So it became time to say goodbye and Chris left with the promise of meeting up again very soon.

We returned to the Carpark and as usual lost the car. We had walked into the wrong car park of coarse. We retraced our footsteps, we found the car in the other car park and set off for home.

I was all worked up now and wanted to finish my Christmas shopping which I did after dinner on line. Boy so much easier sitting on a computer and shopping.

All done now so just wait for them to arrive and we will get wrapping. Ray loves doing that for me as Im hopeless.

mary and liz

 

 

 

 

 

 

 

 

 

 

 

The South African Cape Town,  21 – 24 October 2014 where the 12th International Mesothelioma Interest Group Conference was held – the world’s premier medical congress on mesothelioma. The theme was the ongoing quest for cure. which was  hosted by the South African Mesothelioma Interest Group (SAMIG), and held at the Cape Town International Conference Centre (CTICC) situated in the city bowl, with the Table Mountain amphitheatre.

This Photo shows Our Mary Hesdorffer of MARF (The Meso Foundation is the only national non-profit organization dedicated to ending mesothelioma and the suffering it causes.) and our own dear Liz Dawlinson of Mesothelioma UK.I admire them both and they are always there at the end of an email when ever Im stuck for an answer. Im here when they need to know about The Patient.

Mary chaired a nursing panel and she gave two presentations at the conference. The first presentation, titled “The Voice of the Meso Community in the United States,”  discussed how the Meso Foundation,  helped community members, advocated for $9.3 million in federal research funding directed to mesothelioma research since 2008. Mary’s second presentationwas titled“Promoting Entry into Clinical Trials and Improving Access to Specialist Treatment and Care.”

Mary is a nurse practitioner with over 16 years of experience in mesothelioma treatment. She is an expert in clinical trials for mesothelioma and her work has been published in a variety of scientific journals. Mary serves as the executive director of the Mesothelioma Applied Research Foundation.

Liz trained at Charles Frears School of Nursing in Leicester qualifying in 1986. Since 1992 she has been based within the cardio-respiratory directorate of the University Hospitals of Leicester at the Glenfield Hospital site.

Liz was a ward sister/manager in respiratory for several years and in June 2000 she took up the post of Respiratory Nurse Specialist (Lung Cancer). Liz’s interests within lung cancer have always focused on developing the nursing contribution, within the multidisciplinary team, to improve patient and carer experience across the whole cancer pathway.

To meet demand locally and nationally Liz developed an interest in Mesothelioma which resulted in the establishment of Mesothelioma UK, the National Macmillan Mesothelioma Resource Centre. Liz is currently a Consultant Nurse leading the development of Mesothelioma UK. In 2007 Liz was awarded the Nursing Times Cancer Nurse Leader of the Year Award sponsored by the Royal Marsden NHS Foundation Trust.

Liz is a member of the National Lung Cancer Forum for Nurses committee and represents nursing on a variety of national and professional committees. Liz is a co-founder and current committee member of the International Thoracic Oncology Nursing Forum. Liz is a module leader and regularly lectures within the Royal Marsden School of Nursing and Rehabilitation and is an Honorary Lecturer at DeMontfort University, Leicester.

Dean Fennel of coarse was there and he has been chosen as the

Prof Dean Fennell (see here with ADAO Lind Reinstein ) was there of coarse and  he is the next President of IMIG,so I will love to be there at the 2016 conference. Everyone knows how I admire Dean as he has dedicated his life to Mesothelioma.

Professor Fennell’s clinical specialisation is in thoracic medical oncology and early clinical trials, particularly mesothelioma, with a particular interest in therapeutic targeting of the core apoptosis pathways. Prof Fennell leads a Cancer Research UK funded group with a laboratory focusing on apoptosis, drug resistance, and signature-based therapeutics using the connectivity map for accelerated, targeted drug discovery. He is currently leading UK and international clinical trials of novel targeted therapies in Lung Cancer and Mesothelioma.

There are some wonderful young men who have studied Mesothelioma and are so involved in finding the treatment.

London St.Barts Adam Trial.
Dr Peter Szlosarek MD, PhD Centre: Molecular Oncology Fellowships: Clinical Research Fellowship (CRUK)Clinician Scientist Fellowship (CRUK)

Jeremy Steel– Jeremy is Co-Director of Bart’s Mesothelioma Research. He is a Consultant in Medical Oncology at St Bartholomew’s Hospital, the Royal London Hospital and the London Chest Hospital

Then then there is the Passion of Lord Saatchi The Medical Innovation Bill will help doctors to innovate new treatments and cures safely and responsibly for cancer and other diseases.

We are so lucky in the UK to have such interest in our Cancer units.

 

 

 

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