Living With Mesothelioma -My Diary- Christmas is coming

The weekend is passing so quickly and Christmas will be upon us soon. One more drug day on Tuesday and thats it I can really think of Christmas.

My young brother and his girlfriend came yesterday for the annual present swopping.

I gave them a calender each so there was a lot of ooo and ahhh’s as they looked through. It has my elder brothers approval so i wasnt worried about the younger, he isnt so critical.

Now all I have to worry about is my Grandson as I have given him one for Christmas. I can see a very red face when he realises its his Nan.

My young brother had bought me plants for Christmas so he was worried about them drying out. When he went I opened them up and they were so nice .

But one was a Bonsi tree. Oh dear  have to make sure I don’t kill it. It has taken ages to grow to its size but  could kill it as Im like that.

So they are on the table now and looking good.

























I had a lovely new glass dragon fly from Jan Westen so lovely.








Louis has demanded his walk of coarse but the weather is very cold that wind has been bitter today. I forgot that at 2am we had a lovely sky to see the meteor shower. 1 every 4 minutes here in the south. Oh well there is always next year.

I was to snug in the bed.

Mind you today I had a right fight changing the bed. A fight with the duvet and cover. sometimes I just do not do it right and  get so cross. I did conquer it in the end.

Rays Christmas present was delivered yesterday and he now has a wardrobe of new clothes. I held up his old tee shirts and said we can take them to the clothes bin at Tankerton. The look of disgust on his face. Why is it so hard to get him to part with older clothes. Well I won this one, they are in a bag ready to go but hope he doesn’t start putting them back in the drawers.

He wore is new jacket out as we went for a walk so that’s good, he likes that phew!!!

I was reading this link today and wondered if other Mesowarriors had seen this .

Question in the Lords on 3% Mesothelioma Levy – Liverpool conference on Mesothelioma and the Law – reply from Lord Freud

Posted on October 11, 2014 Updated on December 13, 2014

Lord Alton of Liverpool to ask Her Majesty’s Government, further to the reply by Lord Faulks on 9 December 2014 (HL Deb, col 1710), what evidence they have for the assertion that a lack of good research proposals is deterring research into mesothelioma and that there are no problems concerning availability of funding. HL3669
†Tuesday 9 December at 2.30pm
†*Lord Alton of Liverpool to ask Her Majesty’s Government, following the decision of the High Court that the consultation on mesothelioma legal fees was unlawful, and the lack of new funding for mesothelioma research, what is their policy with regard to combatting mesothelioma and supporting victims.
2.58 pm

Asked by Lord Alton of Liverpool
To ask Her Majesty’s Government, following the decision of the High Court that the consultation on mesothelioma legal fees was unlawful, and the lack of new funding for mesothelioma research, what is their policy with regard to combating mesothelioma and supporting victims.
The Minister of State, Ministry of Justice (Lord Faulks) (Con): The Government take the plight of mesothelioma sufferers seriously and are determined to improve their position. We have introduced significant changes through the diffuse mesothelioma payment scheme, established under the 2014 Act. By October 2014 the scheme had made 131 payments, resulting in £16.5 million being paid to sufferers or their families. The Government fully recognise the need to stimulate an increase in the level of research activity and continue actively to pursue measures to achieve this.
Lord Alton of Liverpool: My Lords, I thank the Minister for that reply. Does he recall that, during the passage of the Mesothelioma Act 2014, Ministers said that the levy on the insurance industry would be set at 3%? They said:
“Three percent. is 3% and we have no intention of moving away from it”.—[Official Report, Commons, Mesothelioma Bill [Lords] Committee, 12/12/13; col. 117.]
Why then has it now been set at 2.2%, representing a shortfall of more than £11 million? That money could have been generated and used to undertake sustainable research into a killer disease which will take the lives of another 60,000 British people. This is according to figures which the Government themselves have issued.
Lord Faulks: As the noble Lord will know, the Government responded to the amendment which he tabled during passage of the Act by saying that they were committed as a priority to helping to encourage research by the National Institute for Health Research. We set up a partnership of patients and carers to identify a top 10 list of questions for researchers to answer. The results were published yesterday, as he may know. We now feel that we have identified the questions and funding will be available if there are appropriate applicants. The problem with research is no longer—indeed, it never was—funding, but finding really conceivably successful applications.
Lord German (LD): My Lords, both the House of Commons Justice Committee and the judgment of the High Court concerning the issue of legal fees in mesothelioma cases are critical of the way that the government review was carried out. It was found to be premature and did not follow the rules of the LASPO Act. We know that the incidence of this disease will peak and then fall away over the years, as the 30 year-old Acts concerning asbestos are put into place and have an effect. Given that there will be a withering on the
9 Dec 2014 : Column 1711
vine of the numbers suffering this fatal disease, is it not now the time for this legal fees issue to be left alone and kept as it is, rather than coming back to it again and putting people through increased risk and increased delay?
Lord Faulks: My noble friend is right. We expect the peak to start declining and perhaps come more or less to an end in 2024. There is to be a review. There is no immediate timing for it but my noble friend is right in that the status quo is acceptable to the claimants. They are to receive damages. Research will continue, as I indicated, and the pre-LASPO regime for legal support will continue. This will ensure that lawyers are paid adequately, and we are told that they will not take cases unless they are paid adequately. The review will go on.
Lord Giddens (Lab): My Lords, I watched a member of my family die of this dreadful disease. There are massive advances in medical technology which make it possible, in principle, to find a cure. As the noble Lord, Lord Alton, has indicated, that could mean saving the lives of some 50,000 people. To do this we are going to need an integrated research strategy, with the Government in the lead, co-ordinating with industries and with universities. Where is this strategy? The Government’s approach seems far too piecemeal and far too limited to do the job that is needed.
Lord Faulks: As I indicated, the strategy is to ensure that the right questions are posed so as to elicit appropriate applications. The funding is very much there, but there is no point in having it unless it is directed towards research which can feasibly produce the result which, I am sure, everybody in this House wants to achieve.
Lord Wigley (PC): My Lords, will the Minister go further on that? There needs to be a certainty that the money is there but the top-level researchers also need to be aware of it so that the money and the level of the research capability are brought together. Is the Minister confident that that certainty now exists? What can be done to make sure that the best researchers in the land are aware of it and can get engaged with this problem?
Lord Faulks: I can do no better than quote what Professor Dame Sally Davies, the Chief Medical Officer and chief scientific adviser, said yesterday. She thanked all those who provided information and said:
“With their help I believe we have built a genuine consensus—and a real impetus. I hope the research community will now respond by generating new research proposals that will provide robust evidence to help people with mesothelioma”.
The Lord Bishop of Chester: My Lords, I encourage the Minister to answer the first part of the Question asked by the noble Lord, Lord Alton, about why the percentage of the precept was reduced from the promised 3% to 2.2%.
Lord Faulks: The position with insurers is that they have provided money. I will have to write to both noble Lords and the right reverend Prelate about what has happened to that particular sum. The question of
9 Dec 2014 : Column 1712
the use of research funds is difficult. We think that research funds should be spent in the most effective way, and we think that publicly funding research is much more appropriate than hypothecating against insurers’ particular sums.
Lord McKenzie of Luton (Lab): My Lords, would the Minister accept that throughout our deliberations on the Mesothelioma Bill the focus was on a 3% levy? It was 3% because the insurance industry insisted that beyond that it would have to be passed to consumers. By implication, if the levy is now 2.2%, presumably that falls into the pocket of the insurance companies at a time when compensation is not being paid at a 100% level, and, as has been asserted, there is insufficient funding for research.
Lord Faulks: It is absolutely not the case that there is insufficient funding for research. As I have said more than once, the case is that, at the moment, there is not a suitable number of applications for research. The funding is very much there. As to any question of insurers making some profit out of this, I will look into that. It is contrary to what the Government wish to achieve.
Lord Howarth of Newport (Lab): My Lords, when the noble Lord, Lord Freud, brought in the mesothelioma legislation he did so undoubtedly in good faith. Yet, sufferers from this terrible industrial disease have now been failed not only by employers and insurers but by the Government themselves. Has the Lord Chancellor authorised the noble Lord to apologise on behalf of the Government for his decision to take up to 25% of compensation awards for costs—conduct which has been ruled by judicial review in the High Court to be unlawful? The noble Lord still has not explained to the House why the Government have failed to honour their commitment, given in terms by the Minister, Mike Penning, to set the levy on employer’s liability insurance at 3% of gross written premiums, which would have enabled better compensation and more funding for sustained research.
Lord Faulks: Compensation is full at the moment, as the noble Lord knows. I reject the allegation that the Government have done nothing. Not only are they promoting research; they have also, with their Big Tent meeting in June, encouraged much greater co-operation between lawyers acting for claimants to ensure that medical employment records are swiftly obtained. What is most important is that these claimants obtain compensation quickly and at as high a level as they can

I will be watching for anymore reports !!!

Then I read —

The 1965 report to which the Minister referred found that the interval between exposure and development of the fatal tumour ranged between 16 and 55 years. One case highlighted the fate of a woman who had died after brushing the white asbestos dust off her husband’s dungarees and work clothes when he returned from work every night. In 1965, it was discovered that even very brief exposure to the dust could prove lethal.

That was 50 years ago and despite assurances that research would be undertaken, there is still no cure. As we have heard in today’s debate, most people die within two years of diagnosis. As the noble Lord, Lord Jones, reminded us, by 1970 Britain led the world in asbestos regulation, yet the British mesothelioma death rate is now the highest in the world and has yet to peak – with a further 50,000 deaths predicted. As we have all said, it is a horrible disease, and all those who have seen it will confirm that it leads to great suffering.

50,000 deaths that is so unacceptable We have to stop this never ending suffering. We that are suffering need research program’s and the Governments must not lapse with their funding.

Also we must keep on pushing for Asbestos safety within our homes and schools. We should be sitting down and working out how to forge ahead in 2015.

It needs a different approach to how we do this. We cant keep talking in words –it needs deeds.

Rays Blog



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