It was so dark and frosty as we set off this morning to the Royal Marsden.
The moon was shinning in a clear sky which meant that the car was heavy in frost. Jack Frost was out
The traffic wasnt to bad and Dawn came as we got to the M25 as the sun was waking up.
Arrived and passed in my book to the Appointment Coordinator as she had said she was interested in my story. Anther Nurse said she wanted on and would buy it which is great.
I should have taken my Calenders in but they see enough of me without my clothes on.
My bloods were taken and we chatted to the doctor but everything is doing well.
My bloods came back with a perfect result. So everyone is happy.
Ray and I went for a coffee and a cake and then back in the waiting room I fell asleep. I couldnt believe that. I woke up with a start ad Ray was looking at me. “Have i been Snoring I asked in terror of having shown myself up.
He convinced me I hadnt.
The Sister said to sit in the ward and we waited for the drug. She appeared to tell me at 2pm they said it was being made up and at 3pm they said There was a problem. Oh no ! I was scared it was something cropped up in my bloods. But no it was that the Pharmacy had been made to have an Audit and there was a delay. They will be making it today though. So we had another drink and a plate of chips as I was hungry at this point.
At last at 4pm I finally saw my drug and it was entered into my body via my PICC line.
In the Restaurant they had put the lights on the tree that they were starting 2 weeks ago.
There are trees all over the hospital so it looks very pretty but when we came home the front of the building was covered in Lights. I will have to take a photo next time I go.
I came home to read Steve’s sad news. Im ot happy and I didnt want to read such a negative blog. Everyone knows how i used to nag Debbie to be positive well I feel the same with Steve.
I know he will have a great year and will live life to the full. Bless him.
I put it here to honour a very brave Mesowarrior who was diagnosed in 2009 as I was and has always shared with me his ups and downs through the blog Linda has written.
A guest Blog —— Steve Wride
Five and a half years, and a small number of months
By my rough calculation these treatments, plus the time it takes to recover from side effects, have effectively taken about a year and a half out of our lives since then, leaving us with four “good” years during which we have enjoyed life to the full – albeit with the roller coaster of emotions associated with his three monthly assessments, scans and X-ray results.
So what have we done during these good times?
- tried some new experiences, including floating over the landscape in hot air balloons; doing a short but exciting circuit in a helicopter; skimming the waves in a RIB (Rigid Inflatable Boat); looping the loop and other aerobatic manoeuvres in a light aircraft and trying our hands at clay pigeon shooting
|Steve and the Chipmunk August 2010|
- been very sociable: meeting up with friends in the UK and abroad for special occasions, such as anniversaries, birthdays, house and garden-warmings, a wedding (and sadly, several funerals) and also simply to enjoy good company in our home, theirs, or on holiday
|Birthday lunch March 2012|
- been travelling together abroad, including trips to Spain (Bilbao, Madrid, Toledo, Valencia); Italy (Venice, Rome, Siena, Pisa, Lucca, and rural Tuscany); France (Paris, Avignon, Arles, Marseille, Carcassonne, The Camargue, the Cevennes, the Luberon); plus Brussels in Belgium, Santorini in Greece, Amsterdam in Holland, Budapest in Hungary, Heidelberg in Germany and Marrakesh in Morocco
|Marrakech May 2012|
- had fun visiting family and friends and exploring the UK, including trips to Wales, the Lake District, Yorkshire, Derbyshire, Suffolk, Norfolk, Sussex, the West County and numerous visits to Manchester, London and Bristol
|Yorkshire April 2011|
- enjoyed some excellent sporting events, including cheering on the England team in person at international rugby and cricket matches; watching motor sports including the Goodwood Revival and Festival of Speed, Silverstone classic car races and Prescott Hill Climb; supporting our friend Rob in the Brompton folding bike world championships; having a bit of a flutter at the races, including witnessing wonder horse Frankel win his last race unbeaten
|Rome England v Italy 6 Nations Rugby February 2012|
- indulged our passion for photography and in the process achieved our Royal Photographic Society Associate distinctions; had works selected for exhibition in venues around the UK and abroad; won awards and gold medals in various competitions and salons; had features in photography magazines, work published in photography books and the UK national press (not forgetting the local paper in Heidelberg!)
- helped our kids work on their respective homes: knocking down walls; helping assemble flat pack furniture; painting and decorating; laying floors etc, as well as creating a guest bedroom and carrying out a complete garden makeover in our own home
|Helping with the kitchen renovation, London March 2013|
- enjoyed a number of exhibitions; visited National Trust properties (not forgetting the tea rooms!); looked over London from the top of the Shard and Orbit at the Olympic Park and over Portsmouth from the top of the Spinnaker Tower
|View from the Shard May 2013|
- we even started our own business, which is still rolling along albeit very slowly at the moment due to Steve’s health issues
|16 December 2014 – 5.5 year survivor|
The cancer has grown through his chest wall and the lump has been painful, although thankfully that pain didn’t last long and now seems to be under control. It has also spread to his liver.
I know he will live life to the full next year 2015 I will hang onto him xx