Living With Mesothelioma -My Diary – My Baby is 50 now. Merck expressly appreciates their commitment. My Heroin Tracey Crouch in the House of Commons Money Saving Expert Martin Lewis’s MBE


Its better to know that its Kiss Day rather that Friday 13th.

Our baby boy was 50 yesterday but he didnt want me to celebrate as he didnt see it as a different day. I sent a lovely card through Moon Pig with photos on it from his younger days . He phoned to say how much he really loved it.

Gosh in 50 years I have done something right ha ha !!

2 of em

 

 

 

 

 

 

 

 

We will celebrate when he comes down for Rays Birthday he said.

When I found the photos our rabbit Monsieu  La Poopie Bum was in it. I had forgotten about him. He was very house clean at that point and lived indoors, but we got a  Guinea Pig and that was it they both had to be in a cage where they could be poo to their hearts content.

horse

 

 

 

 

 

 

 

 

 

Terry on a horse wouldn’t be allowed nowadays with out a riding hat. We took a lot of chances in those days.

The phone rang as i got up today and turned the Computer on with my first cup of tea. Linda Thomas in Australia phoned and there was a clap of thunder. She had a storm on its way. they need it to cool down as unlike us they get wall to wall sunshine through their summer in Melbourne.

The principal efficacy of an active ingredient must be demonstrated in a living organism (pharmacodynamics), its pathway through the body studied (pharmacokinetics), potential health risks investigated (toxicology), and the right drug form developed (pharmaceutical formulation). Biomarkers are identified: These endogenous molecules make it possible to predict whether a patient will respond to a drug

I very interesting Article by my drug company was good reading today http://magazine.merckgroup.com/en/innovation/clinical_trials/Patients_as_heroes.html

The volunteers who participate in clinical trials play a key role in medical progress. Merck expressly appreciates their commitment and relies on this partnership, which is based on close collaboration. This relatively new perspective benefits everyone concerned.

When Ken Getz speaks in front of large audiences, many people in the room feel personally affected, because he calls on them to make a very personal decision: “Should I participate in a trial for a new drug?” The drugs in question have not yet received general approval as they are currently at the research stage. The decision to participate in a trial can offer huge opportunities, but also harbors risks. And it is actually more than a personal decision: It is a good deed. Ken Getz calls the people who participate in clinical trials, “medical heroes”. When he talks to them about their motives, he often hears them say, “I want to help other sick people.” These volunteers want to help improve the situation of people who are suffering from the same illnesses as they are. Getz is convinced that this kind of commitment must be encouraged.

I so agree with him it is how I feel.

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My Heroin Tracey Crouch in the House of Commons did so well she said —-

Emotion aside, the facts are simple. Mesothelioma is an invasive type of lung cancer for which there is no cure. Victims often experience painful, debilitating symptoms, and most will die within 12 months of diagnosis. Someone dies from meso every five hours in the UK. It is estimated that 2% of men born in the ’50s will get the disease; yet research into this cancer is lagging way behind. As an illustration, I was given a table of the number of research papers into meso. In 2012, when 2,431 people died from mesothelioma, just 44 papers were published on it, compared with 2,828 papers on oral cancer and 1,160 on cancer of the uterus—both of which, thankfully, have nearly 1,000 fewer deaths per year.

Great work is being done out there, but it is starved of money. I visited the Medway campus of the university of Greenwich, where Professor Adrian Dobbs is leading the research into meso, including looking at the recent discovery of the compound JBIR-23, which is the first ever natural product to show activity against tumour cells. That work is being funded by the June Hancock Mesothelioma Research Fund, but with much more to do to refine the biological activity—from the scale of an oil tanker to a saloon car and down to the scale of a grain of sugar—significant funding needs to be found.

Insurers have contributed to wider research funding programmes with the British Lung Foundation. I was delighted to see that my old company, Aviva, has joined forces with Zurich to donate a combined £1 million over two years to the BLF’s meso programme. However, it is not fair that only those two companies are funding the research; frankly, others should be ashamed of themselves for not also contributing. It is also disappointing that the funding is time limited, and there is no guarantee that it will continue after the two years.

Finally, I want briefly to mention the issue of teachers dying of mesothelioma, which was also discussed during the passage of the Mesothelioma Act. Today, 75% of the 33,600 schools in Britain still contain asbestos. There is some variation in the statistics—which is why I
11 Feb 2015 : Column 248WH

may have confused matters further with a possibly incorrect recollection of the figures in the Chamber on Monday—but the often-cited stat is that in the past 10 years, 140 school teachers have died of meso. In the United States, for every one teacher who has passed from mesothelioma, nine children will follow.

Quite simply, we have a problem with asbestos in schools, which is why those who are diagnosed with the disease are not limited to the industrial professions. Just one fibre of asbestos can cause the cancer, and fibres can be transferred simply by putting a drawing pin in a wall. Local education authorities have insurance, which is why the scheme was deemed not appropriate in general terms for teachers; nevertheless, as politicians who will inevitably have schools in our constituencies that are riddled with asbestos, we need to be mindful of the potential problems. We need to introduce regulations similar to those in Australia and the US to remove asbestos in schools. I hope that, post 7 May, the Government will consider this matter extremely carefully.http://www.publications.parliament.uk/…/ha…/150211h0001.htm…

Martin Lewis from London is made an OBE by the Princess Royal at Buckingham Palace

Money Saving Expert Martin Lewis’s daughter pleaded with him to stand the Queen up and stay at home with her.

The two-year-old was addressing her father as he got ready to receive his OBE at Buckingham Palace today.

The journalist revealed the request from “Baby MSE” after being awarded his medal for services to consumer rights and charitable services.

Speaking after the ceremony, Lewis said: “I’m here with my family, which is nice – my wife, my dad and stepmother. But my little girl wasn’t very happy this morning.

“She said ‘Daddy, I need you. The Queen doesn’t need you, stay here, Daddy’.”

But unbeknown to the toddler, it was actually the Princess Royal who was handing out the honours, something Lewis was very pleased about.

He said: “It was very nice for me that it was the Princes Royal because we have met a number of times through Citizens Advice, which she is a patron of.

“It is quite nice to get it off someone you know, and it takes a little bit of the pressure off.”

Lewis said he was very proud of his OBE for, because it recognised the work that he is passionate about.

Before the ceremony, the founder of consumer website moneysavingexpert.com tweeted that he was feeling very emotional in light of the support he received on social media.

“I didn’t expect to be doing this, I am 42 and I have worked hard to do what I do. The reaction I got was just so nice and I felt very emotional on the back of that, and with people telling me stories of how I have helped them.”

https://uk.news.yahoo.com/toddlers-plea-finance-ace-lewis-142749439.html#vAbrAnZ

Well done Martin you do so much for my Pocket ha ha !!!

 

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