Living With Mesothelioma -My Diary- A brave Mesowarriors passes after ground breaking Operation.


dragon fly painting

It is a sad day as we have lost a really lovely lady who was so proud to be a Mesowarrior. She only knew me through her Son in Law Warren as he found me on Facebook

30th nov 2014.

I gave him all the contact details I could when he told me —

Hope you dont mind me contacting you but my mother in law has just been diagnosed with Mesothelioma, she has no idea where she could have been exposed to asbestos. It’s all s bit of a shock!

She has had keyhole surgery for a biopsy of the tissue and for the talc in the lining of the lung which was done at Guys Hospital which she was referred to from Reading.

If the cancer has not spread beyond the lung there is an option of a large op to remove most of her right lung but we won’t know if that’s an option til results of PET scan.

I gave him everything which is how I work as then it allows people to see everything that is on offer.

I did ask if he knew where sh had come in contact with Asbestos – She did work at an army base near Newbury drawing maps which was later demolished and rebuilt as it was built with asbestos but as far as we are aware nobody has got it that was there. she has lived in houses that have had s garage with an asbestos house but we really don’t know!

 4th of Dec 2014

Warren wrote —Not the news we wanted.. PET scan shows a lymph node pushing into the main artery high in chest…

Surgery is now not an option so seeing an oncologist at reading next week..

Tumour has grown in a month so desperate to get chemo going but Xmas gets in the way..

Oh How quickly things were moving on.

13/12/2014

I heard the news— Just to keep you updated, we are going for a second opinion on surgery to Dr David Waller, have you heard of him?!

Indeed i had and found a great Video of him

18/12/2015

We went to see Mr Waller the surgeon, he said he is willing to do the surgery, he suspects it has gone into the lymph nodes which isn’t good but won’t know til he operates for sure.

So mum has a hard decision to make!

30/12/2015

Mum is ok, she is trying to get strong ready for the surgery at the end of January so keeping away from bugs as much as possible and doing some walking.

She is very nervous about being in hospital but feels it’s an opportunity she must take up. Also her GP says that he is the top surgeon for mesothelioma or at least one of.

Think she was surprised to be offered the surgery after the other surgeon said he couldn’t do it… A lot to take in all round!

19/1/2015

Mum goes up to Leicester tomorrow for her operation on Wednesday, she’s very scared but we believe it’s the right thing to do as she wouldn’t have been offered it otherwise, at least that’s what we think.

I dint like to intrude and knew warren would tell me what was going on and so this morning I was shocked to get the message

Just to let you know that Dorothy died this morning following surgery at Glenfield.

The tumours had got really bad and the one strangling her vena cava was extensive.

She had pioneering surgery where they replaced nearly everything!

The surgery was a success and all cancer taken out, however, after a 9hr operation with her blood pressure being low for a significant time her blood got very toxic and liver gave up.

However her lung and heart was really healthy and I would highly recommend anyone with meso to visit Mr Waller at Glenfield, they were all fantastic. Although she remained quiet she described herself as a meso warrior and put up a huge fight. Her surgery was so pioneering and successful the surgeon says they learnt so much that they will now be able to help more people.Thankyou for your kindness throughout. Her name was Dorothy Aromando. And words can’t describe how upset we are right now.

It’s amazing the research they are doing and they seem to be making groundwork, I believe you will keep going, unfortunately for Dorothy, the tumour around her vena cava was growing so fast, the delay from Reading hospital was just too long, we tried and she fought and she died in her sleep, so in a way it was a comfort.

 

I have found this to explain the Venae cavae –the two largest veins in the body. These blood vessels carry de-oxygenated blood from various regions of the body to the right atrium of the heart. As the de-oxygenated blood is returned to the heart and continues to flow through the cardiac cycle, it is transported to the lungs where it becomes oxygenated. The blood then travels back to the heart and is pumped out to the rest of the body via the aorta. Oxygen depleted blood is returned to the heart again via the venae cavae.

http://www.spirehealthcare.com/leicester/our-facilities-treatments-and-consultants/our-consultants/mr-david–a-waller/

I have told this to show you just how quickly some peoples journey goes. Some go slow and some go so fast that the families dont have time to come to terms with it all.

My love and prayers go to the Family and friends of a very brave lady. She took the chance at 70 of the operation but it was so late and the Mesothelioma had taken hold.

I admire her so much, such a brave Mesowarrior. Goodnight Dorothy  Aromando.

candle 2

 

 

 

 

 

She is Gone’ by David Harkins

You can shed tears that she is gone

Or you can smile because she has lived

You can close your eyes and pray that she will come back

Or you can open your eyes and see all that she has left

Your heart can be empty because you can’t see her

Or you can be full of the love that you shared

You can turn your back on tomorrow and live yesterday

Or you can be happy for tomorrow because of yesterday

You can remember her and only that she is gone

Or you can cherish her memory and let it live on

You can cry and close your mind, be empty and turn your back

Or you can do what she would want: smile, open your eyes, love and go on.

 

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3 thoughts on “Living With Mesothelioma -My Diary- A brave Mesowarriors passes after ground breaking Operation.

  1. Sorry to hear this, unfortunately we have discovered that there are monsters in the world, they look like us, and they wear business suits they value life little but the almighty dollar owns their souls and they sold this product knowing full well the ramifications of it.

  2. Dorothy was a wonderful, strong woman who loved life. She took the only course she could for herself and her family. She will be greatly missed by all who knew her.
    Marilyn, Faye,Joni and Ross xxxx

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