Living With Mesothelioma -My Diary- Goodnight Dorothy. And Nick Clegg has emailed


It has been a wonderful spring day today as the sun shone and it os so much warmer.

Ray is still working on the garden lights. he has bought so many its like Christmas out there at night now. He mended some of the old ones why!! I dont know.

We went to take Louis for a wonderful run. the first run in the Whitstable Rugby club field. it was great to see him running wild chasing the ball. He disappeared from behind a shed with a rugby ball. Thought it was better to go then before a load of rugby players cam chasing for their ball. ha ha !!!

We came back to Tesco and I went in for just a few things. Got back home and then had a lovely chat to  Mesowarrior Dorothy’s  Son in Law. We talked about Asbestos and how Dorothy might have been contaminated so causing her death. It is a problem if you don’t know, you cant always work out the exact area.

She was such a lovely lady who painted such lovely pictures one of which was used for her Tribute on Monday

Goodnight to a brave Mesowarrior.

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It was a lovely chat and the afternoon went so fast. A letter from Nick Clegg was emailed to me while we were talking. Like you do.

I had written on behalf of the Mesowarriors so the reply is for the Mesowarriors

Kelsey Smith (Nick Clegg)

Mar 5, 17:23

Dear Mavis,

Thank you for your email to Nick Clegg concerning the Medical Innovation Bill.

While we welcome the aim of the Bill in encouraging responsible innovation in medical treatment, serious concerns have been raised about the need to ensure there are appropriate safeguards in place, to protect both patients and doctors. We appreciate that the Medical Innovation Bill gives rise to strong feelings, but we cannot rush this through the House of Commons under pressure of time to get it passed before the General Election, especially when patient organisations, research charities, legal bodies, royal colleges and medical unions have raised serious concerns that the Bill in its current form could actually put patient safety at risk.

As you are aware, the Bill seeks to encourage responsible innovation in medical practice by allowing doctors to use medicines which are outside of the usual range that are accepted for the treatment of a condition. We must avoid the risk of any unintended consequences, which is why these proposals need to be looked at seriously by Government and considered in depth.

Liberal Democrat health minister, Norman Lamb has written to the Health Secretary expressing concerns that there is not enough time to properly consider the complicated legal and medical issues implications of the proposals during the passage of this Bill. However, I would like to make clear that the Liberal Democrats have no interest in pushing this into the long grass, as has been claimed.

Instead, what Norman Lamb has proposed is that the Government launch a thorough investigation into this issue. This would look into what legislative measures and guidance will need to accompany the Bill, which would assure doctors of their new responsibilities and that they will not be found to have been negligent if they have acted responsibly while innovating. We have proposed that the Department of Health should appoint a professional expert in this area to lead the work of this review. It should involve wide consultation with stakeholders, including patient organisations, legal bodies, royal colleges and medical unions, many of whom have raised similar concerns to those of the Liberal Democrats, about whether it is possible to address such an important topic properly through this Bill, in its current form.

We would prefer that, following full Government consultation, a draft Government Bill be prepared. Government Bills are usually given much more time to be debated and scrutinised in Parliament than the Medical Innovation Bill will have in its current form as a Private Members Bill. A Government Bill on this matter should also be subject to full pre-legislative scrutiny by the Health Select Committee.

While it may take longer to deliver the changes the Bill is seeking to make, we are hopeful it will result in valuable, but also well regulated, innovation.

Thank you for taking the time to raise your concerns on this important issue. I hope this more fully explains our position.

Yours sincerely,

Edward Simpson
Office of the Rt Hon Nick Clegg MP

Im not happy with it. They are just playing for time and time isnt what we a terminal person has.

So we carry on with the fight the petition is doing really well with 2,913 supporters so we keep going as we need 5000.

Facebook this morning was filled with photos of children all dressed up to go to school on World Book Day.

Karryanne is always coming up trumps I just loved what she did with her 2 wonderful children.

http://www.bbc.co.uk/news/uk-england-somerset-30687171?fb_ref=Default

This story bought a smile to my face as well as I love fairies.

Wayford Woods, Somerset

“Fairy control” has had to be brought in at a woods in Somerset to curb the “profusion of elfin construction”.

Hundreds of fairy doors have been attached to the bases of trees in Wayford Woods, Crewkerne.

It is claimed the doors have been installed by local people so children can “leave messages for the fairies”.

But trustee Steven Acreman said: “We’ve got little doors everywhere. We’re not anti-fairies but it’s in danger of getting out of control.”

Wayford Woods, Somerset

Originally an extension of nearby Wayford Manor Gardens, the 29 acres of woodland boasts a stream, meadow and ornamental lake.

Set up as a charitable trust in the 1990s, it wasn’t until the beginning of the millennium that the first fairy moved into the woods and installed a “little door” in the roots of a tree.

“It fitted perfectly, it had a little turned handle and inside was a bed. We didn’t know who had done it but we left it there,” said Mr Acreman.

“But then another door appeared and now it’s gathered momentum.”

At its peak a year ago, more than 200 little doors had been screwed, nailed and installed on trees, according to Mr Acreman.

And with little tokens, fairy toys and notes secreted behind some of the doors, it has rapidly become known as “the fairy woods”.

“We’ve had as many as 10 doors put up on a single tree; they surrounded the tree,” he said.

“We had a complete fairy fairground arrive, but we rejected that planning proposal.”

With elfin construction now including “more and more garish” plywood doors with “lots of tinsel and glittery stuff”, Mr Acreman said they have had to bring in “quality control” to remove the worst offenders.

“It’s a very complex situation and nobody’s admitting that they’re evicting the fairies,” he said.

“It’s just that fairy control is required otherwise we’d be covered in fairy doors.

“We put a lot of time into the conservation of the woods. We’re trying to keep people to the paths but the fairy doors are making it a free-for-all.”

Its nice to loose yourself in magical things now and again when the world is going mad around us

Ray has been doing a doggy Blog –i think we are loosing it here as we get old . ha ha https://waggerstales.wordpress.com/

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