Living With Mesothelioma -My Diary- Day 5 of Asbestos Global and Lou has a a chance at my Drug -Hooray!!!


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Happy Easter Sunday.

One of those days when I was thinking of all the Easters past and a yearning for my daughter. It still hits me after all these years.

We woke up to the wonderful news that Lou in Australia is going to go onto my drug. Im so happy to know another mesothelioma warrior is getting a chance at this drug. Lou like me has run out of options even though sh has been operated on as she has Peritoneal which is in the tummy regions.We had a chat on FB this morning and she has my positive attitude so

I pray it works for her and that her tumour bi-op passes the test.

Im amazed that she is going to have to pay for the treatment and realise how lucky we are in the UK with the NHS although Im classed as private and the drug company is paying all bills and expenses for me.

I have a feeling it isnt a trial but that the drug was fast tracked for melanoma in Australia and so they are using it as a last result drug. Pembrolizumab (formerly MK-3475 and lambrolizumab, trade name Keytruda[1]) is a drug marketed by Merck that targets the programmed cell death 1 (PD-1) receptor. The drug is intended for use in treating metastatic melanoma.[2][3] Pembrolizumab was invented at Organon Biosciences which later became Schering Plough Research Institute and then Merck & Co.[4]
 
On September 4, 2014 the US Food and Drug Administration (FDA) approved pembrolizumab under the FDA Fast Track Development Program. It is approved for use following treatment with ipilimumab, or after treatment with ipilimumab and a BRAF inhibitor in patients who carry a BRAF mutation.[5]
 
The drug is now in Phase II trials for non-small-cell lung cancer (NSCLC) in patients with oligometastatic disease at the University of Pennsylvania
Still that means nothing it’s the chance of getting some results that counts.

We have had a wonderful warm and sunny day and so after closing the den at dinner time we went to our favourite park with Louis.

it was busy with many cars parked up in the car park. People go on long walks from here. ray and I have walked into Canterbury when we first moved here.

Now I have to make do just walking round the park and taking in the wonderful view.

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Off he ran chasing the ball. i love it when he gets so much exercise.

We came home and had a coffee and a kip.

Asbestos Hunter placed this on facebook and I liked it

Day FIVE of Global Asbestos Awareness Week features a blog from infamous Brazilian anti-asbestos advocate Fernanda Giannasi about workers safety and ban asbestos as well as Joe’s story, “How Many Deaths Will It Take.” Check back tomorrow for Day SIX – April 6th for a blog from the Environmental Information Association (EWG) about the Toxic Substances and Control Act (TSCA) of 1976, .” http://bit.ly/1ERA1RY

This day of Global Asbestos Awareness Week is dedicated to Joe’s story, “How Many Deaths Will It Take?

“First and foremost, education is critical in preventing asbestos exposure.  Do you know where asbestos could be in your home? Your office? Your kids’ school?  Asbestos has been banned in 55 countries, but not in the U.S. or all of Brazil.  Even countries that have banned asbestos may still have asbestos present in buildings and consumer products.  Take control of your health and safety.

  • Workers:  Make sure you know how to identify asbestos and how to have it safely removed.  Ask for the training necessary to do your job safely and do not disturb asbestos if you are not a licensed professional.
  • Everybody:  Learn where asbestos can be found and how to identify it.  Do not remove or damage asbestos material.  Contact asbestos professionals for testing and removal information.

The battle to ban asbestos is a global one, and there has been some progress in recent decades.  For example, the Rotterdam Convention is approaching in May.  The text adopted at this multinational conference promotes shared responsibilities related to importing and exporting hazardous chemicals, including asbestos.  It also encourages open information exchange to protect the public.  I am very pleased to see how many countries have signed on over the years and it is certainly a step in the right direction.

Fernanda 2I also suggest that everyone take advantage of the resources available in their respective countries.  For those in Brazil, leverage Abrea Associação Brasileira dos Expostos Ao Amianto (ABREA).  ABREA was initially constituted in 1995 by the ex-workers of Eternit from Osasco to give visibility to the problems resulting from asbestos locally and nationally; to carry through medical examinations in the asbestos-exposed people (former workers and their families); to consider actions for indemnification/compensation for the victims; to inform the population and consumers on the risks of asbestos and its harmful substitutes to public health; and to fight for the banishment of asbestos in all of the Brazilian territory, as already occurs in more than 50 countries around the world.

Of course, asbestos is a problem around the world, and victims and advocates can benefit significantly from sharing their knowledge and experiences.  As such, in partnership with the Asbestos Disease Awareness Organization (ADAO), we launched the Global Ban Asbestos Network (GBAN), a virtual portal established to promote and facilitate collaboration, communication, and action internationally.  Check out the website to learn about efforts around the world!

I hope that you can share this information with your family, friends, and coworkers.  Protect yourself, connect with victims and advocates, and take action!”

-Fernanda

Special thanks to Sarah and The McOnie Agency for their amazing help with Global Asbestos Awareness Week

Each year, upon the passage of the U.S. Senate’s “National Asbestos Awareness Week” Resolution, in addition to a week of awareness, the Senate “urges the Surgeon General of the United States to warn and educate people about the public health issue of asbestos exposure, which may be hazardous to their health.”

Asbestos Worker

MARF have published a blog http://blog.curemeso.org/risk-asbestos-exposure/

When one person is exposed to asbestos, that person is not always the only one affected. Take-home, or secondary, asbestos exposure happens when the initial person exposed then exposes others around them through contaminated clothes, vehicles, and so on. Learn more about the risks in our new blog post

As Im a secondary this interests me

Asbestos does not always affect only the initial person exposed. Take-home exposure, also known as secondary exposure or bystander exposure, is occupational exposure carried from the work place to the home, which exposes loved ones to the same toxins as the worker. These exposures will play a large role in ‘round two’ of asbestos disease. These exposures venture down many pathways; through laundry, wearing work boots throughout the house, using the same vehicle for work and family, or simply hugging a loved one when returning home from work.

When discussing this topic, Diane Blackburn-Zambetti, Director of Policy and Prevention Education at the Meso Foundation, stated, “In my career as a radiation therapist, I had the opportunity to treat not only one of my father’s co-workers, but both of his daughters for asbestos related diseases in an 8 year time span.”

Take-home asbestos exposures are not uncommon. In speaking with the mesothelioma community, Diane met various individuals affected by take-home exposures. In the late 1950s, the wife of a Steelworker was diagnosed with mesothelioma and passed away shortly after. Linda Papa lost her mom from take-home exposures she experienced while doing her husband’s laundry.

One man in the mesothelioma community was a proud IBEW 1 tradesman for 40 years. On Christmas Eve in 2004, he was admitted to the hospital and diagnosed with lung cancer that had metastasized to his brain. He passed away in 6 weeks. One year later, his daughter was diagnosed with peritoneal mesothelioma.

In 2015, the work force has become more safety-oriented. This is not to guarantee that take-home exposures do not and will not occur, as mentioned above. In the mesothelioma community, it is more important than ever to educate and utilize the tools provided by the Meso Foundation to change the focus to STOP – LOOK – THINK when dealing with asbestos.

This has been a great week in the US and Global so much Info has been released. I wish people would stop saying that nothing is written about the subject. In the 6 years that I have had Mesothelioma the info has poured out. Just Google –i do !!!

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