Living With Mesothelioma- My Diary- A day from 7.30am to 5pm so frustrating at the Royal Marsden for my drug day

Well it was drug day again today and the road was packed all the way.

But we got to the Marsden for 7.30 early so a welcome Hot Chocolate was bought.

I booked into the treatment room and sat in the waiting room. A long wait to 9.30am when my bloods were taken and PIC line cleaned.

Back to the waiting room where at 11.30 I saw a new Doctor. He was very nice and took time to explain to me how Australia was using The Melanoma drug for Meso and he said if you pay private there are several Immunotherepy drugs as not everything gets to funded by the NHS.I suppose that has to be correct. Drugs are so so expensive but if you have a good pay out it would be a good idea to find out just what is available private. I just have never thought about it.

Merck said Keytruda (pembrolizumab) would cost $12,500 per patient per month, or $150,000 per year.

Im just so grateful for the NHS in the UK and my trial drug

The Doctor had a long chat about how pleased they are at the Marsden with me. They are getting so excited about my Scan in may.

We shook hands and off to the Cafe for another coffee and a lovely piece of Coffee Walnut Cake.

We had to return for Ray to do an interview survey for carers and what the think of  Phase 1 trails. (He blooged )

When he and Lorraine came back they were laughing away together (Ray does that ) Bless him.

I sat there and sat there I went into the treatment room and came out as it got to full. At 3.45pm my drug came up. Why so long. i was there at 7.30 and get the drug at 3.45pm there is something wrong in the Pharmacy I will have to go in and sort them out ha ha !!! well i will have to keep complaining. they need more staff or a reorganising.

5pm we were free to travel home -Gee Wiz !!!

I did wish my dear nurse Anabelle a Happy Wedding Day bless her I hope she has a great day xx

Now here is a Modern idea

A PIONEERING Barrow pharmacist has become the first in England to be allowed to access patients’ GP records and issue medicine previously only available from a doctor

Gareth Jones, manager at Murrays Pharmacy in Middlefield, Barrow, has completed extra training to diagnose acute conditions safely and prescribe the correct medication.

Despite not being an NHS employee, he is able to access medical records with the patient’s consent due to innovative IT advancements.

The Minor Ailments Scheme aims to ease the pressure on local GP surgeries and Furness General Hospital’s accident and emergency department.

Mr Jones said: “The scheme has been a huge success here in Ormsgill and has proved very popular with patients.

“I can now supply a wider range of medication than the standard minor ailments service, including those only available with a prescription once I have carried out a clinical assessment.

“I have been able to complete all the requirements and training of the non-medical prescribing course and can access a patient’s record at their GP practice with their consent. I record the advice given and the products prescribed and this is sent direct to the GP practice so the patient’s record is updated.”

It is hoped that if the latest phase of the Minor Ailments Scheme is successful, it will be rolled out to more pharmacies in Cumbria.

Hazel Smith, NHS Cumbria Clinical Commissioning Group’s primary care development lead, said: “Enabling the pharmacist to link together with GP practices is a great step forward, improves the information available about the patient for everyone involved in their care and allows the pharmacist to prescribe medication safely and legally.

“Working together and sharing information has huge benefits for the patient and GP practices and is the way forward in the future.”

The scheme has also been praised as it means the patient only needs to make one visit to the pharmacy rather than a trip to their GP and then the pharmacy.


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