Living With Mesothelioma -My Diary- My Drug Day Mk3475 -28 is topped up in my veins for the 24th time


We got up 4.45am after trying to sleep through heavy rain all night.

Ray took Louis for a very wet walk as the lane had lots of huge puddles and cars just love riding through and creating a wave.

Then we set off and was great until the M20 and then gratefully we reached the M26 but from the entry onto the M25 it was slow slow stop slow going.

We arrived 8.30 but as that is my appointment time we made it OK. I did dive out of the car at the car park barrier and Ray hadnt heard me say I would do that. He tried to drive off through the open barrier. Oh dear!!!

I booked in and the waiting room filled up with patients that should have been there yesterday but as it was bank holiday they had appointment changed.

There was a lot of strange faces. I realised there were a few very ill patients as well. We are all on last chance alley on Phase one trials. Very sad. But we are a happy bunch and when I went in to have my bloods taken I came back to find Ray fast asleep. later when I went to the loo a lady woke Ray up and another lady said come on you have been snoring and winked to me. Everyone laughed as Ray was embarrassed.

The nurse that took my blood was thrilled I was on no 24 of my trial. I said the scan is next time and he already knew as they are all waiting for the result.

Everyone keeps telling me that.

I saw the Doctor and nothing has changed and my bloods were spot on, so after my usual examination, breath in and breath out he signed me off and ordered the drug to be made up.

I told him of the sad death in Australia of Mary and he said it just isn’t for everyone but those that it is working for seem to be doing so well but it is really doing the best with skin cancer.

We still have to gone with research so we have to keep raising money for research funds.

https://www.royalmarsden.org/

Ray and I shook his hand and went down for our coffee and cake. Rays treat at the Marsden.

We went back to the waiting room and there was a couple we have met before who we always chat to.

He was still scratching his trial is really making him itch and after he went in to see the Doctor, he came out and told me was off the trial. He is going to have a break and they will sort another trial for him. We are always ready to give it a go aren’t we.

He was happy to have a break and said he will sail his model boats and pass the time.

It was soon time for my drug as it was made and ready for me.

The nurses sorted out my machine and loaded the bag up. The wonder drug dripped away into my vein setting me up for another 2 weeks.

My Greek Doc appeared and I smiled at him. ” Hello Mavis” and then he carried on talking to the nurses. ray was smiling “whats up” he said ” if the Duke of Edinburgh  was to walk in he would know you” ha ha !!!

So that was it everything was done and I was allowed home it was 3.30pm so that was great.

The drive home went really well, no hold ups but the wind was very bad and we had branches of trees hitting us a couple of times.

I found on Twitter that Asbestos Free twittered my BLF Take Five Stay Alive Video with the words at

That made me so proud that they have linked me into the Conference that http://www.brsmeas.org/2015COPs/Overview/tabid/4196/mctl/ViewDetails/EventModID/9163/EventID/539/xmid/12867/language/en-US/Default.aspx

Stopping mesothelioma is possible. That’s why we need to vote to at

I have to show this site as it is so informative.

Very Impressed at the Royal Marsden for using The vein finder. Thanks to a wonderful Patient for Donating to the Oak Ward https://lnkd.in/d_hkeKa

http://www.cancer.gov/cancertopics/pdq/treatment/malignantmesothelioma/patient?utm_content=sf37516750&utm_medium=spredfast&utm_source=twitter&utm_campaign=National+Cancer+Institute&cid=tw_NCIMain_nci_Prevention/Risk.mesothelioma_sf37516750

Malignant mesothelioma is a disease in which malignant (cancer) cells form in the lining of the chest or abdomen.

Malignant mesothelioma is a disease in which malignant (cancer) cells are found in the pleura (the thin layer of tissue that lines the chest cavity and covers the lungs) or the peritoneum (the thin layer of tissue that lines the abdomen and covers most of the organs in the abdomen). Malignant mesothelioma may also form in the heart or testicles, but this is rare.

Enlarge

Malignant mesothelioma; drawing shows parts of the body where malignant mesothelioma may form, including the lungs, heart, pleura, abdominal cavity, and testicles.
Malignant mesothelioma forms in the thin layer of tissue that covers the lung, chest wall, abdomen, heart, or testicles.

Being exposed to asbestos can affect the risk of malignant mesothelioma.

Anything that increases your chance of getting a disease is called a risk factor. Having a risk factor does not mean that you will get cancer; not having risk factors doesn’t mean that you will not get cancer. Talk to your doctor if you think you may be at risk.

Most people with malignant mesothelioma have worked or lived in places where they inhaled or swallowed asbestos. After being exposed to asbestos, it usually takes a long time for malignant mesothelioma to form. Living with a person who works near asbestos is also a risk factor for malignant mesothelioma.

Signs and symptoms of malignant mesothelioma include shortness of breath and pain under the rib cage.

Sometimes the cancer causes fluid to collect in the chest or in the abdomen. Signs and symptoms may be caused by the fluid, malignant mesothelioma, or other conditions. Check with your doctor if you have any of the following:

  • Trouble breathing.
  • Cough.
  • Pain under the rib cage.
  • Pain or swelling in the abdomen.
  • Lumps in the abdomen.
  • Constipation.
  • Problems with blood clots (clots form when they shouldn’t).
  • Weight loss for no known reason.
  • Feeling very tired.

Tests that examine the inside of the chest and abdomen are used to detect (find) and diagnose malignant mesothelioma.

Sometimes it is hard to tell the difference between malignant mesothelioma in the chest and lung cancer.

The following tests and procedures may be used to diagnose malignant mesothelioma in the chest or peritoneum:

  • Physical exam and history : An exam of the body to check general signs of health, including checking for signs of disease, such as lumps or anything else that seems unusual. A history of the patient’s health habits, exposure to asbestos, and past illnesses and treatments will also be taken.
  • Chest x-ray : An x-ray of the organs and bones inside the chest. An x-ray is a type of energy beam that can go through the body and onto film, making a picture of areas inside the body.Enlarge
    Chest x-ray; drawing shows the patient standing with her back to the x-ray machine.  X-rays are used to take pictures of organs and bones of the chest.  X-rays pass through the patient onto film.
    X-ray of the chest. X-rays are used to take pictures of organs and bones of the chest. X-rays pass through the patient onto film.
  • CT scan (CAT scan): A procedure that makes a series of detailed pictures of the chest and abdomen, taken from different angles. The pictures are made by a computer linked to an x-ray machine. A dye may be injected into a vein or swallowed to help the organs or tissues show up more clearly. This procedure is also called computed tomography, computerized tomography, or computerized axial tomography.
  • Biopsy : The removal of cells or tissues from the pleura or peritoneum so they can be viewed under a microscope by a pathologist to check for signs of cancer.

    Procedures used to collect the cells or tissues include the following:

    • Fine-needle (FNA) aspiration biopsy of the lung: The removal of tissue or fluid using a thin needle. An imaging procedure is used to locate the abnormal tissue or fluid in the lung. A small incision may be made in the skin where the biopsy needle is inserted into the abnormal tissue or fluid, and a sample is removed.Enlarge
      Lung biopsy; drawing shows a patient lying on a table that slides through the computed tomography (CT) machine with an x-ray picture of a cross-section of the lung on a monitor above the patient. Drawing also shows a doctor using the x-ray picture to help place the biopsy needle through the chest wall and into the area of abnormal lung tissue. Inset shows a side view of the chest cavity and lungs with the biopsy needle inserted into the area of abnormal tissue.
      Fine-Needle Aspiration Biopsy of the Lung. The patient lies on a table that slides through the computed tomography (CT) machine, which takes x-ray pictures of the inside of the body. The x-ray pictures help the doctor see where the abnormal tissue is in the lung. A biopsy needle is inserted through the chest wall and into the area of abnormal lung tissue. A small piece of tissue is removed through the needle and checked under the microscope for signs of cancer.
    • Thoracoscopy : An incision (cut) is made between two ribs and a thoracoscope (a thin, tube-like instrument with a light and a lens for viewing) is inserted into the chest.
    • Thoracotomy : An incision (cut) is made between two ribs to check inside the chest for signs of disease.
    • Peritoneoscopy: An incision (cut) is made in the abdominal wall and a peritoneoscope (a thin, tube-like instrument with a light and a lens for viewing) is inserted into the abdomen.
    • Laparotomy : An incision (cut) is made in the wall of the abdomen to check the inside of the abdomen for signs of disease.
    • Open biopsy : A procedure in which an incision (cut) is made through the skin to expose and remove tissues to check for signs of disease.

    The following tests may be done on the cells and tissue samples that are taken:

    • Cytologic exam: An exam of cells under a microscope to check for anything abnormal. For mesothelioma, fluid is taken from the chest or from the abdomen. A pathologist checks the fluid for signs of cancer.
    • Immunohistochemistry : A test that uses antibodies to check for certain antigens in a sample of tissue. The antibody is usually linked to a radioactive substance or a dye that causes the tissue to light up under a microscope. This type of test may be used to tell the difference between different types of cancer.
    • Electron microscopy : A laboratory test in which cells in a sample of tissue are viewed under a high-powered microscope to look for certain changes in the cells. An electron microscope shows tiny details better than other types of microscopes.

Certain factors affect prognosis (chance of recovery) and treatment options.

The prognosis (chance of recovery) and treatment options depend on the following:

  • The stage of the cancer.
  • The size of the tumor.
  • Whether the tumor can be removed completely by surgery.
  • The amount of fluid in the chest or abdomen.
  • The patient’s age.
  • The patient’s activity level.
  • The patient’s general health, including lung and heart health.
  • The type of mesothelioma cells and how they look under a microscope.
  • The number of white blood cells and how much hemoglobin is in the blood.
  • Whether the patient is male or female.
  • Whether the cancer has just been diagnosed or has recurred (come back).
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