Living With Mesothelioma -My Dairy- The Royal Marsden, Drug Day and Operation Stack made us late getting home

I dragged myself out of bed when the alarm set off. I sort of slid up the passage and into the bathroom and put myself under the shower. That bought me round and after Ray walked the dog and i made sure he had water and I hid chews around the place so that he amused himself finding them all day.

The journey was great and we got there in good time.

I was seen fairly on time and bloods were taken then waited to see the doctor.

It was my Greek God today. he is so interested in the trial and I do have a good chat as really there is no change in any of me. The problems I have, never change.

My CT Scan is August 11th doesnt the three months go fast.

The Drug is not perfect on its own it seems it’s just too hit and miss. My results are wonderful but that’s not the case through the world. I was informed  today that only 20% Mesothelioma throughout the world have shown shrinkage. Its early days and they have a long way to go yet but they are on the right track.

The results are better with other cancers. What is it about Mesothelioma that makes it so difficult. Is it because it is caused by a barbed asbestos fibre, so it is an object actual stuck in our bodies that irritates and causes a wound that mutate into a horrible cancer.

We all breathed in different coloured fibres, different amounts at different ages. I can see why nothing is uniformed so creating different exposures

So we came down to sit outside in the sunshine and found an empty bench. A fire engine was in the car park and wondered why. They had fire maintenance going on so I thought it was that and then the Fireman was spraying all the cars that came in and washing their windows, even the buses were showered. than the children from Oak Ward came out and they were having a go and looking in the Fire Engine.


All good fun and lots of laughter bless them They break my heart with their hair loss and so thin. I shall never get over the sights I see in this hospital but I do see a lot of happiness as well.

We went back in upstairs and a long wait. as they were short-staffed And also the pharmacy took ages to produce my drug. It had come out of the fridge at 12.30pm so they had to get it into my veins within 4 hours. I went in at 3.27pm. They just made it.

Its been a long boring day if it wasnt for the other patients and their carers who were all a chatty lot this week. So we were all swapping stories and passed the time away.

So that was it I could come home and we thought we might get in by 6pm –Wrong!!!!

Why have they put operation stack between J 8 and junction 9 on the M20.

Everything was told to get off on the A249 for Dover. Didnt put a message up that all other traffic could divert off at J8 for the A20.

So everyone piled up in a huge long line of stopped traffic.

We had to queue and then they had a message for the Motorist that they could go on to J8 so right near our turn off to the A249 traffic realised so making it easier for us and we picked up speed again.

We are home but these poor lorry driver are not. The Police have to make sure they have food and water and in this heat they must be so fed up.

“Passengers, on both sides of the Channel, intending to travel through either Dover or Calais should check with their chosen operator before they travel. Travel advice can be found on the information and advice pages on GOV.UK.

“Operation Stack is in operation on the M20 and road users are advised to follow the signs in order to minimise disruption.”

See it’s not only Passengers that it upsets It’s all the traffic in Kent as well. grrrr

Living With Mesothelioma -My Diary – A wonderful Sun Set, Wimbledon is off to a great start, and Im heading BLF for Mesothelioma Action Day

Such a hot hot day but we musnt complain as we get such few nice days.

Last night we had a wonderful sunset that  had been caught  by Whats on Whitstable. From our home it was a lot redder than this.

But a wonderful photo anyway Then this morning it was just like this again. Turner used to love our sun sets here and painted so many of them.

We have done the dog play at the park and we were all on our own. Although there was a thing that happened that made me smile.

A car pull up and two young people had a kiss then she got into a car that was parked up. Love it was it an illicit love affair going on. I will never know.


Wimbledon has started at last and amazing the weather is warm and so nice.

There has been so many years where we have wet weather.and all you see is the covers going on and off so we hope that this year they can play all the games in the dry.

The best seat in the house

Sue Barker will present live coverage across BBC One and BBC Two with 153 hours of tennis scheduled.

Joining her will be expert pundits such as John McEnroe, Tim Henman, Andy Roddick, Martina Navratilova, Lindsay Davenport and Virginia Wade.

If you miss any of the action, Clare Balding will present Wimbledon 2 day on BBC Two, rounding up all the best bits from the All England Club.

The new daily highlights programme will feature a live audience and celebrity guests who will talk about the latest news and hottest topics.

I don’t like the early games as we see the lesser player being knocked out but the champions.

Sometimes this doesn’t happen i know but then it’s so sad to see a great player get knocked out so soon.


Industrial vacuums stolen from construction site contain ‘dangerous’ levels of asbestos, police have warned. Why do people put themselves into such danger but there you go they now will have a lifetime worrying whether the have taken the dust into their body.

Who knew: in 1980 they released an aluminium coated chrysotile asbestos bound limited edition Stephen King book “Firestarter”. Crazy. On the plus side only 26 were made and they’re worth a fortune now. GARY MCKENDRICK mentioned on LInkdin –Just read it alone, outside and with your respirator on. What a crazy thing to have done as it was 1980 and it was well-known by the normal man who Asbestos was dangerous.

Asbestos Onestop's photo.
British Lung Foundation have used my story to highlight Mesothelioma Day 3rd July 2015.
I’m so honoured they have chosen me
They say at the end of my story :-
Mesothelioma research funding graphic

Research into mesothelioma receives less funding than other cancers which kill similar numbers of people, and that’s something I want to change. Raising the profile of mesothelioma is really important to me; I want more people to know what it is and the impact it has on so many lives like mine.

Action Mesothelioma Day is a great opportunity to talk about this.

We will find a cure for this deadly disease. But we can’t make it happen without more funding for research and support for mesothelioma.

This Action Mesothelioma Day, please consider making a donation to the BLF and help us get one step closer to the end of this asbestos-related cancer.

I hope my story brings hope to others and the donations roll in.

Rays Blog

Living With Mesothelioma -My Diary- Goodnight to another Mesowarrior when will it stop, Breathing problems in the humid air.

What a sad sad day yesterday was. People laying on a beach having a great holiday on minute and dead the next because of a crazed Gunman. 2 little boys stabbed by a man, Then the poor man in France decapitated. So much killing I despair what the world is coming to and then I had the sad news of the death of a Mesowarrior.

I  joined her daughter into the Mesowarriors group when sh contacted me through facebook as her mother had only just had the usual story of us warriors. The fluid in the lungs at the new year and going down hill so fast. I suspect she had the fast growing Mesothelioma

So many deaths It really does make you so sad.

I had a great time in the garden with Ray as we cut down my flags (Iris’s) and did a general tidy up.

Here you can lose your thoughts and work everything out but all I got was aching muscle’s in the leg. It became hard to walk and also hard to breath in the humid air.

We decided not to go away but I wish now we had. Sometimes we need to escape and just enjoy ourselves. But I live by the sea so we will spend today in the garden and then walk on the beach later .

I just love where we live and can see why my Mum and Dad had bought a caravan when the retired and spent as much time as possible here. It seem strange taking photos of a scene they also had taken in the 1980’s.

Seasalter is between Graveney Marshes and Whitstable  and Herne Bay; and across the water we can see  the Isle of Sheppey. Also the Saxon Shore Way runs through so we see a lot of walkers in the summer, either marching along in groups or sitting down on the wall eating their packed lunches and chattering away.


We see the oyster catcher come back from the oyster beds. We do live in a pretty area but we need the sun to shine like it is today

Yet we are in the countryside with green fields and orchards stretching for miles.

A lovely blog of a walker around our coast line

So the sun is beaming away and the promise of a heat wave coming at last we can put on the sun screen and just roast.

The only thing is that the air is so humid so this really makes our breathing feel tighter. It got hard yesterday and so i held my little face fan just by my mouth and found breathing was better. Trying to type got a bit awkward ha ha !!!

British Lung wrote a great piece to give advice about humid air.

During a heat wave extreme heat can force your body into overdrive as it tries to stay cool.  You start to perspire and you can become dehydrated and overheat. This can make you feel more breathless and make your lung condition feel worse.

If a heatwave is forecast, plan your day so that you can stay out of the heat.  Avoid going outside during the hottest time of day, which is normally between 11 am and 3 pm.

Make sure you have enough medication at home. If you haven’t, contact your GP practice to get more. You should also talk to your health care professional about having a written plan so you know what to do if you feel unwell.

Here are my top tips for looking after yourself in a heatwave:

1. Avoid the heat

Avoid the heat: stay out of the sun and don’t go outside between 11am and 3pm. If you have to go out, or have things to do, try planning your day to do them in the cooler parts of the day.

2. Keep out of the sun

If you do need to go out during the day, avoid being in the sun for long stretches, and wear loose, cool clothing and a hat.

3. Pack a bag of essentials

Take a bag of essentials with you such as any medication that you might need, plenty of water and a fan.

4. Reduce strenuous activity

Reduce or avoid strenuous activity in the heat (indoors and outdoors). Limit activities like housework and gardening to the early morning or evening when it’s cooler. The benefits of exercise are great if you have a lung condition, so make sure you exercise indoors in a cool, well-ventilated room or gym instead.

5. Drink cold water

Drink cold water regularly even if you do not feel thirsty. Avoid alcohol, which makes you pee more and causes you to dehydrate.

6. Keep your house cool

Try to keep your house cool. Closing blinds or curtains can help. Keep the windows closed while the room is cooler than it is outside.  If it is safe to do so, open windows at night when the air is cooler.

7. Take cool baths or showers

Take cool baths or showers, or splash yourself with cool water.

8. Use a handheld fan

Try using a handheld fan and let the cool air blow towards the middle part of your face. Hold it about six inches from your face. You may also find a floor standing fan or desktop fan helps. Do not have the fan blowing directly into your face, as this may cause you to inhale dust.

9. Eat as normal

Try to eat as you normally would – even if you aren’t hungry. You need a normal diet to replace salt losses from sweating. In addition, try to have more cold foods, particularly salads and fruit, as these contain a lot of water.

10. Check pollution and pollen

Avoid areas of high pollution, such as near busy roads. You can check pollution levels online, and if you have hay fever or other allergies you should also check the pollen count.

We are always helping each other with tips on how to cope with the disease. I love the way we are all together and such friends, I hate the way the numbers are growing though daily I add more people into the groups. I don’t know if it’s because the figure are growing or because we are more open and talk about things.

Rays blog

Update on my stale sweet purchase. I received from ebay an email advising me that I had been given a full refund from the seller. I contacted the seller to thank him for what was a surprise gesture. Mavis has had problems with her new computer. We sat together to sort it. Fingers crossed ….. Its been warm again so it was a nice walk round the park. [ 108 more words. ]

Living With Mesothelioma -My Diary-Summer walks-Saatchi Bill is moving through Parliament, Did you know how good Basil was.

The summer has shown herself at last and we can shed some clothes and stroll in the warmth of her breath. We got up early and I showered and walked Louis out in the early morning sun. The world was so quiet and so a new morning was just beginning as the sun was rising. The rays were so warm even this early.

Image result for pictures of a beautiful summer day

© Nirbhay Kwatra 9 years old wrote this poem bless him he has such an older mind to write his poems.

A Sunny Day

The sun was shining so bright,
having beaten the clouds in fight.

We wanted to go out for fun,
I wish the clouds could beat the sun.

Evening came and the sun went down,
We all went for a walk in the town.

Water was flowing down the stream,
While I was licking my ice cream.

The stars shone brightly in the sky,
they finally showed all their might

I waited for Ray to wake up and had his breakfast, the dog got another walk up the lane while I did the housework. Off to the shops where I bought fruit and vegetables as I have made a shopping list for a healthy eating week. Mango’s avocado pears for a salsa lemon and limes food for the summer.
I made this for dinner to go with the meat I had cooked made with dicing the mangos and avocado’s mixing with chopped onions lemon and lime juice and a dash of sweet chilli sauce I watched for Rays face to pucker up in  a Ekkk!!! it didn’t come he really enjoyed the fresh taste. Phew!!
We had trouble with my computer. It appears there is a bug on Windows 7 pro when you buy a new hard drive. It wanted to load new updates but it goes round and round in a loop after being on all night we had looked the problem up.
So after a lot of mucking around we have the computer on and go in and turn updates off. We have to see if that cures it. Why do they muck around like this. Dont they ever check their program’s.
If you ever get the problem just google, all the answers are there.
After lunch we went to our park. So many people are finding the park today. I use the walk to try to build up the muscles in my legs as after the chemo days my body is so weak. We have a busy July coming up with lots of visits to London so I have to try to build myself up more. The car park always has a lot of cars in where people go on long round walks to Blean Woods.  envy them. I used to be able to walk to Canterbury now I can only walk around a small round walk but throwing the ball for the dog makes it longer for him and he comes back to the car worn out.
Back home I worked on the computer and it all seems ok now fingers crossed.
The Asbestos world is very much full of the Asbestos in the Palace and the House of Commons. With everyone maybe having to move out.
My best bit of news from the Saatchi Team was the Bill has got  through to the House of Commons. Now we can get on with debating the Bill as we have wasted enough time.

Where are we now?

First of all, all the amendments made in the House of Lords, which won over the support of the Lords, remain.

Second, there is much more time available now for MPs to debate the Bill. We are not faced with a looming general election and we are at the beginning of the new Parliament. This means that MPs can debate and amend the Bill.

We know that government ministers support the Bill, as does Labour’s shadow health Minister Andy Burnham. So, it has a good chance.

But there is, as you know, genuine opposition from some medical bodies, including Royal Colleges and the BMA. Many have changed their positions over the past two years and we hope we can persuade them to change their minds back again to supporting the Bill, as it develops.

Lord Saatchi listened to his colleagues in the Lords and amended the Bill and now MPs will have their say – and through them, so will all those – patients, doctors and lawyers – who have an opinion.

This is democracy and we hope all will join the debate and make this Bill a success.

I came across this very imformative blog on herbs Wendy Rae Herbalist, Spiritual Counselor, Reiki Master / Teacher

Did you know that basil has the same effect of anti inflammatory relief as aspirin?

Did you know that basil originated in India?

Did you know that basil is a great healer of blood vessels and can reduce cholesterol levels?


Basil is high in magnesium.

Basil can help arthritis pain and inflammation.

Basil is a great source of iron, Vit C, calcium, and potassium.

Use basil raw (like in pesto) or at the end of the cooking process to retain the healing oils that are so beneficial.

One serving of basil gives a person 60% of their daily value of Vitamin K.

Basil’s flavonoids can protect cell structure from radiation.

Essential oil of basil has been shown to be effective against Staph infections.


Basil is a great tonic for the kidneys and preventing stones.

Gargle with basil water for a sore throat.

Combat mucus with basil (its the high magnesium content).

Relieve stress with basil scents: crush the leaves or add a little basil essential oil to your pulse points.

Chew on basil leaves to get rid of those pesky canker sores.

Add basil essential oil to your homemade bug spray.

Rub crushed basil leaf on bug bites for relief. (Works on ringworm, too.)

Add dried basil powder to your homemade herbal tooth powder for its anti-inflammatory properties.

Basil is so incredible, I think we should start a world campaign of throwing basil leaves everywhere and rolling around in them. Just think of how happy everyone would be. Or…. we can just eat pesto?

Living With Mesothelioma -My diary- Asbestos in the Palace now, We have a problem with Lorries in Calais So many problems

I have been so lazy and not written the past few days. maybe you as a reader have been glad of the rest as well.

I have been so busy on the computer which is sad as it means more and more Mesowarriors have need my support. The first contact through my blog or facebook and are depearte for knowledge and support. This tell s me that the NHS id letting people down. Some hospitals are still wonderful but some are not. I would never believe there was a post code lottery but I have to admit there is.

We really do have to educate all oncologists about asbestos and mesothelioma.

I feel now the House of Commons and Buckingham Palace are in trouble with Asbestos things really might change. With the Queen having to have her office moved and the Prime Minister surely the will realise that Schools have to be moved and sorted Maintanence work costing as much as £150m is needed for the central London palace, with the BBC quoting sources as saying there were “significant amounts of asbestos” that needed to be removed.“One option is for the palace to be vacated,” a source said.The £150m sum depended on whether the refurbishment was carried out in one go or staggered through a rolling programme.Sir Alan Reid, keeper of the privy purse, said: “Over the coming years, the maintenance of the estate and in particular Buckingham Palace will present a significant financial challenge. We will continue to work closely with the Royal Trustees to ensure that the funding for the Royal Household reflects that challenge.”

So with the House of Commons Under a proposa for basic repairs – such as improving fire safety, removing asbestos and restoring damaged stonework – would cost an estimated £3.9bn.

A higher-spec version of the partial move-out, with some of the same extras as a full move-out, would cost an estimated £4.4bn.

Gosh the cost of removal is costing this country Billions. Can we keep going on like this. Maybe we should all move out and go to the moon to start again.

Then on top of all this the country seems to under siege from the poor people in other countries abandoning the unpleasent landthey live in and moving to our small island. I have been watching all the terrifying pictures

We in East Kent have talked about this problem for years and people were poo hooing us and saying they never saw anyone when they came to Calais in their Motor Homes Well they couldnt be looking as we are now proving we do have an enormous problem and an enormous ammount of people trying to get here. Kent is the first port of call and our hospital is duty bound not to turn anyone away,

To my way of thing this is the Government again. Closing their eyes to what is going on and I liking it to Asbestos and the problem that could have been solved so easy in the 60’s 70′ 80’s. Why do they wear blinkers and have Tunnel vision.

If –IF they solved the problems as they happen we wouldnt get the emergencies we get now.

This is causing a huge problem now and very sad for Im so scared of it ending in bloodshed.

Well of off my soap boax I did have a great idea put before me on Facebook

The shopping Trolley bags.

I love them and of coarse I ordered them straight away.

Holywell Bay holiday summer

British Lung have publishe some good point for looking after our Lungs in hot weather –If we get any thats is .

1. Avoid the heat

Avoid the heat: stay out of the sun and don’t go outside between 11am and 3pm. If you have to go out, or have things to do, try planning your day to do them in the cooler parts of the day.

2. Keep out of the sun

If you do need to go out during the day, avoid being in the sun for long stretches, and wear loose, cool clothing and a hat.

3. Pack a bag of essentials

Take a bag of essentials with you such as any medication that you might need, plenty of water and a fan.

4. Reduce strenuous activity

Reduce or avoid strenuous activity in the heat (indoors and outdoors). Limit activities like housework and gardening to the early morning or evening when it’s cooler. The benefits of exercise are great if you have a lung condition, so make sure you exercise indoors in a cool, well-ventilated room or gym instead.

5. Drink cold water

Drink cold water regularly even if you do not feel thirsty. Avoid alcohol, which makes you pee more and causes you to dehydrate.

6. Keep your house cool

Try to keep your house cool. Closing blinds or curtains can help. Keep the windows closed while the room is cooler than it is outside.  If it is safe to do so, open windows at night when the air is cooler.

7. Take cool baths or showers

Take cool baths or showers, or splash yourself with cool water.

8. Use a handheld fan

Try using a handheld fan and let the cool air blow towards the middle part of your face. Hold it about six inches from your face. You may also find a floor standing fan or desktop fan helps. Do not have the fan blowing directly into your face, as this may cause you to inhale dust.

9. Eat as normal

Try to eat as you normally would – even if you aren’t hungry. You need a normal diet to replace salt losses from sweating. In addition, try to have more cold foods, particularly salads and fruit, as these contain a lot of water.

10. Check pollution and pollen

Avoid areas of high pollution, such as near busy roads. You can check pollution levels online, and if you have hay fever or other allergies you should also check the pollen count.,3GSYM,39NCPT,CEQ21,1


Rays Blog

Living With Mesothelioma -My Diary- Fathers Day, Im going to the Asbestos The Truth Conference and at last House Surveys are being advertised


For My Dad On Fathers,  I know this man, Who is dear to my heart, Suddenly one day It was torn all apart
This man taught me everything That I needed to know But I never really listened Until he had to go
He gave me love And touched my life It’s all over now He no longer has to fight
He tried to teach me Right for wrong The day he left I wasn’t that strong He is gone now It is hard to believe
This man is my dad Who I will never see But I will see him again This I know The day will come When it’s time for me to go
So, I’ll hold him dear And close to my heart Cause the day we meet I know we’ll never be torn apart.

Love you Pops with all my heart and miss you so much xxxxxxxx

Today has been fathers Day and I have loved looking and reading all the Mesowarriors pictures and words of their fathers.

So many lovely men that shouldn’t have died so young but the devils dust killed them, because they worked with Asbestos around, them all those years ago.

I know why I do all I do, as we have really bought Asbestos into the news. We are altogether on Facebook and being together has made one voice sound so loud as one voice joined with thousands becomes a huge voice.

People are listen to us. As I’m contacted to go to conferences now.

Friday I was invited to A very exciting one, in September, that is very much for the Industry and so i will bring the patients side to it as we chat around. More and more the Industry is interested in the plight of what happens to people and makes them realise they are doing a great job, making it safe for the future. There is a lot of work to be done though.

Asbestos The Truth remains the largest event in the Asbestos industry with 89% of our exhibitors describing the conference as extremely useful for their business.
Asbestos The Truth visitors are loyal to the event with 73% of exhibitors agreeing they saw visitors they wouldn’t see elsewhere!

Sponsorship and exhibiting opportunities

Asbestos The Truth is back for 2015!

This year, Asbestos The Truth returns to London on September 2nd. Addressing key public/private sector asbestos management challenges with a mission to equip professionals with the right technical knowledge to plan for future changes to technology and legislation

Fred Dinenage

Fred Dinenage announced as Conference Facilitator for 2015! Conference organisers Lucion Environmental have this week revealed that British Broadcaster and former “How” and “How 2″ presenter Fred Dinenage will be facilitating Asbestos The Truth Conference 2015! Fred is one of the South’s longest-serving broadcasters whose connections with ITV go back to the 60’s. His television career began in. (He is our Local Television News reader here in South England so I hope to meet him.

Martin Stear 2

Martin Stear set to return as speaker at Asbestos The Truth 2015

“Asbestos Management vs Removal” Following on from Martin’s extremely well received carousel session at 2014’s Asbestos The Truth Conference, the former HSE Principal inspector will be returning to this years event to deliver the session “Asbestos Management vs Removal”. Taking to the main stage Martin will look at the legal

Please make this law More and more Companies are offering the service of House surveys Its great to see more and more Companies are offering the service but I wish it was a law. There is no need to panic but at least you would be aware you had Asbestos in your house and you would then be able to keep an eye out as it gets older and older. or maybe over the years call the experts in and have it removed. —…/home-buyer-asbestos-surv…/

Most standard home surveys will note common asbestos materials used in the building industry but no advice will be given regarding the condition or likely costs involved with dealing with such materials, since it is normally outside their scope of their work.

Asbestos surveys can be difficult to understand to the un-trained eye and we have developed this service specifically for property buyers and sellers to ensure that any materials can be clearly identified. We also include jargon-free advice about any materials identified and what can be done to make them safe.

Based on the standard HSG264 Management Asbestos Survey, the home buyer’s asbestos survey also includes estimated costs for any remedial work that may be required for dangerous or badly deteriorated materials, ensuring you are not buying a property which may cost you a small fortune in the future.

Following a Home Buyer Asbestos Survey you will receive:

  • A “Management Asbestos Survey report” with schematic diagram and asbestos register, in accordance with HSG264
  • Clear recommendations in layman’s terms
  • Approximate costs for any likely remedial / removal work
  • Bulk sampling certificate from UKAS accredited laboratory relating to any samples taken
  • Easy to read report layout

All reports are printed in full colour, bound, presented by hard copy, emailed in PDF format and a copy created on compact disc.

Living with Mesothelioma – My Diary- Good Night to a Wonderful Mesowarrior

A very sad day today as we lost our Jim yesterday













Im so pleased we met up at the Royal Marsden. I know we were all so disappointed when they didn’t have a trial for him. The Docs must know how bad a patient is and that a trial wouldn’t help. We have to see that they know better than us. They are the experts.

Jim has had longer than was predicted so we have to be grateful for that.

He was a real character and always told it as it is. But he bought Blues to the world.  he was in the music game.

He set up this


A National Charity

The archive is a Charity that was set up by Peter Harvie and Stevie King in

2011 and is the only archive which concentrates upon British Blues,

that great music that means so much to so many people.

The archive documents the history, musicians, the venues

and the instruments that make up British Blues.

Eventually everything will be on this website for everyone to see but it will

take many years. We will get there with the help of fellow musicians and


Good Night Jim

Almost all asbestos cancers are being missed by Spain’s official reporting system, a study has found, raising concerns that frequently terminally ill workers are also missing out on compensation. I find this very sad as not only are they missing out on money that is rightfully theirs but it means the figures are out for the record of mesothelioma. Just how many other countries are messing the figures up.
According to the paper in the International Journal of Occupational and Environmental Health, only 164 cases of asbestos-related cancer were recognised in the 33-year period until 2011.
The researchers say this count misses almost all the cancers related to asbestos. For mesothelioma, they estimate 93.6 per cent of cases in men and 99.7 per cent in women are missing. For asbestos related lung cancers, the effect is worse still, with 98.8 per cent of bronchial and lung cancers in men and 100 per cent in women going unrecognised.
“These findings provide evidence of gross under-recognition of asbestos-related occupational cancers in Spain,” the paper notes. “Future work should investigate cases treated in the National Healthcare System to better establish the impact of asbestos on health in Spain.”
García-Gómez M, Menéndez-Navarro A, López RC. Asbestos-related occupational cancers compensated under the Spanish National Insurance System, 1978-2011, International Journal of Occupational and Environmental Health (IJOEH), volume 21, number 1, pages 31-39, January-March 2015.

ITUC Frontlines Poll 2015

Between 1978 and 2011, 164 asbestos-related occupational cancers were recognized in Spain, with a mean annual rate of 0·08 per 105 employees (0·13 in males, 0·002 in females). Under-recognition rates were an estimated 93·6% (males) and 99·7% (females) for pleural mesothelioma and 98·8% (males) and 100% (females) for bronchus and lung cancer. In Europe for the year 2000, asbestos-related occupational cancer rates ranged from 0·04 per 105 employees in Spain to 7·32 per 105 employees in Norway.

Conclusions:These findings provide evidence of gross under-recognition of asbestos-related occupational cancers in Spain. Future work should investigate cases treated in the National Healthcare System to better establish the impact of asbestos on health in Spain.I hope someone looks into this Im so shocked to read this.

Rays Blog —

Its been a fresh day one minute and a warm day the next. Mavis has been busy on her pages again. Me well the usual. times on pc facebook blogs. walking louis nodding, nothing new for me. I did have another brainwave solution for the refurb of westminster. Move the queen to Balmoral. Move parliament to Buckingham Palace. After all Buck house is just a big council house.

Living With Mesothelioma-My Diary- A summers day., A nice Artical about Richard Elliott, Flying and dangerous fumes,BBC1 DIY SOS do care about Asbestos

I have had a busy day again here on my computer. I have been doing my support group and helping Mesowarriors that need help or just someone to talk to.

I had to stay in for my meat order to arrive. Its the second time and the meat is really very good. im so sorry if Im not going local but sometimes its just nice to sit on the computer and shop and have it come to the door.

 I was tracing the order since early morning and it finally came at 12 so i was able to get it all in the freezer. It comes in special packaging so it was all good.

We went shopping then for vegetables and yogurts and now I feel all good and enjoy cooking healthy its silly what pleases you sometimes.

The weather was brilliant all day, washing blowing in the warm wind and saving me a fortune i by not using the dryer.

We had this lovely write up dedicated to Richard so wanted to share what a great man he was.

Richard Elliott, virologist

16 June 2015

Vincent and Richard ElliottVirologist Richard Elliott passed away on 5 June 2015. I have known Richard since 1979 and I would like to provide some personal recollections of this outstanding virologist. A summary of his work can be found at the MRC-University of Glasgow Centre for Virus Research science blog.

I first met Richard in 1979 when he joined Peter Palese’s laboratory at Mt. Sinai School of Medicine in New York City. We overlapped for only about a year but it was enough to get to know him: he was a hard-working, enthusiastic virologists and a good friend. We shared many beers in New York City. At the end of 1979 I went off to David Baltimore’s laboratory where in 1981 I produced an infectious DNA clone of poliovirus. It proved very difficult to make infectious DNAs of negative strand RNA viruses, and it was Richard who was the first to accomplish this feat in 1996 for a virus with a segmented genome. This work was very important as it showed that infectious DNA clones were not limited to RNA viruses with monopartite genomes.

I remained in contact with Richard over the years but I did not see him in person until the 2010 meeting in Edinburgh of the Society for General Microbiology. The following year he joined me, Connor Bamford, Wendy Barclay, and Ron Fouchier for TWiV #177 recorded in Dublin. Schmallenberg virus had just emerged as a new pathogen of livestock, and he discussed his work on this virus.

I next saw Richard in a 2011 meeting of the Brazilian Society for Virology. When I arrived in Brazil it was quite hot, and I found Richard sitting by the pool, reviewing manuscripts in his bathing suit. I snapped a few photos of him and put them on Facebook. Later that evening he said his laboratory had asked why pornographic photos of him were on the internet – he was shirtless in my pictures (with Grant McFadden in the photo).

Richard Elliott and Grant McFadden

Richard visited New York in the summer of 2014 but we were unable to connect. Early this year Richard had agreed to join TWiV again for an episode from Glasgow. Sadly he became too ill to participate and died on the Friday before I traveled to Scotland. While there I briefly visited the Elliott lab at the University of Glasgow MRC-Centre for Virus Research, nearly a week after his death. I’m happy that I made the lab members smile:

Very sad to hear of the passing of Richard Elliott. However, you are incorrect in stating that he was the first to develop a reverse-genetics system for a negative-sense RNA virus. This distinction instead belongs to Schnell et al 1994 in which they developed an infectious cDNA clone for rabies virus. In addition, reverse-genetics systems several other negative-sense viruses including VSV, Sendai virus, measles virus, and RSV were developed between 1994 and 1995, pre-dating the work by Bridgen and Elliott.

This is not to take away from the significance of his achievement. He was indeed the first to develop a cDNA infectious clone for a SEGMENTED negative-sense RNA virus, Bunyamwera virus.

Thursday June 18

How Safe Is Your Cabin Air? (ITV1, 7.30pm) Is now on while I write this blog. This is why I dont fly. It is known that recycled air goes round and round and it also drags in the air from the engine

An investigation into the safety of aeroplane cabin air. After two separate instances in which the autopsies of a pilot and an air steward revealed toxic levels of chemicals in the men’s systems, a British coroner has raised concerns and suggested that action must be taken. Reporter Joel Hills examines the evidence and talks to the family and friends of those who have died.

The Government must “tackle the scourge of asbestos in schools” to prevent the “unnecessary deaths” of teachers and former pupils, a teaching union has warned.

The National Union of Teachers has accused the Government of failing “to address the legacy of asbestos in schools” – and said it is a “scandal” that the substance remains present in about 86 per cent of schools.

The Government has now been called upon to protect teachers and pupils from asbestos in school buildings, which the union says is believed to be the cause of an estimated 200 to 300 adult deaths each year.

Asbestos is the single greatest cause of work related deaths in the UK. On average 20 tradesmen die per week from asbestos related illness.

Asbestos was used extensively as a building material for a number of years, notably from the late 1940s to the 1980s. Any buildings made before 2000, either commercial or residential can contain asbestos.

DIY SOS and the BBC take the danger of asbestos very seriously. Prior to the arrival of Nick and the team we conduct a complete and comprehensive asbestos survey of the site. This is undertaken by an approved BBC supplier who is fully compliant with all the necessary regulations covering asbestos.

Once we have the report we then organise for all the asbestos to be removed prior to any work taking place. Again the asbestos removal is done by an established and fully licensed asbestos removal company.

Anyone about to embark on DIY project of their own and concerned about the danger of asbestos should look at the Health and Safety Executive (HSE) website for advice or consult with a fully licensed asbestos removal company.

BBCI DIY SOS answer our Question about Asbestos

I find this a sad story as it is getting harder to prove where you are contaminated as people dont actually work with Asbestos like in the 60’s

THE FAMILY of a Crewkerne man who died of an asbestos-related illness have been advised by solicitors not to pursue legal action against former employers who may have exposed him to the risk.

An inquest held at Taunton Register Office found that Richard Munday, 76, of Redgate Park, Crewkerne, died on March 30, 2014 from mesothelemia – a cancer related to asbestos exposure.

However, acting senior coroner Tony Williams concluded that it was impossible to identify the times and places where the man may have been exposed to the deadly substance.

Munday worked in brewery and related industries, and for 30 years as an engineer in tobacco related industries.

Rays Blog

Living With Mesothelioma -My Diary- I Devote my Blog to Claire and Paul and thank them for the wonderful Interveiw on BBC2 today

I want to let Paul and Claire take over my blog tonight as they have done a superb job on raising awareness to Asbestos in Schools. Something that Claire and I have discussed for so long now as she was so worried with little Ethan having to find a school soon.

As Paul had Mesothelioma and gone through so much worry in his young life.Paul Cowley, 36, from Ely, was diagnosed with mesothelioma in October 2012. He has had an operation to remove part of the cancer and underwent six months of chemotherapy.

So if you thought it was an old mans disease, think again.

Lawyers to investigate how Ely man Paul Cowley was exposed to deadly asbestos

By Ely News  |  Posted: June 17, 2015

   A dad who is unlikely to see his young son grow up due to mesothelioma, an incurable cancer caused by exposure to asbestos, has instructed specialist lawyers to investigate how and where he was exposed to the deadly substance.Paul Cowley, 36, from Ely, was diagnosed with mesothelioma in October 2012. He has had an operation to remove part of the cancer and underwent six months of chemotherapy.Expert asbestos-related disease lawyers at Irwin Mitchell say it is incredibly rare for someone so young to suffer from the illness, which usually takes decades from exposure to asbestos for symptoms to develop.

The law firm is now investigating whether Paul was exposed to asbestos at school, as many older school buildings are known to contain asbestos.

Paul, who lives with his wife, Claire, and four-year-old son, Ethan, in Larkfield Road, attended St Ethel Reader School from 1982 to 1985, before moving on to St Mary’s Junior School in Ely from 1986-1989 and the City of Ely Community College between 1989 and 1994.

Paul, who has now given up work to spend more time with his family, also believes he may have come into contact with the deadly dust and fibres as a child through his father Douglas’ overalls, which he remembers being covered in dust when he returned home from work at Standen Engineering Company.

Rosemary Giles, a partner at Irwin Mitchell’s Cambridge office, and who is representing Paul, said: “Mesothelioma is an extremely aggressive and unfortunately, incurable, disease and Paul and his family are understandably absolutely devastated with his diagnosis at such a young age.

“It is very rare for people to be diagnosed with the disease at such a young age as it usually takes decades to present symptoms.

“Paul doesn’t believe he was exposed to asbestos during his own working life so we are now looking to investigate if he came into contact with the substance while he was young, perhaps at school or through the dust and fibres present on his father’s overalls when he worked at the Standen Engineering Company in Ely.

“The vast majority of schools still contain asbestos and we have regularly called for a comprehensive risk register and associated removal programme to be implemented by the Government to reduce the risks posed to teachers, pupils and other support staff.

“We would like to hear from anyone with information about the presence of asbestos in the schools Paul attended, or any building work at the schools that would have caused asbestos to be disturbed in the 1980s.

“We would also like to hear from Paul’s father’s former colleagues at Standens about the presence of asbestos at the factory and what measures, if any, were in place to prevent exposure to asbestos and stop the material being released outside the premises.”

Paul said: “Obviously Claire, and I were left absolutely devastated when I was diagnosed with mesothelioma. My operation was successful, but I will never be cured, and I know that I will not get to do a lot of the things we had planned for the future.

“My main aim now is to make sure everyone is aware of mesothelioma and to ensure people are aware of just how dangerous asbestos can be. My life will be cut short by an asbestos-related disease and many others are going through the same as me.

“Hopefully, by raising awareness of the serious health risks posed by asbestos I will help to reduce the number of people diagnosed with mesothelioma in the future and see progress made on the removal of the substance from the old buildings it continues to be present in.

“I have instructed Irwin Mitchell to investigate how and where I was exposed to asbestos and I hope that some of my dad’s former colleagues at Standens and anyone with knowledge of asbestos at the schools I attended will come forward with the information we need.”

If you have information, call Rosemary on 0203 582 6232 or email 

Watch the program on the link but Im afraid the link runs out in 28 days but we might get it on you tube

Asbestos warning sign

Teachers must be protected from the “scourge of asbestos” in UK schools, the National Union of Teachers has said. Two former teachers tell how they have been affected.

“I think it was in the ceilings, and I presume it was in the walls,” said Jenny Darby, 71, a science teacher between 1969 and 1996.

“So when the [ceiling] tiles came off, the asbestos would come down. I used to stick them back up almost every day.”

She does not know where she was exposed to the asbestos that caused her mesothelioma – a rare form of cancer almost always caused by exposure to the substance – but thinks it might have been in one of her classrooms. Asbestos was also in her lab equipment.

“I knew that blue asbestos and grey asbestos was banned, but I didn’t realise that white asbestos was a danger as well,” she told the BBC’s Victoria Derbyshire programme.

White asbestos was banned in 1999.

A 2013 study from the independent Committee on Carcinogenicity estimated more than 75% of schools in England had buildings containing asbestos.

The NUT puts the UK-wide figure at 86%, based on a Freedom of Information request to local authorities.

Symptoms of the cancer generally take 30 to 40 years to develop. Once diagnosed, however, most people can expect to live between just 12 and 21 months.

Jenny was diagnosed in May 2013 and is hoping her chemotherapy has slowed the cancer’s progress. But her husband, Bromley, said they were “on borrowed time”.

“We’re looking ahead maybe six to eight weeks, maybe more,” he said, regarding the couple’s ability to make plans for the future.

Between 2003 and 2012, 224 people in Britain whose last occupation was recorded as “teaching professional” died of the disease.

The rate of deaths is rising, but only in line with overall mesothelioma deaths, which amounted to 21,957 during this same period.

Jenny said she did not have any hopes for the future but tried to remain positive where possible.

“Sometimes I cry because I just feel it goes on and on and on, but I’m fairly upbeat,” she said.

She has been given compensation by the local authority, which settled her claim with no admission of liability.


There are now strict government regulations on how to manage asbestos and monitor its condition in schools, but an NUT online survey – based on 201 responses – suggested 44% of teachers had not been told whether their school contained the substance.

David Martin, 70, from Mansfield, was diagnosed with mesothelioma three years ago.

It came as a shock, as his former school “was very careful, and had a plan of where the asbestos was located”.

Last year, he was given compensation by the local authority, with liability admitted over his exposure to asbestos while working as a school technician.

He had also taught woodwork and design at the school for 20 years.


David Martin thought precautions had been taken to protect him from asbestos

“If it was anything to do with moving asbestos or working with asbestos, then specialist firms were brought in to remove it professionally,” he said.

“So I never thought I was really being exposed until after being diagnosed.

“I wasn’t aware that by banging doors that could have disturbed some of the asbestos fibres, which I’m now told it could have done.

“I put a projector and a screen in every classroom in the school… it could have been then that I was exposed.”

David described asbestos in schools as “a time-bomb waiting to explode”, and his main fear is for pupils.

“Children will be children,” he said.

“They will knock, tap, kick balls – no matter what signs you put up,” he says.

There are no statistics to suggest how many people might have developed mesothelioma due to asbestos exposure as a pupil, but the Committee on Carcinogenicity suggests a child first exposed to asbestos aged five has a lifetime risk of developing the cancer about five times greater than that of an adult first exposed aged 30.


A government review of asbestos in schools in March 2015 concluded if it was undamaged and managed safely, it did not pose a significant risk and it was safer to keep it in place.

The government said it would continue to develop more targeted guidance on asbestos management in schools and, where appropriate, fund its removal.

A Department of Education spokesperson said: “Billions has been invested to improve the condition of the school estate, with further significant investment to come over this Parliament. This funding will help to ensure asbestos is managed safely and that the amount in school buildings continues to reduce over time.”

But NUT general secretary Christine Blower said the government had no “long-term strategy” and there was “still no [government] recognition that asbestos is a serious problem for schools”.

Prof Julian Peto, of the London School of Hygiene and Tropical Medicine, said: “Because the levels of asbestos are [often] so low in schools, actually ripping it out could be more dangerous”.

“It’s a very nasty problem to get sorted. And for young people, the risk of dying of mesothelioma is more like one in 10,000, as there’s a disconnect between those being diagnosed now and the exposure to the children of today.”

He added that, were it possible, removing all asbestos from the environment would prevent “at most 25 deaths a year” – and only a fraction of these from exposure in schools.

“So trying to remove it from all schools could actually increase the number of deaths.”

Rays Blog

Living With Mesothelioma -My Diary- My visit to the Royal Marsden for Drug no 27. Watch BBC2 tomorrow at 9-15am to see Our UK Mesowarriors Claire and Paul

Our UK Mesowarriors Paul and Claire Cowley with little Ethan has an exciting day tomorrow as she has told us “Our story should be featured on the Victoria Derbyshire show this Wednesday BBC2 from 9.15am! Please look out for us talking asbestos in schools, mesothelioma and how it has and does effect us!”

I’m really looking forward to this as I have met them at Mesothelioma UK Conference and we had a great time.

Their story is here

I have been at the Royal Marsden today. After a great journey we booked in and was soon seen bloods done.

Then the wait to see if everything is OK.

I was called in by Sam he is the Australian Doctor and we had a chat but really nothing has changed and I feel well my bloods were OK so he signed for the drug to be made up.

After our usual coffee and cake treat and then sat out in the wonderful sunny day that was going on outside. The cars were queuing up to park, they really do need more space as people come form such a long way, you have to travel in by car.

Image result for photos of  royal marsden sutton car park

Going back in we didn’t wait to long and I was called in and given my drug. Its all got very routine now. Everyone knows me and Im so comfortable with everyone. Im missing so many people now that aren’t there from when I started a year ago. I don’t ask I know they have gone. New people are there now and you know they are all terminal and putting all their hope into the drugs they are taking. Their family sit by their sides so worried as they start on the new journey. I want to hug every one of them.

Yet I said to Ray people are so strong and it is such a happy place, people do hide their fears well.

So with my drug in my veins I was flushed and PIC line all wrapped up and I could go home.

Image result for photos of  royal marsden sutton

I found a great video on their web site

The weather was so lovely we pulled up out side the home and grabbed Louis and took him to the park to run and play with a new smiley faced ball I had bought him.

It was a wonderful half and hour spent with my favorite boys. Life is wonderful and I have had a wonderful 6 years when I thought it was all over and here I’am enjoying a wonderful sunny day.

Rays Blog