Living With Mesothelioma -My Diary- Mr Fluffy’s son says sorry in Australia- And DAST is growing as a support group for us Mesowarriors

A very wet Sunday so we stayed in but went for a great walk as soon as the sun came out again after lunch.

The breaking News today is “Part of the reason I am doing this interview is I want to try to reassure people that the risk of contracting this disease is very low.”

The son of the man who gave rise to the Mr Fluffy asbestos crisis says he is “so sorry” for the heartache it has caused.

Paul Jansen, who is one of Dirk Jansen’s eight children, is the first descendent to speak out publicly.

He said he felt a mixture of guilt, fear and compassion for the thousands of people who have been forced from their Mr Fluffy homes and the tens of thousands of others who may have been exposed to the potentially deadly asbestos.

“I’m disturbed, I get upset, I feel for these people,” an emotional Mr Jansen said from his home on the New South Wales coast.

“I care and I am so sorry [for] what they are going through because I am going through the same thing myself.

“I have feared for my health for decades, it’s always been in the back of my mind. It always will be.”

Mr Fluffys son apologises in Australia

DAST held their Action Mesothelioma Day 2015 Friday 3rd July 2015

Service of Reflection and Hope

St Martin’s Cathedral, 7 Peacock Lane, Leicester LE1 5PZ

Commencing at 2.00pm                                         

The reflection will be led by a member of the clergy.

Speakers will included

Representatives from Mesothelioma UK, Derbyshire Asbestos Support Team and local dignitaries.

After the “Reflection” there was a Dove Release, followed by Strawberry Tea served in the Cathedral.

Then reflecting on the lives of those who have been diagnosed with Mesothelioma and those who have lost their battle to the disease.

The call for Action this year is  to support The Asbestos Victims Charter for Justice – 

In keeping with the theme of ‘Reflection and Hope’ a message was written on the ‘Dove’ shaped message cards The Money raised was donated to ‘Mesothelioma UK’.

Linda Lakin
Launching the dives at the Action Mesothelioma Action Day at Leicester cathedral

For more information on Action Mesothelioma Day and The Asbestos Victims Charter for Justice please contact the

Derbyshire Asbestos Support Team (DAST) on 01246 380415 or Mesothelioma UK on 0800 169 2409

The Derbyshire Asbestos Support Team (DAST) is a registered charity for the relief of people who have suffered ill-health, injury or become disabled from their work with asbestos. We also help their families with the provision of support, advice and assistance. DAST is also linked with other asbestos support groups throughout the UK and abroad to work together to ensure all those injured are offered the support and assistance as required.The Derbyshire Asbestos Support Team was established in March 2002 and in June 2007 became a registered charity (No. 1119684).

The Derbyshire Asbestos Support Team will conduct home visits or hospital visits.

their services include:-

  • Help with Industrial Injuries Disablement Benefit forms – This is a weekly allowance paid by the Department of Work and Pensions (DWP) if your asbestos related illness has been caused by your employment. This benefit is not payable for pleural plaques.
  • Help with Government Compensation Schemes. Everyone diagnosed with mesothelioma can claim Government Compensation. Advice on making a civil claim – either by using one of DAST’s panel of specialist solicitors or through a sufferer’s trade union.
  • Help with all other benefit claims – including Personal Independence Payment, Attendance Allowance, Pension Credit. We can put you in contact with others who have the same disease. We also support Carers and can put carers in contact with someone else also in the position of caring someone with Mesothelioma or an asbestos related disease.

Although called the Derbyshire Asbestos Support Team they offer advice and information to asbestos-related disease victims and their families in Derbyshire, Nottinghamshire, Northamptonshire, Leicestershire, Burton-on-Trent and Lincolnshire. We will carry out home visits throughout these areas.

The Support Group relies upon volunteers. Victims and their families are encouraged to have an input into the working of the group and attend meetings where they can raise concerns and talk to others and share their experiences.

House Awareness Joanne.jpgCampaigning

they also campaign to ensure that victims of asbestos related diseases or their families can access justice. Many workers such as those in the construction industry are still at risk from accidental exposure to asbestos. DAST continues to highlight the dangers of being exposed to asbestos.

Our Support

If you have any queries about anything, do not hesitate to contact us. Past enquiries have been about finding good travel insurance or someone to help with gardening. We have a number of resources including hand held fans – which aid breathing.  We also have numerous Macmillan Resources including information on diet and exercise when diagnosed with cancer.

they organise coffee mornings and meetings as well as a regular conference to keep you up dated on the latest treatment trials or legal changes, as well as giving you an opportunity to speak to others in the same situation and share your experiences. We also on occassions organise social events.

DAST continues to grow in strength and since we were established we have given help and advice to over 1000 people with asbestos related diseases.

Contact Joanne Gordon or Natalie Woodward at DAST on 01246 380415 or email

They will work with clients from outside the Derbyshire area

Derbyshire Asbestos Support Team was established over 10 years ago by Joanne and Natalie who I have met and they are a couple of lovely Women that devout their Time and energy and currently employs 2 paid workers with the support of 5 volunteers. The group was previously funded by Macmillan Cancer Support, but still maintains strong links. DAST is now
funded by charitable donations from Trade Unions, Trade Union Solicitors, small one-offgrants and individual donations. Its geographical area covers the East Midlands, including Derbyshire, Leicestershire, Nottinghamshire Lincolnshire and
Northamptonshire but will visit other areas where no group exists– usually within 100 mile radius.
The group provides information, advice and support for all asbestos disease victims and currently has an average of 4 contacts with each client. The group is a founder member ofthe Asbestos Support Groups Forum UK, a member of Advice UK and is a registeredcharity (no. 1119684).
Derbyshire Asbestos Support Team (DAST)
Address: 34 Glumangate
S40 1TX
Linked to Meso UK Website
Telephone: 01246 380415 FAX:
Opening times 9.00 – 4.30 Monday – Friday
There is a 24 hour answerphone available at all times
There are support groups around the country at this link
So Mesowarrriors need never feel alone. We have our  Social Media but there is nothing like a cup of tea or coffee and a smiling face and a hug if you need it. Please just walk in to any of the support groups. Even carers when your left on your own, a smiling friendly face and someone to share your sadness will cheer up and put a smile on your face again.

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