A Diary of a Warrior Living With Mesothelioma — I was reminded of Nancy Tait, Lou has published my story in Australia on her Petition

I have been living a quiet life involved in my families lives. Buying a hose and moving it is so great to be asked to be involved.

Emails of houses “What do you think” Love it when my opinion is asked for, to be needed. My whole world revolved around them for a moment.

Exciting times. The Motorhome will have a new drive to park on when we visit.

Then I have been reading so much about rules and regulations of Asbestos and working with it. That is a mind field.

Reading a lovely Story of a true fighter. We have met up with so many fighters since starting this journey. People I admire so much but this lady I can see a little of myself in her.

Maybe it is the courage that you find when You have a terminal illness that you didn’t do anything to cause it.You played no part, People of the past have let you down and allowed Asbestos into our lives.

Nancy Tait

Tait had steely determination and in 1996 became an MBE
Tenacious campaigner for the victims of asbestos diseases

Nobody achieved more than Nancy Tait, who has died aged 89, in raising awareness about the hazards associated with asbestos exposure. Driven by her own search for justice she campaigned for victims of asbestos diseases and helped more than 3,000 families pick their way through a legal and scientific labyrinth.

Nancy’s husband, Bill, a Post Office engineer, had died of mesothelioma in 1968. At that time, the link between asbestos and mesothelioma, a fatal cancer, had only recently been established, and Bill had not worked directly with asbestos, although he had been exposed to it. The Post Office denied that he had an industrial disease and refused to accept liability – a stance that provoked what one admirer described as her “genteel bloody-mindedness” into action.

She was born Nancy Clark, the daughter of a compositor and educated at Enfield county school for girls. She started her career in the civil service and, during the second world war, was assigned to the Post Office, where she met Bill Tait. They married in 1943.

After the war she tried teaching, but found the reality less satisfying than the ambition. Later she worked for the Patent Office and London University, all the while honing her administrative skills. After Bill’s death, Nancy’s campaign for recognition of her husband’s illness as an industrial disease widened into a 40-year-long battle for justice for the many other casualties of Britain’s industrial past. Nancy’s tenacity led the journalist Geoffrey Lean to describe her, in 1999, in the Independent as “a latter-day Miss Marple” who combined “the fictional detective’s benign appearance with incisive shrewdness, gentleness of manner with rugged determination”.

She canvassed medical opinion, and lobbied union leaders, MPs and civil servants. She never gave up, thus making a thorough nuisance of herself to the asbestos industry and government. One internal DHSS memorandum in 1976, stated: “Normally officers of the department would be disinclined to meet somebody like Mrs Tait who probably wishes to pursue her vendetta against the department. However, in view of her sponsorship and determination, it is considered that it would cause more harm to the department’s reputation if we avoided meeting her.”

Nancy’s self-published booklet Asbestos Kills (1976) generated more media interest. The award of a Churchill fellowship enabled her to visit factories, mines, scientists and government departments across the globe. In 1978 she established a victim support group, the Society for the Prevention of Asbestosis and Industrial Diseases (Spaid), which lobbied for tighter asbestos controls.

Nancy worked indefatigably, representing families of asbestos victims at inquests, and, before social security tribunals, in appeals against the DHSS’s refusal to meet claims for industrial disablement benefit. In the 1980s Spaid, by then the Occupational and Environmental Diseases Association (Oeda), purchased its own electron microscope and employed lab technicians as Nancy recognised the need to have technical back-up to support her arguments.

Nancy met with formidable opposition, indeed derision from the asbestos industry. But on all the big issues – low-level exposure causes mesothelioma, white asbestos (chrysotile) is not “safe”, and asbestos dust causes lung cancer in the absence of asbestosis – she was right.

She was appointed MBE in 1996 and awarded an honorary doctorate from Southampton University in 1999. In 2005 the Institution of Occupational Safety and Health conferred on her the Sypol Lifetime Achievement Award.

The struggle for funding meant that Nancy had to close Oeda in 2008. She also recognised the limits of her own frailty, but she refused to accept that she had “retired”. She is survived by her son, sister and brother.

• Nancy Tait, campaigner, born 12 February 1920; died 13 February 2009

Some say Lou Williams and I are of the same bred as we fight and conquer Mesothelioma with Keytruda.

We battle away to get this drug into the Drugs list.both here and Australia

Lou has a Petition running in Australia to get the drug on the free list. I have mentioned before she is paying for the drug.

I have given her my story to back this campaign as if Lou wins maybe something can happen Uk to get the drug Fast Tracked through the Phase 3 trial. There are other drugs for those that fail Keytruda but patients should have a chance  of the drug. We need hope and My living 16 months 37 infusions next week has to show that Lou and I are doing well when there was no more treatments for either of us.

So please sign https://www.change.org/p/federal-health-minister-sussan-ley-keytruda-on-pbs-pharmaceutical-benefits-scheme-for-mesothelioma-life-saving-drug/u/13927352?recruiter=55915192&utm_source=share_update&utm_medium=facebook&utm_campaign=facebook_link

Rays Blog https://mesoandme.wordpress.com/


One thought on “A Diary of a Warrior Living With Mesothelioma — I was reminded of Nancy Tait, Lou has published my story in Australia on her Petition

  1. Mesothelioma is a disease that can disturb our lives , even though many people know that mesothelioma originated from the frequent inhalation of dust containing asbestos , but still many people who do not seek to remove the asbestos , hopefully people increasingly ignore this phenomenon , as well as the government to be more assertive about it in . thx for your information , may god always gives health

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