We have been battered by storms this weekend with the wind howling day and night.
Ray saw 2 trees down as he walked Louis up the lane yesterday.
We did get out to go shopping. Well we were blown there really and walking from the car parks wasn’t an easy task.
The shops were packed although coming through the till was OK. No long queues as yet.
We went to get a Christmas decoration and to be honest there was not much there on the shelves. No wonder people shop on line.
It has suddenly come to me I really should celebrate this year as my Keytruda trial has given me back the ability to be here for another year. I have been so wrapped up in hospitals and appointments, needles, PICC line, drugs and fighting for Asbestos awareness that I have forgotten that fact.
The mind is just not focusing on the fact I do not have to fight any more I have a respite from that. I dont know how long I dont want to know really. I just should be enjoying life.
I have a very broken body from the disease that has taken away 1 third of my lung at the bottom. The hard shell that was growing around it doesn’t drop off. The chemo damage doesn’t heal. The peripheral neuropathy is still there and is hitting my balance at times, The leg oedema, decease related is stable. Shortness of breath on exertion and pains in the Lung all disease related but HEY!!! I can live with all that if the cancer has stopped and shrunk to destruction.
I have got to build up muscle power and get myself as healthy as possible so a New resolution has to be made. USE a walking stick. Amazing how pride is holding me back. And they say pride comes before a fall.
More camping and more fun has to run my life. I have a whole lot of living to do.
Lou is doing very well with her petition in Australia but A spokeswoman for Keytruda’s manufacturer, Merck Sharp & Dohme (Australia) Pty Ltd, said rare cancers were difficult to research due to fewer people enrolling in clinical trials and this could delay applications for registration and reimbursement.–
I dont get that comment about not enough people going for trials. That is not a problem in UK Our Doctors are always amazed at how patients put themselves forward for trials it is how our research teams go forward. What does happen here is that mesothelioma gets left out of the trials by the Drug companies and we have to change their way of thinking. At last in UK the Rare is being dropped from their speeches at conferences.
There are more people dying of Mesothelioma than are killed on the roads now.
Also –A Federal Department of Health spokesman said it would be improper for the Minister to comment on the merits of an application that first needs to go through an independent scientific assessment process.
This is why it would be absolutely fruitless to start a petition here as we have a system of trials linked to the US
Several other PD-1/PD-L1 checkpoint inhibitors are also in late-stage clinical testing. For reference, the PD-1 and PD-L1 inhibitors and the relevant pivotal phase III trials are listed below:
These are trials in the US that are coming to us in the UK from 2016 but we Mesowarriors must make sure is that Mesothelioma is always added to these trials.
We have to remember that they are for all cancers its not like Chemo any more.
Also for those who do not match the criteria of Immunotherapy there are other drugs out there being trialled with good results.
Ray and I are in the Mesothelioma UK Newsletter this month Loving the double act
If you like Puzzles have a look at Rays daily puzzles http://onestopmesothelioma.co.uk/your-daily-puzzle.html