Saturday has come around again and I have had a busy week. The Social Media is always busy and i spend my time on the computer chatting to newly diagnosed Patients a lot. The find me mainly through my blog and I try and get them into our Mesowarrior Community but some do not trust Facebook so we converse via emails.
I dont mind just so long as I guide them to the right hospitals and the right trials.
It is very hard when they want my drug keytruda and the trial is not here yet but the TRAPS trial at St Barts is having such good results with the latest Warrior getting 42% shrinkage. Its so exciting to see that as it gives others the hope and boy we need hope.
I did ask the question in Q&A — Seems to me we have many Mesowarriors who have scan Appointments can you list here when and we can support each other through them. I say this as Scanexity is working on me as I have an appointment Tuesday 26th and Im worrying and worked up in case last time was a mistake. So when is your appointment and are you worrying.
As usual the warriors took part and we have a great list of when the scans are so I can wish them luck on the day. We can send a hug and also share the results.
There has been much excitement over the BCAh Im receiving Jan 28th. I have sorted my outfit and Im all ready even ray has been buzzing about making sure he has a new shirt and his suit is all ready. We found a picture of the award
My Brother sent me the Actual Announcement from the paper but we have the invitations now this makes it all seem so real.
The spring Cleaning carried on and I have thrown away so many clothes, net curtains etc etc I know Im going to regret it but they are all gone now.
We did manage a lovely walk in the sunshine around Seasalter to the beech on a couple of days.
I have to start sorting out 2016 speeches and I have a interview with British Lung foundation to do about the Pathway from diagnosis to the first scan. I have gathered loads of info from the warriors again and i have my own story to tell.
There is such a lot to look forward to 2016 and my diary is getting many dates being taken over. I will make sure camping dates go in as well-I promise.
Stories that caught my eye this week
House passes bill to reform asbestos lawsuits
“What’s happening is there are people who are gaming the system,” Farenthold said. “We’re not asking for any more information than is normally disclosed in any sort of litigation.”
Advocates for asbestos victims and public interest groups argue that the legislation would allow scam artists and identity thieves to prey on victims of asbestos exposure who have filed claims with trusts.
“In this age of data breaches and instance after instance of hackers stealing personal information from secure sites, Congress should be doing more instead of less to protect people’s personal information,” advocates, led by the Environmental Working Group (EWG) Action Fund, said in a letter to House members this week. “Alarmingly, the FACT Act helps identity thieves by placing highly sensitive information in public databases.”
Linda Reinstein, the CEO of the Asbestos Disease Awareness Organization, contends that the legislation would create new hurdles for victims who are fighting for their lives.
“Asbestos victims go bankrupt because of the disease they fight,” she said. “Why would we want to delay compensation?”
Canada has stopped mining and exporting asbestos but the battle to protect people from asbestos harm continues
By Kathleen Ruff
My Kent Camping Friends -how often have we camped at this school http://www.kentonline.co.uk/…/n…/school-asbestos-risk-48874/
Representatives from the Williamson Trust pleaded guilty at Medway Magistrates Court – where it was heard asbestos had been uncovered during work at the Hundred of Hoo Academy, one of the trust’s schools, in 2012.
Facing the same charge was Mark Tucker, 51, director of MT & Sons Ltd, the firm contracted to carry out the work, who also pleaded guilty and was fined £17,000.
The Asbestos strippers know I love pictures of Asbestos today and where it is found but one of the best ones was this
A reminder that Disc Brakes were made of asbestos and still can be found on Vintage cars.
Rays Blog https://mesoandme.wordpress.com/