A Mesowarriors Diary Living With Mesothelioma-Back on Keytruda and Cannula was used


I couldn’t sleep again through the night so finally got up at 4am showered and got ray up t walk Louis. We were both over worried about the Marsden day. No PICC lines in so we wondered what the day was going to bring.

Booked in and went to the waiting room.Called in for bloods but the Doctor came straight out and asked me to come to his office. Oh no what now. That’s not the routine.

Sam checked me over and was worried the rash was still showing. He wrote a prescription for more Steroid Cream and asked me to use it more often each day.

He was pleased with my general health so he said I could have the drug. The plan is to finish the first week in June.

My bloods were approved 10.15.

We went for a walk to get the Daily Mail but my article wasnt in there. I felt silly after telling everyone it would be.Please check each day on line and I will phone tomorrow and ask.

11am came the time I have always become ill for months now and I felt good.

We sat talked to everyone slept and just waited. 1.30 my drug was ready.

Then the fun began for find the vein.It took many goes and I finally had a cannula fitted

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The drug was flowing hooray !!!!!

We finished and I escaped -or so I thought. We went down to the Pharmacy but they said they had sent the items up so back up we went on the lift and everyone had a search and found my creams.

We said our goodbyes again and set off for home in traffic jams so we finally got home at 5pm.

I felt good still but kept dropping off to sleep. Its a good job Ray was awake and got us home.

Please can I ask for BLF and a young man Dave Staley who has Mesotheioma and is in Chemo is helping to raise Awareness regards Funds for research.

My lovely friend Lord Alton has been working hard on the. It would be great if the Insurance Companies would help up  but in the mean time we are fighting the corner.

From BLF would you copy the template to your MP -please—As you now know, I’m leading our campaign in Westminster calling for more funding for mesothelioma research. I’m quite optimistic – we’ve had support from MPs from all parties and there are real signs that the Government is revisiting the issue. We just need to keep pushing.

Thank you for agreeing to write to your MP and share a template letter with other meso-warriors. I have found that MPs pay a lot of attention to letters from constituents, so they can be a really effective way of getting an issue on their radar, which would be a huge help. I’ve drafted a template letter (below), but do feel free to alter it and add your own experience and message – this is your letter after all! The same goes for the other meso warriors.

If you’re unsure who your MP is, you can find out by entering your postcode on this website – http://www.theyworkforyou.com/ . If you, or anyone you forward this on to, has difficulty finding contact details for their MPs, please feel free to email me at this address (nathan.bennett@blf.org.uk) and I’ll find it for you. It’s the least I can do.

Thanks again, and best wishes,

Nathan

TEMPLATE EMAIL:

Dear (XXXXXX)

I am writing to you as a constituent who suffers from mesothelioma to ask that you help bring an end to the current underfunding of research into the disease.

As you may know, mesothelioma is a cancer of the lung lining (and less commonly the abdomen and heart) for which there is currently no cure. The main cause of mesothelioma is breathing in asbestos dust, and the average time between exposure and the development of the disease is 20-30 years.

The UK has the highest rate of the disease in the world. This year it is estimated that over 2,500 people will die of the mesothelioma in the UK, and during the next 30 years, around 60,000 people will die unless new treatments are found.

Despite the thousands affected, the valuable research which could improve treatments or cure the disease continues to be underfunded. In 2014, the National Cancer Research Institute figures showed that just £820k was invested in mesothelioma research by its partners. This is significantly lower than the £10.25m and £6.8m spent respectively on skin cancer (melanoma & others) and myeloma, two cancers with similar mortality. That’s £3,500 and £2,490 spent per fatality from melanoma and myeloma, compared to just £330 on mesothelioma.

We can’t carry on paying so little attention to this disease. That’s why I’m asking you to support the British Lung Foundation’s campaign for a small levy on the insurance companies earmarked for medical research.

Many insurers understand the importance of supporting research. By improving mesothelioma outcomes and thereby reducing compensation pay-outs, insurers would stand to benefit financially from the outcomes or research. Several insurers have donated voluntary funds, but it hasn’t come anywhere near closing the gap between the money spent on mesothelioma and other cancers which affect a similar number of people. Given many insurers stand to benefit, it also seems unfair that it has been left to two commendable insurers – Aviva and Zurich – to finance research.

The funds from a small levy on the insurance industry would transform mesothelioma research. Please could you add your support to the campaign by signing EDM 913.

Also, please would you write to the Secretary of State for Health, Jeremy Hunt MP, asking that his Department take further steps to support research into mesothelioma.

Kind regards,

(NAME)
(ADDRESS)

This is what Hazmat Pro Foundation is all about helping to raise money for reserach we need reserach into treatments.

Hazmat Professionals is a foundation that has been created with love to help and support those who are affected by asbestos related illness’s.and Im thrilled to work and we soon go live officially so I will have lots to report soon.

 

 

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