A Diary Of A Mesowarrior Living With #Mesothelioma, National Cancer Survivors Day 2016


We had a lovely meal out in Canterbury yesterday with friends to celebrate their coming home from a Motor Home 5 week holiday in Italy

Lake Garda Looks divine And there are lovely camp sites there. They had lots of stories of their travels into Croatia.

We had to say goodbye and they have travelled home this morning so at least they have had a sunny journey.

blubells

The sun has finally come out to play as we now say goodbye to the bluebells. They have really been a lovely picture as we go into the countryside with the dog.

Today we went to the field to let Louis have a run as there was so many weekend walkers about.

victory park

Such a great walk.

Image result for salmon recipes

Back to a Salmon dinner and settle down to reflect on the day.

Today is the National Cancer Survivors Day 2016

We must always have hope so as today is a Celebration of that hope lets back Cancer Research and Mesothelioma UK and all the Cancer Charities and that cure will happen xx

There have been many stories of Survival on Face book and I realised today I can join this club. A Survivor–.dare I whisper that.– I do hope I’m after all this fight.I feel like a butterfly emerging from the chrysalis, I have been wrapped up for 7 years, 7 long years I have let slip by as I fought Mesothelioma. But I must gain confidence and come right out and dry my wings.

Rod Smith Of Bernie Banton has worked on 2 charts that shows we do need more interest in Mesothelioma Trials

Australia
@BernieBantonFdn has compiled charts comparing ‪#‎mesothelioma‬ trials to other ‪#‎cancer‬ trials

I have researched and compiled a large amount of clinical trial data that shows rare cancers such as mesothelioma really are the poor cousins when it comes to trials and research.

I have done this to get the point across to the people responsible for health, research and the Prescribed Benefits System in Australia, and to give qualification to the Bernie Banton Foundation petition aimed at getting the Australian Government to fund rare disease trials, and modify the Prescribed Benefits System application process, to make it possible for pharmaceutical companies to get drugs with potential to treat rare and less common onto the PBS more quickly.

Please study these charts, the inequity of the system is quite stark – we must advocate for change!

Click on each chart to bring it up as photo so you can read it. – Rod Smith

The petition can be accessed here: http://chn.ge/1VldNPN
Please sign and share

2016 NCSD logo

On Sunday, June 5, 2016, cancer survivors and supporters in communities around the world will gather to celebrate the 29th annual National Cancer Survivors Day® and raise awareness of the issues of cancer survivorship.

There are nearly 14.5 million people living with and beyond cancer in the U.S. today, and more than 32 million cancer survivors worldwide. On Sunday, June 5, 2016, communities around the world will gather to recognize these cancer survivors as part of the 29th annual National Cancer Survivors Day®.

National Cancer Survivors Day® is an annual worldwide Celebration of Life that is held on the first Sunday in June. It is the one day each year that people around the world come together to recognize the cancer survivors in their community, to raise awareness of the challenges these survivors face, and, most importantly, to celebrate life.

According to the National Cancer Survivors Day Foundation, administrator for the celebration, “A ‘survivor’ is anyone living with a history of cancer – from the moment of diagnosis through the remainder of life.”

“When most people hear the word ‘cancer,’ they automatically think the worst,” says Foundation spokesperson, Laura Shipp. “But the truth is that more people are living longer and better quality lives after cancer than ever before. National Cancer Survivors Day® is an opportunity for these cancer survivors – and those who support them – to come together and celebrate this new reality in cancer survivorship.

“But this is also a day where we want to bring attention to the hardships cancer survivors still face. These include not just physical side effects but also psychological, social, and emotional distress, as well as significant financial hardships. Our Foundation hopes that NCSD serves as a call to action for further research, more resources, and increased public awareness to improve quality of life for cancer survivors.”

Everyone knows someone who’s life has been touched by cancer. The National Cancer Survivors Day Foundation is encouraging all citizens to participate in their community’s event. To locate the one nearest you, check with your local cancer treatment center, hospital, or American Cancer Society office. Or you can host an event of your own using the resources available through the National Cancer Survivors Day® website, ncsd.org.

The nonprofit National Cancer Survivors Day Foundation provides free guidance, education, and networking resources and assistance to hundreds of hospitals, support groups, and other cancer-related organizations that host official National Cancer Survivors Day® events in their communities. The Foundation’s primary mission is to bring awareness to the issues of cancer survivorship in order to better the quality of life for cancer survivors.

As the number of cancer survivors continues to grow, it is becoming ever more important to address the unique needs of these survivors. Many face limited access to healthcare specialists, a lack of information about promising new treatments, inadequate or no insurance, difficulty finding employment, and psychosocial struggles. Once active treatment ends, cancer survivors still must cope with the long-term effects of cancer, which can include ongoing physical side effects as well as potentially devastating financial setbacks.

The National Cancer Survivors Day® Foundation, along with NCSD 2016 national sponsors and Amgen, Astellas, Bristol-Myers Squibb, and Coping with Cancer magazine, is encouraging a greater commitment to lessening the burden of cancer survivorship.

“Cancer survivors are now living much longer after diagnosis thanks to advances in modern medicine. And the strides researchers are making in cancer treatment are amazing to see,” says Shipp. “However, we need to do a better job of addressing the hardships cancer survivors face beyond treatment.”

Leading up to National Cancer Survivors Day®, the NCSD Foundation urges everyone to spread the message that there is life after cancer – and that’s something to celebrate – but we can still do more to lessen the burdens of cancer survivorship. The following are suggested posts for your social media sites:

On Facebook: There is life after cancer – it is beautiful, it is meaningful, and it is something to celebrate – but we can still do more to lessen the burden of cancer survivorship. Join us as we #CelebrateLife and raise awareness on National Cancer Survivors Day, June 5. #NCSD2016

On Twitter: We can do more to lessen the burden of cancer. #CelebrateLife, raise awareness on National Cancer Survivors Day, June 5. #NCSD2016

On Instagram: There is life after cancer – it is beautiful, it is meaningful, and it is something to celebrate – but we can still do more to lessen the burden of cancer survivorship. Join us as we #CelebrateLife and raise awareness on National Cancer Survivors Day, June 5. #NCSD2016

National Cancer Survivors Day® 2016 is sponsored nationally by Amgen, Astellas, Bristol-Myers Squibb, and Coping with Cancer magazine, with support from Genentech, Raquel Welch® Signature Wig Collection, and Teva Oncology.

About the Foundation

The nonprofit National Cancer Survivors Day Foundation (ncsd.org) provides free guidance, education, and support to hundreds of hospitals, support groups, and other cancer-related organizations that host National Cancer Survivors Day® events in their communities. The Foundation’s primary mission is to bring awareness to the issues of cancer survivorship in order to better the quality of life for cancer survivors.

About National Cancer Survivors Day®

National Cancer Survivors Day® is an annual, treasured Celebration of Life that is held in hundreds of communities nationwide, and around the world, on the first Sunday in June. It is a CELEBRATION for those who have survived, an INSPIRATION for those recently diagnosed, a gathering of SUPPORT for families, and an OUTREACH to the community. On National Cancer Survivors Day®, thousands gather across the globe to honor cancer survivors and to show the world that life after a cancer diagnosis can be fruitful, rewarding, and even inspiring.

It is a day for everyone, whether you’re a cancer survivor, a family member, friend, or medical professional. This day provides an opportunity for all people living with a history of cancer – including America’s 14.5 million cancer survivors – to connect with each other, celebrate milestones, and recognize those who have supported them along the way. It is also a day to draw attention to the ongoing challenges of cancer survivorship in order to promote more resources, research, and survivor-friendly legislation to improve cancer survivors’ quality of life.

http://www.ncsd.org/news-1/for-immediate-release-NCSD-2016-communities-to-celebrate-June-5

 

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