A Dairy of a Mesowarrior Living With #Mesothelioma -A Trip To Faversham and Meet Oor Wullie The Great Idea Of Action #Asbestos Tayside

It was a glorious day when we woke up so the house work was done and we wanted to go to the bank to pay two cheques in. I do banking on-line but sometimes we have to go to tha bank and i was wondering if it was still there. They are closing them and Weather Spoons turn them into lovely eating places.

We  park in the football park but so did so many visitors today.the school holidays are defiantly underway, all the roads to our coast have been so busy.

We found a spot and Louis was enjoying a run on the field l5

We carried on into Favesham High Street.


It is a very quant unspoilt part of Kent.

Published on 11 Jul 2012

Faversham – Kent’s undiscovered gem. A Royal market town bristling with character and history – but just an hour from London by high-speed rail. Independent shops galore, antiques, open countryside, sea breezes and a hidden haven for foodies too.

We went into the bank and then walked around people watching.

Traveling home again was so lovely with the windows open and the breeze ruffling our hair.

I was checking on FaceBook and found Asbestos Action Tayside

 asbestos actio tayside

A big thanks to ‘Oor Wullie’ for helping Asbestos Action keep awareness of the fact that asbestos is still with us in commercial and domestic properties, public buildings and schools. With around 2,500 people dying each year of an asbestos related condition let’s make sure that this stops NOW!
Good luck to the The Archie Foundation Tayside who will be raising funds by auctioning off the various ‘Oor Wullies’ on display around Dundee.
I love Oor Wullie and think he should tour around schools where children would love him and learn so much or Shopping Centres. Something like that sticks in people’s mind.

Asbestos Action (Tayside) is a Scottish charity that has been set up to assist sufferers of asbestos related diseases. We are a voluntary, not-for-profit organisation set up to provide practical support and advice to those who have an asbestos related disease. We want to ensure there is a local service in the East of Scotland to respond to any queries that a person diagnosed with an asbestos condition may have.

The charity was formed by a group of people from the East of Scotland who either have an asbestos related illness or have cared for someone with an asbestos linked condition.

We need more of these Support Groups to help locally with Mesothelioma Patients to assist them in all the problems and information needed,


I will write about each one to help to reach them through the country

#Asbestos-Diary of a Mesowarrior Living With #Mesothelioma -A camping Weekend and Debbies Birthday in Heaven x

We have got away for the weekend at last. Camping at Quex Park

Quex House

I love it here as I dont have to shop before hand as they have a wonderful Farm Shop so we have eaten healthy food of high quality. Vegetables fresh from Thanet Earth

Image result for thanet earth

alt text
About us
The planning permission for Thanet Earth allows us to construct up to seven greenhouses. So far we have constructed four. The investment required is enormous, with the projected cost of completing all seven standing at £135m. With such a big investment, it’s no surprise that there are a number of partners in the venture.

The UK’s largest privately-owned fresh produce supplier, Fresca Group Ltd, originally purchased the site and maintains a 50% stake in the marketing business on site that sells the crops (Thanet Earth Marketing Ltd). The remaining 50% of the Thanet Earth Marketing business is owned by companies who are specialist growers – Kaaij Greenhouses UK Ltd, Rainbow Growers, A&A Growers and Fresca Group Ltd. These companies have purchased their own greenhouse plot and constructed their greenhouse at Thanet Earth. They all pack and market their crops through Thanet Earth Marketing Ltd.

I love the Tomatoes as they box them up mixing all the different named tomatoes and sell for £5.50 per box and I eat them in sandwhiches, on toast etc etc.

Everyone at Quex camping field gave me a warm welcom and we realised what I had been missing while in treatment and off to conferences.

We settle down and got the chairs out and had a good natter.

Waterloo Tower

Also we walked with Louis and just had a great time. The gnats did come out Saturday night and that was the last thing I needed for my edima legs as the skin feels paper thin. I put on plenty of cream. On the whole though Im stronger and found walking easier even if I did use a walking stick to get to the farm shop but I got there.

So we have come ho,me with the promise of going back Thursday or Friday as Im going to take a lap top. Trying to do my work on a phone is imposible I dont know how everyone does it.

Rested and now back home washing done and caught up with the Mesowarriors and friends.

Remembering our Debbie as it is her birthday in Heaven. Oh how we miss her xx

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candle and flowers

A Diary Of A Mesowarrior Living With #Mesothelioma – #asbestos Blood Test At The Royal Marsden, Walk in the Park and a Cool Down

Today was a funny day as we had to just pop up to the Royal Marsden for a final trial blood test. We didn’t mind really as I love seeing everyone and catch up with all the news.

All those that know Carol will be pleased I walked straight into her as I got there. she is working part-time but she looks so well after her heart attack at Christmas. A hug cuddle was very welcome.


My very own Dracula from the DDU blood room met me as he came out of his office and informed me that he will be dealing with my blood this time, as it is to wrap up my trial. He has to seperate everything out and send them to Merck. My DNA will be looked at again. Everything being compared to my first tests right at the beginning of my trial.

He reads my blog so a special Hi to him xx

I sat in the day ward and everyone was shouting out “How are you ” it was lovely to see them all.


Lorraine took my blood and vital signs and I weigh myself.

With that done it was the waiting room and wait for the Doctor.

A young man in the waiting room was crying “Oh goodness I wanted to hug him” It breaks my heart to see such a young man so unhappy. There was talk about contacting the GP so I wondered what the bad news was.

I was called in by the Doctor. She was so pleased I looked so well and said they are finding that the cancers are not coming back as the Immune System does all the work now when patients have complete response likemine, I pray she is right.

They will learn from me as I’m the first Mesothelioma case in the UK. I’m so happy with that fact. I feel it has been for a reason and that reason will go on with me and so I’m having a scan every 2 months from now.

I had a thorough examination of breathing and heart chatted about my edema, this is a permant thing that I will just have to make sure keeps mild and doesnt get any worse.

So that was it I was free to go home.

We went to the canteen and had a coffee and pastry and then went out into the sun. It was lovely to see patients sitting in the warm as it has always been cold or wet so we havent done that this year.

The journey home was good and we grab Louis and went to the country park and he ran wild chasing the ball. So I got his paddling pool out on returning home and he had a cooling down.

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A Diary Of A Mesowarrior Living with #Mesothelioma/#Asbestos — Our Adventures in Bristol Uni

It has been a great few days as we made our way to Bristol by train, crossed to Padington station to arrive at our destination.

Te reason for this trip was to see a Daughter of a Mesowarrior (Angela) recieve her Degree of Bachelor of Sciience at Bristol Uni where she has been studying. She has had her 21st Birthday as well so life has been exciting for Dolcie.

Her Degree is in Cancer Biology and Immunology and to top it all she passed with first Class Honours.

I was able to help her as I was having Immunotherapy drugs so she used me as a case history and I would like to think that is what gave the edge over others as she had interveiwed me.

We met up on Sunday evening just to have a chat in our Travel Lodge and we were all so excited.

Monday as the invite was just for one Ray had a great time walking around bristol as his pictures show. his feet hurt so bad as he hadnt realised just how far he had walked.

His Blog https://mesoandme.wordpress.com/2016/07/19/tuesday-184/

In the mean time Angie, dolcie and I went by taxi to The great hall of  The Wills Memorial Building which is a Neo Gothic building designed by Sir George Oatley and built as a memorial to Henry Overton Wills III by his sons George and Henry Wills. Begun in 1915 and not opened until 1925, it is considered one of the last great Gothic buildings to be built in England.

So many young people waiting to recieve they diploma the future Doctors and Scientists of the future. I was so proud to be there and watch the tradition of the ceromony.

My photos say it all


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A Mesowarriors Diary Living With #Mesothelioma. A Phone Call From The Royal Marsden Appointments in The Diary, Please Write to your School back Lucie Stephens #Asbestos in Schools Petition.

We have managed to get the garden tidy again before the heavy rain Working together Ray cutting and me picking up the job was soon done and the rains came as promised.

I think because of all the rain we have had a wonderful display this year. So healthy straight and tall.

So does the bushes and when we have a small garden like this we have to keep it under control. I was pleased I was able to do it and I’m getting stronger all the time.

This means I’m losing weight as Im moving around more. Not the couch potato that I have been  for  long periods through the 7 years. I do cat nap in the afternoon but Im doing better now.

I had a phone call from the Royal Marsden and now my appointments are all changed.

I have to go on the 21st for  talk just to close the trial. The young lady wanted me to come Friday but I have to go to K & C for a NHS East Kent Locality Meeting. I want to go to this as I’m a Patient Rep. so it was agreed that I would go on the 21st July. Then She said the appointment for my scan would change as it has to be in September. so September the 5th was agreed. Then she said so matter of a fact that if my Meso was growing I could go back on the drug for a year. I  said no that wasn’t going to happen. “You don’t know that”she said. “You can go on another trail or sign yourself off. That wasn’t it,  what I had meant I want to carry on with the trial drug but the plan is to have a scan every 2 months  I dont envisage my Mr nasty getting off the floor again . “Oh we will see I will send all the plan to you.”

Why do they put you down, why do they take away your hope and your positive. Ok it might be true but we are so sensitive to how they talk to you.

Strange isn’t it I went back to how I felt in the cupboard when a young Doctor told me I only had 3-6 months to live 7 years ago.

We really do need to get through how the patient needs to be spoken to with hope. I have been through 2 years of intense drug trial and been good and did everything that was asked of me.

I put the phone down and tried to tell Ray but I broke down in tears he panicked and thought I had been told bad news now.

So I’m still not free of the shackles of medical life. Im not moaning honest Im so grateful for all everyone’s achieved for me. i just know what upsets us Mesowarriors and how we like to be talked to. Of course I would like people to agree my Mesothelioma wont return but they can’t so I will just have to prove to them MR Nasty is Dead.


My last Blog has really been approved by so many and our Asbestos in Schools campaign is doing well.

Today I wrote another Linkedin piece to highlight Sues death from asbestos in her teaching life. her daughter is highlighting the subject so well and we have linked up and I back her all the way.

Asbestos In Schools Every parent should write to their school

Lets have every school recorded and help  Lucie Stephens

sue 12


Please consider writing this letter to your school to find out if it contains asbestos and how it is being managed. Government policy is for transparency around asbestos but currently parents only hear about if they ask about it.
Please let me know if you send the letter and what response you get. Please share this letter with other parents. Thanks


I am writing to ask you for more information about asbestos at <INSERT NAME> School. I am asking this because I am concerned about the safety of both the children and the teaching and support staff at the school. I’m sure you are busy, with many things competing for your time but I would ask that you find time to take these questions seriously. The latest research in the UK shows that over 86% of schools in the UK do currently contain asbestos, putting over 7 million pupils at regular risk of exposure. A survey by the NUT in 2015 found that only 46% of teachers knew if there was asbestos in their school. This lack of knowledge puts them and their pupils directly at risk.

Mesothelioma has a very long latency meaning that many victims are diagnosed with the illness 30 to 40 years after their exposure. The number of UK teachers dying from mesothelioma has risen to 22 a year. This is currently the highest rate in the world and is predicted by experts to continue to rise. Children are particularly vulnerable to developing mesothelioma. A child first exposed at age 5 is five times more likely to contract mesothelioma than someone first exposed at age 30. It is estimated that between 200 and 300 people are dying each year as a result of exposure to asbestos when they were pupils at school. 2 million asbestos fibres can fit on a pin head but mesothelioma can develop from ingesting only one or two fibres. The fibres can pass through the smallest gap or crack.

My questions
Has an up to date asbestos survey been carried out for <INSERT NAME> School? Is there asbestos present and is there an ‘asbestos management plan’ in place?

If there is asbestos please can you tell me:

1. What type of asbestos is it? How much there is? Where is it? What condition is in it? What plans are in place for it’s management and removal?

2. Can the children knock, scrape or damage the asbestos? Can teachers or support staff disturb the asbestos?

3. Do all teachers, support staff and volunteers (including staff on temporary contracts) know where the asbestos is? Do teachers, school support staff and volunteers know what actions to take if they see any damage to the asbestos? Are staff and volunteers regularly updated on how the asbestos is being managed and the plans for it’s removal? Do all new staff and volunteers receive information about asbestos as part of their induction?

4. Will the school commit to producing an annual report for all parents and school staff reporting on the extent and condition of asbestos in the school and the plans in place for it’s management and removal?

I’d be grateful if you could respond to this request by writing to me at <INSERT ADDRESS>.

With best wishes,

A Mesowarriors Diary Living With #Mesothelioma because of #Asbestos –Asbestos In Schools and my Dear Friend Tess

At the TUC Mesothelioma Action Day I met Gill Reed a lovely dedicated lady who was speaking on Brent Asbestos Exposure. 

It’s frightening to know how Schools have not been surveyed properly and have to be done again..

I had a lovely friend Tess Gully who lived by me in Margate. I want to just talk a bit about her as she is the face behind the figures of teachers dying with Mesothelioma.

We met on Mesowarriors on face Book and realised we did live near one another.


Looking at this photo again I’m the only one still here that is so frightening and upsetting. Tess Debbie and Jan we were all such friends and helped each other every night in messages through our journeys.

We both went to  Mesothelioma UK Patient and Carers Day in London 2012 and we immediately became real friends and not cyber ones any more.

Tess wrote a lovely blog and she called it Targets as she worked from one target to another. I followed her with that and I also lived by Targets.


She had been a School teacher and she was very talented making wonderful cards that often landed through the post to cheer me up.

Tess wrote 

MolMed expands NGR-hTNF trial in US’

MolMed, a biotechnology company, has expanded the Phase III trial of its investigational anticancer drug NGR-hTNF in malignant pleural mesothelioma, in the US.

NGR-hTNF is a vascular targeting agent belonging to peptide/cytokine complexes, which can selectively target the tumour vasculature.

There is a 50:50 chance I will get the drug or the placebo – but that is the chance I will have to take and with the backup of chemo it really is my best option. It will be a difficult journey – 2 hospital visits each week, consultant every third week, scan every 6 weeks, chemo day 1 and 8 of a 21 day cycle……. It is an hours drive each way to Maidstone so long days ahead. Whatever the outcome for me the info gained by the research team will hopefully benefit the next generation of asbestos harmed people.

This regime will all start next Thursday Nov 10th   so wish me and Alan  luck as we take this step into the unknown – scarey but with uncertainty comes hope.

Tess x——-

This is the trial we both went on together at Maidstone and we used to meet up here. It did work for me and I came off, Tess stuck at it.

We both had thinning hair but Tess had other side effects

She writes —

I was asked this last week – relating to the drug trial
Why am I doing this? Grasping at any treatment on offer even if it may be a placebo drug?
In the hope that it will not be the placebo and make things better.
In truth the best outcome will be to buy a bit of time.
Who knows how long this time might be? So why am I doing it?

I look at Alan
So big, so strong, comforting and caring.
Making sure everything is there for me.
So sad, so fragile – who is supporting him?
Need to keep on ‘keeping on’ – Alan needs me. We will journey on together.

I look at my grandchildren.
So new and perfect.
So much to learn about this funny old world.
So much to discover.
They have been a the main focus for Alan & I over this last year.
Need to keep on ‘keepin on’ – Ethan and Lilah need their Nana. We will journey on together.

I look at my boys.
Gentlemen now – so strong and manly, husbands and fathers too. Beautiful wives and children.
We gave them wings that they might fly and they have made us so proud.
They need me to keep them grounded and I need to see more of their story,
Need to keep on ‘keepin on’ – Jon and Tim still need their mum. We will journey on together.

I look at my wider family and friends.
I have been overwhelmed by their love and support
The letters, cards, emails, blog entries, daily jokes, small unexpected gifts, visits, social network messages, forum messgaes etc.
Need to keep on ‘keepin on’ – My friends need me to be there for them when they need supporting too and I need them to keep me sane!.  We will journey on together.

So that is why. With uncertainty comes hope.

Tess xx—–

Gradually Tess went down and down and Allen then wrote the blog

Supporters make the unbearable, bearable.

Tess has asked me (Alan) to write the blog again this week, as she continues to be very poorly.

Thank goodness the infusion Tess had last month reduced her blood Calcium levels back to normal. However, the blood test which confirmed this also showed that anaemia was a problem again, but not so bad as last time. Iron tablets were prescribed to fix it, rather than another transfusion.

The support team from the local Pilgrim’s Hospice have been fantastic. They and the district nurses, nutritionist and occupational therapist have provided many items to help Tess cope at home while she is so incapacitated. Last week the Hospice team organised a care package to help me look after Tess, and the girls who come in to care for her are so wonderful.

We have turned our house into a virtual bungalow now, converting our dining room into a bedroom with a hospital bed for Tess overlooking our front gardens – the view of our roses is so much better than the neighbouring roofs Tess used to see from our upstairs main bedroom.

When Tess has been feeling well enough, we have enjoyed the company of family and friends, but sometimes we have had to postpone visits when the pain and tiredness were too great.

The grandies are a great tonic. We now have pictures of Ethan in his new school uniform (he starts next month – how time flies). When we Skype Canada, Lilah likes to show off her piano skills. And best news of all – there is a new grandie on the way over in Toronto! Early days yet but so far Mum and bump are well.

Thanks for all your kind support, cards, flowers, good wishes and prayers. Tess and I really need them now.

Alan x—

Sunday, 24 August 2014

Four Years On …

Tess has asked me (Alan) to continue with her blog for now, as her condition weakens.

It was on 25 September 2010 that Tess went into hospital suffering from breathlessness. She underwent a number of tests and they took a sample of fluid from her chest cavity. She came home the next day.

The following week we went back for the results of the tests – and got the awful news that Tess had terminal cancer. Mesothelioma was a complete unknown to us then, but gradually over the next few weeks and months we discovered so much about this terrible asbestos-related disease of the lining of the lung. Life-expectancy was usually a few months or one, possibly two years if you were lucky. Very few lived any longer.

Tess has fought several battles over the four years since diagnosis. The chemotherapy worked well for some time to shrink the cancer, but it takes its own toll on the body. Surgery was also very effective in keeping the fluid in the chest (produced by the cancer) under control. This was so helpful in dealing with breathlessness and other symptoms.

Despite the wonderful support of family and friends, and the combined efforts of all the all the medical teams, Tess’s condition is deteriorating. The cancer is growing and more painful, she continues to lose weight, and we are gradually losing the war.

We now have a care team commissioned by the Health Service to assist me in looking after Tess, rather than the Hospice carers (which was always only on a temporary basis). So far, the girls are very good and gentle with Tess as they provide for her needs. The Hospice team are wonderful at providing palliative care on demand, with the support of our GP and district nurses.

Thank you once again for your kind support, good wishes and prayers.

Alan x—–

It was during this time I visited Tess she was in bed and we had a long talk and she laughed with Ray and Alan gave me loads of his beetroot from the garden.

A lovely afternoon that I will cherish for ever.

I gave my dear friend a huge hug and we left. The last time I would see her alive. So So Sad

I went to the (can I say )wonderful funeral. It was carried out with Love and music. All the music that meant so much to Tess and Alan. It was beautiful and filled with so much love. This lady had a wonderful life and working in a School teaching her devoted pupils –killed her !! We have to get Asbestos out of Schools. Dont think about it. Do it children play and bang around and the dust is released into the air and into those young lungs. Teachers are dying as Lucie Stephens has just lost her Mother This has to stop NOW


The Brent Report is the eye opener

At the heart of this report is the shocking story of how a Brent child, Sarah Jane Bowman, became exposed to asbestos whilst a pupil at school and many decades later at the age of only 40 years developed mesothelioma. This report details the evidence that shows how some Brent pupils were potentially exposed to asbestos. They include Sarah’s eldest son who was taught in the same crocidolite paneled classroom hut as his mother at Braintcroft School. Crucially the report shows that the situation in Brent schools is being replicated across the country largely because of the government failure to require asbestos surveys and risk assessments that identify all the asbestos that can be disturbed by normal school activities. Finally, the report outlines what positive steps the Council, Government and Health and Safety Executive (HSE) can and should urgently take to make our children safe.

The HSE advises that asbestos is safe in schools so long as it is not disturbed. However, much concern has been expressed that many pupils are being exposed to disturbed asbestos despite the apparently more stringent asbestos regulations in force since 2004.

SUMMARY OF FINDINGS The union investigation regarding the five Brent schools outlined in the full Report reveals appalling findings: breaches of the asbestos regulations, failures to make or keep records of asbestos exposure, evidence of serious deception and attempted cover up, no proper bidding or overseeing of asbestos contracts or contractors, and the known exposure of pupils and staff to blue and brown asbestos in a highly friable condition being allowed to continue. The evidence showed that significant asbestos exposure of pupils occurred in the 1970s and 1980s whilst Sarah was attending school and in all the schools investigated in the 1990s and 2000.

Please read the report it is very interesting that we thought all Schools had been surveyed and the truth is they were not  and so much has been missed. The Government have  to spend out on new surveys.


Decades of lax attitudes towards tackling deadly asbestos in schools is a national “scandal” threatening the health of school children, a wide-ranging investigation has found.

Education unions say examples of the problem in schools they have found have underlined “systematic failings” in the way it was dealt with by successive governments.

Whitehall had a “scandalous disregard for life” by permitting inadequate surveys and campaigning against compulsory detection that it said would help prevent future cases of asbestos cancer mesothelioma, according to the Joint Union Asbestos Committee (JUAC)

The committee’s report said successive governments had failed to require schools to keep asbestos records and inform parents about the material in their child’s school.

It said: “This has enabled the culprits to evade responsibility for asbestos exposure leading to mesothelioma, allowing them to escape with impunity.

“Nothing can be done to put right past asbestos exposure, but we must do more to protect future generations of school children and staff.”

At the heart of the investigation is the story of one asbestos victim, Sarah Bowman, who developed the disease in her 40s – more than three decades after leaving Braincroft Primary and William Gladstone schools in the Brent area of London.

She was said to have been too ill to attend the National Union of Teachers (NUT) conference in Brighton this weekend where the report was presented.

The report found the risk to children – including Ms Bowman’s son, who attended one of the schools several years later – was underestimated because risk assessments and tests were designed for adults working with asbestos, and not for long-term exposure of children who are known to be more vulnerable.

JUAC said government documents released under Freedom of Information rules suggested full and comprehensive new laws to reduce the risk of exposure to asbestos were dismissed by politicians on cost grounds.

Association of Teachers and Lecturers (ATL) general secretary, Mary Bousted, described the report as “shocking”. 

“It is outrageous that staff and pupils are still dying from being exposed to asbestos in schools,” she said. “ATL has been campaigning about this for years. Action must be taken by the Government now.”

Experts believe the government should do a comprehensive survey to establish which schools are affected, as currently the true scale of the problem is not known. 

According to the Health and Safety Executive, more people in the UK die from the disease than in road accidents.

Asbestos campaigner Hank Roberts, presenting the report at the NUT conference, said: “Asbestos is giving death sentences as we sit here now to children for a terrible painful death later on.

Next year there will be more of them and there will be more of them the year after that. Until all asbestos is removed, this will carry on.”

The UK currently has the highest incidence of mesothelioma in the world and it is steadily increasing, according to the report. 

A Department for Education spokesman said: “Nothing is more important than the health and safety of children and staff in our schools. Since 2010, billions has been invested to improve the condition of the school estate, with a further £23 billion on school buildings to come over this Parliament.

“This will help ensure asbestos is managed safely and that the amount in school buildings continues to reduce over time. We have also published new guidance on managing asbestos in schools, and have transformed the way in which we collect information on asbestos to better our understanding.”


Please don’t let Tess’s death be in vain or Sues’s or all the other Teachers. More than 224 school teachers in England have died of mesothelioma between 2003 and 2012

Goodness knows how many school children have been contaminated but one is too many.

We have young people dying at 18 onwards are they from school contamination. We don’t know but it has to stop NOW!!!

As Sue’s Daughter has written –  Parents have been kept in the dark about asbestos risks for too long. We want every school in the UK to have to produce an annual report about the type and condition of any asbestos on the premises and share this with all parents and staff. Every child’s potential exposure to asbestos at school must be recorded and shared with parents. This has been happening in the USA for the last 30 years.
The Government must introduce and implement a policy for the phased removal of all asbestos from schools to be completed by 2028, starting with the most dangerous asbestos. MP’s recommended this in 2012 but no action has been taken.
 The facts about asbestos in schools
• 86% of UK schools have asbestos in them, putting over 7 million pupils at risk. A survey in 2015 found that 44% of teachers have not been told if their school contains asbestos. This lack of awareness puts them and their pupils at risk of exposure.
• More than 224 school teachers in England have died of mesothelioma between 2003 and 2012. There is a similar pattern for school support and maintenance staff. Last year 22 teachers died, meaning the UK has the highest death rate in the world. Experts predict that the number of school related deaths in the UK will continue to rise.
• Children are particularly vulnerable to developing mesothelioma. A five-year old child that is exposed is five times more likely to contract mesothelioma than someone exposed to asbestos in their 30s. It is reported that between 200 and 300 people die each year from exposure to asbestos as school children.All of these deaths are completely preventable. We’ve known the dangers since the 1960s with legislation controlling its use since the mid-1980’s. 2 million asbestos fibres can fit on a pin head but mesothelioma can develop from ingesting only one or two fibres. There are no safe levels of exposure to asbestos.


A Diary of a Mesowarrior Living With #Mesothelioma – Invite to Bristol, Flying again, Recycling Brake Pads ? Cambridgeshire woman tells of heartbreak of losing a #Mesowarrior because of #asbestos

Dolcie in the red dress – New Doctors for the NHS

Just As I thought I had a free diary I get an Invitation to a young Mesowarriors to go to Bristol Uni to watch her get her graduation.

Dolcie Has been at Uni and I always knew she would do well as she is so dedicated. I have helped her out through the years with any questions she wanted to know as Mesothelioma is her interest as her Grand dad died with the disease.

She has been getting firsts throughout her coarse work but also managed to get a FIRST DEGREE in cancer biology and immunology for her intercalation year. I was proud so proud and call her my little Doc.

Also Dolc reached 21 and her party was in Bristol. I couldn’t go as I had already promised to do a talk at the TUC Mesothelioma Action Day but I looked at all the photos.

I loved her cake

I have known her for 7 years and we have been through so much and she has always backed me up though my treatments and always so interested in my trial. It will be good to stand there and see her go through the ceremony. I will be as proud of her as her mother will be.

So we have put the dog in kennels and booked accommodation in Bristol and now look forward to the day.

Booking on line should be easy but it isn’t as trying to work through booking a room was frustrating. They don’t explain that your booking wasnt going through as they were full up. I got  through by booking a dearer room but that was just by chance -a fluke.

The worse bookings we made yesterday was trying to book up for Amsterdam on Euro Star.

That was the same that they were full up and that was why we wasn’t getting through. I couldn’t believe that Eurostar was full up through August and September. It’s a train so I thought it was like our own trains local.

Sooo we have booked to fly. As it is a short flight I’m taking the risk with my lung and shouldn’t get clots.

I have seen so many programs on telly about easy jet so it will be good to fly with them and maybe see someone from the show.

So we are all booked with Speeches written for the

eu forum

The European Asbestos Forum

THE EUROPEAN ASBESTOS FORUM STRIVES TO IMPROVE PROFESSIONAL NETWORKS AND THE EXCHANGE OF THE BEST AND NEWEST OF KNOWLEDGE REGARDING ALL MATTERS RELATED TO ASBESTOS. Remediation, innovations, best practices, limit values, raising awareness and improving safety in the workplace, national and European policy, enforcement of and comparing regulations and legislation, treatments, epidemiology, environmental pollution etc. All of it.

Why? BECAUSE SHARING MAKES US STRONGER. Every country in the world has asbestos problems. Many have solutions of different kinds to these problems. But which solutions are the best? Instead of every country and sector reinventing the wheel, thereby costing untold many lives, precious time and wasted funds, the EAF encourages networking and sharing across borders and sectors. Sharing the best innovations, the newest insights, the best practices. Learning from each other’s mistakes and successes.

The willingness to share is there! All it takes is to join. So meet your foreign colleagues and become part of the international network that is the European Asbestos Forum. Learn from the best and share in turn. That is what the EAF is about.

For 2016, the main topic of the EAF conference will be: Asbestos & Buildings.

On Friday 30th September 2016, Over twenty top experts from across Europe, the United States and Australia will attend the EAF conference in Amsterdam to discuss the ways in which asbestos in buildings affects our daily lives. They will represent a wide variety of sectors: survey, asbestos removal, estate housing, finance and insurance, enforcement, government, realty investors, accountants, etc. There will also be workshops on the morning of Saturday 1st October 2016.

Many important issues will be addressed. Some examples:

  • What duty of care does the real estate owner have regarding asbestos?
  • What does indoor asbestos mean for the health of tenants?
  • How can asbestos indoors be safely removed in innovative ways?
  • Why does the Netherlands wish to eradicate all asbestos roofing by 2024?
  • How to control a large asbestos calamity spread out over an inner city?
  • What are the health risks caused by asbestos fires for the local population and emergency services?
  • What does asbestos mean for your real estate insurance and valuation?


A detailed program will follow soon.

I have a few friends to meet and chat with so love the opportunity to be invited.



A Article that caught my attention today was this as recycling is so important and yet are we recycling Danger to us and our families. I do hope they keep an eye on this and imports where we can have Asbestos coming in through the back door in products

Time to put a stop to asbestos – for auto recyclers and all of us

According to the Automotive Recyclers of Canada (ARC), every year 1.6 million vehicles reach their end-of-life in this country. Those on the outside of the recycling industry may not consider the extent of toxic and dangerous materials that auto and scrap recyclers are faced with on a daily basis, while they manage, depollute, separate, shred, sort and crush valuable, recoverable materials. In auto recycling applications specifically, the end-of-life vehicles (ELVs) being dismantled and salvaged contain fuel, oil, mercury and refrigerants. They also can contain asbestos, which is a component of a large percentage of brake pads imported into Canada. In fact, imported, after-market brake pads are one of the largest categories of asbestos-containing products which are still allowed entry.

With the goal of eliminating asbestos-related health risks associated with recycling ELVs, ARC has added its voice in support of a recent call for federal policies to effectively eliminate the import and use of asbestos in Canada completely.

According to ARC, Canada imported more than $100 million in asbestos brake pads and linings between 2005 and 2015 and import of asbestos-containing brake pads continues to increase unabated.

On April 5th, the Ontario Ministry of Environment and Climate Change promulgated regulations requiring automotive recyclers to recycle ELVs to set environmental standards, which includes the removal of all asbestos-containing brake pads prior to compaction of vehicle hulks, during preparation for shipment to metal recyclers. Commenting on this move by the federal government, Steve Fletcher, managing director of ARC, had the following to say:

“For an auto recycler there is no way to know whether a brake pad contains asbestos or not. In Ontario, every pad will need to be removed, and where the recycler encounters an asbestos brake pad, there is inevitably going to be some release of asbestos particulate into the air. This is an unacceptable and wholly unnecessary risk. Asbestos brake pads should simply not exist in Canada. We are calling for the federal Ministers of Health and Environment and Climate Change to act now.”

Asbestos is something that all of us should be concerned with, and its use in products that recyclers must eventually manage is an issue we’ll be following closely here at Recycling Product News.

Our cover story “Taking auto scrap indoors”, starting on page 12, features Hamilton-based Bodyline Auto Recyclers. Bodyline is one of the first in North America to move their ELV recycling operations indoors, using electric-powered material handlers, and is an example of how auto recyclers are adapting and growing in a tough industry with ever-tightening environmental regulations.

The Canadian Association of Recycling Industries is holding their 75th Annual Convention in Ottawa, June 9-12th. This year’s sessions will be focused on the challenges of current metal and other recyclables markets, trade and the economy. See our Last Word, this issue, for insight from CARI’s president, Tracy Shaw, who talks about the importance of the recycling industry as a whole, and the concept of “designing products for recycling” from the start, when it comes to creating a truly global circular economy.

Eliminating the use of asbestos-containing brake pads in the cars we manufacture would certainly be a fantastic contribution to this end.


It’s always sad to read of a Mesowarriors death but it’s so great that the Partner or Sons or Daughter can find the courage to share their story. We need the awareness of Mesothelioma and the dangers of Asbestos to get to the public as there is still many that don’t realise the dangers are still with us. People think that because it’s banned that we are safe but that isn’t true as so many Tradsemen are finding out.

The people involved in stripping Asbestos out of our buildings find it in fire doors and frames, and around pipes. So many places.

Cambridgeshire woman tells of heartbreak of losing husband to mesothelioma

Tony White, who died following a short battled with mesothelioma.

The wife of a former lift engineer who tragically died from a deadly form of cancer caused by asbestos exposure has spoken about the terrible affects of the disease.

Tony White, of Elsworth, died from mesothelioma in May last year aged 68 – just 10 months after he was diagnosed.

His heartbroken widow Gill, 69, who has spoken out following Action Mesothelioma Day on Friday, said her husband realised something was not right when he began to have breathing problems.

“He went to the post box down the road which is a two or three-minute walk, he came back and said ‘I can’t breathe properly’,” she said. “I just said you need to go to the doctor. That was it. The doctor sent him for an X-ray and that’s when they discovered it was mesothelioma and he was diagnosed a couple of weeks after that.

“He died 10 months later. It was like being slapped hard across the face. It was a shock.”

image: http://www.cambridge-news.co.uk/images/localworld/ugc-images/276453/binaries/Anthony.jpg

More than 2,600 people are diagnosed with mesothelioma each year in the UK, which develops in the lining that covers the outer surface of some of the body’s organs. Symptoms, which include chest pain, shortness of breath, fatigue and a persistent cough, typically do not appear until several decades after exposure to asbestos.

It mainly affects the lining of the lungs although it can also affect the lining of the stomach, heart or testicles.

Unfortunately it is rarely possible to cure mesothelioma, although treatment can help control the symptoms.

Gill said Tony’s initial symptoms were just shortness of breath but he later had to have regular drains of the pleural cavity in the lungs – to get rid of fluid which was causing him pain and breathing problems.

The illness progressed quickly once Tony was diagnosed and he sadly did not live to see the birth of his fourth great-grandchild who was born the week after he died.

But Gill said the care of Macmillan nurses really helped them while Tony was cared for at home.

“Anthony’s diagnosis came as a complete shock to all of us and it was terrible to see him in so much pain and how much he had to struggle to do a number of everyday tasks,” said Gill. “We had Macmillan nurses, all of whom were absolutely superb. They were unbelievably brilliant. They are so supportive, I don’t think we would have managed it without them.”

Law firm Irwin Mitchell is currently investigating how and where Tony, a father-of-two, was exposed to the asbestos that caused him to develop mesothelioma.

image: http://www.cambridge-news.co.uk/images/localworld/ugc-images/276453/binaries/Anthony%202.jpg

Another mesothelioma sufferer, former carpenter Robert Kempster, 79, from Haverhill, who was diagnosed with the disease in October last year, wants to raise awareness of the terrible disease in the hope it will show people how dangerous asbestos is.

The 79-year-old from Haverhill, known to his friends and family as Bob, said: “I feel strongly that people should be made aware of mesothelioma.

“It is still a problem and hopefully days like Action Mesothelioma Day will make sure people sit up and take notice of the terrible impact asbestos exposure can have.”

Read more: http://www.cambridge-news.co.uk/story-29466277-detail/story.html#ixzz4Dig6O2vS
Follow us: @CambridgeNewsUK on Twitter | cambridgenews on Facebook
Read more at http://www.cambridge-news.co.uk/story-29466277-detail/story.html#2TcHM524G48wy7Hj.99

RIP and lets put a stop to this madness.

A Diary Of A Mesowarrior Living With #Mesothelioma End Of My of my Trial and Mesothelioma Action Day 2016 my Report #Asbestos and the #TUC

I have officially finished my trial as I had travelled to the Marsden on Thursday to have the last infusion but Merck wouldn’t release drug as they said it would take me over the 2 years.Well I really didn’t mind as it meant I could take cakes to the nurses and sort out giving some books to the Doctor. He liked the Book meso book

That you can get free from Mesothelioma UK.

When I went to get more from the box I had left there Nickie told me they had all gone said there had been many Mesowarriors that had asked for them and she had passed some to her friend who worked in the out patients in the lung nurse.

It means I have passed out 2 boxes of the books which is brilliant and now the doctors have a few to give to patients and he will pass on when he Diagnoses Mesothelioma.

So I returned home after saying my goodbyes for a second time.

I will see everyone every 2 months when I go for my scans


Mesothelioma Action Day 2016

We had to get up early again yesterday as it was mesothelioma Action Day and I had been invited to talk at the TUC Congress House London.

We caught the fast train with ease and was in London within a hour.Then it went pear-shaped as they are doing so many road works and the app Ray had on his phone for a walking map just could pick it up.

We got the very crowded underground to Tottenham Court Road feeling like a squashed sardine we got back to the road but the map just wasn’t working again so jumped into a taxi but watched the money ticking over in traffic jams but was happy it didn’t quiet make £10.00.

It meant though we arrived dead on 10 where I was greeted by 2 wonderful Mesowarriors

Natalie and Sue who I had arranged to meet, just as Philip Lewis Of the TUC came to meet me as well and then said stay here and we will release the doves from here.


So thats was it they flew off to the roof tops tuc5.jpg


Then Linda Reistein came rushing out to say hello. It was great to see her again but we just don’t get time to talk as the speeches are made and so many people want to talk to us we get so wrapped up.



The speakers for the Day were Hugh Robertson TUC Health and Safety


Linda Reinstein ADAO USA who Ray said afterwards to her what a great speaker she is and he listened to every word with interest.


Then Me. I took ot from another angle this time and didnt talk to much about myself but about how we need the TUC and affiliated members to think of backing research as the victim’s need more trials.

Harminder Bains of Leigh Day, specialist law firm.

She used the video of a dear friend and her husband that I steered towards the Marsden for the MK3475-153 trial Keytruda. Sue always has us in tears as she tells the story as a carer and Keith as the patient I love them both dearly

Keith was exposed to asbestos when he was working at Heathrow’s Terminal 3 in the late 1980s.

Keith was told that all the asbestos had been removed from the area where he was working, but whilst working in a ceiling void noticed asbestos dust lying around a light fitting.

Keith was diagnosed with mesothelioma in 2014.the video of their story is here


Dr Peter Szlosarek gave a presentation of all the Treatments and trials

I will always remember our time at iMIG but Peter was so busy he had to rush off.

Susan Murry Unit

David Trigg Derbyshire Asbestos Support Team that is growing and growing beyond anything Joanne and Natalie could ever have envisage when we first met 7 years ago.

Tom Lennon President SERTUC

Sarah Lyons NUT/Asbestos in Schools

Gill Reed speaking on Brent Asbestos exposure  its frightening to know how Schools have not been surveyed properly and have to be done again.

every Parent should read this report as it is the same story all over the country


We then had a Q&A session and from this came some interesting points for the future

Philip Lewis acting Chair London Hazards Asbestos Group.then closed the day.

London Hazards Centres involvement in aiding and offering advice to people suffering from the blight of Mesothelioma is getting stronger and more effective; Phillip Lewis is totally committed to making the asbestos arm of the lhc as effective as it can possibly be; as is all the team at the London Hazards Centre and their many friends plus the professionals who contribute their time and expertise to help us.

We all went than to dinner and a great discussion with Phil and Gill where I have agreed to help out at House of Commons Meeting for Asbestos in Schools.

Phil Ray and i shared a taxi and guess what it cost as much as the taxi from Tottenham Court Road to TUC Congress Road and yet we travelled all the way to St Pancreas Station. Thus saving the cost of the tube, now work that one out.

We had a wait for the train so thought of finding out about Euro Star and our trip to Amsterdam in Sept. we couldn’t get near to asking as it was so crowded with people buying tickets for the Paris Train.It was Friday night after all. so we went back up to platform 11 and waited for our train to arrive and get home where we were grateful for a nice cup of tea.

tuc 5

Isobel Lovett of with at London’s Action Mesothelioma Day

doves 6

tuc 1

I would like to share the words By Andrew James | Senior Associate


 asbestos kills

Action Mesothelioma Day is a chance to remember the more than 2500 people who died of this disease last year in the UK.

We should also think about the similar number who will die this year and in the future. The current estimate is that mesotheliomadeaths will peak in the UK within the next 5 years but previous estimates have been wrong, usually based upon a combination of the dates of importation of asbestos until banned and the perceived average latency period for the disease.

Although blue and brown asbestos were banned and ceased to be used from 1985, white asbestos, chrysotile, continued to be imported and sold until 1999. It is this type of asbestos used in products like “asbestolux” that was widely used in the 1980’s as a fireproofing board material in schools, shops and offices.

Many of the cases we see nowadays are from carpenters and suspended ceiling tile fitters who cut this asbestos board either by hand or using powered saws. Electricians who cut into the board and ran cables in the suspended asbestos ceilings or ducts are also at risk.

The latency period for the disease was generally thought to be up to 50 years from exposure. However we are seeing many older victims because general life expectation has increased. In the past they would have died of other causes before the development of the disease. I currently have a 92 year old client and the reality may be that this disease has no upper latency limit.

Sadly there are also an increasing number of younger victims appearing as school pupil cases. The lower latency period is 15 years and studies have shown that younger people, still developing physically, are more at risk of mesothelioma. The exposure to asbestos in classrooms is the result of the decision to put in place a system build programme for local authority schools that used asbestolux as a material for walls, frames and ventilation ducts. Most of that material is still in place and continues to pose a risk.

There is no cure for mesothelioma and it is vital that research is supported to seek an effective treatment. With the continued importation of asbestos to developing countries it is unlikely that we will see a peak to the number of deaths worldwide to this disease anytime soon, even if asbestos was finally banned globally before the next AMD.

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