A Diary Of A #Mesowarrior Living With #Mesothelioma A #Asbestos Deasease. -An Invite to Guys Mesothelioma Support Group.


shard

The Shard

I have had a wonderful trip to London as the invited guest Of Guys Mesothelioma Support Group. i was amazed to here the only support group in London ?

It was held  in the Field Fisher Head Office at Swan Lane as the room at St Thomas’s wasnt available but Im so pleased as the views for the new site was just so magical.

I Would never get any work done if I worked there all day.

We were well looked after, as we arrived, with tea and coffee Served by Andrew and it was great to meet up again.

So Racheal asked me to tell my story which I did without any notes as the other members just wanted to hear my story and all about my trial.

They listened and askeed questions, then told me their stories as we went round the table.

It was a delightful meeting and so much positiveness. I was so proud of them and their carers.

Rachel Thomas

Rachel Thomas, clinical nurse specialist lung cancer

Tel: 020 7188 4758
Email: LungCancerCNS@gstt.nhs.uk

Biography: Rachel works as a mesothelioma/lung cancer clinical nurse specialist. She’s undertaken a number of postgraduate courses in advanced assessment skills and nurse prescribing. As part of her clinical work, she also helps run a clinic for patients on oral targeted therapies for lung cancer.

Rachel runs a mesothelioma support group at Guy’s Hospital and represents the Trust and mesothelioma patients at the All Party Parliamentary Asbestos Sub-Committee.

She currently serves on the National Lung Cancer Forum for Nurses and represents lung cancer nurse specialists on the British Thoracic Committee.

What a talented and caring woman. We are so lucky with the pople that dedicate their lives to Mesothelioma Doctors Nurses Lawyers and Drug Companies we are not alone in this battle with our disease. We do appreciate you all xx

Then I came home to find a dear friend, who I have visited with other Kent Mesowarriors. We had a lovely meet up and now David has passed away 6am this morning.

A sad time and our Comunity is so sad as we mark his passing with the Mesowarrior Candle lit

dragon-fly-candle

You are with me everyday,
I feel you with every breath,
Your thought is with me,
With every decision I make.

You have been with me until now,
And it is hard to face,
That you are finally gone,
And I will never see you again.

Your hands, your touch, your smile,
Are things I will never forget,
All the love you shared with me,
And all the tears and pain you made go away.

In our short time together,
All the memories we had,
Will last in my heart,
Those memories I will never forget.

Although you have left,
Now you walk above,
You are always with me,
I’m always surrounded by your love.

Now you don’t have to worry,
For your love will be passed on,
Cause even though you left me,
You are Always in my Heart.

By: Josh Urness

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