A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos -December News letter


xmas17December has been a wonderful month to end the year on. I will look  back on the year on Jan 1st but for now I would like to recap on December.

So much Media and of course the launch of Mavisnye Foundation.

dinner 2

An Unusual Speech for me and so near to tears so many times but I did it xx
https://www.youtube.com/watch?time_continue=1&v=03Tm2dqBsOY

dinner 9

The evening came to an end so quickly I have such wonderful memories so many people had been so kind and Donated so much to make the evening so successful
There is one person that totally made my night. I know everyone there was so dear to my heart and had lived my story with me but Paul Robinson from MSD just had to have a special mention as he has been the MK3475 -28 Trial representative for me. Merck and Keytruda have saved my life and made the Mavis Nye Foundation possible

https://rayandmave.wordpress.com/2017/12/11/a-diary-of-a-mesowarrior-living-with-mesothelioma-asbestos-the-mavi-nye-foundation-has-been-launched-oh-what-a-wonderful-night-it-was/

Loft Christmas room

A timely reminder about the dangers in the loft This Time of year we go into our loft to find our Christmas Decorations. We put ourselves into danger as your home has a 50% chance of harbouring asbestos if built before 2000 which could be lethal if disturbed.
https://www.linkedin.com/pulse/timely-reminder-dangers-loft-mavis-nye-bcah/?published=t 

IMG_20171121_165133_preview

There have been so many write ups But Laurie wrote this piece to remind me of my House Of Commons Success.

http://ibasecretariat.org/lka-blog.php#a136
As if by a fortuitous alignment of the planets, between November 21 and 28, 2017, the actions of a British campaigner, a Brazilian engineer, a Colombian Senator, an Australian physician and an Indian school teacher highlighted multiple facets of the global struggle for asbestos justice at places as diverse as the British Parliament, universities in Rio de Janeiro and Bogota, a monastery in the West Australian capital of Perth and a United Nations hearing in Geneva.
On Tuesday November 21, 2017, Mavis Nye, who was diagnosed with mesothelioma in 2009 and is in recovery following treatment with the immunotherapy drug Keytruda, attended a meeting of the Parliamentary Asbestos Sub-Group at the House of Commons.1 During the discussions, Mavis drew attention to the discrepancy which now exists between civil court verdicts mandating that defendants cover costs for non-NHS funded treatments such as those she herself benefited from and awards made under the Diffuse Mesothelioma Payment Scheme (DMPS)2 which only provide a one-off lump sum payment to eligible claimants. For a person diagnosed in her late sixties, as Mavis herself was, the amount paid by the DMPS would be around £168,000, enough to pay for about two years of immunotherapy treatment, were the entire award applied to that purpose.3
As a result of Mavis’ intervention on November 21, enquiries are being made into the feasibility of amending provisions of the DMPS to address this discrepancy. Next month (December 2017), Mavis and her husband Ray are launching the Mavis Nye Foundation “to provide a hardship fund and support and financial grants to aid newly diagnosed victims of mesothelioma in the UK.”4 In an interview, Mavis said: “I was so lucky and believe I was saved from this dreadful disease for a purpose. I hope that the new foundation will enable me to help those still suffering.”
Trevor D Sterling
Partner – Moore Blatch Solicitors ;Chair Mary Seacole Trust ;Chair Mavis; Nye Foundation & Deputy Chair Headway SW London
‪Listen to the inspirational Mavis Nye who explains on Radio 4’s Today Programme how she fought back against #asbestos cancer (Mesothelioma ) and now inspires others. https://lnkd.in/gZYHQ8Z
Pls support https://lnkd.in/g5cGC4Q
as we endeavour to support asbestos sufferers, healthcare professionals & researchers.

brown field

Big Benefits to Brownfield Properties from GEI’s Green Coatings Encasement

December 4, 2017 One of the people I have great respect for is Mavis Nye, the founder of Mavis Nye Foundation. She does wonderful work with her foundation and speaking engagements. With boundless energy, she has a strong commitment to educate others on the dangers of asbestos exposure. She is also a tireless advocate for Mesothelioma patients and works with associated support groups.

Mavis recently asked me, “Would GLOBAL Encasement, Inc.’s green coatings be of benefit on Brownfield properties?”

My answer: YES! Absolutely. GLOBAL Encasement, Inc.’s (GEI) Green Coatings Encasement has a worldwide proven track record for this and continues to be of benefit to all buildings, especially environmentally distressed ones.
https://valqrs.wixsite.com/encasementguyblog/single-post/2017/12/04/Big-Benefits-to-Brownfield-Properties-from-GEI’s-Green-Coatings-Encasement

logo-60-year

This was a very unexpected write up but such a great Council very honoured.

Record breaker
Mavis Nye is the first person in the UK to beat mesothelioma. Belinda Liversedge speaks to her about her new charity and work on raising awareness of asbestos.
Belinda Liversedge meets a mesothelioma survivor who wants us to wake up to asbestos risks

“My talk went down better than I could ever possibly hope. People were so amazed not only at my mesothelioma story but the pictures I showed them of mistakes that are being made in the industry. We discussed with so many how we could change all that.”
Mavis Nye, 75, is a mould breaker. After six years of gruelling treatment for mesothelioma she has come out, miraculously, a survivor. Indeed, she is the first person in the UK to be declared free of mesothelioma thanks to a new type of immunotherapy treatment.
Her story means that mesothelioma need not be a death sentence. But, at the speech she gave at the launch of a new faculty for asbestos professionals from BOHS (the Chartered Society for Worker Health Protection) held in October, it was clear she also blazes a trail as a campaigner against complacency when it comes to asbestos.
https://www.britsafe.org/publications/safety-management-magazine/safety-management-magazine/2017/record-breaker/

cigaretts

I cant believe this one ekkk A smuggler brought in 750,000 cigarettes inside rolls of paper stuffed with #asbestos David Cant CMIOSH on Twitter
https://twitter.com/davidgcant/status/937318146368856065/photo/1

ships 5

India pledges to ratify IMO’s convention on recycling of ships
“To make the ship recycling industry safe for its workers and the environment, draft legislation to implement the Hong Kong Convention (HKC) is now undergoing pre-legislative consultations; I am confident that we will ratify this convention in the not-too-distant future,” Gadkari told delegates at the 30th Assembly Session of the IMO in London on Tuesday
http://www.thehindubusinessline.com/economy/logistics/india-pledges-to-ratify-imos-convention-on-recycling-of-ships/article9976847.ece

court 1

High Court judgment due in asbestos document disclosure case
Court to decide whether historic documents on what was known about the effects of asbestos should be made public
1 December 2017
The High Court will hand down its judgment at 1530 on Tuesday December 5th in the legal fight by asbestos campaigners to force Cape Distribution and other subsidiaries to make public, documents which had previously been provided to the Court following a claim for exposure to the deadly material, asbestos.

The Asbestos Victims Support Group Forum, represented by Harminder Bains, partner in the industrial disease team at Leigh Day, took the case to the High Court for the documents to be disclosed following a legal dispute between Cape and Concept 70 Limited.
High Court judgment due in asbestos document disclosure case

High Court judgment due in asbestos document disclosure case
London, Manchester & Liverpool injury & rights lawyers, phone 020 7650 1200 or 0161 393 3530

ken-takahashi-pix-274x240.jpg.pagespeed.ic.pKBdRgpMAA

Dr. Ken Takahashi and the Asbestos Diseases Research Institute in Australia are leading the charge for a compreh…Australian Group Leads Push for Global Ban of Asbestos
The Asbestos Diseases Research Institute (ADRI) in Australia has intensified its campaign for a worldwide ban on the use of asbestos.
ADRI is producing a special issue for the International Journal of Environmental Research and Public Health that includes the first scientific collaboration of so many global leaders aimed at banning asbestos.
Australian Group Leads Push for Global Ban of Asbestos

https://www.asbestos.com/news/2017/11/30/australian-group-leading-global-asbestos-ban/

brazill

Brazilian Supreme Court Bans Use of Asbestos in Brazil
By a vote of 7 to 2 on Wednesday (the 29th), the Brazilian Supreme Federal Court (STF) banned the production, commercialization and use of asbestos in Brazil. The substance is currently used in the production of roofing tiles and water tanks, but health organizations point to its risk of being a carcinogen.
Brazilian Supreme Court Bans Use of Asbestos in Brazil

http://www1.folha.uol.com.br/internacional/en/business/2017/11/1939473-brazilian-supreme-court-bans-use-of-asbestos-in-brazil.shtml

 

 

 

 

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