A diary of a Mesowarrior living with #Mesothelioma #Asbestos — Bi-Op day set- Royal Marsden DDU Open Evening So welcomed back


 

 

 

 

 

A good week where we have sorted so much out.

First a board meeting for MN Foundation. The weather was great and the trip to Lombard Road was so lovely. But there was no air in the underground. I would hate to  travel every day down there and it was a relief to get back to street level

When I got home I had a phone call from the Royal Marsden to say they were putting my dates together as they had been talking about my case and the drug has been agreed.

So We have sorted out when I can be free for a Bi-Op. Monday 11th or 12th But I will have to stay overnight just in case there were any complications. Your lung can collapse after the procedure.

So now I know I’m clear to book things for June I have booked 3 hotels and dog kennel dates I feel more organised and life is back on a even keel.

The Motor home has passed its MOT but the clutch went as Ray travelled round to the garage, so that is all being worked on. whoops an expensive month !!!

Then I will be going to the RM every 2 weeks from July but that they will work with my diary and my talking dates so out of all this madness we feel straight again.

Well funny enough the Royal Marsden had an open night for the Drug Development team and that was already in my diary for last night.

We went along and there was so many wonderful hugs and greetings from everyone. I was told that when they looked at my scan the room went so quiet. No one could believe what they saw.

 

 

 

 

 

Dr Udai Banerji came over with a lovely greeting and then he personally showed me around  the exhibition. (we were to enthralled that we didnt take a photo of him Hope he doesn’t mind I googled one )

He was the lovely Doctor that saw me through my Sepsis with the PICC line so of coarse I questioned him about my needing another one. He has assured me it will be fine to have another one.

Dr Banerji obtained his MD in India at the University of Bombay in 1994. He started as a research fellow at The Institute of Cancer Research (ICR), obtaining his PhD in 2005 while completing his medical oncology training at The Royal Marsden. He was appointed as a Senior Lecturer and Honorary Consultant in Medical Oncology at the ICR and The Royal Marsden in 2007, and since 2011 has been a Cancer Research UK Clinical Senior Lecturer.
He is now deputy head of the Drug Development Unit where he is involved in running the portfolio of more than 30 Phase I trials. He is currently Principal Investigator on eight of them. He has extensive interest in the discovery and applications of HSP90, PI3K and AKT inhibitors.
In addition to Phase I trials, his independent laboratory research interests include pharmacodynamic markers for signal transduction inhibitors, biomarker discovery and applications, and the biological justification for combining targeted anti-cancer agents.
Dr Banerji is part of the team that was awarded the prestigious American Association for Cancer Research (AACR) Team Science Award in 2012.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

I said that I felt I had let everyone down but was told “No Way” I’m the first patient to have this “Top Up” so they will learn from me what happens. So I’m totally cheered up that they will be able to use my case in such a way.

I thought my Immune System was back and would have a memory and kill the new cancer cells, But the answer is Cancer is so crafty and can deceive your Immune system.

I even saw cancer cells under a microscope last night. and I had a long chat about mutation.

I also had a session with Drug Discovery adventure game where looked at the virtual Cancer cell through a head set that I had this cell right in front of me and I could grab it twist it and look inside. Amazing !!!

In the Atrium we listened to Prof Joann de Bono (my lovely Prof ) Who  talked of the history of the DDU and Oak Ward. “When we first opened, we had only 10 staff. Over the years, we have grown into a 100-strong team and have had a global impact with novel drug treatments such as abiraterone. Time is precious, so we maximise benefit and work hard to minimise side effects for our patients. We translate complex scientific information into treatment that works.”
“It is a very exciting time in cancer medicine. The next step will be the genomic profiling of all patients at the start of treatment.”

Prof Stan Kaye, Dr Sarah Halford of CRUK 2 Patients who spoke of all the upheaval of having to travel so many miles and what that was like for family life.

Speeches from DDU Staff Mary Van Zyl and Angela Little

It was a great evening that has broken the first day nerves for me, I know everyone wants to help me fight this second round

 

 

 

 

 

 

 

So we are back to blogging about the treatment of Mesothelioma and my journey through.

 

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2 thoughts on “A diary of a Mesowarrior living with #Mesothelioma #Asbestos — Bi-Op day set- Royal Marsden DDU Open Evening So welcomed back

  1. Thats the news we want to hear lovely Mavis ! You have so many prayers being g said for you and so many positive thoughts and the backing of all the medical staff so you will best this !!! Sending all our love from Pam and Leigh xxxx

  2. Hi. I’m finally getting some progress with the VA. My eligibility rating is higher thanks to a lawyer. I’m scheduled for kidney stones removal and biopsy. Pray the asbestos is located. Symptoms keep getting worst. Cough and shortness of breath worries me the most. Found less invasive ways to control pain. Though never really without discomfort. Love your diary and updates. It gives me hope of a brighter future for the people to come. My journey started with Janelle the wonder woman’s advice. She talked to me through facebook. And I think of her often.

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