A Diary Of A Mesowarrior Fighting #Mesothelioma again. #Asbestos Bi-Op done, Wales for the Swansea Nurses Study Day ending with the LASAG Ball


 

 

 

 

 

 

 

 

I haven’t been able to keep up with the blog and travel its been a long week like a Punch and Judy show, Nothing seemed real.

 

 

 

 

 

 

 

 

 

 

Monday we had to put Louis into the kennel again as I had to get to the Royal Marsden for my Bi-Op.

On arriving shown to the day ward and a lovely Polish nurse booked me in and gave me the gown and red slippers they give you so you don’t slip.

Silly me had it on the wrong way and I had to turn it around so it did up at the back.

Then onto my bed taken to the operating ward where I was put on the CT table. The Doctors surrounded me and told me to keep very still while I had the procedure. https://www.ouh.nhs.uk/patient-guide/leaflets/files/5810Pct.pdf

First the arm went numb as I lay on my tummy. I tried so hard not to move. The cold of the of the fluid used to clean the area and I’m moved into the scanner It’s not like I’m used to it a special ring to make it easier.

I looked up and  a rack of special clothing was pulled into the room and the team dressed up in clothing do they were safe from the rays.

The Doc told me I will feel the first needle as they inject the numbing liquid, yes I felt it and then yes it went numb so I was happy.

You do feel pressure as the needles go deeper and deeper and you keep passing into the scanner for them to check. I heard a click as they took the first sample,

THEN OMG A PAIN FLASHED THROUGH ME. I said that hurt that really hurt, and it did.

I had a lump in my throat and I said there is something in my throat do I cough or do I swallow. The Doc said cough! Cough! and I did but blood shot all over the pillow and another Doc was giving me lots of paper towels. The blood did calm down though.

They put pressure onto my back to try to stop the bruising and then it was all over and I was put onto a bed again and taken to Wilson Ward.

I got worried about Ray as the nurse said he wasn’t answering his phone. No they were ringing home not his mobile.

He did eventual come to me in the ward and stayed until Bedtime then went to his room he had paid for.

 

 

 

 

 

 

 

In the morning I was told I could go home so I got dressed and we then travelled to Paddington and onto Wales where we checked into the hotel the Nurses Study way was going to be held. We just collapsed into bed and I watch telly to rest.

Next day we spent in Swansea where they have a great market.

 

 

 

 

 

 

 

We came back and had a rest before walking on the beach

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

The Nurses, Richard Green of Hugh James and Sarah Morgan Nurse Specialist met up with us and we went for a meal in a very high building you see above.

 

 

 

 

 

 

 

The views were just great 

 

 

 

 

 

 

Then it was early to bed to get up for the next day

 

 

 

 

 

 

 

Look who was there Our beloved Doctor Peter

 

 

 

 

 

 

 

Ray and I gave our talk with everyone in tears and yet lots of laughing. We are not all serious.

Agenda
9.00 – 9.30am
Registration
9.30 – 9.40am
Introduction – Richard Green, Hugh James and Sarah Morgan – All Wales Mesothelioma UK Nurse Specialist
9.40 – 10.20am
Lung cancer and mesothelioma – Diagnostic pathway – Dr Gareth Collier, Consultant Respiratory Physician
10.20 – 11.00am
Mesothelioma: the current picture in Wales – Dr Jason Lester, Consultant Clinical Oncologist
11.00 – 11.15am
Tea/Coffee
11.15 – 12.00pm
The role of immunotherapy and arginine deprivation therapy in mesothelioma – Dr Peter Szlosarek, Consultant Medical Oncologist
12.00 – 12.30pm
My Story – Mavis Nye, Mesowarrior and founder of the Mavis Nye Foundation
12.30 – 1.15pm
Lunch
1.15 – 1.45pm
Our Story: Gwent and Monmouthshire Lung Cancer and Mesothelioma Support Group – Samantha Williams, Lung Cancer CNS
1.45 – 2.15pm
Role of the specialist MDT – Dr Anna Bibby, NIHR Doctoral Research Fellow & Honorary Respiratory Physician
2.15 – 2.30pm
Coffee
2.30 – 3.00pm
Latest legal developments in mesothelioma compensation claims – Harry Steinberg QC, 12 Kings Bench Walk
3.00 – 3.30pm
Where might I find asbestos? – Greg Byrne, Managing Director of RB Asbestos
3.30 – 3.40pm
Close – Richard Green, Hugh James and Sarah Morgan, All Wales Mesothelioma UK Nurse Specialist

It was great to meet up with our friends Greg Harry and Peter.

Sarah Tweeted Thank you to all who attended the #mesothelioma study day today in #swansea @Mesouk @HughJamesLegal @SarahMesoWales wonderful to have such excellent speakers

 

 

 

 

 

 

 

 

 

 

 

 

Taken by Jill Lemon

 

 

 

 

 

When all finished and everyone rushed home We went for a drink and a laugh in the bar the youngsters went off to Karaoke in Swansea but I had to be sensible and go to bed I had to realise that I had to let the bi-op area settle down as we had a long day Saturday So they went off and we went to bed –sad !!

Saturday we sped in a fast train to London and found our hotel in Fleet street.

Where we had to get ready and go to the Middle Temple Hall for the LASAG Ball.

The meal was the trendy idea of bowls so we ate a varied amount, apparently this is what the Duchess and Duke of Sussex had so I expect it will be seen more and more.

We are now back home with the dog out of the kennels and the washing done and all the cases are empty—- for a while !!!

What a wonderful building. 

 

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s