10 Oct saw us at the Gem Study at a lovely venue -The Crypt on the Green
Aliyah Of 12KBW really set up a nice evening to raise funding for MesoUk GEMs study and The Mavis Nye Foundation was honoured to sponsor the reception drinks. I was the first to be interviewed and the interviewer was happy with my knowledge of how men and women are treated differently by some hospitals who treat Mesothelioma.
|Ray Gave a painting to be auctioned and Harry Steinburg Sold it at £450.00 to a 12 KBW Lawyer who since then has contacted Ray and says how he loves it so much x
Gendered Experience of Mesothelioma Study (GEMS) Looking for Participants
Consultation with health and legal professionals indicates that women may have a different experience to men regarding mesothelioma in terms of awareness of the disease, diagnosis, access to treatment and compensation and legal processes. There are many possible explanations for this but little research to establish what is actually going on.
GEMS is a Mesothelioma UK collaborative study supported by generous donations from 12 King’s Bench Walk, HASAG, Irwin Mitchell, Mesothelioma UK, Papworth Mesothelioma Social Group, and Royds Withy King. GEMS is being conducted by the Mesothelioma Patient Experience Research Group at the School of Nursing and Midwifery, University of Sheffield.
The study is now seeking patients who received a mesothelioma diagnosis more than six months ago who would be able to take part in a telephone interview.
The GEMS study aims to explore the experiences of men and women with mesothelioma, their family carers as well as the various staff with whom they come into contact.
We will seek to understand why any differences that are identified occur. Our goal is to establish with participants how services should best be delivered to be accessible and acceptable to both men and women.
If you have been diagnosed with mesothelioma more than six months ago and would be able to take part in a telephone interview, please email email@example.com or call free phone 0800 169 2409 for more information and to be put in contact with the research team
We travelled to the TSSG meeting for East Kent and had a good meeting although I can see things have really changed in the NHS in the 9 years I have attended this meeting.
I do worry about our NHS when we have these wonderful people trying hard to make things run smoothly. To many chiefs and not a lot of Indians. Bless them as the CNS seem so despondent.
Then yesterday off to London early to the Royds Withy Kings Nurse Study Day.
So many people we already knew from travelling around the country meeting at so many Study days, conferences etc etc
Dr Riyaz Shah bought us up to date with Immunotherapy trial results as he has just returned from Barcelona #ESMO19 It was a very interesting talk.
Nicky Howe talked about Asbestos and how people are exposed and the diseases that it causes.
Tony Milson spoke about Wills one thing I learnt was for husband and wife to have separate bank account then you dont pay inheritance takes. It was a bit complicated so i need to check it out.
Jennifer Seavor gave a talk about postmortems, a awkward subject but she answered so many points that on our forum we can now help.
It does seem though the Coroners can ask for a PM when some do not so it does all depend on the Coroner he has the final say.
Joanne Hargrave gave an update on the role of the Thoracic Nurse
Rachael James gave a spoke about Private funding of treatment when you can make a claim.
Dr Charles Twort spoke about diagnosing Mesothelioma
Rachael Thomas spoke about Pain management and even talk about cannabis oil.
Helen Childs spoke of what we need to know about claiming benefits and the cases where she has won a claim.
I then closed the day talking about today’s asbestos problems and Asbestos in Schools.
read out a poem i was given by a mesowarrior that her 12 year old Granddaughter wrote.
Dear Mavis We lost my father as you know 7 yrs ago and my youngest daughter was only 5yrs old. She wrote this poem for a project in ENGLISH and at aged 12 yrs I am shocked at how it has impacted her young life forever
Here I tell the story of a boy that I knew well…he was not but 15 years old when he was condemned to die…
I came to him one day in 1956
He was just an innocent boy, undeserving of what I did.
As he grew and thrived I chuckled to myself
I watched his dreams of his children and his wife,
Always knowing he would die, I watched him slave away, at a life I would eventually take!
For 50 years I slumbered, as happens in all I infect
Mutating their cells and organs,
No way for doctors to detect.
Unknowingly you breathe me in
Tasteless, colourless, only a microscopic fibre;
Trillions upon trillions, only as big as a penny;
You breathe in unfathomably many.
Since Roman times they knew I killed,
Yet stupidly they did nothing… to protect the millions
as they march blindly to my will.
I’m all around you now, waiting in the shadows,
Of homes, nurseries and office blocks.
I snigger to myself, as I watch you take your bows,
one by one you suffer and die,
as the hands tick round the clocks.
Why don’t you stop me? You come like lambs to slaughter,
Sending your babies, your fathers, your mothers,
your sons and daughters.
You say I cause you pain and tear people from your lives,
yet the people who can stop me… do nothing and perpetuate their lies!
Lies that I don’t kill and disease your bodies and minds.
Lies that I am harmless and ok to use – it’s all fine!
You allow them to keep mining, more of me from the ground;
Weaving death into your every walk of life.
People are crying, screaming in pain,
yet I come back for another round!
Year on year I take you, decade after decade you come.
For centuries I’ve taken you… yet still nothing is done?
Governments said ‘It will breed itself out!’
‘It’s a generation of old men’
But those old men are your Grandads, your children and now your mums.
I hid in children in the 60’s,
Mothers and babies in the 80’s too!
I will infiltrate you now, if you are not careful,
I will take what I want, not matter what’s due…
…I am Asbestos
Maxx L C Higham
It ended the day perfect if a young person can write a great poem like that then we are getting through to the young that Asbestos kills and we must erase it from our lives.
Thank You Maxx you bought tears to everyone’s eyes and a hug to your Nan xx
Thank you for the lovely day and for inviting us see you next year xx