Living with Mesothelioma -My Diary– the Waverly came to town

I slept in till 8am -that was great but it means by the time you get up and have breakfast then shower the morning is nearly gone.

The weekend must have been wearing us out ha ha !!

I did have fun but enough to make me sleep 9 hours is unheard of.

I did the housework so Ray could get on painting the windowsill.

washing caught up with and out on the line –I felt good. Today has been a good day.

Off we went to Tankerton slopes and gave Louis a good long walk. We sa the Windfarm as it was fully in the sunlight.

We could hear a ships horn going really loud but we couldn’t see a boat that was responsible.

We walked round to Tankerton High street and then back onto the seafront and there was the Waverley Kingswear Castle coming out of Whitstable Harbour.

She is such  a sweet boat.The last paddle steamer on her way to Hernebay.

The PS Kingswear Castle is a steamship. She is a coal-fired river paddle steamer, dating from 1924 with engines from 1904. She now runs summer excursions on the River Medway and the Thames. Kingswear Castle is listed on the National Historic Fleet, Core Collection of ships of “Pre-eminent National Significance”.

http://en.wikipedia.org/wiki/PS_Kingswear_Castle

The last Apartment is to be sold in my Favorite building site which over looks my special Tankerton slopes –wouldn’t Louis be happy here running out of here each morning and chasing the seagulls.

Then straight down onto the beach for a swim. The only thing is the winter north wind blows in so cold and lashes the rain down hmmm maybe it wouldn’t be a good idea.

We are now tucked up in the warm all snuggly and happy.

I received a great email from cancer research

David Cameron announced a new ‘radiotherapy innovation fund’ this week. He’s making £15million available to the NHS in England so that by April 2013, more cancer patients can benefit from advanced radiotherapy like intensity-modulated radiotherapy(IMRT).

The money has become available because the Government’s Cancer Drugs Fund – set up to make new cancer drugs available to patients who need them – is under budget.

So between now and April 2013, radiotherapy centres in England will be able to bid for this money to boost their services. The Prime Minister also guaranteed that from April all patients in England will always be able to access the radiotherapy treatments that their doctors think they need, including advanced radiotherapy such as IMRT or stereotactic radiosurgery, regardless of where they live.

This is fantastic news, for several reasons.

http://scienceblog.cancerresearchuk.org/2012/10/11/government-radiotherapy-announcement-is-fantastic-news-for-patients/?utm_campaign=ccm_octsolus151012&utm_content=84618791124&utm_medium=email&utm_source=Emailvision

Thats great news but us warriors must now make sure it comes to Mesothelioma.

Rays Blog http://mesoandme.wordpress.com/2012/10/15/its-monday-4/

Living with Mesothelioma -My Diary- A Happy Day today –

MR Happy

A day that starts so quiet and yet gets more happier as it goes on is very good medicine.

First on face book a photo of  a rescue that have become friends in the centre.

Ready Ahhhhh

Photo: They think they're brother and sister. I think I'm in love.

I wish I could have this cute pair xxx

All us warriors put our comments on a published article where they say Asbestos isnt dangerous –why do these people say such things without checking their facts.

“The general public is very ignorant about asbestos, in that they don’t understand that they do breathe it from the ambient air outside every day,” Swain said.

We simply don’t breathe in concentrated levels of asbestos for prolonged periods, which is when the substance becomes dangerous.

“Typically those individuals that become sick as a result of it are those that have dealt with it day in and day out of their occupational exposure,” he added.

I only washed clothes I didnt work with it day in day out  –IDIOT!!!! Mr Swain.

http://www.krmg.com/news/news/local/asbestos/nSYRs/

My Comments is there with Debbies and Mary who is a Nurse practitioner in the US

My comment –Mr Swain you need educating in the dangers of Asbestos. All I did was wash my husbands clothes and cuddled him as he came home from work. I didnt work with asbestos I was 20 years old and at 69 I couldn’t breath and I was diagnosed with Mesothelioma.
It only takes one fibre to cause this dreaded disease.
Asbestos is a death sentence -incurable cancer has grown around the lining of my lung . I have endured 3 rounds of Chemo and it wont be my last as I fight to live.
Please go away and write the true facts of Asbestos as it is so sad to see someone so ignorant about Asbestos and that money and greed is still causing people to us Asbestos.

Gosh we are forever fighting a battle somewhere.

Ray wanted to get some wood -he has told the story of the window sill in his blog -and of coarse I was right it was damp. We had bought a damp meter and yes it bleep around the lump that appeared in the window sill. What I cant get over was the fact what we thought was a wooden sill it was made of compress cardboard. We at least thought it was going to be wood chip or MDF. Gosh dont they cheat nowadays. The days of real wood are gone in the building trade. Ray made my kitchen in real wood and any job he does he uses wood.

But at least it isn’t a serious problem as i thought it was rain getting in. We have had so much rain it never have surprised me. Now I have a lovely wooden window sill and he has promised me he will do all of them.

Lots of walking with Louis today I have had a good day. Then my friend Sonja said she had got booked into a good site for the weekend and I phoned and got in as well. We have been wanting to stay there all summer but it was always full.

Leo Bay

Lovely views over the river Swale. I will be able to write about it when we have been –excited.

I really love the fact my Grandson is now standing on his own two feet. Place to live, a good job, and is really happy.

Out with friends .

Dan on the left with all his Film making friends –the photo is by Natalie Taylor

You do worry for them don’t you but they all find a place in the world.

The rain is pouring down now –really pouring

Rays Blog http://mesoandme.wordpress.com/2012/10/11/thursday-17/

Living with Mesothelioma -My Diary- Nearly missed my flu jab

I didnt get dressed today for ages as I was shattered yesterday and had eyes on stalks by the time I went to bed.

So much googling and reading the screen all day wears the eyes out.

I chatted to friends and read my Facebook and then I read how people were having their Flu Jabs–I said to Ray we must be being missed we haven’t had an appointment yet.

Ray phoned and found out they have been doing it since SEPT !!!

The Receptionist said they will not be sending out appointments to save money, the last session 27th Oct I have just made it.

I wasn’t happy as that clashed with our going camping so Ray contacted another surgery and they found us an appointment on the 20th Oct —at the same surgery as the other appointment –crazy.

They said they had told us on an advert on the prescriptions — I don’t have prescriptions my chemist deals with the ordering of my pain killers.

I would have thought they kept a list of patients that really musnt get the flu as it would kill them.

I can raise this at my next meeting as a Patient Representative.

So Ray went to his exercise regime with the  Physio.

He came back with rather worrying news that his back is locking up (please read his blog)

It would seem that if the Physio manipulated his back the spine could snap –We were going to a Bone crusher –Ekkk!!! that could have gone so badly wrong.

So he now has to have his team meet and see where he goes from here.

Myeloma mesothelioma how alike the names are, Ray has started a great site where he is collecting info as we warriors do we have to now reach the people that would need such a site so he can be in contact with fellow sufferers.

http://ramos72.wix.com/a-myloma-journey#!home/mainPage

I made a lovely home made soup it tasted so good but was made by me cooking things left in the fridge, carrots, parsnip, tomatoes, mushrooms, and curry powder and any spices I had and an OXO.

I Liquidized everything and we eat some as I have now a lot left for tomorrow and the next day so I had better freeze it or we ill get fed up with it.

It was such a good day with the sun out so I suggested going to Faversham to give Louis a lovely play in the park.

There was a Fun fair set up but nothing going on as it is there for the Carnival on Saturday. Thats late in the year for a carnival.

Not a lot there so maybe they havent set it up yet?

We stopped at the farm shop on the way home and I bought all my fresh veg and lovely plums and raspberries.

The farmers wife is really nice and friendly and she helps me choose nice vegetables –my super foods.

Got back home and it was soon dinner time. I have been drinking a fab fruit juice made with cherries and apples, with my dinner and I had a great fresh salad with the beetroot, lettuce and vine tomatoes i had bought today.

A great day again.

http://mesoandme.wordpress.com/2012/10/10/wednesday-15/  Rays blog

Living with Mesothelioma My Diary -Disneyland coming to Kent WOW!!!

What a boring wet day so much rain —http://www.youtube.com/watch?v=n65SsZP1TaY

I know I wanted to have a rest after the weekend but not this much.

I have managed to write my speech though for November so Im glad that is out the way, I now have to time it and make sure I don’t rush it .

Exciting news tonight that they are trying to build Disney land in Kent right by Dartford crossing so baring planning permission it looks good for jobs for people as they build it and then when its open and up and running in 6 years.

Computer generated image of proposed entertainment resort

The site of what was once Europe’s largest cement works is to be turned into a giant, Hollywood-style theme park to rival Disneyland Paris.

The brownfield land in Kent, close to where the remains of the 250,000-year-old “Swanscombe Man” were found, could rival the

Olympic Park for the scale of its job creation and local regeneration

A £2bn entertainment resort which would aim to rival Disneyland Paris could be built in north Kent.

Developers have been granted a licence from Paramount Pictures to use its name on a resort on the Swanscombe Peninsula, near Dartford.

The scheme has been offered “support” by Dartford and Gravesham borough councils.

The site’s developer, London Resort Company Holdings, is now looking for further investment for the project.

It estimates the park, which would be based on a former cement works, would create up to 27,000 jobs.

The 900-acre brownfield site is next to Ebbsfleet International station, which is 17 minutes from London and two hours from Paris.

http://www.bbc.co.uk/news/uk-england-kent-19867695

I did take Louis for a little walk in the rain and now we have a very bored dog on our hands.

I cooked three chops

In walked Louis licking his lips ha ha !!

Please Mum hurry up !!

So Louis had a lovely chop but I poured sweet and sour sauce on ours.

So that’s the day gone and apart from a wonderful chemo tinnitus ear and an earache today Im fine.

I hope tomorrow is dryer.

ha ha !! Debbie has just put this photo on Face Book –he had a whale of a time and it was lovely to see him laughing with the girls xxx

Photo: Naughty ray you tricked me : )

http://mesoandme.wordpress.com/  Rays Blog

Living With Mesothelioma -My Diary- A lazy day and a walk with Louis

Im so glad I havent written my blog yet, as I have just received from Linda Reinstein of ADAO ,

http://vimeo.com/50683832  Trailer for the ABC TV mini-series, a political thriller of David and Goliath proportions about Bernie Banton’s struggle against asbestos multi-national James Hardie Industries. Watch the trailer and notice when a wife shakes her husbands cloths just as she washes them —I recognise that as that was what I did ????

This is the story of  Bernie Banton http://en.wikipedia.org/wiki/Bernie_Banton and has been made from the book  “Killer Company”

IT’S a real-to-reel transformation that will haunt the supporters of asbestos warrior Bernie Banton.

While the man who brought James Hardie to justice for exposing workers to mesothelioma lost his life to the disease in 2007, he has been reborn on the small screen.

Anthony Hayes, of The Slap, bears a close resemblance to Mr Banton in a new ABC mini-series,Devil’s Dust which began filming in Sydney this week. Mr Banton’s equally-determined wife Karen, who has given the two-part telemovie her blessing, is played by Fred Schepisi’s daughter Alexandra.

Ewen Leslie will star as ABC journalist Matt Peacock, who discovered the cancer link and wrote the book Killer Company,from which the series is based.

“I’m thrilled Bernie’s story is being told because asbestos illness is an issue that’s probably never going to be over,” Mrs Banton said.

http://www.dailytelegraph.com.au/entertainment/sydney-confidential/tribute-to-asbestos-campaigner-bernie-banton-in-devils-dust-mini-series/story-e6frewz0-1226313950743

I had a lazy day as we were shattered from yesterday but  feel back to normal tonight.

come with me on Louis walk in the lovely sunshine.

Up by the side of the church in a quiet estate

These are about £250,000 to buy

One tree in a garden

Louis had to have his taken of coarse

He was a great boy today as the dog that always barks at him as he passes and Louis barks at through the window as the dog passes and sets Louis of barking– got loose out of the house today just as Ray was coming up the road with Louis. OMG I thought there would be a fight but no Louis was so good and allowed him to fly past-he wanted to run with him but Ray said NO! and that was it Louis just watched as the dog ran to his master.

Looking down Faversham road as we turn to go back home

haha !!!Ray has taken me as I go and put my doggie bag in the bin like a good dog owner does

The local Church where they prayed for April today bless her

So thats was my walk today we took so many photos as the camera was playing up yesterday but outside it seems to be working well.

So we have had a roast dinner of turkey and are now waiting for Downtown Abbey

http://www.youtube.com/watch?v=2M3moEeErr8

Rays Blog http://mesoandme.wordpress.com/2012/10/07/sunday-22/

Living with mesothelioma -My Diary- Off to London the Mesothelioma UK Patient and Carers Conference tomorrow

Another day of Sun and sea but you wouldn’t have thought so when we woke up very early to a very windy and torrential rainy night.

It was so noisy for a while and then that was it this lovely day appeared.

I washed all the windows inside to match the window cleaners great work on the outside this week.

All the mirrors and TV’s were done with my window vacuum gadget. So that’s it  Ray did the vacuuming in the rooms and I got showered. All muscles stiff, arms hurting so of coarse I had over done it.

I rested and then we went –guess where –Tankerton slopes ha ha !!! it was lovely the sun shone and we had a walk and making Louis run and chase the ball.

There was a man on a bike parked and on a two way radio, a CB or a ship to shore –woo my mind was working over time. espionage and all that.

But we couldn’t stay to over hear that would have looked rude.

So we got back to the car Off we drove to the Tesco as I had a bit of shopping to do as we are off on the train to London tomorrow.

7th Patient & Carer Day 2012
Date: Saturday 6th October 2012 Venue: Pullman London St Pancras

It doesnt seem like three years ago when I did my speech http://www.youtube.com/watch?v=2nrPGGfWWxs

I didnt even hope that I would be alive to be able to say that was three years ago.

Thanks to the Chemos, all 3 lines have got me to this day and to stable -I would love to be here to enjoy another 3 years.

We are pushing the boundaries. But of coarse a lot of Mesowarriors haven’t traveled all the way with me and I do always remember them and miss them.

To the Warriors who fight with me

 

 

 

 

Remembering all those that have fallen with this wicked Disease We do remember you every day.xxxx

 

 

http://mesoandme.wordpress.com/2012/10/05/friday-23/  Rays Blog

 

 

Living with Mesothelioma -My Diary- The Funeral of another Policewoman 2 in 2 days

We woke to blue skies and sunshine al day today so I asked Ray to let me change the beds and wash the sheets.

He went out as he cant bare to let me do it he always has to help.

I did it and got the washing on and then sat down to get my puff back.

The phone went when Ray came in and Jan Eagerton was on the line, she could hear Ray hoovering.

We chatted on the phone and then said we will see each other on Saturday if Jan feels better -I hope she is OK. She has fluid around her heart.

We said our goodbyes and I carried on with the washing and pegging out in the wonderful sunshine.

Makes you feel so good.

I made some toast and a coffee and then we walked Louis so that we got fresh air as well.

They  still havent found April its getting far to long now and everyone just wants to see her home safe and sound .

I have never seen such caring by so many people.

I hope she is found xxx

Also the other Policewomen was buried today those poor policemen that had to go to 2 funerals in 2 days.

PC Fiona Bone,

Funeral of PC Fiona Bone

http://www.bbc.co.uk/news/uk-england-19831700

Hundreds of people lined the route along Deansgate to Manchester Cathedral to remember a constable described by

the head of Greater Manchester Police as a “calm, gentle woman”.

So much sadness in the world it puts my problems into perspective.

We are going through a lot of bad news with Mesowarriors at the moment we need some good news so we can smile.We need a cure its our wish every day.

Rays Blog http://mesoandme.wordpress.com/2012/10/04/thursday-16/