Today woke up to pouring rain and the trip to the Royal Marsden in front of me.
So it was up the M2, M20, M26 and the dreaded M25. You just don’t know what it is going to be like but today we did the trip in an hour. That’s never been known before.
I went in to get my bloods done while Ray parked the car in a very packed car park.
I was told off because the appointment card I produce is one I shouldn’t have bought home, but lucky enough the appointment had been made and I was in straight away for my vampire man.
I didn’t have to wait long and Ray came in he had found a spot easy.
Bloods were soon taken and we returned to the waiting room.
My Doctor soon had me in and sat down and said you want to know the result and laughed. It was still the same nothing has changed and we are all so pleased.
We talked about my itching and I was given another prescription for my cream.
So we made the appointments for August and went and had a drink. We thought it would be good to go to the ward to see everyone so set off in the lift.
It was great too be greeted by nurses that remember me and we all had a laugh and I spoke about my Foundation is finally a reality. Even a nurse expecting a new baby in October Oh how things change. Exciting.
We set off home and had a good journey although I kept falling asleep.
I have posted our collection boxes to Meswarriors who kindly want to collect donations I’m so amazed at how the foundation is being accepted by so many,
Saying goodbye to a upset Linda we wont see each other for 3 years as she will be coming back for My 60th wedding Anniversary Ray and I will celebrate or Diamond 2020
We will talk on the phone though xx
We were the last to leave a time to relax xxx
I have filled up my diary with dates as I have had emails today asking me to speak at different Venus, seems people want to hear the story of my journey and I love telling it as I’m so proud Of the Marsden and the NHS but I also like the opportunity to talk about Asbestos Awareness and the dangers that are involved.
I have practised my presentation for UKATA for next week. I thought I wouldn’t know anyone but I have been messaged by a lot of men that they are going so that is great. Craig Evens has had me booked in for Over a year now so I have waited a long time to do this.
General Manager at UKATA (UK Asbestos Training Association)
Bookings are coming in thick and fast. We have over 100 attendees booked for The UKATA Asbestos Conference 2017. To secure your place please book before Friday 30th June 2017 https://lnkd.in/dYwic6z. The conference will be held on Thursday 6th July from 10:30am – 2:30pm at The Hilton Hotel East Midlands and tickets are priced at £75 + VAT per delegate.
Speakers at the conference include; Prof. Roger Willey, Mavis Nye BCAh, Harry Steinberg QC, Seamus Lefroy-Brooks & Dr. Martin Gibson HSE.
Topics covered include; Regulations, life with Mesothelioma, CAR:SOIL, Asbestos in Soils, Site Investigation, Asbestos Litigation and what to expect from HSG 247 & 248.
Each of the speakers will be sharing their wealth of knowledge and expertise with delegates and provide an invaluable insight into the work around asbestos awareness.
For more information and to book your tickets please follow the link below:
We have just got back from a great weekend with the Mesowarriors UK
After a long journey to Blackpool we arrived at mid afternoon finding we the more we travelled North the cooler it got.
Many of the Mesowarriors had arrived and there was lots of hugs and kisses as it is always great to meet up. there were new faces as although we chat every day we are really cyber friends but we do know one another so well as we have been through so much together.
There was Linda, Judith, Angela, Tracey, Dot, Rose, Dorothy who I have known for over 8 years now.
Then the newer Mesowarriors and their friends made up or party.
Linda from Australia arrived on the next train to ours so we were all together and caught up on all the news.
We ate a dinner in the Hotel and the food was really nice.
Ray went up to bed and I stayed down with the girls who one by one went to bed. It left us with Angela and Tracey and a young business man, who on asking what we were doing in Blackpool told us that his Grandfather had died of Mesothelioma and so was very interested in the Charity of mine. I have his card and will chat again to him.
I finally dropped in bed.
Next morning (Saturday) We all met up for breakfast and the walked into Blackpool.
In the Tower Ballroom Ray loved the music and the atmosphere.
Strictly Come Dancing is filmed here.
A walk around the High Street and then Angie walked back to the Hotel with Ray and I and we had a great sit down and a drink as the rest all gradually came back.
When we met up for the evening all dressed up Angie had the idea for a group photo on the pitch. The Grounds man had given us permission so that s what we did.
We were cheering away and that had us in a great mood for the evening fun.
The evening we all travelled in taxis to Mr Basria’s which is a great Restaurant back near the Tower. http://www.mrbasrai.com/blackpool/
So many dishes and you can have everyone and I did.
Mr Basria has taken a photo of our party to use for promotions and I said I would write about the meal he was pleased and gave us a bottle of wine for our raffle.
We came back to the hotel and carried on nattering and Angela and Carolyn carried on and after getting more wine out of the waiters and I added my book we had a raffle where we raised £127 for the Tea ? Party for the Mavis Nye Foundation and then Judith added another donation so we have really got the Tea parties off to a great start.
It was bed time again and Tracey, Angela Ray and myself had a last hot chocolate and then it was off to bed for us.
Next Morning meeting up for Breakfast became a sad affair as gradually one by one we said goodbye. Tears of course flowed with all the cuddle’s and hugs.
Tracey and Ash took Ray and I to the station and we said a finally goodbye. Onto a very packed train to Preston and even fuller train to Euston so we had to stand for awhile but we had a really lovely young man talking to us so the time soon passed and did get a seat when the train emptied a bit only to really fill up again at Birmingham.
But we did get food at St Pancras and a fast train home.
Louis was picked up from the kennels and today so we are all settled back together.
It has been one of the best weekend with the Mesowarriors.
Mavis Nye Foundation Coffee Mornings Around The Uk
Hosted by Angela Anjowanjo Banjo
1 July at 0:00 to 15 July at 0:00
A coffee morning to be hosted by yourself, at a location of your choice on any date in July. Your the host so it is entirely up to yourselves the times etc.
Suggested places – your home (but please only if you are inviting friends only, church halls schools, local community halls etc.
The coffee morning can be as small or as large as you like.
Maybe get in touch with local bakery’s to supply cakes, and or get friends involved to help you bake your own. Tescos are usually very helpful at supplying biscuits etc too. They just need a letter head with details and charity no 1172765
For people who can organise, maybe a small raffle too.
As the host you can share ideas and prices of coffees, cakes, biscuits etc.
Also maybe get in touch with your local paper for a free write up too.
Also you could have a collection tub, you could use a tub or buy one of them metal savings tins. They cost no more than a £1. And maybe print and glue the photo below.
Also, if you have children at school, maybe ask the Head if she would allow a cake stall for the pupils to buy.
Anything you want to add to the event, please do so.
Any questions please ask away
Thank you all for helping to raise money and awareness to the Mavis Nye Foundation
It has been a wonderful warm day today so great to have summer at last.
Of to Medway Campus to video a speech for Brachers supports Action Mesothelioma Day 2017
Action Mesothelioma Day 2017
Date: Friday 7 July
Time: 11.30am – 4.15pm
Venue: Royal Dockyard Church, Chatham Dockyard, Chatham, Kent ME4 4ST
A Dove release in the presence of the Deputy Mayor of Medway will take place at 12 noon.
Followed by a Public Meeting to discuss:
Asbestos Victim Support Patient Care and Treatment
The National Centre for Mesothelioma Research
Asbestos in Schools Asbestos
Speakers will include:
Professor Anne Bowcock – Imperial College
Jeremy Horton – Brachers
Dr Helen McGee – Hospice in the Weald
John Reeves – Kent National Union of Teachers
A message from Mavis and Ray Nye, Asbestos and Mesothelioma campaigners
Refreshments will be available.
We found the Gillingham Building (H2) – School of Journalism and the barrier was down. A nice young man said we were in the right area but we needed a pass to go further.
Phoning Alan who we were meeting but he didn’t answer his phone. Didn’t know he was having to travel from Canterbury. A kind lady said to go to the barrier and explain we had no passes but we have a disabled spot booked in the car park and that’s what we did.
Another kind voice said to go to the parking bay and up the barrier went.
At the reception desk we wasn’t booked anywhere but a great man came and met us he introduced himself as Gerardo (Swoon) who took us to the Studio that was booked. I couldn’t believe it we were KMTV Studios.
I didn’t know this was going to be so big. Josie Hannett took me through how I would like it done and I was very happy to do it as an interview, no notes needed and answering her questions became natural.
Alan McKenna arrived and he and Gerardo disappeared into another studio and we sat on a red settee with a huge telly by the side of us and lights glowing everywhere. As we didn’t take any photo’s all I can find is this one so I will be putting the recording on here after the 7th July.
The scene on the walls is of Oast Houses in the village of Ickham
With a wrap up we said our goodbyes with a promise to do another interview later on as so much was talked about. My Trial, my story, Rays story My involvement with the Asbestos industry today, The Mavis Nye Foundation. So much going on we could have filled a month of recording.
We left there and travelled into the Dockyard where our story started. Ray was very nostalgic looking at the building where he learnt all about ship writing.
I went into the shopping outlet and bought a lovely new top for my next speeches and then went handbag shopping. so many to choose from I was lost. I found a good one that was a bargain. I had lots of fun choosing the right bag and I got it from £49.00 to £19.60.
It was time for lunch at an Australian café.
Then we were soon on our way home. Grabbed Louis and took him to the park and he had a lovely run.
Today was a great day.