It seems so long ago that I went to the Marsden for a drug day last Tuesday with not a care in the world as I had a new PIC line.
The traffic was horrendous but we got through, if a little late.
I went up stairs to Oak Ward.
Richard was in the waiting room as he had come for a bloods and was sorting a new trial.
I had my bloods taken and flush done and back to wait for the Doc. Sam called me in and we chatted about the shrinkage and how I was doing.
Went back to the waiting room and when Lynne and Richard were ready we all went down for a coffee. Bought the coffee, saw Prof DeBono who said he knows who Iam and was pleased with my result. Then I came over so weird. Its just like high blood pressure but actual fact my blood pressure goes very low. Lynne was saying “shall I get someone ” but I said no I will be OK in a minute.
But I was going right out so Lynne went to Ray and said it again and of coarse Ray said get someone please.
Lynne went back to oak ward and the response team came out, I dont remeber the questions and I certainly dont remember my Staff Nurse coming down and cuddling me as Ray said.
Off they wheeled me in a wheelchair back to the ward and they had a bed for me ready and waiting, got on it and stayed there while they carried out so many tests.
My blood presure had gone down. It was decided that cultures would be grown again but this was a new PICC line.
By the Wednesday we knew I had 2 bugs. Apparently they do love plastic. Pacemkers and new replacement hips can have the same bug.
I was told by the specialist that I would have Tazocin. I came out in a rash. So I had Coftazidine. I came out in a rash. Im never allergic to anything but I have never had such a super charged immune system before. They also stopped my drug as if I had it with a bug and antibiotics my immune system could go haywire. So I had 7 days of antibiotic.A trip to St Anthony hospital( http://www.spirehealthcare.com/stanthonys/welcome-to-spire-st-anthonys-hospital/history-of-st-anthonys/ )was arranged for me on the Thursday and Ray came to be with me in the taxi. What a lovely hospital and I had a heart echo test as they were worried the bug might be hiding in my heart but that wasnt the case. How great that I know i have a perfect healthy heart at 75 Im so proud of that fact.
I thought you would like to see one I havent changed sex ha ha !!!
I saw a lovely Nun she was speeding around on her Disabled Scooter and chatting away. A really sweet lady.
We travelled back to the Marsden and there was a long queue to get into the site so we got out and walked into the hospital dso the taxi driver could turn around and get off. They really should do something as the drivers have to stay over to the right not spread over the two lanes.It causes chaos.
Ray went home where the dog, that was missing me badly, climbed into my bag with all my dirty washing, Bless!!! and I spent friday on my own and of coarse we are moved to Smithers Ward on the Friday.
I was moved down in my bed, I said I had better lay down and look ill or people will think Im a fraud, which made everyone laugh and my new friend went down in a wheel chair.
There was two very ill patients laying there and I thought Oh Dear!!!
They rallied round and we had a wonderful weekend.
The lovely lady in the bed opposite was a mesowarrior and her son was a Asbestos Lawyer now how amazing was that. She was waiting for a hospice which she went to on Monday.
My Son and DIL came on the Saturday and I was allowed to escape and go to the canteen with them.
I was very tearful as they left and that isnt like me. I have never cried with this desease.My son said he realised it was the shock all this has caused.
The Telly and phone had gone down on Friday and they didnt get it back until the Monday. There were 4 patients in isolation with no visitors allowed how sad was that with no telly and no phone.
Ray came Sunday so I was happy that I that I had visitors so the weekend went well.
Monday saw us back to Oak Ward where a normal life was back again. The hospital Padre came to see us and mentioned it was the mesowarrior was having her birthday so we immediatly asked to escape to the shop bought a birthday card and a dancing queen
Bless her she loved it and there was more hugging and kissing.
We came back in tears xxxx
Im not going to have anymore PICC lines and Im pleased as I have lost my confidence,
My drug will be put through a Cannula.
My veins are very bad though and I have had a Cannula every two days repositioned,
This isthe Vein Finder and they have to really search on my arm the left being better than the right.
I look like a pin cushion with lots of dressings all over the place.
So Wednesday I cane home and I have been so tired but happy to be here. I have caught up with all my office work and Merk have phoned to say they still want to meet me so that is being arranged again. Liz from Mesothelioma UK phoned and I said Iwas worried about my breathing.
She said that lungs do suffer as we dont move around in the hosptal so she advised I go out in the fresh air and she was right as we went shopping and Im breathing better now.
We bought my Brothers birthday present for tomorrow when he visits.
I have finished mt Interveiw with the Daily Mail and it is being published Tuesday in the health pages.
Exciting news as the New Marsden is going to be built Ray was talking someone and they mentioned the Hub
Long-awaited blueprints for a “world-leading” cancer research hub in Belmont have been unveiled.
The London Cancer Hub is proposed to include an expansion of the existing Royal Marsden Hospital and Institute of Cancer Research (ICR) as well as a new secondary school, shops, cafes and hotel space for patients and families.
The science campus would be the second biggest of its kind in the world, create more than 13,000 jobs and double the space available for cancer research, which could see the ICR increase deliver at least two extra cancer drugs every five years.
Boris backs life-sciences hub in Sutton
In a joint announcement, Sutton Council and the ICR said the hub would “bring together 10,000 scientists, clinical and support staff in a vibrant community of collaborating organisations served by research, educational and leisure facilities”.
They added: “It will be a hotbed for talent, offering research and development space for biotech, pharma and software companies, and equipment manufacturers.”
It will take about 20 years and £1 billion to finish the revamp of the 265,000 sq m site, which Sutton Council expects to generate £5m in business rates per year.
The council will look to private investors, low interest loans and grants to pay for the hub.
The plan also calls for improved transport links to and from the site, including extending the Tramlink from Wimbledon to Sutton and improving Belmont station.
Sutton Council leader Ruth Dombey said: “The London Cancer Hub will do for South London what Tech City has done for East London.
“It will create thousands of employment and training opportunities for local people and we will be supporting young people to get into the sector by facilitating the building of a school on the site which specialises in the life sciences.
“There will also be a tremendous boost for our local economy, with business opportunities generated by the workforce and visitors, and the development of transport infrastructure needed to support the world-leading site.”
Professor Paul Workman, chief executive of the ICR London, said: “The ICR and The Royal Marsden are already world leaders in cancer research and treatment, but by working with the London Borough of Sutton and the Greater London Authority, we aim to take our facilities and outputs to a new level.
“The ambition is to discover more innovative cancer drugs, to run more clinical trials and to partner with industry to take even more treatments to patients.”Mayor of London Boris Johnson said the proposed cancer hub would be a “real coup” for London and “would help to ensure that the capital remains on the frontline of developing new treatments to cure the disease”.
The council said the aim was to fund the hub through “a combination of private investment, government grants, philanthropy and commercial rental income”.
But the plan to build a ‘life-science focused’ secondary school on the site has proved troublesome.
The council bought land on the Sutton Hospital site for £8 million in March last year to build the school but its hopes were damaged when free-school provider Greenshaw Learning Trust and the Education Funding Authority said the land was too small.
Despite interest from other school providers the council is yet to announce who will build the school.
In September last year the council held consultation events at the ICR before commissioning a feasibility study in December.
The Greater London Authority and Epsom and St Helier Hospital NHS Trust have also backed the plan.
The masterplan will be put out for public consultation later this month as part of the councils overall local plan.