What a week !! it has really turned our life upside down. These lovely flowers arrived from Natalie that was a surprise but turns out she is the one that Ray has been having cosy chats with arranging it all ha ha !!!
So many phone calls, social media has gone mad. I didn’t think my last blog would cause such a stir. We are shocked how so many people have been devastated by the news of my Mr Nasty’s return.
Thank you so much for all your love and wonderful messages love you all xxx
I have had a phone call today to say the Royal Marsden is on-line to receive me back on trial either late next week or early the week after so they are defiantly getting me back on the treatment pathway.
I keep getting asked how I feel. That’s the point I don’t feel I can’t sort my head out. I was rushing along enjoying my new life. Busy in meetings and conferences my mind had blocked the disease out. I didn’t have Mesothelioma. I wasn’t ill, I WAS A SURVIVOR, I had survivors guilt even. I was in such a good place. Then zap out of the blue. Its growing again.
I don’t feel ill, Ok I have had this coughing virus, and I feel a pain In the shoulder-blade, but really my life hasn’t change and yet it has. I’m so mixed up.
My young son has phoned and asking how we are as he knew we had the virus and so have they. He phones just a normal phone call and gets the worse news I can give him. How cruel am I telling my baby that his Mum is back at square one.
He was in Tesco’s shopping I wonder if he got all the right things.
Then starts all the lecture. Dont you do this, don’t you do that I feel like the kid and he the parent.
So that’s it life will get back to normal and the routine will settle down.
I haven’t been given a prognosis this time so I feel I have an open appointment, it’s up to me but I will get my affairs in order.
The Camper will go up for sale after the MOT we haven’t used it much due to Rays back opps last year. We have had a great time with her but hotels are becoming more enjoyable now.
She will be missed though.
Back to this every 2 weeks now wish me luck !!!