A Diary Of A Meosowarrior Living With #Mesothelioma-~My Cancer Action Group collected £150’s for Breast Cancer in a two hour meeting -well done! and Mary Seacole ITV Program was great, #Asbestos found in flasks from China the fight is ongoing


Across our latest round of Cancer Action Groups the sale of Sam’s delicious cakes has raised over £150 for Macmillan and Breast Cancer Care. They have brightened up our meetings (and found the inner sales person within that some of us never knew we had!) I have received today these photos of the Breast Cancer fun we had at our meeting.

We then had to settle down and carried on with the meeting which I have already blogged on monday.

Also on Monday there was a great program on ITV explaining about Mary Seacole. A fascinating Lady as she didn’t have training as a nurse and went onto the battlefield with a satchel of herbal and medicines that she made.

She often rode out to the front line with ‘baskets of medicines of her own preparation’ to treat the sick and wounded of both sides on the battlefields. She acted as a surgeon as well as administering natural remedies. She became well-known to the soldiers, who called her ‘Mother Seacole’ and even ‘dear Mamma’

David Harewood (star of Homeland and The Night Manager) embarks on a very personal, three-year journey across Britain, Jamaica and Crimea following the creation of a major new statue of a woman who has always been a heroine of his, Mary Seacole – first statue of a historical figure who was a woman of colour to be erected in Britain


I sneaked this photo off Trevor Stirling face book where he said Huge thanks 🙏🏾 to David Harewood for presenting the Mary Seacole ITV documentary “In the shadow of Mary”

I loved watching how it took months to make the mold as a wire frame is used and clay covers it all and that took ages. I’m sur I would have given up.

But I love the Statue and all she represents. If you remember ray and I had our own personal tour of the site at St Thomas’s Hospital.




As everyone awake today they saw my blog about the Flasks that were made in China and the terrible fact that some contain Asbestos. It does shock as what else will they find it in. I have contacted the Customs and Excise to ask them what their policy is on making sure this wont happen again, but as Rod Smith of Bernie Banton says in Australia,

THe problem is Mavis, like in Australia, the only way to find it is to do destructive testing. We have containers of building materials identical in every visual way, but some has asbestos in it, others don’t. And I am talking about in the same packs and same containers.
They are supposed to have targeted random testing. In other words they have a list of items that have the potential to contain asbestos that they are supposed to test. But they have millions of shipping containers coming in from China.
I honestly think the only way is to ban Chinese imports of any product that may contain asbestos!
Well yes so do I lets say No Imports from China until they can prove the are Asbestos free and they have stopped mining.
You just know this will never happen don’t you !!! so we have to be more vigilant. Will be ever see a world free of Asbestos ??? The answer sadly is NO!!!

Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos disease.#Asbestos found in a flask imported from China

Please share around as here in the UK we have an import from China. Just how much is getting through in imported items is a worry after in has been found in CRayons and cement in Australia. We have to keep vigalant.


Risk: Chemical, ASBESTOS

The flask contains asbestos fibres. If the thermos breaks, the user may inhale asbestos fibres, which are carcinogenic. The product does not comply with the REACH Regulation.

Measures taken by economic operators: Recall of the product from end users (By: Importer)

Description: 1.3 litre stainless steel vacuum flask. No packaging

Country of origin: China

Alert submitted by: United Kingdom

Risk Type: Serious

If you find that you are in possession of a recalled product, the notification should give you details of what to do next.  If no details are shown, you should contact either the seller or Citizens Advice.

If you purchased the item from a UK seller and need further advice, Citizens Advice can help.  If you bought your product from a company based inside the EU, European law will protect you.  Contact the UK European Consumer Centre for more details.  If you bought your product from a company outside the EU it is unlikely that UK or EU law can assist you.

If you are concerned about the safety of a product that does not appear on the recall list, we recommend you stop using it and make your concern known to the retailer, manufacturer or, if not known, your local Trading Standards office.

Further advice:

UK European Consumer Centre:  www.ukecc.net

Citizens Advice: www.adviceguide.org.uk


now more flasks



Thermate Thermos Flask Recalled as they contain  ASBESTOS fibres (which are Carcinogenic)

Category: Kitchen/cooking accessories

Product: Thermos flask

Brand: Thermate

Name: Vacuum Flask with 2 cups

Type/number of model: 0-57625

Batch number/Barcode: 5050577576250

Risk: Chemical, ASBESTOS

The flask contains asbestos fibres. If the thermos breaks, the user may inhale asbestos fibres, which are carcinogenic. The product does not comply with the REACH Regulation.

Measures taken by economic operators: Recall of the product from end users (By: Importer)

Description: 1.8 litre thermos flask with 2 cups. Polypropylene outer and vacuum glass inner. Available in various colours – purple, yellow, blue, pink. No packaging.

Country of origin: China

Alert submitted by: United Kingdom

Risk Type: Serious
If you find that you are in possession of a recalled product, the notification should give you details of what to do next.  If no details are shown, you should contact either the seller or Citizens Advice.

If you purchased the item from a UK seller and need further advice, Citizens Advice can help.  If you bought your product from a company based inside the EU, European law will protect you.  Contact the UK European Consumer Centre for more details.  If you bought your product from a company outside the EU it is unlikely that UK or EU law can assist you.

If you are concerned about the safety of a product that does not appear on the recall list, we recommend you stop using it and make your concern known to the retailer, manufacturer or, if not known, your local Trading Standards office.

Further advice:

UK European Consumer Centre:  www.ukecc.net

And more


Pendo 1L Vacuum Flask various colours, Withdrawl Notice – Flask contains ASBESTOS fibres

Category: Kitchen/cooking accessories

Product: Vacuum flask

Brand: Pendo

Name: 1L Vacuum jug flask

Description: Plastic vacuum jug flask with a handle and push button pourage, 1-litre capacity. Comes in various
colours, no packaging.

Type/number of model: O-58836

Batch number/Barcode: Bar code: 5050577588369

Risk: Chemical, ASBESTOS

The separators of the double glass wall of the flask contain asbestos fibres. If the flask breaks, the user may inhale asbestos fibres, which are carcinogenic. The product does not comply with the REACH Regulation.

Measures ordered by public authorities: Temporary ban on the supply, offer to supply and display of the product

Our advice to consumers 

If you find that you are in possession of a recalled product, the notification should give you details of what to do next.  If no details are shown, you should contact either the seller or Citizens Advice.

If you purchased the item from a UK seller and need further advice, Citizens Advice can help.  If you bought your product from a company based inside the EU, European law will protect you.  Contact the UK European Consumer Centre for more details.  If you bought your product from a company outside the EU it is unlikely that UK or EU law can assist you.

If you are concerned about the safety of a product that does not appear on the recall list, we recommend you stop using it and make your concern known to the retailer, manufacturer or, if not known, your local Trading Standards office.

Further advice:

UK European Consumer Centre:  www.ukecc.net

Citizens Advice: http://www.adviceguide.org.uk

A Diary Of A Mesowarrior Living With #Mesothelioma The #Asbestos Disease. I went to my East Kent Cancer Action Group so lets talk NHS

Kent & Medway Cancer Action Partnership

Yesterday we had to go to the East Kent Locality meet for the K&M Cancer meeting.

They have a great Web Site that is still being updated http://www.kentmedwaycancernetwork.nhs.uk/patients-and-carers/km-cancer-action-partnership-and-cancer-action-groups/

It shows just what we do and what we are about.

The KM-Cancer Action Partnership is the over arching umbrella of the 4 main local across Kent and Medway.  The groups are now called Medway Cancer Action Group, West Kent Cancer Action Group, East Kent Cancer Action Group and North Kent Cancer Action Group or CAGs for short.

he members of the Cancer Action Groups are:

  • Cancer service users – patients, ex-patients, carers, family members
  • Representatives from the voluntary sector, including cancer support groups
  • Healthcare professionals who work in cancer services and have an interest in user involvement

What we aim to do:

  • Influence and improve the development and delivery of cancer services
  • Encourage the exchange of information within the Cancer Collaborative
  • Provide working groups to find and push forward solutions to specific issues. We may not always achieve the desired result but will seek a valid explanation.

The Cancer Action Groups are NOT a:

  • Fast track complaints service
  • Support Group

You can contribute by:

  • Completing an Expression of Interest form and sending it to us by email, post or fax. The address and other details are on the ‘contact us’ page
  • Signing up to receive our Newsletters
  • Attending quarterly meetings per year
  • Being part of a working group
  • Raising issues of importance to patients and carers
  • Commenting on the issues under discussion – by telephone, post, email or in person
  • Giving us your ideas on how to gather more patients’ and carers’ views
  • Representing the Partnership on Tumour Site Specific Group (TSSGs) – complete an Expression of Interest TSSG’s form

The Cancer Action Groups can offer participants:  

  • A voice in improving and developing cancer services
  • Partnership working between health care professionals and service users
  • Involvement at regional and national level
  • Training and information
  • Expenses for travel and costs incurred when taking part in Cancer Action Group/Cancer Action Partnership projects, meetings, training courses or other events

Im a bit worried as to just where the NHS will be in April as new budgets are set and then today we get the news

No extra money for NHS, Theresa May tells health chief

Exclusive: PM says service should focus on efficiencies to fill £22bn hole despite warnings hospitals close to breaking point

Performance figures for waiting time targets for A&E care are the worst ever.
Performance figures for waiting time targets for A&E care are the worst ever. Photograph: Alicia Canter for the Guardian

Theresa May has told the head of the NHS that it will get no extra money despite rapidly escalating problems that led to warnings this week that hospitals are close to breaking point.

The prime minister dashed any hopes of a cash boost in next month’s autumn statement when she met Simon Stevens, the chief executive of NHS England, senior NHS sources have told the Guardian. Instead she told him last month that the NHS should urgently focus on making efficiencies to fill the £22bn hole in its finances and not publicly seek more than the “£10bn extra” that ministers insist they have already pledged to provide during this parliament.

What a scary world we live in, but with most of the NHS being run by a business man Richard Branson does worry me as I think it should have stayed as a NHS system but private enterprise has crept in.

We did start with a Pink Event and bought wonderful cup cakes to raise money.

Maudie Vanden Berghe talked to us about Lymohoedema

Lymphoedema can be caused by cancer itself or develop as a side effect of its treatment. Lymphoedema is a condition that can appear months or years after cancer treatment.

Lymphoedma can affect different parts of the body, especially the arms and legs. However, not everyone who has radiotherapy or surgery to the lymph nodes will get lymphoedema.

If you’re at risk, there are several things you can do to reduce your chances of developing lymphoedema:

  • Look after your skin. This means moisturising your skin and avoiding cuts and scratches.
  • Look out for risks of infection. Recognising the first signs of an infection will help get it treated quickly.
  • Keep active and exercise. This will stimulate the flow of lymph fluid in the body.
  • Keep to a healthy weight.

Take care when travelling. Moving around and stretching regularly will reduce the risk of developing lymphoedema.

This is similar to  Edema as Cisplatin caused mine and it happens when your small blood vessels become “leaky” and release fluid into nearby tissues. That extra fluid builds up, which makes the tissue swell.

This also is incurable and I have to wear my Nora Batty Socks as I call them as they keep falling down.

But it was a great talk and I now understand the condition.

They still havent completed the Buildings for the PET Scanners at Ashford this is an ongoing problem.


Our friends at Sandown Guest House in Dover, Martin Sandham and his daughters Jade and Kelsey hosted a group of recovered cancer patients who have carried out a relay channel swim on the 9 August 2016. Between them they have raised over £2500 for the Club and other cancer charities. The brave souls who took part are: Bill, Wendy, Dee, Linda, Sarah and Emma.  We would like to place on record our sincerest thanks for their sterling efforts on our behalf and in memory of Sonia Sandham Martins wife who passed away nearly a year ago following a long battle with cancer.

What a very brave thing to have done what amazing people.

The whole cancer Club amazes me in what they accomplish as they pay for so much equipment. The Cathedral Ward now has a new kitchen thanks to them. I have made many a cup of tea in the old one when I was in Chemotherapy.

Previously named ‘The Optimists’ the club was formed more than 30 years ago by Dr Mark Rake and Andrew Jackson, along with a committee, to raise money for a designated Cancer Unit to improve the care and treatment of cancer patients.

It was one of the first Cancer Support groups in the UK.  Patients, staff, local supporters and businesses joined them.
The Mountbatten Centre, K & C Hospital was built and the club has continued to provide support and friendship to cancer patients.
We hold informative monthly meetings, social events and funding for specially requested items and equipment within the hospital.
Treatment now takes place in the Oncology Department and the Cathedral Day Unit. We provided the special relaxing chairs for Chemotherapy patients to use whilst having treatment in the Day Unit.

The club is now organised by a committee of patients, ex-patients carers and retired NHS staff and is chaired by a Consultant Cancer Surgeon.

I do admire all the work they do as it was this club that paid for a State of the art Radiotherpy Unit that I went to an evening meet to see so many years ago now when first diagnosed. What would the NHS do with out these devoted people


A great Blog was written by Imperial College Healthcare Charity communications manager Bevis Man

NHS charities are crucial to the nation’s health; we just need to show how 02nd Aug 2016

NHS charities play a vital and growing role in the NHS. But each NHS charity has a unique relationship with its partner organisation, so it can be difficult for NHS charities to measure impact. Imperial College Healthcare Charity communications manager Bevis Man explains why it is important to develop evaluation guidance specifically for NHS charities and how our Charity is helping lead the way.

One thing the recent EU referendum highlighted was the public’s passion for the NHS. The idea of having an extra £100 million to spend on the NHS every week was clearly a point that resonated with many voters, regardless of the accuracy of the claim. Investing in our healthcare services is important, but how much do the public know about the role NHS charities play in contributing to that?

There are currently more than 250 NHS charities across the UK, investing an additional £321 million into the NHS every year and managing about £2 billion in assets. This is a huge investment, so evaluating its impact and investing in this process will help guide charities like us on where to place funds in the future.
People do not donate to a charity if they don’t understand the difference their donation will make, so if NHS charities are fast becoming a key source of funding, raising our profile, both as individual organisations and as a collective body, is fundamental to ensuring this can continue. We’ve noticed a gradual change here at Imperial College Healthcare Charity over the past few years – patients, relatives and staff are choosing to give to their hospitals through donations, fundraising and volunteering. But there is a long way to go.

With increasingly tight NHS budgets and a period of financial uncertainty ahead of us, Trusts are now more in need of NHS charities to contribute towards major redevelopments of wards and units as well as the provision of equipment and the improvement of the environment. Our motto used to be that we provided the ‘added extras’ the NHS could not, and whilst that still stands, we’ve seen first-hand our role change in recent years, evolving into one that is integral to our Trust being able to deliver better care for patients.

In the past 12 months alone, Imperial College Healthcare Charity has committed £15 million to the Trust for a number of major developments, including improving several outpatient clinics and reconfiguring the A&E department at St Mary’s. We’re in the midst of raising £2 million to help fund the expansion of the children’s intensive care unit, awarded more funds for clinical research than ever before, taken on the management of over 300 volunteers and provided over £55,000 to patients and their families in financial hardship. We’re funding weekly creative workshops for our patients living with dementia and continue to expand our arts programme for patients, visitors and staff across five hospitals.

We’re excited about working with other NHS charities. This is the first time we as a collective have pooled our resources in such a way, but it is important we do so. After all, being able to show someone how we’re making a difference is a lot more powerful than simply telling them we are. We have a responsibility to supporters, Trust staff and patients to show just how we’re delivering on our ambitions and objectives and finding the best ways to measure our impact is a great way to start.


 See the whole blog here but I just want to show what a difference Charities make to our NHS So many kind people work so hard to raise money throughout the country.

I have been chasing the Chief Executive for more SNS Nurses in our hospital as just 1 is not right. She can’t sit in on each patient in Clinic and help with Devastating News of Diagnosis of Mesothelioma and to make sure a patient and carer has understood all they have just been told. She was there for me and also in most of my appointments as things got tougher and tougher. I want everyone to be able to have this help but cutbacks and putting my CNS into two hospital means this has all gone.

So I have emailed all that I have done so it gets registered on the minutes of the meetings.

Lets hope they find a solution. I have given them one by asking them to get in touch with Mesothelioma UK.

They are trying to supply a nurse into every cancer ward. Once again Charity can supply and support. I hope I win through















A Diary Of A Mesowarrior Living With #Mesothelioma-I have had a great day at the Contamination Expo Series 2016 Meeting my #Asbestos contacts


This has been a great experience today.

We got the Fast trial to Stratford International and then got on the DLR.

What an amazing service but later told there was no driver. How amazing. I have used it before from Greenwhich but didnt notice then that there was no driver


Even their link doesnt explain it has no driver ??

We arrived at Custom house and walked straight into the Excel all so easy.

We had arrived http://www.landremediationexpo.com/showguide/#PageHeading

We walked in and was trying to find Mini Containers. I was walking along and walking backwards when I bumped into a man and then realised it was Chris Ward From IATP. He presented with the IATP award 7 years ago. It was all cuddles and kises as he couldnt believe how well I looked. This was going to be a great day.  Photo’s started then and we were smiling away.

Turn around and Ray had been talking to a young man and had mentioned he was with Mavis. Not Mavis Nye Oh! I must say hello and I turned around and saw a him. We are contacts on Linkedin and I have shared his work Luke Mitchell Business Devolpment at Breathe Safety

And Chris of coarse, he just couldnt get over I had surprised him and attended.

We carried on walking around and had a Coffee and a biscuit and went back in to see Small Containers do his Presentation to back him. The HSE gentleman was there and other people who have all shown a great interest in the product

He mentioned I was in the Audience and afterwards men came forward to meet Ray and myself. I find it so funny that they know me and are on Linkedin, Twitter and Facebook. My Cyber pals.

I was amazed at how young Craig Evens General Manager at UKATA (UK Asbestos Training Association) was. We had a long chat and caught up as we have been having messages on Linkedin for a long time and never have met before.


I then watched a demonstration of a mask but then I found My dear friend Paul Chambers Director at Wefitrpe ltd Benfleet Essex who trains and coaches and we often exchange info on Linkedin dsc00260

He also gave me a demonstartion of his machine if you work with any Dust particles, Chemicals, Fumes, Gases or Biological, you may need RPE due to changes in the Health & Safety Act.
Do you already use RPE from FFPs (disposable) to Full Face?
Using any type of tight fitting face piece requires by Law to have a Face Fit.
We offer a totally mobile service to your company or any premises your employees may be working. Performing Accredited Face Fitting Testing on Qualitative, Quantitative & N95.
Also RPE/Competent Person Training with a friendly professional service working round your needs as a company.
Feel free to contact us with any inquires…

Well we had walked around and if I sum up the day I will say I have met some wonderful people who are so dedicated to asbestos and to the prevention of asbestos diseases.

Thank you so much but please look after yourselves and keep safe. I dont want you to suffer what we have suffered. Thank you all for making me so welcome today as I stepped into your world and if there is anything I can help you with just ask, I love sharing info.

One last wonderful peace of news was a message for Dennis of Mini Containers

Im so proud of you for winning the Asbestos Innovation Award Runner Up  xxxxxxx

Then SMH well done for winning the top prze you derserve it for all your hard work.

 We won! Our online asbestos site management system came out top with the judges of the Asbestos Innovation Award at the Contamination Expo 2016 in London 🙂 The show is open again tomorrow, so if you are visiting, make sure you pop by stand C540 to say hello to the team and be introduced to IRIS.

Assure360 at the Contam Expo – innovation award runners up Delighted judges saw uniqueness of the solution

Congratulations to Nick Garland as well xxx

A Diary Of A #Mesowarrior Living With #Mesothelioma A #Asbestos Deasease. -An Invite to Guys Mesothelioma Support Group.


The Shard

I have had a wonderful trip to London as the invited guest Of Guys Mesothelioma Support Group. i was amazed to here the only support group in London ?

It was held  in the Field Fisher Head Office at Swan Lane as the room at St Thomas’s wasnt available but Im so pleased as the views for the new site was just so magical.

I Would never get any work done if I worked there all day.

We were well looked after, as we arrived, with tea and coffee Served by Andrew and it was great to meet up again.

So Racheal asked me to tell my story which I did without any notes as the other members just wanted to hear my story and all about my trial.

They listened and askeed questions, then told me their stories as we went round the table.

It was a delightful meeting and so much positiveness. I was so proud of them and their carers.

Rachel Thomas

Rachel Thomas, clinical nurse specialist lung cancer

Tel: 020 7188 4758
Email: LungCancerCNS@gstt.nhs.uk

Biography: Rachel works as a mesothelioma/lung cancer clinical nurse specialist. She’s undertaken a number of postgraduate courses in advanced assessment skills and nurse prescribing. As part of her clinical work, she also helps run a clinic for patients on oral targeted therapies for lung cancer.

Rachel runs a mesothelioma support group at Guy’s Hospital and represents the Trust and mesothelioma patients at the All Party Parliamentary Asbestos Sub-Committee.

She currently serves on the National Lung Cancer Forum for Nurses and represents lung cancer nurse specialists on the British Thoracic Committee.

What a talented and caring woman. We are so lucky with the pople that dedicate their lives to Mesothelioma Doctors Nurses Lawyers and Drug Companies we are not alone in this battle with our disease. We do appreciate you all xx

Then I came home to find a dear friend, who I have visited with other Kent Mesowarriors. We had a lovely meet up and now David has passed away 6am this morning.

A sad time and our Comunity is so sad as we mark his passing with the Mesowarrior Candle lit


You are with me everyday,
I feel you with every breath,
Your thought is with me,
With every decision I make.

You have been with me until now,
And it is hard to face,
That you are finally gone,
And I will never see you again.

Your hands, your touch, your smile,
Are things I will never forget,
All the love you shared with me,
And all the tears and pain you made go away.

In our short time together,
All the memories we had,
Will last in my heart,
Those memories I will never forget.

Although you have left,
Now you walk above,
You are always with me,
I’m always surrounded by your love.

Now you don’t have to worry,
For your love will be passed on,
Cause even though you left me,
You are Always in my Heart.

By: Josh Urness

A Diary Of A Mesowarrior Living With #Mesothelioma A #Asbestos Disease #Endmeso -The Schools Campaign has been given a boost


My Dear friend Tess who is always in my heart

A busy week for us this week as I go to London twice and The Kent and Canterbury for an East Kent Locality meet. I have to take one day at a time and sort each appointment out. Tomorrow Ray and I are invited to St Thomas’s Mesothelioma Support Group

It s been very busy on the computer today as well with new patients contacting me and I have to sort out where they live and to point them into the direction of the nearest hospital to sort their treatment out and to make sure they get the right support.

Then I  sorted out all the latest news and make sure I put it into the right group and Tweet and Linkdedin.

I do enjoy it but I’m missing ray being able to do jobs around the house as he rests his back. Makes  you appreciate just what he does normally do.

I then was very pleased and thrilled that Armco Asbestos Surveys had backed me on my quest for Asbestos free schools and produce a great template letter for Parents to send to schools :-

Parents are urged to write to their schools to ask about asbestos

Asbestos Campaigner and mesothelioma sufferer, Mavis Nye, is behind a new campaign where parents are urged to write to their schools to ask about asbestos.

She has posted on the social network, LinkedIn, asking if people will consider writing a letter to their child’s school to try to find out if it contains asbestos, and if so, how it is being managed.

Schools are supposed to inform parents if there is asbestos in schools, yet it would appear that parents only find out if they actually ask about it.

Here is an example letter that Mavis has drafted and shared that you could use, but obviously fill in with your own details:-

Example letter


I am writing to ask you for more information about asbestos at <INSERT NAME> School. I am asking this because I am concerned about the safety of both the children and the teaching and support staff at the school. I’m sure you are busy, with many things competing for your time but I would ask that you find time to take these questions seriously.

The latest research in the UK shows that over 86% of schools in the UK do currently contain asbestos, putting over 7 million pupils at regular risk of exposure.

A survey by the NUT in 2015 found that only 46% of teachers knew if there was asbestos in their school. This lack of knowledge puts them and their pupils directly at risk.

Mesothelioma has a very long latency meaning that many victims are diagnosed with the illness 30 to 40 years after their exposure.

The number of UK teachers dying from mesothelioma has risen to 22 a year. This is currently the highest rate in the world and is predicted by experts to continue to rise.

Children are particularly vulnerable to developing mesothelioma. A child first exposed at age 5 is five times more likely to contract mesothelioma than someone first exposed at age 30.

It is estimated that between 200 and 300 people are dying each year as a result of exposure to asbestos when they were pupils at school. 2 million asbestos fibers can fit on a pin head but mesothelioma can develop from ingesting only one or two fibers.

The fibers can pass through the smallest gap or crack.

My questions:-
Has an up to date asbestos survey been carried out for <INSERT NAME> School? Is there asbestos present and is there an ‘asbestos management plan’ in place?

If there is asbestos please can you tell me:

1. What type of asbestos is it? How much there is? Where is it? What condition is in it? What plans are in place for it’s management and removal?

2. Can the children knock, scrape or damage the asbestos? Can teachers or support staff disturb the asbestos?

3. Do all teachers, support staff and volunteers (including staff on temporary contracts) know where the asbestos is? Do teachers, school support staff and volunteers know what actions to take if they see any damage to the asbestos? Are staff and volunteers regularly updated on how the asbestos is being managed and the plans for it’s removal? Do all new staff and volunteers receive information about asbestos as part of their induction?

4. Will the school commit to producing an annual report for all parents and school staff reporting on the extent and condition of asbestos in the school and the plans in place for it’s management and removal?

I’d be grateful if you could respond to this request by writing to me at <INSERT ADDRESS>.

With best wishes


sue 12

Petition to protect children and staff from asbestos in schools

You may also want to sign a petition being led by Lucie Stephens, following the death of her mother who worked as a teacher in schools over many years.  Lucie’s mum died from mesothelioma last June.

Lucie is campaigning for all schools in the UK to produce an annual report informing parents and staff about any asbestos contained within their school, the types of asbestos found and how it will be managed.  She is also campaigning for the removal of asbestos from all schools by the year 2028.

The petition will be delivered in person to the Minister of Education.

Click here to read more and to sign the petition https://you.38degrees.org.uk/petitions/protect-our-children-and-teachers-from-asbestos-exposure-in-schools

I’m really grateful and it has bought Lucie and I into one campagne together and so please sign her petition and please copy and past my letter and send to every school.

I will carry on having it in my talks and I will also send to Parliament as they must understand the problem now that they also have got to strip the Asbestos out of their building and pray they havent been contaminated and its festering in their body’s


A Diary of A Mesowarrior Living With #Mesothelioma- The worry for the #asbestos strippers and Personal Air Monitoring.


People that have heard me speak know how I’m passionate about the safety of the men/ women that work in the area of stripping asbestos out of buildings etc.

Each day they have to take their clothes off and put on protective clothing and wear a mask and work in enclosures.

I’m in contact with so many of these young workers and I fear that there might be corners cut to save money and so risk their lives as 20/30 years down the line they suffer my disease Mesothelioma.

One point that has been raised to me is that the men are not covered by unions and I would like to see them all under the wing of the GMB as safety is the key word and the rules must not be broken.


On of the areas causing ARCA to make a comment in their Autumn News 2016 is Personal Air Monitoring.

They quote their notes

Personal Air Monitoring can provide
invaluable performance information: it should provide
an accurate record of actual concentrations of airborne fibre generated by particular types
of work in particular circumstances, and give licence holders confidence (and clients,
regulators etc) that control methods are working, in practice.


In summary, CAR, the Approved Code of Practice and existing guidance give the
following reasons for carrying out personal air monitoring:
To check the effectiveness of the controlled method or removal (i.e. by comparison to
previous concentrations of airborne fibre in similar situations and to the control limit.
To provide data for personal exposure records.
To guide assessment (and planning) for future, similar jobs.
To confirm that appropriate RPE has been chosen

Page 19

ARCA produced the note due to HSE’s concerns about the way Personal Air monitoring has been carried out in the Industry over many years.

There has been no change to the existing law or guidance but there is concern over custom and practice that has developed ver the years.

They hope the note will provide reassurance to workers and others and can provide excellent performance information for the company and regulator

Personal monitoring for asbestos exposure during licensed work with asbestos

On the 9th Sept SHP published another article on the subject of the HSE having concerns


Recently, the HSE has highlighted concerns about the way personal air monitoring within the asbestos industry is being carried out. In this article, AEC’s Technical Director Darren Evans explains why personal air monitoring and the data it generates is so important.

Personal monitoring is explicitly required to comply with the Control of Asbestos Regulations 2012, specifically Regulation 19.

Regulation 19 states that :

…every employer must monitor the exposure to asbestos of any employees employed by that employer by measurement of asbestos fibres present in the air;

  • at regular intervals; and
  • when a change occurs which may affect that exposure.

The employer must keep suitable records of the monitoring of the tasks, or reasons why this was not carried out, and these records must be kept for employees for 40 years (as required by Regulation 22), and the employer must provide these records to the employee and also to the HSE if requested. The approved code of practice also states (para 486): The results from all personal monitoring carried out by the LARC during the period of the license should be collated and submitted to HSE as part of the license renewal procedure.

In addition, all work with asbestos requires a risk assessment, as documented in Regulation 6. As part of this assessment the Licensed Asbestos Removal Contractor (LARC) must determine the nature and degree of exposure which may occur, and, consider effects of control measures, and, consider the results of monitoring under regulation 19. This risk assessment leads to the control methods applied in the plan of work to reduce fibre levels during the work, and therefore exposure to employees carrying out the work (regulation 7).

This plan of work provides the information to employees, who should also receive instruction and training if liable to be exposed to asbestos, and how to work safely, and why, when and how to wear RPE and PPE (Regulation 10).

Regulation 11 then places the onus on the employer to prevent exposure of any employee. However, for asbestos removal contractors this is unavoidable, so the requirement is to ensure that PPE & RPE provided is suitable, and that no employee is exposed above the Control Limit of 0.1f/cm³. This is typically demonstrated by personal monitoring, carried out under regulation 19.

Finally, the detail of the work carried out should form part of the health records for employees engaged in licensed asbestos works. The monitoring results as well as detail of the works should be kept as part of regulation 22.

The HSE Asbestos Licensing Unit has stated that personal monitoring is an area for improvement, and that this is an area which will be looked at during licensing applications and renewals.

(see ALG minutes at http://webcommunities.hse.gov.uk/connect.ti/asbestosliaison/groupHome).

The HSE have highlighted several problems with personal monitoring as follows:

  • Analysts are rarely directly employed by LARCs to carry out personal monitoring, and personal monitoring is mostly carried out when ‘the client’ employs the analyst directly, or when the analyst is on site for the clearance, so monitors ‘fine cleaning’ at the end rather than specific tasks likely to lead to greater exposure.
  • Some analysts reported a ‘lack of co-operation’ i.e. poor detail on task, or names of operative.
  • Analysts rely on operatives using the pump inside the ‘live’ enclosure (which the analyst cannot enter). Some instances of pumps switched off, or left at the air lock.   Conversely operatives state that wearing the pumps can be inconvenient and hinder their work, for example accessing tight spaces, behind plant etc.
  • Review of some analysts’ paperwork on personals has shown some common errors, and the HSE have intimated they will up inspections on analysts as they feel some (not all) are unaware of the methodology or the reasons for personal monitoring. Particular problems are inadequate detail of tasks being carried out, and incomplete names or nicknames for operatives’ records, required under regulation 22.
  • Other common problems have been poor methodology, reporting the limit of quantification incorrectly e.g. as <0.01f/ml, and too high sample volumes then not being able to count filter due to particulate loading (i.e. flow rates too high). This perhaps has been exacerbated by the fact the Analysts’ guide, HSG 248, has still not been updated since 2005, though a new version is due for publication in the near future.

When the new HSG 248 is eventually published, it is expected to contain more specific information required by the analysts.  The following list was published in the draft guidance and this shows the HSE’s expectations when carrying out personal monitoring:

Sampling must be for sufficient duration, and will be deemed inadequate by the HSE and by UKAS if it fails to record the following information:

  • Person’s name and job title. Full name, as used for 40 year records.
  • Actual work activities carried out by the person (periods and extent). Give detail on the task(s), how long etc
  • General work activity in the area
  • Asbestos product being removed (e.g. AIB ceiling tiles)
  • Type(s) of asbestos likely to be involved
  • Removal method e.g. shadow vacuuming,
  • Type(s) of dust suppression control measures employed (not RPE)
  • Type of RPE i.e. model and protection factor.
  • An opinion on the effectiveness of control measures.
  • Other factors which may affect the result (e.g. confined location, external location, condition of the material being removed or worked on, whether ACM nailed or screwed in)
  • Photo of work area (through viewing panel).

(from DRAFT Asbestos: The Analysts’ Guide 2016 HSG248 8 Prepared by the Health and Safety Executive 2015)

The expectation is that the LARC ensures personal monitoring records are in place, and plans for this over the license period.  Planning should include coverage of all discrete tasks, so that sheeting up, pre-clean, fibre suppression, removal, cleaning, bagging, etc are all covered, and recorded.  Accurate information must be obtained by the analyst for the records.  This should be simple as relevant information should be contained in the plan of work.

The sampling period must be sufficient to ensure it is fully representative of the work, and not just ‘snapshots’ of part of a task.  Sampling periods should be for the duration of a specific task for shorter duration activities or a shift to measure exposure levels.   Sequential sampling may be needed in high dust environments to prevent the filters becoming overloaded and uncountable, and for smaller jobs, sequential monitoring for discrete tasks across a shift or a duration of the work, allowing a time-weighted average exposure to be calculated if needed for the 4-hour control limit, as well as exposures for each task.

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I’m so pleased that it is be taken serious and maybe change will happen as at the end of the day the Industry needs to be safer. No corners cut and the men need to be listened to.

A man on Facebook has made a good comment —-Now, the personal air monitoring should ideally be run over a removal shift, under normal conditions. If the removal contractors control measures are in place and adequate, then the monitoring results should be reflected.

It all comes down to being allowed the time to do the job properly and so keep the men safe.48 years ago the government didn’t care a fig about the mens safety. They only cared about profit in the shipbuilding Industry and so Ray bought home asbestos dust and i have Mesothelioma. I have cost the NHS thousands in Chemo treatment 4 times and then the Keytruda Immunotherapy trial cost thousends. £6500 per infusion without all the scans and the cost of development. Where did they save money by not banning Asbestos sooner. Force economy is the answer. So let’s get it right now and back the asbestos removal industry.

Made me laugh the way once asbestos bit them in the bum as it was found in the house of commons. They find the money straightaway and make plans to close the H/C for years so they can strip it out. So come on find the money and strip our schools out lets save our young from Mesothelioma. Learn from history past.