We have had an Interesting week. The asked us to talk via Teams on Thursday, So many people were on the call from around the world that we were nervous. We needn’t have been they loved our presentation as we learnt from the feed back afterwards. The patient is being listened to nowadays, our voices are making a difference to their understanding.
Synteract wrote –Just grabbed a tissue while listening to this morning’s Oncology Journal Club featuring guest speaker, Mavis Nye Dr (hon) BEM. BCAh and her husband, Ray, of the Mavis Nye Foundation.When we’re sitting at our desks day to day, we’re so focused on what’s in front of us. Today’s session was a wonderful reminder that each patient and carer we’re involved with comes with their own unique story, and it was a privilege to hear Mavis and Ray’s love story and their #mesothelioma and #ClinicalTrials journey.Just grabbed a tissue while listening to this morning’s Oncology Journal Club featuring guest speaker, Mavis Nye Dr (hon) BEM. BCAh and her husband, Ray, of the Mavis Nye Foundation.When we’re sitting at our desks day to day, we’re so focused on what’s in front of us. Today’s session was a wonderful reminder that each patient and carer we’re involved with comes with their own unique story, and it was a privilege to hear Mavis and Ray’s love story and their #mesothelioma and #ClinicalTrials journey. —–
Oh how lovely. We did enjoy ourselves after the technical glitch disappeared. So many great questions were asked, its good to have such interaction. ——–
Then on Friday and Sat I sat for hours on the computer for the ADAO Conference.
Every year Linda asks me to be the International voice of the mesowarriors and every year I have made recordings and they have gone disastrously wrong. So this year I was determined it would would be spot on. and I feel it did go well.
I will post a recording when ADAO publish.
On Friday The film festival was spot on. It was a very emotional program but I enjoyed every moment.
The event will include: “The Mother” by Paolo Monico, “Breathless” by Daniel Lambo, “Dirty Laundry” by Conor B. Lewis and Zack Johnson, and ADAO’s 16th Congressional Staff Briefing, “Impact of Asbestos on Public Health, Environment, and Economy,” with Brad Black, MD; Barry Castleman, ScD; Raja Flores, MD; Arthur L. Frank, MD, PhD; Brent Kynoch, Environmental Information Association; Richard Lemen, PhD, MSPH; Celeste Monforton, DrPH, MPH, American Public Health Association; Linda Reinstein, Asbestos Disease Awareness Organization; Greg Russell, International Association of Fire Fighters; and Robert Sussman.
“The Mother” by Paolo Monico
- When a hardened widow receives an unexpected visit, she is given the chance to shed light on her husband’s death. Starring Mary Testa, Boris McGiver, Michele Hicks and Sylvia Kauders.
- https://www.youtube.com/watch?v=FC3g2Ky4xbM&t=1s breathless
“Breathless” by Daniel Lambo
- Following the deaths of his father and many others from his village, filmmaker Daniel Lambo sets off on a passionate quest to find the truth about the deadly asbestos industry. His search takes him to the largest asbestos waste dump in India and unveils a cold-blooded industry still endangering the lives of workers and consumers around the world. A gripping story on the fight of individuals against a booming asbestos industry.
“Dirty Laundry” by Conor B. Lewis and Zack Johnson
- Two cousins journey across the United States by bicycle, fueled by a curiosity about their elderly grandmother’s sudden passing from a rare cancer, mesothelioma, and uncover a trail of broken families bound by asbestos.
Then Saturday was the Conference where so many spoke and told their stories
The speakers were
Linda Reinstein, Opening Remarks9:00 AM-9:10 AM ETWarrior
Message of Support by Mavis Nye (UK)9:10 AM-9:20 AM
ETSession I: Progress and Challenges from the Frontline
9:20 AM-10:20 AM ETSession II: Medical Advancements: Diagnosing and Treating Mesothelioma and Asbestos-Related Diseases
10:30 AM-11:40 AM ETIntroduction: Celeste Monforton, DrPH, MPH
11:45 AM-11:50 AM ETKeynote Speech: Rebecca L. Reindel, MS, MPH, Safety and Health Director, AFL-CIO
11:50 AM-12:30 PM ETSession III: Prevention: What Is It? Where Is It? What Do I Do?
12:30 PM-1:40 PM ETIntroduction: Kathy Best, Howard Center for Investigative Journalism, University of Maryland
1:45 PM-1:50 PM ETAndrew Schneider Memorial Lecturer: Wendy Ruderman, Journalist1
:50 PM-2:30 PM ETSession IV: Advocacy: Global Ban Asbestos Action
2:30 PM-3:50 PM ET
Linda Reinstein, Closing Remarks
3:50 PM-4:00 PM ETSATURDAY SEPTEMBER 18, 2021: AWARDS AND RECOGNITION CEREMONYVirtual Awards and Recognition Ceremony
4:30 PM-5:30 PM ETSponsorship Recognition
A good Conference under difficult situation of COVID
Then also last week I had 2 articles printed in The Asbestos Hub Magazine so all in all it has been a great week.