A Diary of a Mesowarrior Living With #Mesothelioma #asbestos -LASAG Launched their Support Group At The Maggies Centre Royal Marsden Sutton Surrey

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Ray and I drove to the Royal Marsden today -not for treatment that made a change but to support the New LASAG Group at the Royal Marsden.

It is a lovely setting and Maggie’s at The Royal Marsden provides free cancer support for people with cancer and their family and friends, further enhancing The Royal Marsden’s world-leading treatment and care.

With no need for a referral, patients as well as friends and relatives of patients can drop in for support with anything from managing stress to money worries. The centre provides a breathing space away from the hospital where visitors can meet people who understand what they’re going through or just take a quiet moment to reflect. I will find it handy while we wait for blood results and when we wait for drugs to be made up.

The services on offer are designed to further enhance the psychological support already provided at The Royal Marsden, and our Psychological Support and Pastoral Care team, which is funded by The Royal Marsden Cancer Charity, is working closely with Maggie’s to ensure our patients are accessing the most appropriate support to meet their needs.

https://www.royalmarsden.nhs.uk/your-care/support-services/maggies-centre-sutton

There will be more patients and carers as the group gets established and we had a great chat as we got to know the Patients and Carers that were there.

I wish it lots of luck and can see we should have more of these centres.

Richard Mullins The Director of LASAG has written. –We had some great feedback from our first Mesothelioma Support Group held at Maggie’s at The Royal Marsden – Sutton. Thanks to all who helped make it happen. See you again in March

 

 

 

 

 

 

 

 

 

Loved the Loo x

 

 

 

 

 

 

 

 

 

 

 

 

 

 

We came home to an empty house the first time after the loss of our little Louis last Friday.

RIP little boy you was so loved and we miss you trotting around everywhere with us. Run Over that rainbow bridge ! run free xx

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

A diary of a Mesowarrior living with #Mesothelioma #asbestos — Scan result and a busy week

 

 

 

 

 

 

 

 

 

Its been an eventful week.

It was my week of 5 days treatment at the Royal Marsden.

Monday the traffic was really bad as accidents, road works not reopening on time from a nights shutdown etc we get used to that but as we allow 2 hours we always seem to get there on time.

Bloods taken etc and I had to wait for the Doctor.

He soon called me in and we had a chat but it was a surprise that I could carry on with the trial. The scan was showing stable again but this time no growth at all.

The Doctor said he was amazed as he had been sure he was going to take me off the trial and had been emailing around for a new trial for me.

I said maybe I was on the turn and the scans will start showing shrinkage, he agreed but only time will tell.

So the week was full on travelling each day to the R/M for infusion of the drug and injections of the second drug.It really is a tiring week but maybe just maybe Im going to win

 

 

 

 

 

 

 

 

BUT Louis was acting very funny as the week went on. getting up every hour and going out drinking and weeing.

We were able to get him to the vets as they stay open in the evening and they suspected Diabetes. I had to bring him home and I was given a sample bottle to collect his wee in. There I was walking him along and sticking a scope under his belly collecting wee. Goodness knows what the neighbours thought if they were watch me.

We took this back to have it tested and the vet phoned and said it was proving he had Keytones in his water and his blood test was showing he was diabetic.

So they took him in Saturday morning 8am and gave him insulin and checked him every 2 hours.

Ray put on F/B Well after our journey to the Marsden we took Louis to vets as he just hasn’t been himself. It has taken 4 trips to the vet with him today for blood tests etc. we have just collected him at 6 pm but he has to go back at 8.30 tomorrow for a day on a drip. It was bad news. He is a serious case of diabetic. his pancreas cat deal with it anymore it was a long list of problems. We have to be taught tomorrow how to inject him twice a day for life and just what to look for ,his ups and downs. what to do if he collapses or becomes unstable. he will need regular vet checks. he will be on a strict diet,good luck with that

Saturday he wrote Louis has to spend all day in vets having bloods done and 2 hourly checks. He is more serious than we thought . We have nearly lost him. We can collect him at 4.15 if he is stable. The bill for these 2 days is over £500. We thought we had Insurance but we have`nt what we have is a pet plan which is pretty much useless for his condition. But the alternative to not paying is unthinkable bless him. He has given us almost 15 years of love we will do the best we can for him what ever. Home is empty without him here he is a pain in the arse but we love him to bits. He had Mavis up almost every hour on the hour again through the night . Like she needs it. We will have a better picture of his future later today.

Sat evening Well Louis is home. He has only improved slightly not as good as hoped. If we wanted to leave him another night for his continued monitoring it would add another £1400.00 to his bill. It would mean taking him to Canterbury now and picking him up in the morning. So we decided to bring him home. He seems happy to be home. Ive had instructions on how to administer his insulin his next jab is 9 pm. He has another day there on Monday to see if anything has changed. Ive paid the bill up to tonight £541.00 Christ I could leave Mavis in a luxury Hotel for less than 2 Grand. for a week.

We have been doing the injections ourselves and very easy as we had to practice on a toy dog in the surgery.

Im amazed we are not very tired but a dog is like a child and all you want is to see them back to normal. Louis is very alert today so thats a good sign.

He has a red bandage on to cover the Canula

So its back to the vets tomorrow where they will test just to make sure everything is as it should be

Today we have Storm Ciaro and its blowing so strong. Ray has had to go and move the car as it is by a fence and other fences are breaking down so to be safe x

https://www.telegraph.co.uk/news/2020/02/09/storm-ciara-hits-britain-mph-wind-rain-travel/

 

 

A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos 12KBW hosted a talk on Asbestos In Talc

On Friday I had an invitation to join a talk on a subject Im so interested in –

Talc & Asbestos: What’s going on?

12KBW is hosting a seminar on talcum powder and asbestos.

Chaired by Harry Steinberg QC, a team of lawyers and experts from the US and the Asbestos Team at 12KBW will discuss recent scientific, medical and legal developments in the US, including the Johnson & Johnson cases, and ask what relevance they have to claimants in the UK.

It was at Drapers’ Hall, Throgmorton Avenue, London, EC2N 2DQ which Ray and I found just behind the Bank Of England. We had never been up the side roads here even though we had passed it many times from the Bank Underground.

We found Drapers’ Hall and met up with other friends that were joining in.

Let me give you a short history of this building that took our breath away.

As the trading activities of the guilds expanded, members required a Hall where they could meet to discuss and co-ordinate business. At first, they used individuals’ houses but in the 1420s the Drapers’ guild decided to build its own Hall. This first Hall was in St. Swithin’s Lane.

The present Hall, situated in Throgmorton Street, was bought from King Henry VIII in 1543 for the sum of 1,800 marks (approximately £1,200). This had been the house of Thomas Cromwell, Earl of Essex and Chief Minister to Henry, but had been forfeited to the King on Cromwell’s execution in July 1540.

Destroyed by the Great Fire of 1666, Drapers’ Hall was rebuilt between 1667 and 1671 to designs by Edward Jarman. In 1772, it was again rebuilt after a fire which did considerable damage and, in the 1860s, the frontage was changed and the interior altered by Herbert Williams. It was later altered once more in 1898-9 by Sir Thomas Graham Jackson.

So we all sat down and at last I was listening to the truth about Asbestos in Talc. Lawyers and Doctors from the US and the cases they have bought to court and won.
Its not just Johnson and Johnson it is the brands that the US sold that was mined in China and surprisingly Australia.
Boots Coty and Avon are on the list. A whole list is being put together and when I can get my hands on that I will share.

But the use talc in the industry as well. Malt, animal feed and all sorts of dry foods. T

Talc is also used in food processing, and to make some supplements, pharmaceutical pills, chewing gum and polished rice. Consumer groups have also found it in crayons and children’s toys, like crime-scene fingerprint kits.

Talc was routinely applied to surgical gloves and condoms until the 1990s, when the Food and Drug Administration told manufacturers to stop using it because of health concerns.

Talc is used in many cosmetics: lipstick, mascara, face powder, blush, eye shadow, foundation and even children’s makeup. In the list of ingredients, it can be listed as talc, talcum or talcum powder, cosmetic talc or magnesium silicate. Talc is added to cosmetics to create a silky feel and absorb moisture. Some brands make talc-free cosmetics.

Pediatricians have been warning parents for decades not to use powder on babies because of the risk a child will inhale or aspirate talc, which can cause choking and coughing and lead to respiratory illness or chronic disease and lung damage. This has nothing to do with asbestos.

Cases of babies dying from choking on powder were reported as early as the 1960s, and since 1981, the American Academy of Pediatrics has taken a strong position against the use of talc on babies and children, saying it is hazardous and has no medicinal value.

The F.D.A. last tested talc products in 2010 and found no asbestos, but it was provided raw talc from only four suppliers and tested only 24 commercial products. Experts who have analyzed talc on behalf of plaintiffs suing Johnson & Johnson say they have detected asbestos in talc products.

The F.D.A. does not test cosmetics for safety. With the exception of color additives, neither makeup nor any of its ingredients require the agency’s approval. The agency says it takes the possible presence of asbestos in cosmetics very seriously, but that manufacturers and marketers are responsible for their safety.

It points to voluntary standards set by the manufacturers’ trade association, the Personal Care Products Council, which declared in 1976 that all talc products should be free of asbestos. The council has no way of enforcing the standard. but now it is reported the FDA want a more uniformed Standard so things are changing all the time.

Ovarian Cancer was spoken about as well so it seem Talcum Powder has a lot to answer for its just proving it and how many of us keep tins of Talc to get tested and  to be able to prove this was how we was contaminated.

It turns out that if the talc can be proved to come from the US then we in the Uk can bring a case to court, there seems to be so many pitfalls and I fear some cases will be thrown out of court. Its a case of watch this space. Although we in the UK have been testing it correct but the US hasnt and its been taken serious since 1900 and 1942 they found asbestos in miners lungs. 1957/1958 J&J found asbestos in Italian Talc. 1968 it was found in 22 cosmetics,1970 CTFA  Reports that using corn starch was to costly,1973 Federal Government bought out a testing Standard ———- So once again we patients have been lied too.

After a meet up with all the friends and shared drinks and snacks we said our goodbyes. Thank you 12KBW the Speakers were so informative and the subject just so fascinating  it has fired me up and I feel I can now add this to my Presentations its about time we did talked about Asbestos in Talc

 

 

A Diary of A Mesowarrior Living With #Mesothelioma #asbestos — Oh my! I can eat all the fatty and all the foods I like.

 

 

 

 

 

 

On Monday we had to travel to the Marsden in horrendous wind and rain but we made it ok.

My weight drop is now causing concern so an appointment was made with the dietitian.

It is hard when I cant eat meat anymore I find swallowing hard so everything is being cut up like Im a baby but Im going for soft foods and Vegetarian so much tastier

I was given made up drinks that are fortified  and I didnt like any of them so I now have ones that I make up with powder and milk so I will try those.

I have a water infection that they are growing and I must up my intake of fluids.

I have said I hate water but was told that any fluid can be counted except coffee as that is a diuretic. Thats music to my ears and so Im drinking other milk shakes and a Strawberry cordial. That means though the journey to the Marsden this week being longer I have to dash into the toilets when we arrive as a 2 hour journey my bladder is full. Goodness what I will do if I get into a longer traffic queue. ha! ha!

So this is my life this week – getting up at 6, on the road before 7 to get my injection each day BUT a bonus that I can eat trifle, Quiche,chips, cream, full fat milk. So alien to me that has been under Weight Watchers on and off since I was 25.

Monday is my scan day so Scanexity is underway because if the result is slow growing I could be taken off the Hyper Trial. They might offer something else but dread they say Palliative Care. I wont accept that I will hunt out a new trial somewhere this old bird will not give in.

https://www.royalmarsden.nhs.uk/your-care/living-and-beyond-cancer/eating-well 

Eating well

There may be times during your cancer treatment when you are unable to eat well. Losing weight or having a reduced food intake can make it more difficult for you to cope with treatments like surgery, radiotherapy and chemotherapy.

During these times you may need to change the balance of your diet to include different foods. It may also be helpful to alter when or how often you eat to make sure you try to eat enough. These may be short-term or long-term changes depending on your treatment and health.

What foods should I try to eat?

We should all try to eat a wide variety of different foods to make sure we get the nutrition our bodies need.

Meat, fish, eggs, tofu, soya products, pulses (beans and lentils), Quorn, nuts

These are a good source of protein, which is needed for the growth of body tissue, muscle strength and wound healing. Some also contain fat, so are a good source of energy (calories). They also contain vitamins and minerals.

Dairy products (such as cheese, milk, yoghurt and fromage frais) and non-dairy alternatives (such as soya milk and soya yoghurt)

These contain protein, fat, vitamins and minerals. If you are losing weight choose the full-fat varieties. If eating non-dairy alternatives choose those that are fortified with vitamins and minerals.

Sugar, honey, syrup, treacle and sugary foods, such as chocolate, cakes and sweets

These are good sources of energy.

Butter, margarine, oil, ghee and cream

These are good sources of energy and contain fat-soluble vitamins.

Fruit and vegetables

These are a good source of vitamins and minerals, but not usually of protein and energy. If you have a poor appetite you may need to reduce your normal quantities to enable you to eat higher energy foods.

Drinks

Aim to drink eight to ten cups or glasses each day. If you have a poor appetite choose nourishing drinks rather than just tea, coffee or water.

Are there any foods I should avoid?

When you are ill or having treatment you are more at risk of getting food poisoning. It is best to avoid the following foods:

  • raw or lightly cooked eggs
  • soft, ripened cheese (like Brie or Camembert) or blue-veined cheese (like Stilton)
  • pâté

Good food hygiene is also important.

Already following a different diet?

If you are already following a diet for other health reasons you may wish to discuss this with a dietitian.

Find out more

Further information can be found in this section of the website and in the Eating Well booklet, available to download as a PDF below in or by contacting the Patient Advice and Liaison Service (PALS).

https://www.mavisnyefoundation.com/my-donate-page.html       Donate Page

All our Books https://www.mavisnyefoundation.com/our-books.html

 

 

A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos —Well what a sad start to 2020

When you think you cant be shocked anymore and then a story like pops up

Lisa Anderson, 44, of Paignton, Devon, has revealed she is addicted to eating Johnson’s Baby Powder – and can eat an entire 200g tub (pictured, 500g) in just a day

https://www.dailymail.co.uk/health/article-7856679/Mother-reveals-addiction-eating-Johnsons-Baby-Powder.html?ito=social-facebook&fbclid=IwAR2_XUA0gOJQclGGeV5MJGay4yskewUeWS7d4y7C5lFMyXmCFkK05NhTMW0 

As you can guess the mesowarriors in my groups are so shocked. We feel she is mocking us. I keep waiting for some one to say its false news.

 

 

 

 

 

 

 

Then we find out Isobel Gall has lost her battle with Mesothelioma made it even worse.

A heartbroken family has paid tribute to a ‘bright’ and ‘clever’ Walsall bus driver who tragically died from cancer at just 29.

Isobel Gall’s devastated dad, Roger, has spoken of his pain after her death on New Year’s Eve (December 31) following a two-year battle with Mesothelioma.

She was a lovely happy person that joined in with the younger mesowarriors she will be missed.

So that was the start of our New Year and makes us even more determined to make people asbestos aware.

Today I had a Podcast interview which was different. I will share when published.

We have had the first MNfoundation Board Meeting yesterday. Our train was packed but the underground was quiet which made a change.

The meeting was great with lots of plans made for 2020. We planned a event for June so when that is all put together I will report to you and invite . Love planning its good to look ahead.

I have had phone calls and more plans of conferences are coming together which is making January very busy at the moment.

But next week is treatment every week but the 21st is a scan appointment. That could be bad news so we will have to wait and see.

The weather has been very mild if a little wet and windy but we are so lucky when you watch all about Australia

We have had Mesothelioma warriors caught up in all that sadness. They have been keep us in the know. So much smoke and heat I just dont know how they are surviving.

We send our love and hugs xx

Happy New year and i hope 2020 begins to get better

 

 

 

 

 

 

 

 

 

An Update on Isobel as a newspaper report has come out today

https://www.expressandstar.com/news/health/2020/01/10/bus-driver-may-have-been-exposed-to-asbestos-before-cancer-diagnosis/

She died on New Year’s Eve after being diagnosed with mesothelioma on August 2018.

Mesothelioma is a cancer that is almost always caused by exposure to asbestos, according to the NHS

The inquest heard Ms Gall may have been exposed to asbestos earlier on in life.

However the coroner’s office said this could not be proven. As a result coroner Joanne Lee listed her cause of death as 1A, mesothelioma.

Ms Gall, from Brownhills, worked for National Express West Midlands’ Walsall garage since 2015.

She was the first-ever female driver to win the National Express UK Bus Driver of the Year competition in July 2018 after beating more than 250 colleagues.

National Express West Midlands dedicated a Platinum Alexander Dennis Enviro 400 double decker bus – fleet number 6725 – to Isobel last year after she became ill.

Phil Bowen, operations manager at National Express West Midlands, paid tribute to Isobel as an “excellent driver and very well liked member of the team.”

 

Was Talcum Powder the cause ?? we will never know RIP Isobell you will be so sadly missed xx

 

 

 

 

 

A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos -2019 is behind us what has 2020 going to bring ??

 

 

 

 

 

 

 

 

I cant believe that I have made another year. I feel Im really pushing my luck but Im hanging on in there on this roller coaster.

My whole life is working for the Foundation. I want it set up and working raising donations for Mesothelioma research. The longer I live the more in tense this becomes.

I have a feeling of achieving my aims in 2019 as £70k has been raised so we (The Team) have set up the research grant for Simon Bolton who will have a poster at iMIG announcing his research.

https://imig2020.org/

The 15th Meeting of the International Mesothelioma Interest Group (iMig 2020) will take place in Brisbane, Australia in March 2020.

This multidisciplinary meeting will bring together over 500 delegates from around the world, and feature the most up-to-date research, diverse topics of interest, and educational sessions with leading experts. The meeting will offer plenty of networking opportunities with leading scientists and researchers, friends and colleagues.

Date: March 25 – 28, 2020

Location: Brisbane Convention & Exhibition Centre (BCEC), Brisbane, Australia

I was going to go to this but I have been advised that as Im in treatment and my Lung is not in good shape I really shouldn’t chance such a long flight.

I have given in and Im so disappointed.

Ray and I will be Celebrating our 60th Wedding Anniversary 2020 so what better way but we will have to Celebrate in the UK now.

We have also got the money to have a Mesothelioma UK Nurse in East Kent which everyone here in Kent know is my dream and so dreams do come true. We have put aside 2 years funding to make this possible.

So we now have to decide what research we will donate to this year.

I cant thank everyone enough for all the donations. I keep saying that but Im so happy that people do believe in me and my Board to do the right thing.

Mesothelioma is a devastating disease. It tears family apart but what is so destroying is knowing it is disease that really shouldn’t have happened.

There are around 2,500 mesothelioma deaths in the UK every year, that’s around 7 every day (2015-2017). Mesothelioma is the 18th most common cause of cancer death in the UK, accounting for 1% of all cancer deaths (2017).

But add to that all the deaths of asbestos diseases the figure is double that. BUT and a BIG BUT more Mesowarriors are surviving.

With Operations now in the UK and Immunotherapy Combinations, Gene trials things are looking better than my 10/11 years ago. Mesothelioma is spoken about more in Lung conferences etc etc.

So that is how I will spend 2020. Talking about the upside not the downside anymore.

Protecting  our lungs is essential be it asbestos, dust, fumes. We must look after our lungs now we know so much damage can be done.

 

I would have everyone wearing one everyday but of coarse thats not practical but men working have a range of masks please keep using the right one

Look for the sign

 

 

 

Have the right trainers for your employees.

Pre-RPE/fit test course

This is highly recommended for the first time user, as it is very important how the wearer Donns/Doffs the RPE.

They must have knowledge of this before their Face Fit.

Fitting the RPE incorrectly can lead to failure of the test and may cause exposure to contaminated air whilst being used.

We offer Basic course in Donning/Doffing and Pre-Use Checks of the RPE before the candidates perform their Fit Test.

Basic Training Session lasts 30 minutes for up to 8 candidates.

We recommend that candidates undertake a full RPE training course.

RPE training

This course is to give a good understanding of RPE for the first time user. It is very important that the selected mask the wearer is using performs correctly and does not expose them to any breathable hazards. This can be caused by incorrect Donning/Doffing or not performing the Pre-use checks. From FFP’s (Disposables) up to Full Face Masks, our session covers the following procedures in depth depending on the type of RPE being used. We deliver a powerpoint and practical demonstration explaining the Regulations including; checking the mask before Donning, types of filters, maintenance, storage, checks whilst wearing the mask correct doffing of the RPE and most importantly practicing CORRECT FITTING. This can be the biggest cause of failure, leading to exposure to the wearer.

Each candidate will receive a certificate showing that they have completed the course. Ideally this course should be taken before a Face Fit is performed. RPE Training Session lasts 3 – 4 Hours for up to 8 candidates.

RPE Maintenance Competent person

This is more advanced course for Half and Full face RPE only, aimed at supervisors or competent employees selected by their employer.

The candidates will be trained to record, check and maintain employees RPE as this is required by Law. The candidates should have a good knowledge of Donning/Doffing and Pre-Use checks of RPE before attending the course.

We deliver a powerpoint and a practical demonstration explaining the responsibilities and duties of a competent person, the law and Regulators they must follow, recording and reading checklists, maintenance, types of RPE, types of filters, misuse of RPE, correct Pre-Use checks are being carried out by the wearers, and awareness of Assigned ProtectionFactors.

Each candidate will receive a certificate showing that they have completed the course.

Competent Person Training Session lasts 3 – 4 Hours for up to 8 candidates.

Qualitative Fit Test Training

(In house only. You will not be Fit2Fit Accredited)

We offer this course for companies who may want to offer Fit Testing in house to their employees carried out by their own Health and Safety or appointed personnel. You will be trained to a HSE Fit Tester level, complying with all HSE standards and Regulations (Not Fit2Fit accredited). Each candidate must have good knowledge and experience with RPE to the competent Person standard. We deliver a Powerpoint and Practical demonstration informing the candidates of; the Regulations they must abide by, Fit testers responsibilities, different types of RPE, filters, record keeping, Assigned Protection Factors, problems which may occur during testing, knowledge of how a Fit Test works, how the Fit Test kit works and how to perform a Fit Test. The candidate must take a theory test and perform a good practical demonstration of a Fit Test at the end of the course.

Each candidate will receive a certificate showing that they have successfully completed the course to do Fit Testing to HSE standard (Not Fit2Fit accredited).

Qualitative Fit Test Training Session lasts 4 – 5 Hours for up to 6 candidates.

Asbestos doesnt care who it hurts so many famous people these are just a few

https://www.esss.co.uk/famous-asbestos-related-deaths/

Asbestos can affect anyone from any walk of life, celebrities included. The following is a list of celebrities whose deaths were related to asbestos, many of them being mesothelioma, an asbestos related lung cancer.

STEVE MCQUEEN, ACTOR (1930-1980)

Steve McQueen, nicknamed The King of Cool, was well known for his anti-hero roles in “The Magnificent Seven,” “Wanted: Dead or Alive,” and “Sand Pebbles.” By the early 1970s, he was one of America’s highest-paid actors.

McQueen believed his exposure to asbestos started in the U.S. Marines Corps, then continued during his days racing motorcycles and cars, his passion, when he wore the flame-retardant driver suits.

He took his fight against mesothelioma to Mexico, where he traveled in search of alternative treatments. He died from a heart attack, shortly after surgery to remove a large tumor.




SEAN SASSER, MTV STAR AND AIDS ACTIVIST (1968-2013)

Sean Sasser became an MTV celebrity in the early 1990s on the television show “The Real World: San Francisco.” He and Pedro Zamora helped break cultural barriers in America with a commitment ceremony on TV that became the most compelling story line of the series. They were the first openly gay, openly HIV-positive couple on television.

Zamora died in 1994, and Sasser became an AIDS activist and educator. He lived for more than 25 years with HIV, benefiting from the medical advancements that were made in the mid-’90s in combating the disease.

Sasser died in August 2013, less than two months after being diagnosed with mesothelioma at the age of 44. It’s likely that the HIV virus, which he had held in check for so many years, sparked rapid growth of the mesothelioma cancer. He was living in Washington, D.C., working as a pastry chef before he died.


JOE SAMPLE, MUSICIAN (1939-2014)

The Houston-born jazz pioneer founded The Crusaders from the bebop band that started when he was in high school. Sample was known for pushing the boundaries of jazz music by combining it with a distinct blues and soul sound.

He worked with other legendary performers, including Miles Davis, B. B. King, Eric Clapton, George Benson, Jimmy Witherspoon, Steely Dan and The Supremes.

After The Crusaders disbanded, Sample went solo and recorded “Ashes to Ashes,” a personal album that focused on the struggles of blacks at the time and their efforts to save their communities.

Nicole Kidman covered his song, “One Day I’ll Fly Away,” in the Oscar-winning film “Moulin Rouge.”




ED LAUTER, ACTOR (1938-2013)

Veteran character actor Ed Lauter worked for more than 40 years in the film and television industry, playing supporting roles alongside stars like Burt Reynolds (“The Longest Yard”), Clint Eastwood (“Trouble with the Curve”), Charles Bronson (“Death Wish 3”), Tom Cruise (“Born on the Fourth of July”) and George C. Scott (“The New Centurions”).

Lauter, 74, was in the midst of a film project when he was diagnosed with pleural mesothelioma in May 2013. He died less than six months later.

Lauter appeared in more than 200 films and television projects, playing a variety of roles. He was best known for playing authority figures and con men, often in crime stories. He also worked as a stand-up comedian, where he did impersonations of Humphrey Bogart, Burt Lancaster and James Cagney, among others.

His history of exposure to asbestos, which likely caused his mesothelioma cancer, was unclear at the time of his death.


MERLIN OLSEN, FOOTBALL PLAYER, ACTOR, BROADCASTER (1940-2010)

Merlin Olsen starred in football for many years with the Los Angeles Rams — he reached the Pro Football Hall of Fame — and transitioned easily into his post-playing days as a successful actor. He starred in the television series Little House on the Prairie. He also became a broadcaster with NBC, working as an analyst during National Football League games.

Mesothelioma was a shocking diagnosis for him.

Olsen attributed his exposure to asbestos to his childhood when he worked after school doing manual labor. He also handled drywall when he was older. Before he died, he filed a lawsuit against 20th Century Fox and NBC Studios, attributing more exposure to his time in television.




HAMILTON JORDAN, WHITE HOUSE CHIEF OF STAFF (1944-2008)

Jordan helped manage the election campaign of President Jimmy Carter in 1976. He then became Carter’s chief of staff, serving as the special negotiator on the Iranian Hostage Crisis in 1979.

He fought off three other cancers — non-Hodgkins lymphoma, prostate cancer and skin cancer — before succumbing to mesothelioma. He attributed his lymphoma to Agent Orange in Vietnam during his military service. He believed that his exposure to asbestos, which led to his mesothelioma, came from his years in the military.

After his earlier battles with cancer, Jordan and his wife founded Camp Sunshine in Decatur, Georgia, a place for children with the disease. He also was an active fundraiser for cancer research.


TERRY MCCANN, OLYMPIC GOLD MEDALIST (1934-2006)

Terry McCann won his gold medal in wrestling at the 1960 Olympics, not long after his two years of working in an oil refinery in Tulsa, Oklahoma, where he was exposed to the deadly asbestos fibers. While still preparing for the Olympics, McCann would come home every day from the refinery with a silvery dust in his hair and on his clothes, unaware it eventually would kill him.

More than 40 years after that Olympic triumph, after years of coaching, a career in business and a life revolving around his fitness regimen, McCann was diagnosed with mesothelioma. He became an outspoken critic of the asbestos industry and the CEOs of the corporations that produced the toxic products.




PAUL GLEASON, ACTOR (1939-2006)

Paul Gleason made a career out of playing unlikeable characters, particularly tough guys and unscrupulous, white-collar criminals. He appeared in 140 films or television shows, beginning in the 1960s. His best known parts came in “The Breakfast Club,” “Trading Places” and “Die Hard.”

Gleason believed that his exposure to asbestos stemmed from working construction jobs as a teenager. As an athlete before his acting began, he played college football at Florida State University (he was a teammate at FSU of actor Burt Reynolds), then signed a professional baseball contract with the Cleveland Indians.


WARREN ZEVON, MUSICIAN (1947-2003)

Warren Zevon was a unique singer and songwriter with a cult-like following, known best for his hits “Werewolves of London,” “Excitable Boy,” “Roland the Headless Thompson Gunner” and “Lawyers, Guns and Money.” He produced his final album “The Wind,” shortly after his mesothelioma diagnosis in 2002, recording songs with other rockers of his era: Bruce Springsteen, Joe Walsh, Jackson Brown and Tom Petty.

His son, Jordan Zevon, has become a spokesman for the Asbestos Disease Awareness Organization (ADAO). Although Zevon never said where his asbestos exposure was, Jordan has speculated that it came from his father’s childhood when his dad regularly played in the attic of his father’s carpet store in Arizona.

Shortly after his death in 2004, he was nominated for five Grammy Awards, and he won two, one of them with Springsteen for Best Rock Performance By A Duo.

Zevon was quite frank about his disease, and he talked about it in his last television appearance on “Late Show with David Letterman.”




ADMIRAL ELMO ZUMWALT, JR., U.S. CHIEF OF NAVAL OPERATIONS (1920-2000)

Elmo Zumwalt was a highly-decorated veteran who became the youngest man to serve as the U.S. Chief of Naval Operations, assuming that position during the Vietnam War era.

His believed his exposure to asbestos came throughout his Naval career, where he served on different ships that were loaded with the toxic fibers. His son Elmo Zumwalt, III, died of cancer at age 42. His father believed his son’s cancer stemmed from his service in Vietnam, where he was exposed to Agent Orange, the deadly herbicide which had received approval for use by the elder Zumwalt.

After retiring from the Navy after 32 years, Zumwalt made an unsuccessful bid for the U.S. Senate. He left behind a legacy of trying to improve conditions for servicemen.


A Diary Of A Mesowarrior Living With #Mesothelioma —- Empire #Asbestos Christmas Jumper Day Raising Donations for MNFoundation

 

 

 

 

 

 

 

 

 

 

 

It has been a fun week this week with Christmas Jumper Day

We decided to travel to Brentwood by train as there had been so many accidents on the road so early in the mornings. Dartford crossing is so bad.

Fast train to Stratford International then walk through the shopping Centre to the railway station to catch a train to Brentwood. We have never travelled on the

TfL Rail

TfL Rail  Liverpool Street to Shenfield. TfL Rail will turn into the new Elizabeth line when work is finished.

We set the specifications for train frequency, station facilities and overall performance, and are responsible for fares and revenue.

We also plan and fund improvements and extensions to the network. We work with Network Rail, Crossrail Ltd and others to improve the stations and trains we have inherited, and to build new ones in preparation for the Elizabeth line.

MTR Crossrail Ltd manages and operates trains and stations day-to-day.

 

 

 

It is a clean fast rail system and we were soon in a taxi to reach our destination.

As we passed the M25 after Romford and felt very smug as drivers were bumper to bumper.

A very warm welcome greeted us at Empire Asbestos

 

 

 

 

 

 

 

 

 

 

 

 

 

 

.https://www.empire-essentials.com/ 

Mark Stanley phoned and we all chatted and learnt what was going on in other branches.

Everyone was so cheery and happy it made us forget the Election for one day.

 

 

 

 

 

 

 

 

 

 

 

We had a lunch down the local pub –The portions were way to much so I had a doggy bag and Louis was pleased with that

 

 

 

 

 

 

 

 

 

So we were soon on our way home but we are really in the festive feeling now.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

A huge thank you to Empire and we wish all the people working at this wonderful company a Very Merry Christmas and A Happy New Year

https://www.mavisnyefoundation.com/my-donate-page.html