A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos Lovely Weather for Feb Will the figures for Mesothlioma really reach a peak

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We can’t believe the wonderful weather we have. It’s warm and the sun is beaming every day.

The Seagulls have flown over each morning squawking away waking me up as they fly to the Beach.

seagulls

They are always sitting watching us as we take Louis out.

seagull-1Yesterday I saw Catkins hanging, we call them lambs tails and the little lambs are being born in the fields around us.

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We are so lucky to live at the coast and yet have the countryside on our doorstep.

Today I have been loading on new Mesowarriors to our groups on FaceBook. I dont know if its because we are being found easy. I do know MesoUK passes them our details and so many friends add them I do hope it’s that and not that the figures are still going up high. We keep being told that a peak will be reached but to be honest I dont agree with their figure.

Mesothelioma in Great Britain: annual deaths, IIDB cases and projected future deaths to 2030

The latest information from HSE  shows:

  • There were 2,515 mesothelioma deaths in Great Britain in 2014, a similar number

    to

    the 2,556 deaths in 2013, and 2,549 deaths in 2012.

  • The latest projections suggest that there will continue to be around 2,500 deaths per year for the rest of this current decade before annual numbers begin to decline.

  • The continuing increase in annual mesothelioma deaths in recent years has been driven mainly by deaths among those aged 75 and above.

  • In 2014 there were 2,101 male deaths and 414 female deaths.

  • There were 2,130 new cases of mesothelioma assessed for Industrial Injuries Disablement Benefit (IIDB) in 2015 compared with 2,215 in 2014.

  • Men who worked in the building industry when asbestos was used extensively are now among those most at risk of mesothelioma.

Mesothelioma in Great Britain: annual deaths, IIDB cases and projected future deaths to 2030.

http://www.hse.gov.uk/statistics/causdis/mesothelioma/

I hope they are right but wonder if they have included DIY and The people who work stripping the Asbestos out of the buildings .

But when you see pictures like this

iron-board

Whilst out on site last week, one of our surveyors found AIB padding on this old ironing board!

asbetsos-classroom_main

And Asbestos is still heavy in our schools causing the deaths of Teachers and staff and so many Children will suffer in 20/30years its no wonder we have doubts.

So many people are fighting the cause around the world, so many people are suffering with Mesothelioma they are all so admired within our community.

Mesowarriors are so great in fighting not only Mesothelioma but also the war on Asbestos. They, with their Carers and friends, raise not only Awareness but also funding for Research into the disease.

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We have to get through to Governments to do the right thing and keep Asbestos out of people’s lives

http://www.mesothelioma.uk.com/

About Mesothelioma

What is Cancer?

Firstly it is important to understand that cancer is not a single illness, there are many different types and mesothelioma is just one type.

Our bodies are made of tiny building blocks called cells, cancer is a disease of these cells. Cells from different parts of the body look and work differently and millions of new cells are made everyday to replace those lost through old age or wear and tear. Throughout the body new cells are produced when existing cells divide into two and there is normally a perfect balance between those that are dying and those that are dividing. This vital balance is controlled by a very complicated process, if control of this process is lost it can lead to too many cells being produced which results in a tumour. Most tumours are not cancerous (sometimes described as benign) and they remain in the area where they first developed. A wart is a common example.

The development of cancer involves a change in the quality of the cells as well an increase in the quantity. They become more aggressive, destructive and independent of normal cells. They are able to invade surrounding tissues, glands and blood vessels and thus spread away from where they started to divide and grow. When the cancer cells reach a new site they may go on dividing and form a new tumour, this is often referred to as a secondary or metastasis.

What is Mesothelioma?

Illustrated image of Lungs and Pleura
Illustrated image of Lungs and Pleura

In the UK about 2500 people a year are diagnosed with mesothelioma. It is also known as ‘diffuse’ or ‘malignant’ mesothelioma. Mesothelioma is a form of cancer that affects the Mesothelium.

The mesothelium is a thin membrane that lines the inner surface of:

1. The chest wall, where it is known as the pleura
2. The abdomen where it is known as the peritoneum
3. The testicles

The mesothelium also surrounds organs within these cavities for example the heart, lungs and intestines.

It is far more  common to have mesothelioma in the chest than in the abdomen.  There is approximately 1 case of peritoneal mesothelioma to every 12 cases of pleural mesothelioma.

Mesothelioma is more common in men than in women and nearly half of the people diagnosed with the disease are over 75 years old.

Pleural Mesothelioma
Illustrated image of healthy and diseased lungs
Illustrated image of healthy and diseased lung

The pleural lining has two layers: the visceral (inner) layer is next to the lung and the parietal (outer) layer lines the chest wall. The pleura produces fluid that lubricates the space between the two layers, this allows the two layers to slide comfortably over each other as we breathe in and out.

Pleural mesothelioma causes the pleura to thicken. This thickening of the pleura might begin to press onto the lungs or attach itself to the inside of the chest wall. In either case the expansion of the lung becomes progressively restricted by the tumour. Fluid, sometimes several litres, can collect between the two layers of the pleura; this affects the lungs ability to expand and causes the person to feel breathless. This is known as a pleural effusion.

Symptoms of Pleural Mesothelioma

  • shortness of breath
  • chest pain
  • cough
  • sweating
  • loss of appetite
  • weight loss
  • fatigue and lethargy

Peritoneal Mesothelioma

Illustrated image of Abdominal Cavity
Illustrated image of Abdominal Cavity and peritoneum

The peritoneum also has two layers the inner (visceral) layer which is next to the abdominal organs and the outer (parietal) layer which lines the abdominal wall.

Peritoneal mesothelioma causes the peritoneum to thicken and fluid to collect in the abdomen. This collection of fluid is called ascites and causes the abdomen to swell. Because pleural mesothelioma is more common and often spreads to the peritoneal cavity, it is sometimes necessary to determine if pleural mesothelioma is the primary cancer.

Symptoms of peritoneal mesothelioma

  • abdominal pain
  • abdominal swelling or feeling bloated
  • constipation or diarrhoea
  • fatigue
  • loss of appetite
  • weight loss

The commonest symptoms for pleural and peritoneal mesothelioma are listed here, but there may be others.  You can find out more about treatments for these symptoms in the Controlling Symptoms section.

A Diary Of A #Mesowarrior Living With #Mesothelioma #Asbestos. Louis New Toy Has Scared The Delivery Man. My Pet Hate Fly Tippings In The News.

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We woke up to a lovely sunny day.so with housework done and then lunch we escaped to Tankerton  Slopes to walk Lou.

We had a parcel delivered and the driver said what on earth is in there. It keeps making noises and scares me, I’m glad to get rid.

We opened it and it was the new toy for the dog

  • Wobble Wag Giggle Ball

  • 6 clutch pockets allow any size dog to pick it up

  • Made of flexible and durable pet safe, Phthalate-free vinyl

  • 5.5″ for dogs 40 lbs and over

  • No batteries required

  • ball

Louis loved

 

Can you hear how it sort of talks and the poor delivery man has had that in his van We really laughed when he told us.

With housework done and then lunch we escaped to Tankerton  Slopes to walk Lou.

As we traveled through Whitstable we were surprised at how much traffic there was and then it dawned on us that it was half term. Our town was invaded by day trippers.

We walked on the slope and took in the warmer sea air. Oh! spring is around the corner.

Health fears after ASBESTOS is dumped in layby by careless fly-tippers

Rubbish - Robert Bucke (left) and Chris Keston. calling for the site to be made secure after fly-tippers struck

Rubbish – Robert Bucke (left) and Chris Keston. calling for the site to be made secure after fly-tippers struck

1 day ago

FEARS over health have been raised after potentially dangerous asbestos was found among mounds of rubbish.

The load had been dumped by fly-tippers on a grit storage site on a layby on the B1032 between Holland-on-Sea and Great Holland.

Concerned residents said the pile of rubbish has been building up for the past two weeks and they called on the councils to step in to clear it away.

Albert Crispin, 74, of Great Holland, first found the rubbish and he reported it to Essex County Council.

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This is becoming widespread in the UK. Not only is it unsightly unhealthy and dangerous it is the fact Asbestos and other dangerous waste is in it.What is the answer? You

You can’t cover it with cameras as it is usually in out-of-the-way places but cameras are on roads do they research those.

They do search through the rubbish for any receipt or letter.

But these are mainly builders who have charged to take the rubbish away dump it and sometimes the work for the Council, so they get paid a lot of money to take it away. This is crazy.

Please report anytime you see a pile of rubbish its not only about keeping the place tidy its about keeping people safe.

This is the scale of the problem

Grot Spot Britain: 20 of the worst fly-tipping areas

An ITV News investigation has revealed fly-tipping is on the rise in some parts of the UK.

A Freedom of Information (FOI) request was sent to councils across Britain asking how many incidents of fly-tipping were reported between November 2015 and December 2016.

Out of the 264 councils that responded to the request, Haringey in London had the highest number of fly-tipping incidents.

39,036
incidents of fly-tipping were reported to Haringey Council.
21%
year on year increase

Outside of London, Manchester was second with 30,386 reported offenses, averaging 77 a day.

*
ITV News’ Chris Choi pictured at a fly-tipping site in Manchester. Credit: ITV News

Birmingham dealt with more than 21,000 incidents – a decline of 13% but still an average of 53 incidents a day.

Bags of rubbish piled high in Birmingham City.
Bags of rubbish piled high in Birmingham City. Credit: ITV News

The top 20 councils with the most reported fly-tipping incidents were:

  • Haringey – 39,036
  • Manchester – 30,386
  • Birmingham City – 21,124
  • Hounslow – 22,255
  • Newham – 19,537
  • Brent – 18,293
  • Northampton -17,092
  • Redbridge – 16,225
  • Leeds City -16,172
  • Hillingdon -14,032
  • Bradford -13,720
  • Gateshead – 12,449
  • Sheffield City -12,115
  • Peterborough -12,045
  • Ealing -11,598
  • Leicester City – 9,458
  • Greenwich – 9,268
  • Kensington and Chelsea – 8,903
  • Basildon – 8,755
  • Edinburgh City – 8741

Allison Ogden-Newton, chief executive of Keep Britain Tidy, told ITV News illegal dumping of waste has reached crisis levels.

“Fly-tipping is an epidemic, it’s reached crisis levels and something needs to be done about it.”

“Local authorities are overwhelmed with instances of criminal fly-tipping and we need to address this urgently,” she added.

Reporting fly-tipping in your area

You can report fly-tipping to your local council by visiting its website or on the government’s dedicated site.

Large-scale illegal dumping or other waste crime can also be reported to Crimestoppers anonymously on 0800 555 111.

Last updated Tue 14 Feb 2017

http://www.itv.com/news/2017-02-13/grot-spot-britain-worst-fly-tipping-spots-across-britain/

A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos – Women Kept The Home Fires Burning And Worked With #Asbestos

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   Women Take Over Factory Work during World War II

It is a cold day and we have had snow today so it has left me reading all sorts of information on the computer.

I find it so sad the way our past relatives worked in such danger with no protection and suffered so much illness.

Asbestos is my subject that I soak up every bit of info and I was reading how women went out to work in the wartime so they too worked in such dangers.

Away from the kitchen and house work they breathed in the dangerous fibers that their menfolk were breathing in. So not secondary contamination anymore from what was bought into the home but out there in factories etc.

We forget that so many women did work so that it filled the gap when their men were enlisted into the forces in wartime I share it here with you.

As World War Two raged on throughout Europe and the Pacific, men were called up to fight for their country. An often overlooked and understated element of the war effort has been the contributions of women on the homefront during wartime. As men left their factory jobs to go and fight, women stepped up to produce the heavy machinery needed for the war and at home to keep the country running. Women quickly picked up and excelled at historically male-dominated trades such as welding, riveting and engine repair. Women were essential for the production and supply of goods to our troops fighting abroad. Their efforts during wartime refuted the misconception that women are incapable of manual and technical laboring.

Though these women showed up at the factories to offer their services for the war effort, some employers still tried to deny them equal pay.  Before the war, employers often classified work into “male” and “female” jobs, paying the “female” jobs less. When the war came, employers automatically classified the newer positions as “female” jobs so they would not have to pay as much. Some union officials attacked these classifications and demanded “equal pay for equal work”. These officials were not only interested in securing fair pay for the women. They were also concerned that after the war, veterans would return to work and find that they had suffered pay cuts and reductions because their jobs had been reclassified as “female” positions while they were fighting overseas. 

After the war, many women faced problems when their jobs were given to male veterans who were returning to work. Women who wished to remain in the workforce were transferred back to “female” jobs which received less pay, and often did not have union representation. 

For decades, people have believed that only men are diagnosed with mesothelioma. This is false. While men are three to four times as likely to be diagnosed, women are still at risk for mesothelioma resulting from asbestos exposure.

How Women are Exposed to Asbestos

Most women with mesothelioma are exposed one of three ways: Secondary exposure, environmental exposure or on-the-job exposure.

People often underestimate the role of women in the asbestos industry, but many women began working in factories during WWII.

Secondary exposure is the most common way women came into contact with the deadly mineral. This type of exposure usually occurs when a friend, family member or loved one brings asbestos fibers into the home (usually on work clothes) from an exterior setting.

Environmental exposure can vary from place to place based on what naturally occurring asbestos is present and if there were any mines in the area.

In one study aiming to show the effects of environmental exposure on women, doctors analyzed statistics from an Australian asbestos mining town. Nearly 3,000 women and girls had lived in the town between 1943 and 1992. Through 2004, malignant pleural mesothelioma accounted for eight percent of all deaths in the group of women.

Young girls often performed cobbing, the method used for separating asbestos from crude rock.

Women can also be exposed to asbestos on the job. Historically, occupations commonly exposed to asbestos were filled with men, but some women still took on factory roles that led to dangerous exposure and eventually a mesothelioma diagnosis.

In more recent times, women are at risk for asbestos exposure in many older homes and public buildings, including city halls and schools. Women are also at risk for asbestos exposure during home renovations and DIY projects. People unaware of asbestos in their homes may disturb asbestos materials, which releases airborne asbestos fibers.

Types of Mesothelioma Found in Women

Women are generally susceptible to the same types of mesothelioma as men. The most common type in both women and men, pleural mesothelioma, affects the lining of the lungs. Peritoneal mesothelioma, which affects the lining of the abdomen, is more common in women.

Interestingly, pleural mesothelioma occurs five times more often than peritoneal mesothelioma in men. In women, the pleural type occurs two times more than peritoneal. Both of these mesothelioma diagnoses can be attributed directly to asbestos exposure.

On the other hand, well-differentiated papillary mesothelioma (WDPM) usually develops in young women, typically in their 30s, and it does not have a strong connection to asbestos exposure.

Although WDPM mostly forms in the lining of the abdomen, it has been diagnosed in other areas, such as the lining of the lungs. Those diagnosed with this cancer usually have a better prognosis than average mesothelioma patients. WDPM patients have life expectancies ranging from three years to more than 10 years.

http://www.massaflcio.org/1941-women-take-over-factory-work-during-world-war-ii

https://www.facebook.com/notes/mesothelioma-center/understanding-the-risk-of-mesothelioma-in-women/10153233697501707/

A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos Two Mesowarriors have told their very powerful stories.

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Yesterday we had two wonderful Mesowarriors who have talked to raise awareness. I know how hard that is to tell your story and to draw attention to your life. We do it though and we should tell our stories as we have to show people the human side to Mesothelioma. To the Patient.

The first was Kirsty who I made friends with when I read her Facebook and the devastating story of how she copes daily with Peritoneal and a small child.

She made me cry one day when she asked advice of how could she help her little daughter to remember her. I and others suggested a memory box and she soon arranged that.

We have chatted about weight and diet all things this young woman should not be having to chat about.

Her story

Mum dying from asbestos-related disease at just 33 as cause of illness remains a mystery

Kirsty List has revealed her battle with a deadly form of cancer that was discovered during surgery

A single mum has been told she will likely be dead before Christmas as she wastes away from an asbestos-related disease.

Kirsty List, who is only 33, has revealed her battle with the deadly disease, as the cause of her illness remains a mystery.

Kirsty, who has a five-year-old daughter, Aimee, was diagnosed with mesothelioma – a cancer of the lining of the body’s organs – after she began feeling unwell in September 2015.

She was initially diagnosed with gallstones but doctors discovered a tumour around her gallbladder when they attempted to remove her gallbladder during surgery.

Kirsty List
The 33-year-old has tried to keep her spirits high (Photo: Exeter Express & Echo)

Kirsty, of Exeter, Devon, told the Express & Echo : “It was only when they went to take out my gallbladder that they found a tumour around it.

“They left my gallbladder in and did a tumour biopsy.”

Six weeks later she was left stunned when doctors delivered the devastating news.

She said: “My consultants said I was suffering from mesothelioma. I was incredibly shocked because it’s something you hear in older people, not younger people. I didn’t know anything about asbestos disease.

“The problem for me is there is very little information to parallel me with anyone and work out any prognosis. Most people with asbestos are old and are men.”

Asbestos is a natural fibrous rock that was widely used within homes and other buildings until 1999.

Kirsty believes she was exposed to it either when she was a pupil at school in Reading or North Devon, or while working in pubs.

There are three types of asbestos-related lung disease and the type Kirsty has peritoneal mesothelioma which is cancer of the abdominal lining.

Pieces of asbestos
Asbestos is a natural fibrous rock (file photo) (Photo: Getty)

To treat the disease, Kirsty has tried five different types of chemotherapy but she says none worked to any great extent. She received her last course almost a year ago and had been on palliative care since.

Last December Kirsty was told she does not have long left to live.

She said: “It was a conversation I asked to have with my consultant and I felt ready to know.

“I said, ‘I don’t know if I will see next Christmas’, and my consultant said, ‘I think that’s about right’.”

Kirsty said her health has been gradually deteriorating since her diagnosis and even within the past two weeks she has noticed a difference.

She added: “It’s the pain and exhaustion that’s so hard to live with. I’m on quite a lot of pain medication and I feel tired all the time which makes it hard keeping up with my daughter, but luckily her dad, my ex-partner, is very involved in helping out.

“I walk with crutches now because I can’t walk very far without having to sit down.

“I do have a wheelchair but I’ve not braved using it yet. I have been on a mobility scooter in Exeter city centre but I felt like people were looking at me and wondering why I was using it at my age.

“At the age of 33 it’s kind of embarrassing. To look at me you would think there’s nothing wrong and it makes me feel like having a sign on my back saying, ‘I’m dying, leave me be!’.

“Knowing how you’re going to die and you’re just going to waste away is horrible. I will quite literally waste away. I have already gone from a size 16-18 to a size 8.”

Kirsty is focusing on keeping life as normal as possible for her daughter.

She said: “Aimee knows everything up and understands that I’m dying, and most of the time she is okay about it.

“There’s no hiding from the fact that she is likely to be six-years-old when I pass away.”

The mum has received a large amount of compensation from the government for having an asbestos-related illness. The money has been put into a trust fund for Aimee.

In the future Kirsty hopes more will be done to raise awareness about where asbestos is to help keep people safe, and not suffer like she and her family is.

She said: “I would not necessarily want asbestos to be taken out of all buildings as I know that would be incredibly impractical. But I would like to see it become part of everyone’s induction process when people start a new job.

“If asbestos is in a building everyone should be aware of where it is and how it should be treated to keep themselves and other people safe. It has to be a group effort.

“The asbestos register should also be overhauled to make sure reviews are ongoing.”

http://www.rightrelevance.com/search/articles/hero?article=a9e7a9ad6171f3f756378f3f6cfb6108d5fbd90f&query=mesothelioma

Then there was another story of another Mesowarrior A bubbly woman that I’m friends with on Facebook. her story is like mine as we washed clothes and hey ho! we have Mesothelioma when we should be enjoying retirement.
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Mother-of-three, 60, claims her incurable cancer was caused by washing her late husband’s asbestos-ridden clothes

  • Vivienne Swain, from Rochdale, was told she had mesothelioma in August 2015 
  • The form of cancer that affects the lining of the lungs is often linked to asbestos
  • She would often come into contact with it washing her late husband’s clothes 

A mother-of-three believes washing her late husband’s asbestos-ridden clothes caused her incurable cancer.

Vivienne Swain, 60, has mesothelioma – a form of the disease that affects the lining of the lungs and is often linked to chemical exposure.

She would often come into contact with what she believes to be asbestos when she washed Michael Power’s clothes.

The former joiner, who worked for Manchester City Council in the 1970s, died from a brain disease in his early forties.

But after struggling to breathe, Ms Swain sought medical advice herself before being told that she had just three years to live when she was diagnosed in August 2015.

Now she is appealing for people to support her claims that she developed the disease through washing dust off Mr Power’s clothes.

Vivienne Swain, 60, has mesothelioma – a form of cancer that affects the lining of the lungs and is often linked to asbestos exposure

Ms Swain, from Rochdale, said: ‘I would shake the overalls before washing them and they would be heavy with dust – so much so that it would cover the kitchen floor, and I’d have to sweep it up.

‘I believe these were asbestos fibres.’

Previously fit and healthy, she began feeling wheezy in early 2015 – but thought it was because she was looking after a hamster at the time.

Then, in May of the same year, she went to the Greek island of Rhodes on a family holiday and found herself getting out of breath easily.

‘The hotel we always stay at is up a hill. I’ve never had any problems before, but found myself wheezing and having to stop,’ Ms Swain said.

Her late-husband, Michael Power, who worked as a joiner for Manchester City Council in the 1970s, died from a brain disease in his early forties

‘I knew then that something wasn’t right.’

Back home, she visited Rochdale Infirmary for an X-ray where she assumed it wouldn’t be anything serious.

I would shake the overalls before washing them and they would be heavy with dust – so much so that it would cover the kitchen floor, and I’d have to sweep it up. I believe these were asbestos fibres
Vivienne Swain, 60

But, after studying the scan, doctors admitted her as an emergency patient.

They told her that it looked like a third of her lung had collapsed and asked her if she had suffered a fall or had knocked herself.

However, she had no recollection of any such events and was transferred to Fairfield General Hospital in Bury.

Over the next few months, she underwent a string of tests – but everything kept coming back negative.

Then, after undergoing further testing at Wythenshawe Hospital she received her diagnosis three weeks later.

‘I was told it was incurable, and a cold feeling went through my whole body,’ she said.

Previously fit and healthy, she began feeling wheezy in early 2015 - but thought it was because she was looking after a hamster at the time

‘I didn’t cry, I just launched into asking about treatment. I was on autopilot. I kept thinking about how I’d tell my sons Craig (43), Paul (39), and Todd (26).’

‘I asked how long I had and was told, at best, three years. But I said to the doctors, ‘I guarantee you I’ll still be here in five.’ I’ve got too much living left to do.’

Following her heartbreaking diagnosis, Ms Swain was fitted with a pleural drain to help prevent a build up of fluid on her lungs.

Her partner, Ian Johnston, 63, was taught how to drain it, which he had to do roughly every three to seven days.

Next, she began chemotherapy, which she underwent every three weeks until October 2016.

Now she is appealing for people to support her claims that she developed the disease through washing dust off Mr Power's clothes (pictured with her partner, Ian Johnston, 63)

Doctors have since told her that her cancer was most likely caused by asbestos exposure, which she believes was through washing her late husband’s clothing.

WHAT IS MESOTHELIOMA?

Mesothelioma is a type of cancer that develops in the lining that covers the outer surface of some of the body’s organs. It’s usually linked to asbestos exposure.

Mesothelioma mainly affects the lining of the lungs (pleural mesothelioma), although it can also affect the lining of the tummy (peritoneal mesothelioma), heart or testicles.

More than 2,600 people are diagnosed with the condition each year in the UK. Most cases are diagnosed in people aged 60-80 and men are affected more commonly than women.

Unfortunately it’s rarely possible to cure mesothelioma, although treatment can help control the symptoms.

The symptoms of mesothelioma tend to develop gradually over time. They typically don’t appear until several decades after exposure to asbestos.

Mesothelioma is almost always caused by exposure to asbestos, a group of minerals made of microscopic fibres that used to be widely used in construction.

These tiny fibres can easily get in the lungs, where they get stuck, damaging the lungs over time. It usually takes a while for this to cause any obvious problems, with mesothelioma typically developing more than 20 years after exposure to asbestos.

The use of asbestos was completely banned in 1999, so the risk of exposure is much lower nowadays. However, materials containing asbestos are still found in many older buildings.

Source: NHS Choices

Following her diagnosis, she contacted specialist asbestos disease solicitors Thompsons in Manchester to investigate her case.

Now, she is urging others who worked for Manchester City Council as joiners from 1969 to 1977 – particularly those that may have known her late husband – to come forward with information.

Determined to carry on in the face of her devastating illness, she hopes compensation will help her fund treatments that aren’t currently available on the NHS, but could potentially prolong her life.

She is currently working closely with charity Mesothelioma UK, raising awareness of her type of cancer, and also praised Greater Manchester Asbestos Victim Support Group for the invaluable help they’ve given her since her diagnosis.

They organised funding to help her, which she plans to repay if she gets compensation.

She continued: ‘I refuse to be defined by my illness. I’ve been given a sentence but I won’t give in to it.

‘I’ve kept very positive, and am surrounded by positive people. I’m not downbeat because there’s nothing I can do about this.

‘I’ll just keep looking forward, keep making plans and spending time with my family. I never used to be one for having my picture taken but now I do it all the time because I’m determined to make memories.’

A spokesperson for Manchester City Council said: ‘It is always deeply regrettable when anybody has contracted mesothelioma or any other asbestos-related illness, but it would be inappropriate for us to comment on this case at the present time.’

Anyone with information about potential asbestos exposure with Manchester City Council as joiners between 1969 and 1977 or anyone who worked with Mick Power during that period please contact Steven Dickens at Thompsons Solicitors on 0161 819 3571 or email stevendickens@thompsons.law.co.uk

Im happy to have had this opportunity of blogging these to lovely ladies and although they need help in different ways I pray this Awareness will help them to find the answers.

 

 

 

 

 

A Mesowarrior Living With #Mesothelioma The #Asbestos Cancer -My thoughts on #World Cancer Day

world-cancer-day

So much awareness of Cancer is being raised today on World Cancer Day 2017.

It took a long time for me to acknowledge that I had Cancer. I wouldn’t talk about Cancer but just Mesothelioma as all my life I dreaded the words The Big C.

I feared Cancer so much every lump and bump might be a Cancer and I would die.

I had my smear tests and my breasts squashed between to plates regular and always so pleased at the clear results.I had stopped smoking when I went into renal failure at 45 and discovered I only had 1 kidney.

So the day I couldn’t breathe and had a Lung drain I was told I had a diagnosis of Mesothelioma I wouldn’t say I had Cancer.

I do now and I fight me Cancer every day and help others through it. I have become a patient rep and attend meetings in East Kent as I did yesterday. It was our meeting at Kent and Canterbury hospital of the East Kent Cancer Action Group.

We had a Pre Meet to go to as I had raised the problem of the shortage of CNS Nurses. I had sent a letter and action is being taken

We have 1.6 CNS’s covering 3 hospitals with 456 patients newly diagnosed in 2013-2014 current national guidelines advise 100 new patients per CNS.

I know how important these CNS’s are to us patients when told such devastating news.

The first time it was just me and the Oncologist in the ward when the results of growing the fluid that was drained from my lungs gave me such a devastating news.

I have also written about when in the clinic there were no rooms available so I sat in a cupboard with Ray and the locum sat outside and asked me if I knew how long I had and she told me 3 months. A CNS would have had a better bedside manner.

We need a clinic for new diagnosed mesothelioma/lung cancer patients to make sure they have been given all the right information etc as Drs don’t always give advice and answer questions we don’t know how to ask at that point.

We thrashed out all the points and I hope things will move forward now as funding is there from Mesothelioma UK fo a Mesothelioma Nurse they could tap into this resource.

We Carried on with a cancer Group Meet and I meet The Harmony Therapy Trust http://theharmonytherapytrust.org.uk/

harmony-trust

Those living with cancer or other serious chronic life altering illnesses need extra support to address and overcome the broader consequences of their illnesses.

Then we heard from a lady who told us all about the difficulties of Lymphoedema and the support group. Gosh! I was shocked at the support stockings and body support she has to wear. I relly didn’t know how hard it was to live with this disease.

 Lymphoedema Support Network on 020 7351 4480. http://www.lymphoedema.org/index.php/information-and-support/what-is-lymphoedema

Introduction
Lymphoedema is a swelling that develops as a result of an impaired lymphatic system. This may be as a result of the lymphatic system not developing properly or through damage or trauma (see section on types of lymphoedema). It can affect any part of the body but is most commonly seen in an arm or a leg. Although thought to be relatively uncommon, a recent study has estimated that at least 240,000 people in the UK may be affected by this condition. In order to understand how lymphoedema occurs, it is important to have an understanding of the lymphatic system in general – what it is and how it works.If for whatever reason, the lymphatic system is not working correctly, or the vessels are not draining adequately, the fluid in the tissues builds up (as when a river is dammed and flooding occurs). Swelling occurs when the amount of fluid in an area is greater than the capacity of the lymphatic system to transport it away. Lymphoedema can, therefore, be defined as ‘an abnormal accumulation of protein-rich fluid in the tissues’.

I realised that my Lymphoma was very similar so I have some understanding of what she is going through.

We gradually worked our way through the items on the agenda and the meeting came to an end.

My Nurse that had seen me through my first 4 years of Mesothelioma was there and we hugged. She said “Mavis you make it worth while my coming to work every day when you have such wonderful results.” I sad that we never realised that almost 8 years ago I would be in remission like this and there are now so many drugs coming through.

Everyone in Cancer Treatment is getting excited by the wonderful drugs that are unfolding.

Our vision is to bring forward the day when all cancers are cured.

In the 1970s, less than a quarter of people with cancer survived. But over the last 40 years, survival has doubled – today half will survive.

Our ambition is to accelerate progress and see three-quarters of people surviving the disease within the next 20 years.

Our new strategy will give us the foundations we need to tackle the challenges ahead.

Tackling all cancers

We want survival in the UK to be among the best in the world. We’re focusing our efforts in four key areas – working to help prevent cancer, diagnose it earlier, develop new treatments and optimise current treatments by personalising them and making them even more effective.

We’ll continue to support research into all types of cancer and across all age groups. And we’re keeping our focus on understanding the biology of cancer so we can use this vital knowledge to save more lives.

We’re increasing our research in key areas such as early diagnosis, and hard-to-treat cancers including lung, pancreatic, oesophageal cancers and brain tumours

We’re developing new tests, surgery and radiotherapy techniques, and cancer drugs. We want to personalise prevention, screening and treatment and bring benefits to patients sooner.

To help accelerate progress, we’ll be investing an additional £50 million a year into new funding schemes for our researchers. These will encourage collaboration and innovation, and support research tackling some of the biggest scientific challenges in cancer research. 

Smoking is the biggest preventable cause of cancer and we’ll work towards the day when no one in the UK smokes – in particular by protecting children and helping people to quit

We’ll campaign for the best cancer services in all parts of the UK, and give more people the chance to join the fight against cancer.

But we can’t achieve our mission alone. We rely on our dedicated scientists, doctors and nurses, and the generosity of our supporters across the UK. With your help, we can beat cancer sooner.

http://www.cancerresearchuk.org/about-us/our-organisation/beating-cancer-sooner-our-strategy

I’m so proud to be playing a small part in a huge production and I’m so proud of our NHS a huge thank you for all you do for me to live with Mesothelioma my Cancer.

 

A Diary Of A Mesowarrior with #Mesothelioma #Asbestos- Struggled Through Traffic Jams To Get To The Marsden for Scan Results.

cough

I felt so bad with the coughing virus, as did Ray but we dragged ourselves through a devastating amount of traffic yesterday. There had been a problem on the M2 with the equipment they had used for overnight repairs. It had broken down and had to me removed so the Motorway was shut and everyone traveled to London on the M20

http://www.kentonline.co.uk/gravesend/news/roadworks-continue-on-major-route-118731/

. Then there was an accident on the M23, 

A 13 vehicle pile-up on the M23 caused lengthy delays for motorists on Wednesday morning.traffic

The collision happened at around 7am on the northbound carriageway between junction 9 ( Gatwick Airport ) and junction 8, leaving rush hour traffic stationary.

http://www.getsurrey.co.uk/news/surrey-news/m23-13-vehicle-crash-causes-12435229

All this with a Rail Strike, we were doomed from the beginning. I can’t believe, though, in the end, we were only 20 minutes late for our 10am appointment at the Marsden. I got out and Ray parked the car and walked Louis.

l5

Yes, I took the dog as they had forecasted snow and I thought if we got stuck, well he would be with us and not home alone. He sat there like a lord and seemed to know he was very privileged.

I went in and got my blood’s done and the Ray joined me for the Doctors appointment.

Still in remission.At 208 days after last Keytruda

We all laughed. but she said please take life easy and rest the bug hasn’t done any damage at all, your scan is very clear now.

She listened to my lungs and to my heart and is so happy with me.

I went up to Oak ward to meet my friend and his wife (I can’t mention names as they haven’t said anything on F/B yet. But a dear friend, I sat with them until they went in to get scan results and they were in there so long. Ray paced back and forth as I sat and talked to the last man standing on the 128 trial, he has had a great result of 80% and has many months still to go. 

When the Mesowarrior finally came out it was to tell me he was off the trial. It was a sad moment but immediately they are talking about what the next step is and where to find the next trial. I love such positive people.

I keep waiting for them to tell the warriors but they are in shock really they just wanted Keytruda to work. I said to Our Doc yesterday they really have to find out why I have such good news and they don’t he just held my arm and squeezed it and then the Mesowarior involved. It was a very emotional moment x

We traveled home with a lot lighter traffic thank goodness.

Then the cough has exhausted me and I have an early night again.

I feel better today and I have my medicine to keep taking. Everyone

I have to knuckle under and write a speech for the Lawyers convention in London in April. I really didn’t know how to tackle it and now I do. When you have such an opportunity to tell it as it is, you also want to use it to its best advantage, in putting the needs of Mesowarriors over so you can bring change. So I asked the Mesowarriors what questions they had. As always they have come up trumps and I can now write a clear speech.

This is for April so I will start working and getting this right.#

I was asked the other day what was my training to make me and expert on Asbestos ??

I have been involved with the product since 1957 and lived a life of seeing Rays mates die one by one the first was in 1961, he has nobody out od his entry alive today.  I have also lost a friend with Lung cancer and I now know that was through Asbestos and Ray lost his Aunt with Ovarian cancer and yes his uncle worked in the Dockyard. We have researched asbestos and what can happen in all those years as we worried about Ray. never thought it would be me that would succumb.

O’k I haven’t sat in a classroom and had training and exams I have a whole bunch of experts behind me on Linkedin and facebook that I call on to be factual, but surely if I have Mesothelioma then I have had life training so I hope no one is judging my right to talk about my life and what Asbestos has done to my family.

That also gives me the right to want to change the world of Asbestos for the future. I want Asbestos out of schools. I want Asbestos banned around the world in every country.

I will strive to help to do that and voice my opinions. I have freedom of speech on my side.

asbestos-comic

 

 

 

 

 

A Diary of A #Mesowarrior Living With #Mesothelioma #Asbestos — Oh no you didnt Pantomime Time at the Marlow Canterbury

dick_whittington_main_0

The Motorhome all loaded up we set off Saturday to the Park and Ride at Canterbury where we met all our friends in the Camping and Caravan Club as they arrived or already there to travel down to the City to see the Pantomime.UK’s most popular TV stars, Stephen Mulhern and Marlowe favourites, Ben Roddy and Lloyd Hollett.

The theatre is lovely as it is very new and we admired it as we sat and had a coffee.

When it was time to go in we really enjoyed the whole show. The 3 D show they put on was so great as things shot out at you.

A 3D scene – glasses are provided – works brilliantly and has young and old alike squealing with delight – once again reminding us that 3D continues to work as a visually stimulating treat in any environment when the experience of the audience and it’s ability to intrude in their space, is put as its very raison d’etre.

Stephen Mulhern (Billy) – returning to the theatre after a gap of a few years where previously he was in a supporting role – is now the lead man and it’s hard to do anything but warm to him. He’s charismatic and disarming and some of his illusions will have you mesmerised. Lisa Davina Phillip (Fairy Bow-Bells) is worthy of praise for her high-flying role too.

And, of course, it’s hard to fault Ben Roddy (Dolly the Cook) as the pantomime dame. He was, as ever, the undisputed star of the show and almost worth the price of admission alone. In truth, the whole cast did a good job.

No, in that there is something a little more forced about it this year, which makes it a less satisfying experience than before. It’s still a great show – and despite the gripe’s it never veers from being good value for money – but given the high bar they have set themselves, Dick Whittington just seems to fall a little short.

UK’s most popular TV stars, Stephen Mulhern and Marlowe favourites, Ben Roddy and Lloyd Hollett.

The show will also feature the incredible Vladimir Georgievsky (Britain’s Got Talent) and a host of West End stars including John Barr (Les Misérables), Lisa Davina Phillip (Matilda) and Ben Carruthers (Wicked).

Once again, the show will be written and directed by Paul Hendy and brought to you by Evolution, the same team behind last year’s Box Office smash hit, Snow White And The Seven Dwarfs.

photo_20170107_165939

http://www.kentnews.co.uk/entertainment/review_dick_whittington_pantomime_at_the_marlowe_theatre_canterbury_1_4798486

When finished we got the P&R back to the park and walked Louis and fed him so we popped out with our friends for a meal in the Pub on site. That was just a laughing time as we all get on so well and I have really enjoyed meeting up again.

So it was back to bed and a great sleep as the site is so quiet all night.then you wake up to Press the Green button Have a nice day. he he !!!

Made me laugh this morning the man in the next M/H said “Hi Mavis how are you doing”. Bless him he knew me and I’m thinking “Whoo are you “” I hate that when that happens It has to be Motorhome Fun or Facts.

So we are home and my cold has got worse so just resting and will get an early night.