A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos – MesoUK Patient and Carers Day. Also The #IASLC in Japan with the take Home Message

Lensbury Hotel_patient carer day 2017

This was where we travelled to last week with Ali driving us.

Patient & Carer Day – Friday 13 October 2017
Mesothelioma UK hosted the 12th annual Patient and Carer Day for people with mesothelioma and their families, friends and carers. It was a day of learning, sharing experiences and meeting others in similar situations.

The Lensbury Hotel, Broom Road, Teddington, TW11 9NU what a wonderful hotel. We had a lovely room that overlooked the front the one behind the tree on the left of this photo.

We arrived and booked in and then met friends as they arrived dining-300x199

We went to our room where I worked for a while before sleeping.


Up very early we signed in and the conference began .

mesouk confere


With this all over we had to say our goodbyes and travelled home. As it was Friday we thought the roads would be bad but it really wasn’t and we soon got home.


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The Conference has been on all week in Japan. I was invited but I have worked so hard recently with so many conferences and also bringing together the guest list for the MNF Launch Dec 7th and then the Scan Day which I was convinced was going to be bad as I get pains in the chest and the arms and hands are so  weird and twisted still But it was a good result again so much so I can have the scan every 3 months now.

So the message from Japan

Dear Doctors, Dear Colleagues, Dear Friends,
The 18th World Conference on Lung Cancer of the International Association for the Study of Lung Cancer (IASLC) will take place from October 15 – 18, 2017, in Yokohama, Japan. The science of lung cancer is advancing rapidly, so the IASLC recently decided to hold the World Conferences annually. The IASLC WCLC in Yokohama will be the second of the annual Conferences, following the IASLC World Conference in Vienna, Austria, in 2016.
On behalf of IASLC as well as the members of the Organizing and Program Committees, we would like to cordially invite you to attend the World Conference on Lung Cancer 2017 in Yokohama.
The Conference motto “Synergy to Conquer Lung Cancer” captures the collaborative spirit of the Conference which will be both a scientific and educational event.
Medical doctors, scientists, nurses, health professionals, government officials, partners from the industry, health advocacy groups and patients will come together in order to obtain and exchange information on advances in the management of lung cancer and other thoracic malignancies, while considering both global and regional aspects.
We ask you to submit your latest research results for presentation. You are also welcome to suggest any topic, activity or scientific program you would like to see covered during the World Conference. Your active contribution will be crucial to the success of the World Conference and its impact on our global mission to prevent, diagnose and treat lung cancer and other thoracic malignancies. Together, we will become a stronger voice and global force with the ultimate goal of succeeding in decreasing the world-wide burden of lung cancer.
We hope that, despite an intense Conference program, you also will be able to get some glimpses of Yokohama, Japan. Yokohama is the second largest city in Japan and is a cosmopolitan and modern city, which has played host to many international organizations. Yokohama is also a city rich in history, architecture and culture.
We look forward to personally welcoming you to Yokohama for the World Conference on Lung Cancer 2017, from all parts of the world.
Yours sincerely,

Dr. Hisao Asamura, MD and Dr. Keunchil Park, MD, PhD
IASLC WCLC 2017 Conference Co-Presidents

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Dr Peter Szlosarek, chief and principal investigator of several clinical studies here at the Barts Cancer Centre, will this Wednesday 18th October present exciting new data at the IASLC’s (International Association for the Study of Lung Cancer) 18th World Conference on Lung Cancer, Yokohama, Japan.
Highlighting plans for future clinical studies, his talk, “Pegylated Arginine Deiminase Potentiates PD-1/PDL-1 Immune Checkpoint Blockade in Malignant Mesothelioma” will focus on the synergism between the arginine-lowering agent (AID-PEG20, Polaris Pharma) and PD1/PD-L1 axis immune checkpoint blockade in ASS1 negative tumours.
These new developments follow on from the success of the first-ever randomised trial of ADI-PEG20 in mesothelioma (ADAM) that reported an improvement in progression free survival

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The Mars Trial is doing well Eric Lim is so pleased with the uptake well today I have him 3 more patients contacting.

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Mars Trial is doing so well Eric Lim and David Waller are so pleased with mesowarriors –showing the figures in Japan 88 randomisations to date in #MARS2 for #mesothelioma Recruitment to MARS 2 smashing it. Wonderful to see. #mesothelioma #wclc2017 @_johnedwards

And the last message for the Doctors to take home I always say Give us the trails and I will give them the Mesowarriors  we take the chance as we are all so positive and even if we get one more day or one more month that is all we ask. Just to stay a bit longer with our loved ones.Thank you IASLC for this message it is the right one take home meessage

That is so true I love it xx


A Diary Of A Mesowarrior Living With #Mesothelioma – The Launch Of BOHS #asbestos

bohs 1

I’m at last at home and the dog is out of the kennels.

What a week its been


We set off for the journey to London a bit nervous. I would be talking to such experts.

I needn’t have worried they were wonderful.

My talk went down better than I could ever possible hope. People were so amazed not only at my Mesothelioma story but the pictures I showed them of mistakes that are being made in the Industry and we discussed with so many how we could change all that.


IMG_20171011_181520BOHS 2

So many very interesting people stopped to talk and to say how much they enjoyed my presentation I was very pleased that I had raised so much awareness of Mesothelioma.


We were the last to leave, it had been a wonderful night with so much interest in my Foundation Thank You BOHS for inviting me to such a prestigious event.

The British Occupational Hygiene Society (BOHS) was delighted to announce a programme of prestigious speakers for the official launch of its new Faculty of Asbestos Assessment and Management (FAAM).   The new Faculty will herald a fresh phase of focusing on raising standards  and competency in the asbestos industry,
So the launch will  took place at an evening reception at the Conrad Hotel in Westminster on  11 October 2017.  I was amongst the speakers with
Craig Barker: Asbestos Manager for Marks & Spencer Property
David Fishwick: Consultant NHS Respiratory Physician, Sheffield Teaching Hospitals; Chief Medical Advisor, HSE
Martin Stear: Chartered Occupational Hygienist, and Registrar of FAAM
The key themes and expert speakers focused on: the problems and consequences of asbestos; how to identify the needs of specific situations; and what solutions are appropriate/available.  Another key message for the event ws “raising standards and reducing risks”.
What is FAAM?
FAAM is BOHS’ new Faculty of Asbestos Assessment and Management, and its overarching aim is to provide a community for professionals in the asbestos industry.  FAAM’S vision is to:
Pursue excellence for all those who practise in the asbestos assessment and management profession
Establish, develop and maintain standards of competence in asbestos assessment and management practice for those who are members of FAAM
Act as the guardian of professional standards and ethics in the profession of asbestos assessment and management
Why is FAAM needed?
Asbestos still kills around 5000 workers each year, with around twenty tradesmen dying each week as a result of past exposure. Details of prosecutions for unsafe asbestos practices continue to be reported in the media with concerning regularity. Tackling issues related to asbestos continues to be a challenge, with the UK still possessing one of the highest rates of mesothelioma (a type of cancer linked to asbestos exposure) in the world. Cancer Research UK outlined that there were over 2,500 deaths from the disease in 2014, with 94% of cases being deemed as preventable.
Karen Bufton, President of BOHS commented:  “This is an exciting and pivotal time in BOHS’ history.  In 2017 we have achieved significant progress by delivering a wide variety of new initiatives, including developing and launching a unique new course for the construction industry, and launching the ‘Breathe Freely in Manufacturing’ campaign. Moreover, we’re now introducing a major new faculty – FAAM.”
Karen continued: “I’m delighted that BOHS has Launched this important new faculty.  BOHS has been providing international leadership on protection against asbestos since the 1960s, and continues to pioneer excellence in standards’ setting in the field of asbestos.  There is wide acceptance that there remains a compelling need to improve standards of professional competence in many areas of the asbestos industry, which is why FAAM‘s vision is so critical.”
Karen concluded: “FAAM’s vision is to establish, develop and maintain standards of competence in asbestos assessment and management practice for its members, and act as the guardian of professional standards and ethics in the profession of asbestos assessment and management. BOHS is excited about the forthcoming launch event in London, which will mark the official opening  for membership, and celebrate the work achieved so far in bringing industry experts together to form FAAM.”

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A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos -Another Successful Conference at Royds Withey and Saunders #Mesothelioma and Lung Cancer Education Day

Yesterday we had to get up very early to get the fast train to London.

We crept out very early as it was so dark and the roads were empty.

We were soon in London and arrived at Stratford International  walked through the shopping Centre and arrived at the Underground. All that was peaceful and then all hell let loose. I let one train go we just couldn’t squeeze in. The next one arrive 2 mins later and the doors open and I realised we had to Squeeze in or we just wasn’t going to get a train.


No one should have to travel in the conditions we travelled in.

Old trains on the Central Line dirty and packed. I was sitting on a poor mans lap when we went round bends. The noise of scrapping metal Oh it was awful.

We squeezed ourselves out again at St Paul’s and I had all the directions of how to get to Carter Lane in my diary so we arrived in plenty of time for 9am.

We were at Royds Withy Saunders to talk at their



I had to talk early as Peter was late getting there from a meeting but it was worth waiting for him as he told us about all the clinical Trials and how they were going.

Eric Lims talk was brilliant about Operations Giving it as an allergy to sex to make it easier to understand. He had us laughing so much. I’m still lined up to go onto the Steering Committee of The Mars Trial which has had such a good repose from the Mesowarriors and the patients are doing so well. Eric has said the Operation is doing better under a trial as that’s the only way to control the Operations. A passionate man doing what he believes and  proving a point.

Ray and I spoke at 11.15am We enjoyed putting our story across and it went down very well as we were the only Patient Carer there. We had lots of curdles afterwards and the message had got across,

The Banner was admired again.


It was spoken of in a question that we don’t have enough for the Carers after they have lost their loved one so I pointed out our picture on the banner of our lovely weekend in Blackpool. At least on Facebook we do join in and have fun and help them to smile again that is our Motto and our Passion.

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It is lovely to see a Mesowarrior at the meeting Mandys Daughter has been doing work experience at 12 Kings bench and has made a great Impression with the Lawyers there.

The journey home was better I chickened out and caught a taxi to St Pancreas it was worth £10.00 for the comfort and help Rays back  as it had been a long day x


Two news items I want to share http://blog.cvn.com/opening-statements-begin-in-1st-johnson-johnson-talc-mesothelioma-trial

Opening Statements Begin In 1st Johnson & Johnson Talc Mesothelioma Trial



Please share this App to every school you can


A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos –The #Contamination Excel 2017

contamination 123

On the 27th September we checked out of the Britannia Hotel at Canary Wharf and caught a taxi to the Excel site.

It is a huge site with many exhibitions running at the same time.

ExCeL London has been at the forefront of the dock regeneration. Sitting proudly by Royal Victoria Dock, ExCeL is bringing trade and industry to the docks, generating over £2.3 billion of economic impact for the British economy. See the story of how Royal Victoria Dock has emerged to become a hive of industry and activity once again.



The Contamination Expo Series is Europe’s largest event designed to showcase the latest innovations that further the protection of the environment and management of contaminated land, water, and air.
The show features over 150 innovative environmental suppliers, 120 CPD-accredited seminars, interactive masterclasses, one-to-one advice from industry experts, unparalleled networking opportunities, and much more.
Guests can filter between areas dedicated to hazardous materials, land remediation, spill response, clean air technology, geotechnical solutions, nuclear decommissioning, and more, as well as the Flood Expo and M&CCE Expo next door.

Were able to walk around and talk to everyone as we met old friends and new friends it really was so very interesting.


The people involved in Asbestos and Contamination are so passionate about their pathway they have chosen to make a difference to buildings and construction.

New inventions were on show from Scots Face Mask- AVIVA features a Hybrid Reflex Seal, moulding to the wearers face shape and absorbing facial movements to maintain high levels of fit and protection. AVIVA is designed to fit a wide range of facial shapes and sizes.  https://lnkd.in/d3swKQ3

scot mask

to  Decon Units and air sampling, so much to see.

Two Talks stand out for me

Tristian Oliver —Lead paint and dust hazards are likely to be an everyday problem for construction clients, their advisors and contractors and anyone else working on projects involving: asbestos surveying and removal; demolition and refurbishment; repair, maintenance and painting and decorating – even DIY.

According to the UK’s Health & Safety Executive (HSE), it should be assumed that ALL paintwork contains lead unless there is good evidence to prove otherwise.

Commissioning Lead Survey’s full service ‘total lead’ risk management capability is the ultimate insurance policy for protecting your people, your projects, your reputation and your profits. Our specialist capability is as comprehensive as it is unique.

Lead surveys are necessary in order to satisfy the pre-construction information requirement of the UK’s Construction (Design & Management) Regulations, 2015. Health and Safety Executive (HSE) online guidance just another hazard that the rules need tightening up on.
Tristan Olivier’s specialist skill in XRF-i lead surveys and ‘Total Lead’ risk management grew out of his work as the original Founder of the Lead Paint Safety Association (LiPSA.org.uk). Originally a building surveyor, he is probably the leading advocate of XRF-i technology for comprehensive ‘Paint + base’ material assessment and analysis. His Lead Survey business is at the forefront of innovation in this field which provides the basis for delivering effective ‘total lead’ risk management solutions. Lead Survey’s work covers everything from surveys and consultancy; technical authoring, training and expert witness; to accredited (health & environmental) laboratory services; and specialist products and equipment distribution.

Tristan’s pro bono work with the families of lead poisoned children has filled an important gap in public health provision. He is a regular speaker at industry conferences and delivered the Association for Project Safety’s 2017 nationwide half-day training programme on the subject of construction lead hazards.

Then I met up with

Chris Bishop
UK Asbestos Training Association Ltd
Chris has been in the asbestos industry for more than 17 years. With a background in analytical chemistry and quality management, he was Quality Manager for a ISO 17025 accredited testing laboratory that also was one of the first to achieve accreditation to ISO 17020 Inspection Body status.
He gained further site experience as Technical and Training Manager for one of the largest Licensed Asbestos Removal Contractors, and in 2009 set up a small independent consultancy delivering a full suite of asbestos related training and asbestos NVQ assessments.
As Managing Director of ATAC (Asbestos Training and Consultancy) Ltd, he has a range of established clients and has worked in the construction, retail, education and health service sectors, and has project managed several land remediation schemes.

He spoke about What is asbestos?  and to  consider asbestos in soil as a contaminant from an analytical perspective and what the implications are for the client and removal teams.

I was the last speaker of the day and was amazed at how many stayed behind to listen. We had a great discussion afterwards about training and getting through to Youngsters at schools as that is a passion of Paul Beaumont CEO of IATP and I pointed out how Paul has offered free training to Schools.

Paul had also spoken about Asbestos – 2017
Discussion of current position of asbestos in 2017 including the status and industry position of asbestos surveys, removal and training. Case studies and observations of actual information received from Duty Holders, clients and the industry workers

He has kindly given me his presentation on a pen which I will study and use so I have the true facts

Jasper Kosters Directeur/Eigenaar Admanstars Admanstars Nederlandse Basketball Bond Rotterdam Area, Netherlands. is very passionate on the subject.
Jasper Kosters is presented at the European Asbestos Forum where he warns that the young workforce is uneducated about asbestos and thus extra at risk. They need education and more awareness. We all agreed at my talk at the Contamination Expo that this must happen.



We had been invited to be on the Shield Stand where we had a great time with the team.

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When the show finished that first day it was great to have a drink then return to the hotel arranging to meet in the Lobby at 6.30pm.
There is a great Chinese restaurant by the hotel and we had a lovely meal. A huge lazy Suzanne was placed on the table and this was loaded up with dishes so many times. Everything we could wish for and so tasty.

The next day we met up with UKATA and they had me modelling in photos. So many smiling this way and that with Craig and the team.
A lot of fun and laughter.
Ray and I listened to so many speakers everyone is so Interesting everyone is so passionate about Asbestos, Lead and training We have learnt so much.
So that was it we all parted to go home I do hope we meet up again soon Talking together and sharing our thoughts is really wonderful.
Thank you to all we met and all the backing and encouragement for my Mavis Nye Foundation together we WILL make a difference to so many.



A Diary Of A Meswarrior Living With #Mesothelioma #Asbestos -Talking at 3 Conferences What a Week












What a week.

We set off last Thursday after dropping Louis to the kennels.

He does seem to love it there and runs in to greet the lovely owner and all the kennel maids who make a fuss of him. So many dogs there as it is still a busy time with owners off on holiday so he had many to talk to.

We travelled to London and then tube to Paddington for the reading train and that all went very smoothly.

We arrived at the IBIS hotel I was enthralled with the bathroom as it was a unit in the corner of the bedroom.







We had to go off to meet our Mesowarriors as I had arranged with Pam to go out for a meal(she insisted on paying )

Out for a nice evening with Mesowarriors








Pam and Leigh








We had a great meal out and caught up on all the news.

Next day we went to Boyce Turner as I had been asked to talk.

The banner is up








Boyce Turner















Mesothelioma and Lung Cancer Study Day
Friday 22 September 2017, 9.30 am – 4.30 pm
09.30 Welcome (Chairperson) and refreshments
09.45 Dr Stephen Ellis
Consultant Thoracic Radiologist
“The radiology of asbestos related diseases and their mimics”
10.25 Dr Sam Hare
Consultant Chest Radiologist, Royal Free London NHS Foundation Trust
“Ambulatory Lung Biopsy – a new model for the UK”
11.10 Break
11.20 Scott Bentley
Operations Director, Resource and Environmental Consultants Ltd
“Asbestos in the workplace”
12.00 Simon Levene
Barrister, 12KBW
“What happens in meso litigation from the patient’s perspective?”
12.40 Lunch
1.25 Anne Moylan
Clinical Nurse Specialist, Mesothelioma UK
“Trials in mesothelioma care”
2.05 Mavis Nye
Surviving mesothelioma victim
“The Mavis Nye Foundation”
2.50 Break
3.00 Jane Canavan and Charlotte Merriman
“Thoracic Surgery Rehabilitation”
3.40 Dr Alan McKenna
Associate Law Lecturer, The University of Kent
“A critical analysis of issues across the asbestos spectrum”
4.20 Closing comments (Chairperson)

It was soon all over and we went back to the hotel room next day we travelled by train and surprised my Brother and SIL. We had a good chat and the time soon went as we had to get back to meet friends for the evening.








He still looks shocked xx

We then travelled to Waterloo and then travelled on the Jubilee line to Canary Wharf to settle into the Britannia Hotel.








Caught a taxi to Covent Garden to meet Yvonne Waterman  and Geoff Fary
Former Chairman of the Australian Asbestos Safety and Eradication Council

Had a lovely meal in a nearby restaurant and returned to our hotel tired but happy x






This was a heavy 2 days but we worked our way through all the speeches. Lucky I was early and once again I was happy with my talk.

Program 2017 ‘Asbestos & Industry’ – 25 & 26 September 2017, Hilton Canary Wharf Hotel, London

On Monday 25 September 2017, the EAF conference will host ’round table’ workshops in which participants will meet many speakers face to face and freely discuss in-depth on a wide variety of asbestos related topics. This has proven to be the ideal formula for meeting relevant specialists, exchanging knowledge and building up lasting networks.
A delicious buffet lunch is included and will be open from 12:30 to 13:30 hours, after which the workshops will go on until 16:30 hours.
On Tuesday 26 September 2017, the EAF Conference will take place, concluded by an optional conference dinner. Please note that speakers and presentations may be subject to change. See below for further details.

08.30 – 09.00
Registration and light continental breakfast
09.00- 09.15
Welcome by Yvonne Waterman (EAF Foundation)
Introduction of the Conference Chairman, Hans van der Wart (KIWA Compliance International), and Session Chairmen Mark Winter (Beacon International) and Ron Symonds (Royal Mail Group)

Plenary Session
09.15 – 09.45
Opening Speech, by Dr. Penny Woods (British Lung Foundation)
09.45- 10.05
Are Frameworks killing quality? Matthew Timms (Silverwood Ltd.)
10.05 – 10.30
A Mesowarrior’s Journey, Mavis Nye BCAh (Mavis Nye Foundation)
10.30 – 10.45













Break and refreshments
10.45 – 11.15
Shaken and stirred: asbestos response after natural disasters, Terry Coleman (Coleman Consulting Ltd New Zealand and Pacifica Environmental Ltd Fiji)
11.15 – 11.45
Keynote Speech: Role of a Trade Association in the Asbestos Removal Industry, Stephen Sadley (ARCA)
11.45 – 12.45
Buffet lunch

Photo exhibition by Tony Rich (Asbestorama)

Session A
Asbestos and its impact on society
12.45 – 13.05
Asbestos and its effect on English society, Harry Steinberg QC (12 King’s Bench Walk)
13.05 – 13.25
Challenges for insurers regarding asbestos in industry, Christian Lahnstein (Rachel Carson Center, University of Munich)
13.25- 13.45
Raising asbestos awareness in the workplace, Jasper Kosters (Admanstars)
13.45 – 14.05
Real risk versus perceived risk, prof. Roger J. Willey (UKATA)
14.05 – 14.20
Break and refreshments
14.20- 14.40
Building national consensus around asbestos management – the Australian experience, Geoff Fary (former Chairman of the Australian Asbestos Safety and Eradication Council
14.40 – 15.00
The Portuguese approach to asbestos in industry, Ana Nogueira (Portuguese Dep. de Saude Ambiental, Unidade de Ar e Saude Ocupational)
15.00 – 15.20
New developments in the treatment of Malignant Mesothelioma, prof. Nico van Zandwijk (former Director of the Asbestos Diseases Research Institute)
15.20 – 15.40
Asbestos still kills – what difference can YOU make?, Colette Willoughby (BOHS)
15.40- 16.20
Panel debate
16:20 – 16.35
Break and refreshments
Session B
Asbestos & Professional perspectives
12.45 – 13.05
Complex projects for a simple product, Hein Tersteeg (Asis-t, active for ExxonMobil Rotterdam)
13.05 – 13.25
Removing asbestos in a nuclear environment, Mark Winter (Beacon International)
13.25 – 13.45
The Global Game Changer, Dale Timmons (ARI Global Technologies)
13.45 – 14.05
Compliance in industry, Dr. Martin Gibson (HSE)
14.05 – 14.20
Break and refreshments
14.20 – 14.40
Delivering ‘real reassurance’ asbestos air testing, Charles Pickles (Lucion Services Ltd)
14.40 – 15.00
Putting asbestos policy into practice at a major airport, Jeroen Kersten (Sodexo)
15.00 – 15.20
The global asbestos industry and the worldwide pursuit of justice, Brendan J. Tully (Phillips & Paolicelli LLP)
15.20 – 15.40
The summit of the bell curve: UK asbestos litigation, Malcolm Keen (BLM Law)
15.40 – 16.20
Panel debate
16:20 – 16.35
Break and refreshments

Plenary session in the Grand Ballroom
16.35 – 16.40
Special Recognition Award
16.40 – 16.45
Concluding speech, Yvonne Waterman and Hans van der Wart (KIWA Compliance International)
16.45 – 18.00
Convivial closing drinks for networking
18.00 – 21.00
Optionally: Conference Dinner
The foundation aims to improve international relations and knowledge regarding all matters related to health and safety, asbestos in particular. The foundation was founded in 2014 by Yvonne Waterman Ph.D. LL.M., who serves as its President.

Welcome to the 3rd EAF conference on 26 September 2017: ‘Asbestos & Industry’
Location: the Hilton Canary Wharf Hotel on South Quay, Marsh Wall, London. Dates: 25 September 2017 (workshops) and 26 September 2017 (conference)
This year, we will examine many aspects surrounding the main topic: asbestos in industry. What does this mean to society, to the economy, the environment? What are the problems and the solutions to share in this regard? Speakers from across Europe, the United States, Australia and New-Zealand will give exciting and very varied presentations.
Many professional organisations are contributing speakers to the conference: HSE, ARCA, UKATA, TICA-ACAD, etc. The presentations will be very practical and challenging, such as removing asbestos in a nuclear reactor (Beacon) or a petrochemical plant (ExxonMobil) or how to change asbestos waste into a safe product (WISG). There will be top-level lawyers from England and the United States to provide a legal perspective, as well as speakers to provide an insurance or medical view on the latest developments. The accountancy firm BDO will explain how to save money when removing asbestos in industrial sites; and so on!
While the EAF is focused on professionals of all kinds, asbestos victims organisations are welcomed, too. Indeed, the British Lung Foundation and Mrs. Mavis Nye BCAh, England’s most well-known asbestos victim, will give thought-provoking presentations as well.
If this brief line-up is not already sufficient reason to attend… Consider this.
The European Asbestos Forum strives to improve professional networks and the exchange of the very best and newest knowledge regarding all matters related to asbestos – across borders and sectors. Sharing the best innovations, the newest insights, the best practices. Learning from each other’s mistakes and successes. This is where you truly learn more about asbestos and make useful new contacts to bring your own work to a higher level.
Meet your national and foreign colleagues and become part of the international asbestos network for professionals: the European Asbestos Forum.

Thank you Yvonne for all hospitality it was a very successful conference even if I did pinch your phone







I will blog the Contamination Expo tomorrow as you can see It has been a really full week with so much travel involved

A Mesowarrior Living With #Mesothelioma #Asbestos — A Skip full of Asbestos Roofing Greeted us On Saturday.


Can you imagine how we felt when just around the corner from us we were met with this skip. So much Asbestos a layer of soil is hiding more sheets of the shed or garage roof.

Ray saw red as I posted a letter and he spotted it first. What utter madness. Asbestos from a roof broken and open to the elements with Asbestos rope.

We are fighting a loosing battle trying to get through just how dangerous asbestos is.

It was the weekend so there was nothing we could do so I put a picture on the local towns forum.

Firstly the conversation was it wasn’t asbestos it was cement.

Can I remove asbestos roof myself?
While there are no legal restrictions in you doing so, it is advisable that you do not remove asbestos roofs on your own. Instead, hire a reputable contractor who will ensure that the materials are properly removed and disposed of. Find a UK contractor here.

One of the widest uses of asbestos in the building industry was in roofing. Due to its heat and fire resistant properties asbestos was added to many roofing products including roofing tiles.
Asbestos tiles did not comprise solely of asbestos. Asbestos roofing tiles are actually largely made from cement, with the now banned product added into the cement mixture. Depending on the manufacturer, the cement tiles comprised typically of between 10-15% asbestos.
In addition to its heat and fire resistant properties, asbestos has excellent strength and durability features. New homes built prior to 1970’s with asbestos roofs, were lauded for the longevity of their roof systems, as the roofs had a life expectancy of 30-50 years.

Having or buying a home with asbestos tiles does not mean you need to remove the tiles especially if they are still in good health. If you know or suspect you have cement asbestos shingles, it is advisable that you monitor your roof to check for its health.
If you are planning renovations or if indeed the roof becomes damaged or begins to deteriorate, the roof may need to be removed and replaced with safer non-asbestos containing roofing products.
Asbestos roof removal cost
As asbestos cement is considered a relatively low risk asbestos material you do need not a licensed contractor to remove it. However, it is advisable that you use a competent and experienced contractor who is aware of the guidelines associated with its safe removal and disposal.
The costs of asbestos roof removal vary greatly depending on the configuration and size of the area that needs to be cleared. It is advisable that you hire a technician or specialist to conduct a survey. Expect to pay several hundred pounds for the survey. The survey will provide you with the information you need to obtain an estimate for the costs of removal. By way of a rough estimate, expect to pay several hundred pounds for the removal of asbestos roofs from garages, and up to a few thousand pounds for removal of asbestos roofs on houses.

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The people on the forum were more worried about  getting the builder into trouble and his loosing work than the fact that the builder has taken this roof down with no protection so endangering himself to Mesothelioma 20/30 years down the line. Taken fibres home on his clothes for his partner to wash, and then maybe cuddle his children so harm his family.

The wind is blowing and people are passing this skip.

I was advised by a man to take the picture off until I had proved it was asbestos.

I gave up and asked my expert friends and they took it more serious.


A. Asbestos cement Water tank
B. Pipe lagging
C. Loose fill insulation
D. Textured decorative coating eg artex
E. AIB ceiling tiles
F. AIB bath panel
G. Toilet seat and cistern
H. AIB behind fuse box
I. AIB airing cupboard and/or sprayed insulation coating boiler
J. AIB partition wall
K. AIB interior window panel
L. AIB around boiler
M. Vinyl floor tiles
N. AIB behind fire
O. Gutters andAsbestos cement downpipes
P. Soffits – AIB or asbestos cement
Q. AIB exterior window panel
R. Asbestos cement roof
S. Asbestos cement panels
T. Roofing felt
*AIB = Asbestos Insulating Board

I gave him the name on the skip and he emailed to them. Today the company has made the builder cover the skip and is going to remove it in a couple of days.

So everyone has been made aware people do care and they should make sure they do the work properly. The HSE has all the advice so there is no excuse


Preparing the work area ˜ Ensure safe access – you may need a mobile access platform. ˜ Restrict access – minimise the number of people present. ˜ Close doors. Use tape and notices to warn others. ˜ Ensure adequate lighting.
Equipment ˜ 500- and 1000-gauge polythene sheeting and duct tape ˜ Warning tape and notices ˜ Bolt cutter ˜ Webbing straps and rope ˜ Garden-type sprayer containing wetting agent ˜ Bucket of water and rags ˜ Asbestos waste bag ˜ Clear polythene bag ˜ Lockable skip for larger quantities of waste ˜ Asbestos warning stickers

Personal protective equipment (PPE) – see sheet em6 ˜ Provide: ˜ disposable overalls fitted with a hood; ˜ boots without laces (laced boots are hard to decontaminate); ˜ respiratory protective equipment (RPE).
Procedure ˜ Check with the premises owner that only AC is present. ˜ Protect nearby surfaces from contamination. Cover with 500-gauge polythene sheeting and fix with duct tape to non-asbestos surfaces. Overlaying AC sheets ˜ Can you overlay sheets with non-asbestos material instead of removing the AC? ˜ If so, attach the material to existing purlins. Avoid drilling through the AC. If you cannot avoid drilling, see sheet a9.
Removal ˜ Avoid or minimise breaking the AC. ˜ If fasteners hold the sheets in place, dampen and remove them and place them in the asbestos waste bag. ˜ If the sheets are bolted in place, dampen and cut the bolts while avoiding contact with the AC. ˜ Remove the bolts or fixings carefully and place them in the asbestos waste bag. ˜ Unbolt, or use cutters to release gutters, drain pipes, ridge caps etc. Avoid contact with the AC. ˜ Lower large pieces to the ground. Don’t drop them or use rubble chutes. Stack sheets carefully. ˜ Where there are several AC sheets and other large items, place them in a lockable skip.

Double-wrap large pieces in 1000-gauge polythene sheeting. Seal with duct tape. ˜ Attach asbestos warning stickers. ˜ Place small pieces in the asbestos waste bag.
Cut the bolts while avoiding contact with the asbestos cement. Double-wrap large pieces in 1000-gauge polythene sheeting and seal with duct tape
Cleaning and disposal ˜ Clean the equipment and the area with damp rags. ˜ Check for debris in fasteners or bolt holes. Clean with damp rags. ˜ Put debris, used rags, polythene sheeting and other waste in the asbestos waste bag and tape it closed. ˜ Dispose of contaminated webbing and rope as ‘asbestos waste’. ˜ Put the asbestos waste bag in a clear polythene bag and tape it closed. ˜ Disposal – see sheet em9.
Personal decontamination See sheet em8.
Clearance and checking off ˜ Visually inspect the area to make sure that it has been cleaned properly. ˜ Clearance air sampling is not normally required. ˜ Get the premises owner, dutyholder or client to check off the job.


To be honest having read this it seems every rule has been broken and I fear for their health. When will we ever get through to people just how dangerous Asbestos is.

If you find asbestos contact the experts


A diary of a #mesowarrior living with #mesothelioma – A visit to Cicely Saunders Institute Kings College Hospital

Off to London again yesterday and on the way the talk on the train was that news of a bombing on the underground  had come through.

Lucky we wasn’t using the underground as we pulled into Victoria and walked to the train to Denmark Hill.

We were on our way to Kings College Hospital. Wow we think our hospital is large but it is tiny compared to what was in front of us as we arrived. Kings-buildings-658

It was like walking through a town with so many people. How on earth do they control a hospital as large as this.

We were on our way to the Cicely Saunders Institute as both of us were invited to talk about Patient Carer, but to be honest we didn’t know just what it was all about. Ray just trusts me that I know and I truly didn’t know.

A key objective of Cicely Saunders International is to establish the world’s first institute of palliative care, a centre of excellence housing research, education, information provision and clinical care. The Cicely Saunders Institute of Palliative Care brings together academics, healthcare professionals, community organisations, patients and carers in one centre and acts as the hub for a network of international research. By providing a comprehensive approach to the physical, social and psychological needs of people with progressive illness, the Institute’s research will feed quickly and directly into practice and policy around the world – improving palliative care and enabling people to live better, with dignity and the least possible suffering.
The Institute opened in February 2010 and is situated next to King’s College Hospital, which currently provides high-quality palliative care for patients in South East London and the surrounding area. The Institute integrates this care with teaching and research, creating a multi-professional environment examining every aspect of palliative care.
King’s College London, our academic partner at the Institute, is the largest provider of healthcare education in Europe and has an international portfolio of research. Its Department of Palliative Care, Policy and Rehabilitation has an international reputation for teaching and research. The multi-faculty nature of King’s will ensure that the profile of palliative care research and education is truly multidisciplinary and will reach a broad audience.
The building is a welcoming and peaceful environment, sensitively designed with advice from Macmillan Cancer Support and in consultation with potential users and local patient groups such as Black Cancer Care. Ongoing user involvement should ensure that patients and their carers are able to guide and participate in our vision for the Institute and its future use.

We met another couple waiting and we soon were met by Jo and taking up to the top floor where we could see the Shard in the distance.

Here we had coffee as another 2 people arrived.

Jo wanted us to talk about who we were and our stories and to interact with each other. Turns out she couldn’t have chosen a better group of people as we all interacted very well.

We had to give our thoughts on Palliative Care at an early stage.

I said I would ask the Mesowarriors and I did last night.

The question raised to-day about Palliative care.
If they run a trial to see if Someone ran a group at your hospital of Exercise, Diet and Breathing Exercise etc etc a general keep healthy and fit when we have been diagnosed, when would you feel it was a help. At Chemo time each time, at home would you even take part.

The Mesowarriors have responded so well

 I realise being in Australia is different
Yet my beautiful dad went into palliative care 2 nights before he passed on the 3rd. I was allowed to stay with him the whole time.
He had a daily palliative care nurse visit at home, where my stepmother cared for him, as I’m 5 hours away.

 It depends on what they do . I think you need different things at different stages so I probably would take part if they were offering something useful for me at that time

 My Dad has been offered all of the above by our Macmillan Nurse. He can go along to learn breathing techniques. He’s got a 12 session FREE gym member- including a one-to-one to sort out his training schedule and a carer/friend of his choice can also go along for free each visit too (carer can be different each time 👍🏽). We are in East Hertfordshire. I think the best time would be when first diagnosed as the lung cancer be trained to keep fitter ready for the rocky road ahead xxx

Anytime towards the beginning of treatment would have been helpful. A couple of weeks after surgery would have been a big help.

 I would say an exercise programme from the start that will need to be monitored & adjusted depending on treatment & symptoms. Would suggest in groups (good social) aswell as individual at home. It has been a massive help to me both mentally and fitness wise. I’m fitter now than I have ever been …

I Am on present time at home I could not take part in any fitness group.

 Yes, I agree . So far I’ve been offered armchair yoga at the hospice and I look forward to it every week, it does help me.

Mavis Nye
Group Admin
Oh brilliant I will send these answers through. Its what I say I would love to have had someone come and help me exercise and talk about diet and nutrition when I was sitting for hours on chemo. We spend so much time then reading I think I could have done armchair exercise to keep my muscles in trim.


There was a clinical trial of exercise listed for Meso. For me exercise has been extremely important. Physically and mentally. This has been an area that i have not had any advice on at all.. am thinking it maybe uncharted territory for the oncologists. I find that during exercise my lung performance increases.. but boy i have to work hard to get to that point. After each exercise i always feel better.. but trying to find that rest/exercise balance is trial and error.. for me it’s quite a fine line. Also exercising isn’t conducive to maintaining and gaining weight. When to exercise after treatment seems to be important as well. I’ve only done cardio exercise, be good to start doing weight based training too. I was put off exercising initially as a private nutritionist maintained that meso is an oxygen based cancer and would enhance the tumor..i did query this with a trial doctor who said this isnt the case.

Keith Hughes I asked about what exercise programmes were available when I first saw my Oncologist and I was referred for pulmonary rehabilitation training. Now I chose surgery but I felt it helped me a lot both before and after the surgery. I am now looking to join a maintenance group. I don’t know how this works with chemo as I suspect one is less motivated to exercise after such treatment but, if it is part of a group or combined with hospital visits then, that can only be a good thing.

My Dad was offered this in Hereford when staying with me , as a day patient at local Hospice and from memory I am sure they offered something similar in Newcastle x

 I would take part if it was offered. I am looking at going to a Lung Smart Exercise at a gym. I think a supervised exercise regime would be a big help.

I have sent the answers in as It adds to the day where similar answers were given.

The Afternoon soon went and even Ray had enjoyed the conversation and had told it as it is for a carer.

Jo really did learn so much from us.

We had to say goodbye with a promise to keep in touch through Social Media.

The journey home was easy although even at 2pm the trains were so packed.