A Diary Of A #Mesowarrior Living With #Mesothelioma – #Asbestos found in Cement from China -NICE approves new Cancer Drug, Francis Crick is openin, August Bank Holiday

NICE approves new cancer drugs for routine NHS use

Two cancer treatments, previously only available to patients through the Cancer Drugs Fund (CDF), will now be routinely available on the NHS.

cancer patient consultation drugs

NICE has approved bosutinib for leukaemia and pemetrexed for lung cancer for routine use on the NHS because the companies that market them lowered their prices.

Since April, NICE has been looking again at the cost and clinical effectiveness of drugs currently in the old CDF.

Previously both drugs had been available only if a person’s doctor applied through the Cancer Drugs Fund.

The discounted prices mean that both drugs are now considered value for money.

Professor Carole Longson, director of the centre for health technology evaluation at NICE, said: “It’s great to see that companies are engaging with our CDF reconsideration process in a constructive way, resulting in these positive recommendations. This is good news. As these drugs move into routine budgets, CDF funding can be freed up for other new and innovative cancer treatments.”

The NHS now has a legal obligation to make both drugs available to all eligible people who need it, if they and their doctor agree it is the right treatment.

NICE has recommended bosutinib to treat some people with chronic myeloid leukaemia when other treatments no longer work.

Pemetrexed was already recommended as a first option for people with advanced non-small-cell lung cancer. The new guidance means it will now be available to a broader range of patients as an option to stop a person’s cancer returning if they are in remission.

Both bosutinib and pemetrexed work by targeting specific cancer cells to stop them growing and multiplying.

https://www.nice.org.uk/news/article/.V710T26nTbk.facebook

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I have found this to be exciting news that the new Fund is in place and working as we have some very expensive drugs being Trialed at the moment so it looks that this might cover them coming into place.

With The Francis Crick opening up so much research is going on now so we need all the help in the NHS to keep the cost of drugs down as well.

The new building

The new building

The new building, located in the London Borough of Camden, will open soon amid a unique cluster of scientific skill, leading hospitals and one of the world’s top universities, UCL. It will provide a new focal point for the considerable talent and knowledge in the area while playing its part in the life of the local community

https://www.crick.ac.uk/ 

The biggest story to hit Social Media is

Chinese cladding contractor facing HSE asbestos probe

The UK division of Chinese cladding giant Yuanda is facing a formal investigation into the potential import and use of building materials containing asbestos.

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Yuanda is working on a number of high profile projects including 100 Bishopsgate

The Health and Safety Executive has launched the probe following problems on Yuanda sites in Australia.

White asbestos was found in roof panels imported by Yuanda from China and used on a new hospital in Perth.

A letter seen by the Enquirer states that the HSE has “established contact with Yuanda (UK) Co. Ltd. to conduct preliminary enquiries, establish their relationship to Yuanda Australia, understand the operation of their supply chain and the specification and quality assurance and quantity of materials they bring into the UK.”

It is understood the HSE has taken a number of samples from Yuanda sites in this country.

No-one at Yuanda UK was available to comment but it is understood that the firm is confident that no materials used in its projects contain asbestos.

Yuanda UK told campaigners at the International Ban Asbestos Secretariat: “We have undertaken a comprehensive review of all our materials and products and confirm that none used in the UK and Europe raises any concerns.

“The materials used for our projects are all specified and checked by Yuanda UK and we do not use materials from the suppliers who provided the materials in question in the Australian projects.”

Grant Prior

Written by Grant Prior
7 hours ago

To share a story email
grant.prior@constructionenquirer.com
always off the record

I had read that all Dubai is built with the cement and that has caused a huge row Asbestos is the name given to a number of naturally occurring, fibrous silicate minerals mined for their useful properties such as thermal insulation, chemical and thermal stability, and high tensile strength. Many products in use today contain asbestos, according to the Environmental Protection Agency. Asbestos is a fiber that was once widely used hundreds of building industrial, commercial and housing products and is still present in millions of U.S. workplaces and homes.

Even though Dubai and the UAE passed a law in 2006 banning the sale of sheets of asbestos, it is estimated that between 70 and 80 percent of homes in Dubai, especially the one built before that date, contain some asbestos (source: Khaleej Times).

bank-holiday

We have a bank holiday coming up so as its my birthday as well Saturday we are off to our Sons and DIL. it is very very warm and we have 90C in the house here and over 100 in the sun outside so we have to find the shade. This is bound to end in a storm at some point.

Then it is September and I have to knuckle under and polish up some speeches for Conferences. I will report them all here and it  is exciting times.

Mind you have had to sort the computer out as changing to a new one messed up my Skype Account so I have to start again. Oh Dear !!!

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I think  this is where the dog will be I will take his pool with him shame we can’t all fit in with him

A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos -House is paintedand birthday target will be reached next week bring out the wine

It has been a super warm day again today and our Painter has finished painting the home.

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She has really done a super job and everything is back to normal again.

I hosed all the paths and patios and with the garden all tidy we have accomplished so much this week.

So now we can rest up but apparently we have a storm coming tomorrow with high winds.

Oh dear this summer just cannot get sorted out. Mother Nature has lost her seasons.

We had to get some more paint so a trip to B&Q meant Louis had to put up with a walk in the car park there which isn’t very exciting for him.

I have got to knuckle under to write 2 speeches, one for Reading and one for Amsterdam so I will get them done soon.

I have had an invite to a Mesothelioma Support group in St Thomas’s so that is in the diary for Oct

I have bought a stock of wine for my Birthday next week where we are staying with my son and DIL so that is another Target reached. I never even dared hope 2 years ago to be able to reach this Target. After 2632 days since diagnosis and 2 years extra life will on the trial and 62 days since the end of treatment. This isn’t my Memory being just wonderful it is Ray he calculates everything . So many targets so many fights and so many fears but I have arrived at my 75 birthday next week. Hoorah!!!

 

A Diary Of A Mesowarrior Living With #Mesothelioma#Asbestos – A Relaxing Day With Friends In Whistable.

The garden all done and a day of rest yesterday we felt good today as we set off to Whitstable Castle to meet Dave and Ali our great friends we met before my diagnosis.

We arrived early as we had thought the town would be heaving but we managed to park the car at the Castle.

As we sat in the gardens opposite we watch a silly woman try to get her car into a tiny spot. Why?  we and another couple just don’t know why as there was a lovely gap where she would have made it so easy. No she chose a tiny gap and so banged the car in front 4 times then once into the one behind her. To shocked we realised we should have taken a photo. She drove off leaving us shocked.

Anyway I saw our friends pull into the car park so I went and met them.

We walked around the gardens and then settled on the terrace and had a lovely meal out in the open.

Zoe is a wonderful dog so well-behaved Louis wouldn’t have been so good so he was held at home

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Dave had just sent his photo a sort of spot the difference ha ha !!!DSC04185-Edit

I showed them Tankerton sea front but the tide was in so I couldn’t show the Street but there is a picture on a post there so they got the idea.

Image result for tankerton street


One of the intriguing features of
Tankerton‘s beach is the shingle bank known as The Street. It had been assumed this was the remains of a Roman road built on land that has since surrendered to the sea. However, a more plausible suggestion is that it is all that remains of a medieval town called Graystone. Certainly, the shingle all the way along the beach contains fragments of tile and other bits of building debris.

So we had another walk through the gardens again and then we said our goodbyes so  Zoe could go on and have a swim in the sea and we came back home and grabbed Louis and took him for a run in his Country Park.

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The history of a wonderful Private House Whistable Castle

EARLY YEARS (1400 – 1790)
In the 15th century there was a real need for alum, a mineral used mainly for fixing dyes in cloth so that colours did not run. Queen Elizabeth I gave a licence to search for deposits and a new site was found in the cliffs at Tankerton. The resulting product was called “copperas”. The first mine opened in 1588 and for 200 years the owners made a great deal of money from what was effectively  one of the world’s first chemical industries. A copperas house was built on the site that is now the almshouse. Other smelting works were built where the bowling green is, and also by the Harbour and on the site of the Castle Tea Gardens, on Tower Hill.
Workers wore small metal masks which gave little protection from the terrible fumes. The pyrites were collected by the poor, left to decompose and processed by heating and cooling in huge vats. The resulting green vitriol crystallised to form copperas. The whole process was very hazardous, and a report in the “Kentish Gazette” of February 1788, describes how a worker slipped into a vat and died 26 hours later. As trade expanded, the Harbour grew in significance.

THE FIRST MANOR HOUSE -THE PEARSON YEARS  (1790- 1835)
The first dwelling connected with the Copperas Works stood between where the Castle is now and the Bowling Green. The Manor of Tankerton was inherited by Elizabeth Radford of London, in 1773. She bought more land and works and in 1780 married a London businessman and Freeman of the Glovers Company, Charles Pearson. He bought several copperas works, but the industry was by now in decline. Pearson began demolishing the copperas works around 1790 and used the bricks to build an octagonal tower.

The black tar of the works can still be seen on the walls. The Pearson’s home was known as The Manor House and little is known about its layout except that in 1798 the chimney to the tower was taken down and a staircase put in its place. Pearson frequently rode on horseback to his London business, taking ten hours to reach Fleet Street.

By 1820 they had five children and were living in Greenwich, but every summer they travelled by Thames Hoy to Kent. Pearson planned an extension at the Tower to accommodate his large family. The family spent the summer of 1821 at the enlarged home, bringing maids and bedding down by Hoy as they did not own a carriage. The local copperas industry was by now finished, larger deposits having been found in Yorkshire. Charles Pearson now embarked on a new venture “The Canterbury and Whitstable Railway” to link Canterbury traders with the Harbour. A company was formed with Pearson as one of the owners and main investor together with notable pioneers of the railway age, including George Stephenson. The railway was planned to end on land Pearson owned to the east of the harbour where he built a station, but there was opposition to this and the line finished at the harbour instead. Pearson, always eager not to miss an opportunity turned his station into a hotel. This became the first “Pearson’s Arms”. The building of the railway ran into delays and financial difficulties.

Charles Pearson died in 1828, two years before the railway opened. His son Charles Pearson Junior, born in 1786, inherited the estate and carried on using the house as a summer residence .He married Eliza, daughter of the wealthy Lord Delaware, in 1810. The Tower fell into neglect and he sold it to his cousin by marriage Wynn Ellis.

WYNN ELLIS (1835-1875)
Of all the various owners Wynn Ellis had the most significant impact and made the greatest contribution towards shaping the building and its grounds. Wynn Ellis was married to Mary Maria Pearson, a great niece of the elder Charles Pearson. Ellis was well educated, and had made his fortune in the silk business in London. He became well known as the Liberal MP for Hertford, a magistrate and public figure. His friend and greatest rival in Parliament was Robert Peel who became Prime Minister. Perhaps less praiseworthy was his double life, for while his wife remained in Hatfield or their London home, he also had a mistress, Susan Lloyd, for whom in 1836 he purchased what was by now known as Tankerton Tower. Susan Lloyd had a son about this time, who later became the Rev Arthur Graystone. She also had a daughter, Susan Alinda Lloyd. Wynn Ellis repaired the building, removed the ivy and laid foundations for a new West wing and Bell Tower furthest from the original tower. This was finished in 1840; by 1842 he had built North Lodge which stood where the front car park is and South Lodge which still exists behind the present toilet block. Another lodge was built at the main gateway, and this is now home to the Castle Preschool. The estate, including fields, cottages, gravel pits and beach extended from Bennells Avenue to Oxford Street at the other end of Whitstable. In the Grounds which extended down to the shore, there were stables, summerhouses, an ice house, vegetable and flower gardens as well as tennis and sports facilities.

Wynn Ellis bought several more properties for Susan Lloyd, so she was not always resident at Tankerton, leaving a housekeeper there. In 1850, Ellis leased the Pearson’s Arms for use as a Coastguard Station, purchased more land in the area and added a conservatory to the Tower. Wynn Ellis stayed at Tankerton Tower each summer and led a full social life. The Regatta was transferred to Tankerton Beach by his special permission and he entertained his titled friends, He retired in 1871, and his wife Mary Pearson died in 1872, leaving no children. Her remains were brought down from Hatfield to Whitstable. In 1873 Ellis demolished the Pearson’s Arms and built the Almshouses in memory of his wife setting up a charitable trust, which exists to this day.His pride and joy was an  art collection at his Cadogan Square home. It contained works by Old Masters such as Canaletto, Raphael, Rubens and Rembrandt, along with best of contemporary art.Wynn Ellis died in London in November 1875. His body was brought to Whitstable by special train and met by notable people in the area including the Vicar, the Rev H Maugham. The funeral cortege was impressive, all the shops closed and the Rev Arthur Graystone helped to conduct the service. He was laid to rest in the imposing mausoleum built on land he had given to All Saints Church. This can still be seen on the south-west side of the churchyard.

THE WYNN ELLIS LEGACY YEARS (1875-1890)
The Tankerton Estate was bequeathed to Susan Alinda Lloyd, his daughter by his mistress; she became the Lady of the Manor and held an annual Manorial Court until her death in 1884. The Ellis estate then passed to the Rev Graystone, who lived in Lancaster Gate. Large bequests were made to charity, the modern pictures were auctioned by Christie’s and the “Old Masters” left to the National Gallery, subject to being shown in special rooms. They accepted the best, but some pictures were found to be skilful copies.

The Rev Graystone died at the age of 50 in 1886, leaving a fortune of £4 million. He left two sons and the estate passed to the elder, Sydney Wynn Graystone. In 1890 he moved to Devon and the estate was sold on his behalf for £22,000 to a solicitor, Mr E Newton Robinson.

THE DISASTER YEARS (1890-1920)
Realising the potential of the developing resort of Tankerton, Mr E Newton Robinson formed a company called the Tankerton Bay Estate. A road was built through the grounds and building plots sold. However, the company soon ran into financial difficulties and the Tower and grounds were mortgaged. For several years the Tower was rented out. In 1897 Tankerton Castle, as it was now known, was sold to Thomas Adams. He added a billiard room to the North of the original tower. This provided a good room with feature fireplace on the ground floor with servants’ quarters upstairs but obstructed the fine sea views of Whitstable Bay. Later this became the Council Chamber. Following his death in 1902 his widow remarried and remained there until 1920.

THE MALLANDAIN ERA (1920-1935)
In 1921 the Castle passed into the hands of Mr Albert Mallandain. A paper manufacturer, he and his wife used it as a summer residence. Changes were made in the building, with a fine new staircase and extensive additional oak panelling to match original designs. The Mallandains owned a Rolls Royce, but he often walked to the station in the morning.

Kate Anderson was a parlour maid at the Castle, having joined the staff in 1924. She described life at the elegantly furnished home as hard work, with one half-day off per week and wages of £2 per month. There were many stairs to run up and down, work started at 5.30am, and  finished very late. A grandfather clock stood in the hallway, and the drawing room had a log fire which highlighted the tapestries on the panelling. The Mallandain’s bedroom was at the top of the Tower and this was where they would often be served breakfast. Kate had many happy memories of her time at the Castle and met her husband there. He was an ‘under gardener’.

Paddy Walker, who started as a gardener at the age of 19, had a busy life supplying fresh vegetables and fruit and tending the exotic plants in the conservatory. All this ended when the Mallandains retired to their home in Surrey.

WHITSTABLE COUNCIL OFFICES (1935-1975) 
The Whitstable Urban District Council, despite some some opposition, bought the Castle for the town in 1935 for £10,000. Paddy Walker lived over the Gate House and remained to look after the gardens. Many changes were made to the property. Concerts and dances were held on the site of the tennis courts. The bowling green was opened in 1936 and the gardens opened to the public in 1948. Paddy was interviewed by Richard Dimbleby, on the roof of the Tower, when the famous radio programme “Down Your Way” was broadcast from Whitstable.

CASTLE CENTRE ASSOCIATION (1975-2008)
Following the local government re-organisation in 1972, the Castle remained empty until 1975 when at the instigation of The Whitstable Society the “Castle Centre Association” was created with the aim of using The Castle for the benefit of the people of Whitstable. The Committee & Trustees were responsible for the interior decoration, furniture and ran the Castle successfully with no assistance from Canterbury City Council, which as landlord maintained the exterior of the building. In 2004 a new committee with its first Castle Co-ordinator began a complete interior upgrade and secured KCC ‘Approved Venue’ status for Weddings and Civil Ceremonies. This brought in much needed income to regenerate the Castle and enable it to return to its original role as a venue for family celebrations, major local events and community activities.  A heritage Lottery Grant enabled a new Trust to be formed in 2008 to take over the running of the Castle and Gardens.

http://whitstablecastle.co.uk/history

 

A Diary Of A Mesowarrior Living With #Mesothelioma through #Asbestos. A Day in London to see the Mary Seacole Statue

When we set off for London yesterday we never knew just how great the day was going to be.

We arrived at St Thomas’s Hospital early so we looked around the Florence Nightingale museum

Just as we came out Ray was voicmailing to see where Eman and Trevor was they came around the corner.

We went back to the area to see the Mary Seacole State that I should have attended the unveiling off but was in treatment that day so I sadly missed it. Now I don’t mind as I had a personal guided tour and every part of the statue was explained to us.

It is inscribed with words written in 1857 by The Times’ Crimean War correspondent, Sir William Howard Russell: “I trust that England will not forget one who nursed her sick, who sought out her wounded to aid and succour them, and who performed the last offices for some of her illustrious dead.”

I was enthralled at how large it was and how much detail it held.

She carries a bag of medical equipment and medicines and her cloak flows out the back as she strides through the battle field. The wheel is showing the earth beneath her feet and The sculpture has included actual earth in the material from the Crimea war site  which I thought was a wonderful thought.

Mary Seacole was an intrepid, determined, dynamic figure, always on the go, either physically in terms of endless journeying locally or between continents, or intellectually in terms of her efforts to find remedies forthe sick.
The sculpture represents her marching defiantly forward into an oncoming wind, as if confronting head-on some of the personal resistance she had constantly to battle. She strides forward, carrying her bag of medicine and poultices towards the scene of battle. Though she would normally have worn a bonnet or straw hat and liked to sport ribbons and bright colours, these have been pared away to leave her marching bareheaded into
the fray.
Behind the figure of Mary stands a vertical bronze disc, which I would cast from the earth at the site where she established the British Hotel in the Crimea.
The disc works symbolically in a number of ways. Not only does its startling verticality and comparative blankness communicate to the viewer that this is clearly a sculpture from our own time rather than a mere pastiche of 19th century statuary, it also works to put Mary Seacole in the context of her time and place. Her autobiography communicates a powerful sense of place, whether in the Panamanian jungle or the flyblown heat of the Crimean summer
. Literally I wish to bring that place to viewers of the sculpture. The disc can also
be seen as a model of the earth, over whose surface she constantly travelled, during a period when pioneering travel was in the ascendancy. As a tiny fragment of a foreign land it also hints at the pathetic nature of the dusty scraps of earth over which, in an imperial age, so much blood was spilt. I also want to use the disc to point up the essential emotional narrative of Mary Seacole’s life. In a key passage in her autobiography she
describes waiting in the hallway of the Secretary at War to be accepted as an official member of the nursing team being sent to the Crimea. When she realises that she has been stonewalled solely on account of her ethnic origin, she communicates a personal pain that can be shared by anyone who has ever been rejected  merely for who they are rather than for any lack of merit.
This stonewalling, which is at the heart of the racial intolerance experienced by Mary Seacole 150 years ago and indeed of all racial intolerance, is something which finds physical form in the monument. Confronting a stone wall, Mary turns her back and marches defiantly towards her destiny and into history.
LIGHTING
The shadow of the figure of Mary will be thrown onto the disc during hours of darkness. The shadow will loom
larger than her as will the shadow of anyone standing on the plinth with her. Not only does this shadow visually bind the two parts of the sculpture, the figure to the disc, it also allows us to say something symbolically about heroism of the kind that Mary Seacole displayed – of how the example set by her and by people like her creates a valuable mythology that looms larger than the individuals themselves and goes to the heart of why we make monuments. By projecting our own shadows onto her background we momentarily share her heroic space, with all that implies for our potential achievements.

The statue was created by sculptor Martin Jennings and stands opposite the Houses of Parliament in the grounds of St Thomas’ Hospital. The Money raised for the Staue also include the gardens and walkways so it has really made the whole area so nice for people to visit.

LOCATION
Both the figure and the disc are to be cast in bronze. The 4.5m diameter disc will be patinated a paler colour  than the figure in order to enhance the shadow thrown by the illumination of the figure. The plinth will be of Cumbrian black slate laid on a raised concrete core. Cumbrian slate has in the past proven to be the most
hard-wearing of indigenous stones that are also suitable for fine lettering. The lettering will be inscribed in the slate. The slate will be bordered by Portland stone around its edge. At 3m high the figure will be taller than other London statues of nurses – of Florence Nightingale in Lower Regent Street and Edith Cavell in StMartin’s Place, both of which are around 2.6m high. The need for the Seacole statue to be fully visible from Westminster Bridge and to hold its own with the Gabo fountain requires that this greater scale be employed.
Martin Jennings
MATERIALS
Disc Bronze with a grey patina Figure Bronze with a black patina
Plinth Cumbian black slate set in Portland Stone
WEIGHTS
Disc Weight 1,000kg
Figur
e W
eight 0.400kg
Slate Weight 1,173kg
Portland Stone Weight 2,816kg

‘The term “the black Florence Nightingale” seems to me to be demeaning’ … sculptor Martin Jennings.

The Sculpture Martin Jennings Has explained about the controversy around the Statue

One would usually expect a statue like this, says Jennings, “to have its funds raised within two years”. But it has been a seven-year slog. Her cause was not helped by a small but vocal campaign against the project, by self-appointed protectors of Florence Nightingale’s legacy. Meanwhile, Michael Gove fuelled further doubt about Seacole’s place in history, when he attempted to remove her from the national curriculum in 2013. Some quarters of the media egged him on, calling her presence in history books political correctness gone mad. In the end, Gove relented, reportedly after pressure from Nick Clegg, and a petition with 35,000 names.

“Mary Seacole is an unsung heroine,” says Baroness Amos, director of the School of Oriental and African Studies and a member of the committee that selected Jennings. “A Jamaican businesswoman, traveller and healer who wanted to go to Crimea to help treat the wounded and save lives, but was refused by the authorities. Rather than accept defeat, she went independently using her own money.”

https://www.theguardian.com/artanddesign/2016/jun/21/sculptor-defends-his-mary-seacole-statue-if-she-was-white-would-there-be-this-resistance 

Seacole as depicted in Punch in 1857.

Seacole as depicted in Punch in 1857. Photograph: Alamy

We finally moved away and walked around to the London Eye

Standing underneath made us feel so small.

We found a lovely cocktail bar and I was so pleased to sit down where we chatted about everything and as always we laughed so much.

It was sad to say goodbye but we found our way back over Westminster Bridge and was so pleased we had our sticks with us. They really do help to walk about and travel on the underground to Victoria to our train home. I was so pleased to see the car sitting in the carpark awaiting our return.

What a wonderful day it had been. Thankyou so much Chair of the Mary Seacole Trust Trevor Sterling for a great time xx

A Diary Of A Mesowarrior Living With #Mesothelioma Camping At Quex Again And a new fight-Theresa May has called for The deletion of Companies public records. Bad news for #Asbestos Claims

We have just had a real chill out weekend. Back to Quex Park on Friday.

We have never done this before, camping at the same place for  3 weekends in a row but it really has charged our batteries for the winter months.

Ray is so relaxed as well.

Meeting up with like-minded friends and seeing some that we havent seen for such a long time was just great. The field is huge and everyone was doing just what they wanted. many going into Margate on the bus to Dreamland or just walking to Birchington. We got to the Barn to the farm shop where all the healthy food is. Fresh local potatoes,cherries, milk, bread and pork and beef that was our meals taken care of.

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Louis is spoilt for space in the fields and had a lot of running chasing the balls.

The sun shone and the cars kept coming in as it is a real attraction to sightseerers

QUEX ADVENTURE GOLF  is brand new for 2016. Quex Activity Centre has expanded and is now introducing a beautifully landscaped Adventure Golf area to Quex Park.
The exciting 18-hole course, is made up of ponds, streams, bridges and waterfalls, and with mini replicas of the iconic features of Quex Park including the Gun Tower, Waterloo tower and Victorian steps. The idyllic surroundings will capture the imagination of children and adults alike.
Quex Adventure Golf is now open and we invite you to embark on a golfing adventure like no other.

Such a pretty setting.

We really didn’t move around too much and just sat and chatted in the sun as it beamed down all weekend

The farmer came in for a chat and he said the harvest was now completed and ahead of planned time. He is harvesting the potatoes now.

So now we are back home and the washing is done the M/H is clean inside so we have to give it a good wash outside. Ray is going to do the roof which we do once a year.

Louis is booked for his hair to be cut on Tuesday which was late really as he has had a thick coat all through the warm weather. He will be pleased to get it off I should think.

Rays blog https://mesoandme.wordpress.com/2016/08/07/sunday-151/?fb_action_ids=1164967180190764&fb_action_types=news.publishes

Our fight for the removal of asbestos from Schools is ongoing but now we have the bad news that Theresa May has called for The deletion of Companies public records. This is so damaging to future Mesowarriors trying to prove cases when suing for damages.

It has also been pointed out to me this will affect many, Not just but all disease & other respiratory conditions & workplace 

I then had many replies and realise everyone is on the case so once again we have another fight on our hands. Thank goodness people are not going to be walked over. I wish they would leave us Mesowarriors alone. The Governments did such a huge wrong all those years ago and now we have a Asbestos problem of a huge magnitude and a Mesothelioma Epidemic that is costing so much more than they ever thought possible or just didn’t want to stand up to it -A Case of not in my term of office.

https://www.theguardian.com/business/2016/aug/03/tom-watson-urges-pm-to-drop-plan-to-delete-companies-house-records?CMP=twt_gu

Proposals by Companies House to delete more than 2.5m public records and destroy the virtual history of defunct business would damage the fight against corruption, Tom Watson has said in a letter to the prime minister.

The deputy Labour leader has written to Theresa May following reports that the corporate registration agency is planning to erase vast amounts of public data, claiming the move would make a mockery of her pledge to tackle corporate irresponsibility and hinder businesses, journalists and the police in their efforts.

The government agency maintains a database on all UK-incorporated firms, listing their accounts and all directors and shareholders. But proposals are being considered to reduce the amount of time the records of dissolved companies are retained – from 20 years to six – raising fears it will hamper investigations into white-collar criminals and money laundering.
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On Wednesday, Watson added his voice to those who have already expressed concern. “You have said that you want to tackle corporate irresponsibility, reform capitalism ‘so that it works for everyone rather than for a privileged few’,” he wrote.

“This proposal from Companies House would only serve to protect criminals who seek to hide their past corporate misdeeds from public view. It would harm the global fight against corruption and tax avoidance. It would also be an attack on the right of the public, the police and journalists to scrutinise corporate wrongdoing. Perhaps more importantly, it would prohibit legitimate companies carrying out due diligence on people they are considering doing business with.”

Police investigators, the National Crime Agency, the Serious Fraud Office, lawyers, journalists and bank compliance teams all make extensive use of the data, often searching for dissolved companies and their directors.

In June last year, the previously paid-for information was made available free to the general public, leading to a surge in the number of searches. Companies House said this led to complaints that retaining and providing access to long-dissolved firms is inconsistent with data protection law. It says the source of the complaints were members of the public, but there have been reports suggesting some MPs have also been protesting.
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Watson wrote: “It seems inconceivable for a government that claims it wants to be the most transparent in the world to place such a damaging restriction on these rights … It has been reported that MPs have lobbied Companies House to reduce the length of time this records have to be held. I would like to know which MPs have been demanding these changes, and what their reasons are for doing so.”

Searches for information on Companies House’s website are running at 2m a day. Data protection law does not specify a time limit for records to be kept, but business people linked to dissolved companies have been citing the legislation when arguing for a shorter retention period.

The Tax Justice Network and the Opencorporates group are among those who have previously criticised the proposals which, if put in place today, would have prevented access to information on Dominic Chappell, the director who was running the BHS department store chain when it collapsed and who has been declared bankrupt three times.

Watson said: “I have written to Theresa May to seek assurance that this proposal from the Cameron and Osborne era will not see the light of day.”

 

A Diary Of A Mesowarrior Living With #Mesothelioma – Can we do more to take #Asbestos out of our Schools

I was researching about Asbestos in Schools and was reading the rules. I do hope School teachers and Head teachers are reading the info and keep up to date. Its their lives that are at risk as well as our children and grand children. It is all great rules and regulations for the management of Asbestos, but the thought that our children hit walls in a gym, with balls and kick and bang doors, it is frightening to know they are surrounded by Asbestos.
More than 220 school teachers have died from mesothelioma (a cancer that is almost exclusively caused by exposure to asbestos) in the past ten years With 86 per cent of UK schools containing asbestos, experts fear that hundreds of staff and former students could be dying from mesothelioma because of exposure to asbestos fibres while at school.. An unknown number of cleaners, administrative staff, caretakers, cooks and dinner ladies have also died. The number of children who have been killed by exposure to asbestos at school is unknown, but in the US it was estimated that for every one teacher who dies, nine former pupils will die in adulthood from their exposure as a child., In the UK that would mean that more than 100 people are dying every year as a result of asbestos exposure when they were at school.

Primary school teacher Sue Stephens passed away on June 26. She had long believed that she contracted the cancer as a result of exposure to asbestos during her 30-year career in education.

The petition has been launched by Mrs Stephens’ daughter Lucie and is calling for the complete removal of asbestos from schools by 2028. It was launched last week – coinciding with the annual Action Mesothelioma Day on July 1 – and has already amassed more than 6,069 signatures.

Current government policy is for asbestos to be regularly inspected and managed in situ rather than being removed. However, campaigners on the Joint Union Asbestos Committee (JUAC) say that much asbestos in schools is now old and deteriorating, increasing the risk that staff and pupils will be exposed to fibres or dust from damaged asbestos-containing materials, which when inhaled can cause mesothelioma.

More than 220 teachers in England died of mesothelioma between 2003 and 2012. This includes 17 in 2013 and 22 in 2012 these figures are rising.

Figures for school support staff are harder to establish. A key problem is that the long latency period before mesothelioma develops means that it is often difficult to pinpoint exactly when sufferers were exposed.

However, in 2013, the Education Select Committee heard evidence estimating that between 40 and 60 people a year could be dying as a result of asbestos exposure in schools. It is difficult to know how many children might have been affected, but studies in the US have estimated that for every one teacher who dies from mesothelioma, nine former pupils will die in adulthood from their exposure as a child.

The petition’s call for asbestos removal echoes recommendations made by the All-Party Parliamentary Group on Occupational Safety and Health in 2012, which found that much asbestos in schools is badly maintained. The petition is also calling for a duty to be placed on schools to produce an annual asbestos report for parents and staff. This policy is already in place in America.

The petition states: “The government must introduce and implement a policy for the phased removal of all asbestos from schools to be completed by 2028, starting with the most dangerous asbestos. MPs recommended this in 2012 but no action has been taken.

“Parents have been kept in the dark about asbestos risks for too long. We want every school in the UK to have to produce an annual report about the type and condition of any asbestos on the premises and share this with all parents and staff. Every child’s potential exposure to asbestos at school must be recorded and shared with parents.”

Please sign the Petition https://you.38degrees.org.uk/petitions/protect-our-children-and-teachers-from-asbestos-exposure-in-schools

Sue-Stephens-and-family

Have we moved on from BBC’s Inside Out 2012

The Asbestos report for schools says :-

Main points
Your school buildings may contain asbestos if any part of them was built before 2000. It
is extremely important that any asbestos present in your school is managed properly. If
you do not follow the steps set out in this advice, you may put the future health of your
staff and pupils at risk.
You could also face prosecution, by failing to comply with
the Control of Asbestos Regulations 2012
.Also more advice.
You should take the following steps to manage the asbestos in your school:
1. Have a ‘management survey’ of asbestos-containing materials
(ACMs)in your school
2. Assess the risks associated with ACM
s in your school
3. Devise a plan for managing asbestos in your school
4. Make sure staff and visitors know the risks and precautions they need to take
5. Keep the management of
asbestos in your school under review
If you need to undertake any refurbishment work in a building that contains asbestos you
may need to commission a ‘refurbishment and demolition survey’ which will give you a
more detailed understanding of the asbestos present in the building.
If there is an incident of asbestos exposure at your school you should take the necessary
steps to ensure that everyone is safe and, unless the incident is very minor, you will need
to report it
to the Health and Safety Executive.
In summary, the CoC concluded:
Asbestos causes mesothelioma and other cancers;
The range of asbestos fibres in air will vary depending on the
environment, presence and condition of asbestos;
There is a lack of contemporary data on the levels of asbestos
found in schools and there would be benefit in collecting and
analysing new exposure data;
There is potential for children to be exposed to asbestos in their
homes where asbestos was used in its construction or
maintenance. Maintenance activity can disturb asbestos and
increase exposure both
at home and at school;
There is evidence that exposure to asbestos in childhood can cause
mesothelioma in later life. The effect of increased life expectancy
and the long latency period is recognised with the lifetime risk of
developing mesothelioma predicted  to be about 3.5 times greater
for a child first exposed at age 5 compared to an adult first exposed
at age 25 and about 5 times greater when compared to an adult first
exposed at age 30.
Day-to-day management of asbestos in your school
Step 1: Conduct a management survey of asbestos
containing materials in your school
You will need to carry out an asbestos ‘management
survey’ to identify those ACMs in your school which may be disturbed in the course of routine maintenance or everyday activities.
You need to do this for all buildings constructed before 2000, including new
buildings with residual elements of pre-2000 buildings
. This survey must be comprehensive and systematic, establishing
the location, type and condition of ACMs.
The aim of the survey is to produce an asbestos register, which records
the location and condition of the asbestos in your building. It should be
conducted in accordance with HSE guidance and undertaken by a United Kingdom Accreditation Service (UKAS) accredited surveying organisation.
The survey will look in all accessible places including above the ceilings and in floor
ducting. This may require some minor intrusion into the fabric of the building and the
taking of samples to identify if materials contain asbestos.
However, to avoid the spread
of any asbestos fibres, disturbance should be kept to the minimum level necessary to
undertake the survey.
This means your management survey will only tell you about ACMs that are easily accessible.
It is only suitable for managing asbestos during the
normal occupation and use of your school.
If you undertake any building works in your school, you may
need a ‘refurbishment and demolition’ survey of the areas where the
work is to take place in order to identify the presence of less easily accessible asbestos
(see pages11-12)
.
Schools may find it helpful to arrange for the surveyor to meet with school staff, for
example the headteacher, to brief them on the survey once it is completed and advise
them on the risks presented by the materials and how they should be managed.
You can have these meetings included within the surveyor’s terms of appointment

A Diary of A Mesowarrior Living With #mesothelioma #asbestos -Back to Camping at Quiex Park

We have had a very relaxing weekend in the Motorhome with our camping friends. We returned to Quiex Park and had a great time. I dont have to worry about packing food as the farm shop has all we need to eat very healthy on our stay there.

Quex Barn Farmers Market & Restaurant

A really good butchers and a old fashioned butcher. Something that is lacking nowadays.

QUEX BARN are on a mission to bring fresh local produce to local people, as well as to the many welcome visitors to Kent. The butcher sells top quality free-range meat and eggs from our own livestock. The fishmonger boasts locally caught fish straight from the boat (as well as other varieties which are not so readily available on the Kent coast), while each day more delicious fruit and veg is delivered from local farmers. The fully licensed restaurant serves breakfast, lunch daily, and is open for dinner Friday and Saturday’s so come and have a relaxed evening in wonderful surroundings eating local food.

They do live up to their advert.

We sat in the field and the weather was perfect as the farmer toiled almost 24 hrs to get the harvest in. He was in a field by us and as he passed by the dust was thrown up and you could see it rolling in. It didn’t last long and the field is large so it didnt happen often.

Farming

Quex Park farms 1500 acres in house plus a further 1500 acres under contract agreements with other local farmers.

Our farming team consists of our Farm Director, Anthony Curwen, Working Farm Manager David Whitehead and just three farm workers.  The main enterprises are wheat & oilseed rape as well as a single suckling beef herd.

Wheat

The largest area in terms of crop is wheat. The predominant varieties grown are for bread wheat. This is sown in the autumn and harvested in August.

Oilseed Rape

Oilseed rape is grown for its vegetable oils.  The cold pressed varieties are high in oleic acids and are better for us than olive oils.  This crop is sown in August and harvested in July. Our Oilseed rape is used to produce the range of Kentish Oils, made by AMC Foods.

Cattle

All the cattle are of a local indigenous breed.  They are reared naturally in spacious surroundings.

As all the meat is sold through the Quex Barn and other local outlets, animal transport is kept to an absolute minimum ensuring that animal welfare standards are of the highest order.

These husbandry methods give the meat a superior flavour and texture.

School and Farmers’ groups are always welcome to look around the Estate and Farm.

http://www.quexpark.co.uk/quex-estate/farming.html

The farmer had his motorhome in with us as he worked until 1am so he crept in to sleep and then up again and out in the field before I was awake saturday.

He is a great guy and came in saturday to chat to us and tell us he is doing the potatoes next week. Last year where the corn was growing this year Ray and I gathered potatoes up after the machine had been through and we had some wonderful tasty ones to bring home. Hope to do the same this year.

Weddings at Quex

They do wedding Venus and a wedding took place on Saturday which meant the bells were pealing away such a great sound on a summers day.

http://www.quexpark.co.uk/weddings-at-quex/

Then Sunday there were vintage Rolls Royces all lined up outside the house.

We stayed to share a birthday cake with Kathy and her family and then travelled home. We are getting back in the stride of camping again roll on the weekend.

https://www.mesotheliomahelp.org/2016/07/mavis-nye-completes-life-saving-clinical-trial-leaves-mesothelioma-behind-88896/

Nancy has blogged about my Trial

Mavis Nye Completes Life-Saving Clinical Trial, Leaves Mesothelioma Behind

Author:

Label: Uncategorized


Mavis and Ray

When MesotheliomaHelp first introduced Mavis Nye of England to our readers in 2013, she had been fighting mesothelioma for four years. At that time, she was deep in the throes of the battle of her life and was relentless in her search for a clinical trial that could extend her life. She was nearly resigned to the fact that mesothelioma would lead to her demise, saying, if not for mesothelioma, “I could have lived to 99 like my mother did.”

Now, three years later, Mavis not only found that clinical trial, but she has also completed it. And her doctors have declared her free of the cancer she calls “Mr. Nasty.”

In June, Mavis completed the MK3475-28  two-year clinical trial at the Royal Marsden Hospital in London. Mavis received the immunotherapy drug pembrolizumab, known as Keytruda in the U.S., that saved former President Jimmy Carter’s life and is taking the cancer community by storm. Her 99th birthday is more of a reality now than a dream!

“It has been a rollercoaster ride, as I’m the only person in the U.K. to be able to say I’m in remission.” Mavis told MesotheliomaHelp.” Ray [Mavis’s husband of 56 years] treats me as if I was a bit of fine porcelain. Everyone is just letting me do all I want to, and I’m getting stronger each week.”

Mavis has shocked the medical community, the mesothelioma community, her family, and herself by not only surviving, but defeating mesothelioma. Over the years, Mavis had continued to stamp out the asbestos-caused cancer every time it reared its ugly head. But after too many failed rounds of chemotherapy, Mavis had to fight with every breath she had to get into the clinical trial.

“I know what it’s like to chase trials,” Mavis said in a June 5 Facebook post when advocating for another rare disease sufferer to get access to an unapproved medicine. “I have found one and had complete response.”

Mavis Nye

“I would be dead by now if I hadn’t found the Keytruda trial.”

Fall-Back Plan

Even with all the celebration of the good news, Mavis, her family, and her doctors know that mesothelioma could creep back at any time. The medical community is still not willing to say mesothelioma can be cured, and Mavis continues to echo that sentiment.

Mavis proudly states that she is in remission, but “I say that with my fingers crossed.”

“My family has the same reservations as me, as my son said, ‘Mum, I have buried you three times. I can’t believe you are back with us!’ ”

If things do go wrong, as Mavis puts it, and her mesothelioma recurs, she will be eligible for 10 more infusions of Keytruda.

“I pray it doesn’t return,” says Mavis, “and that my immune system can get its memory and know when a cancer cell is trying to get back, it will zap it.”

Mavis Offers Pointers to Mesothelioma Warriors for Clinical Trials

Mesothelioma research is at an all-time high, and patients are needed in all of the clinical trials to ensure the next effective treatment reaches others quickly. Mavis knows that the MK3475-28 clinical trial has given her her life back, and she has been very vocal about pushing for the drug for all mesothelioma warriors, or at least opening more trials up to those suffering from the cancer.

In a speech he gave on May 3 at the International Mesothelioma Interest Group Conference in Birmingham, U.K., Ray describes his wife’s condition and the stress on both of them prior to being accepted into the trial:

“MORE agonizing weeks passing in which I could only sit and watch her condition deteriorating fast. She was by now in a bad place. Unable to walk, supported by a walking frame and sticks, constantly falling over.”

 

The trial that Mavis participated in was not without struggles either. Every two weeks for two years, she and Ray were up and out the door at about 5 a.m., facing a long drive to the hospital, a long day at the hospital, and then another long drive back home. Mavis also faced several health issues along the way and spent some time in the hospital as she recovered.

In the long run, neither of them would have passed up this opportunity for anything.

“Now we hope to live the rest of our lives in happy cancer-free days,” Ray says.

Mavis gives the following tips for anyone interested in participating in a mesothelioma clinical trial:

  • Newly diagnosed warriors should undergo their initial treatments, including chemotherapy, and give the drugs time to “hit it back” and give you time to find the appropriate trial.
  • Be wary of participating in a placebo trial where you may have no hopes of benefitting from the drug.
  • Once accepted into a trial, Mavis says, “Believe it is going to work!” A positive attitude can go a long way.
  • Be prepared for a long day each time you go in for your trial care. “Take plenty of magazines for each visit, as it is a long day waiting for blood results and then the drug.”
  • “Wear comfortable clothes.”
  • Eat “just what you fancy,” but also make sure to eat plenty of fruit and drink plenty of fruit juices.

Conserving Her Energy to Continue the Fight

There’s a metaphor called the “spoon theory” that is often used to explain how an illness or disease reduces the amount of energy a patient has. A person uses spoons when energy is expended and gets a spoon back when they are feeling recharged. The idea is that a patient must conserve spoons.

“I have been to a place 2 years ago where all my spoons were taken away, now I’m being given them back one by one,” Mavis says in her June 3 blog. “I’m so happy, and I will use them wisely, I promise. I have so much work to do as the battle for Asbestos Awareness is not over, and I have now to battle for more research into Mesothelioma and get drugs through to Mesowarriors so that they can have their spoons given back.”

To find out more about the trial Mavis participated in, see “Clinical Trial Frees Mavis Nye of Mesothelioma.”

For technical information about the trial, visit ClinicalTrials.gov.

Watch this space for a follow-up blog about Keytruda.

Follow Mavis and Ray online:
OneStop Mesothelioma – Contains information and resources about mesothelioma and asbestos
Living with Mesothelioma – Mavis’s Diary
Ray’s Blog
Meso Warrior – Mavis’s book available on Amazon.com

About the Author – 

Nancy is a blog and content writer with more than 20 years of professional experience. Nancy has been writing about mesothelioma and cancer for close to eight years.