A Diary of a #Mesowarrior – Canterbury P&R and the Pantomime #Mesothelioma #Asbestos

Peter-Pan_web-2000x1000

Today was the day of the Pantomime but first we had to go to Margate Hospital for Ray to see his Surgeon and to get is back Op signed off.

We were in and out of there in a few moments but the poor Doctor had the flu and told Ray not to get to near to him. He had 25 Patients to see and was worried he wasn’t going to get through the day. You don’t expect you Doc to get ill.

Anyway he was pleased with Ray and has signed him off but to come back if he has any problems with it.

We carried on into  Canterbury through long traffic jams as the many shoppers poured into the city.

Parking in the Park and Ride at new Dover Road I had promised my fellow motohomers on face book some photos of the motorhome parking overflow. So many park here on their way to or from France as they travel onto Spain.

new dover road 11

Screen Shot 2018-01-13 at 23.01.47

Although this is a car park it is used as an overflow as few cars use park here.

https://www.campercontact.com/en/united-kingdom/south-east-england/canterbury/9897/motorhome-parking-new-dover-road-park.aspx?fromsso=1 

We caught the bus into the city, did some shopping and had lunch before meeting up with our friends from the Camping and Caravan Club at the Marlow Theatre

marlow

Screen Shot 2018-01-13 at 23.02.08

We were here to see Peter Pan, starring Shaun Williamson (EastEnders and Extras), Wendi Peters (Coronation Street), children’s favourites Gemma Hunt (CBeebies’ Swashbuckle), David Ribi (Channel 5’s Milkshake) and Samantha Dorrance (CBeebies’ The Tale Of Mr Tumble). The show  also featured the hilarious Marlowe favourites Ben Roddy and Lloyd Hollett.
Once again, the show was written and directed by Paul Hendy and brought to us by Evolution, the same creative team behind last year’s award-winning show, Dick Whittington (which was seen by over 95,000 people!). With lots of audience participation and spectacular special effects, this promised to be the biggest and
funniest pantomime ever.

I laughed all the way through It was the best pantomime I have ever seen. I even cried because I thought Tinkerbell had been killed. I was glad it was dark in the theatre. In fact I got very emotional with the fact I was still here and was able to enjoy the whole experience.

We then travelled back to the park and ride for a meal together at the Old Gate Inn. It was great to have a good chat and we will soon be able to get out into a field somewhere and spend weekends camping again.

Screen Shot 2018-01-13 at 23.02.46

Reflections

Screen Shot 2018-01-13 at 23.03.04

jenny

A Target to be able to see next years Pantomime -Its Cinderella https://marlowetheatre.com/shows/cinderella-2/

Advertisements

A Diary Of A #Mesowarrior – #Mesothelioma #Asbestos – Scan Result day at the Royal Marsden.

scan delay

It was that time of scanexity on Monday.

I was great going and then it was me looking like a pin cushion as the nurse couldn’t find the vein.

I have only got one usable vein in the crook of my arm. It has taken all the blood tests and chemo and all the contrast die for scans.

It has a valve and some nurses miss it some don’t, this one didn’t. So into a bowl of hot water went my arms. Another try didnt find anything so another nurse came in and put it into the only vein again and it worked. I did bleed away as if the vein was laughing at us. It was stopped as I pressed down with lint rolled up.

Then I started to get wound right up. A scan can change your whole life. Its the difference between life being good and life being more treatment to kill Mr Nasty. I prayed he had risen off the ground again. We have knocked him to floor and that’s where he has to stay. PLEASE!!!

The scan was soon done and off we had come home.

That was a good trip.

my news storis

Today was so different. Scanexity was enough but with so much traffic going into Maidstone  we slowed right down.

We did get to the Royal Marsden in the end.

We were there at 10am for a 11.30am appointment. I knew we would have a long wait for bloods to be taken. Then when we reached the very busy waiting room the hours began to slip away. I was talking to a man who said the NHS want us all to die ? there he is having Chemo to live so how he came up with that statement I really don’t know.

He must have been watching Logan’s Run.

A poor lady was waiting such a long time and I could see she was uncomfortable. I remember those Chemo times very well, trying to sit there waiting and just wanting to go back to bed.

12.35 We finally got called in.

A lovely new Doctor came into the room and said straight away that it was a good result. The are so thrilled and excited that this is the case after 384 days of no treatment. She said it really gives all the staff hope. So we had a talk about all I’m getting up to pay the NHS back for saving my life.

Off she went back to her office to find my blood results. This is why I like being on a trial everything comes through so fast.

My kidney function is down but that has been up and down right through all this.

As you know I only have one and that was damaged at 45 when I went into Renal Failure and they built me a new Urethra.

She has advised I drink more and flush it through.

She also explained that there are scarrings and odd things left from the Mesothelioma. They just do not want to put needles in to look at what is left as they just do not want to disturb anything. I have already been told this at the time of the end of the trial but it asumed there is no Mesothelioma in my body. This will only be proved with time when at 5 years they can say Im in remission. 10 Years Im cured. So we wait and see.

That was it we were out in about 10 minutes.

On our way home through some road works we hit the M25 and a long traffic jam that came to a standstill at the M25 turn off.

We heard that the problem was an accident ahead.

Gradually we slowly proceeded on the journey and travelled past 6 cars all smashed in different ways. They had to clean oil off the road before we could travel through

.10am and arived home at accident

We left at 8.10am and we got home at 3pm for 10 minutes But !! it was good news so who cares.

We were very pleased to get home and a coffee made after taking the dog for a walk.

So that is it for another 3 months. This is why I live 3 months at a time.

 

 

A Diary Of A Mesowarrior- #Mesothelioma #asbestos. My LASAG Support Meeting Today Talk about Kent Carer’s

Screen Shot 2018-01-09 at 18.04.38

Today we went to Canterbury to our LASAG support meeting. It was great to see many people as it is January and cold but they all braved the weather and came alone.

Everyone chatted away together until the Speaker arrived from Kent Carers Support Group.

A Carer is someone who, without payment provides help and support to a relative, friend or neighbour, who could not manage without their help due to physical or mental illness, addiction or disability. Becoming a Carer can happen to anyone at any time and affects people from all cultures and of all ages

A Carer is someone who, without payment, provides help and support to a relative, friend or neighbour, who could not manage without their help due to physical or mental illness, addiction or disability. Becoming a Carer can happen to anyone at any time and affects people from all cultures and of any age”

When people need help with their day-to-day living they often turn to their family and friends. Looking after each other is something that we do.

There are 151777 Unpaid Carers’ in Kent alone.

Across the UK there are almost 7 million people providing unpaid care for an ill, frail or disabled family member or friend.

Carers may help with personal things like getting someone washed and dressed, turning them in their sleep, helping them move about or administering their medication. Carers also help with things like shopping, laundry, cleaning, cooking, filling in forms or managing money.
Although called Carers, they would probably say “I’m just being a husband, a wife, a mum, a dad, a son, a daughter, a friend or a good neighbour.”
Carers provide practical and emotional support to those living with Physical Disability or Illness, Dementia, Learning Disability, Autism, Mental Illness, Sensory Impairment or who are affected by Substance Misuse. Many Carers support Older People who are frail and need support with day to day living. Children living with a disability may be supported by a Parent Carer.

https://www.carers-supportcdt.org.uk/

It was a good talk but when it was finished I was so surprised at the answer to the question of where could children get help. Seems they only cover from 16 years of age, That is very worrying as little children do look after their parents and also need help. It was suggested to seek help at the hospice which really isnt the right place to take children but it s better than nothing and they will know what to do.

I have found this link https://www.nhs.uk/conditions/social-care-and-support/young-carers-rights/? 

Everyone was so engrossed and listening

Screen Shot 2018-01-09 at 18.05.08

Screen Shot 2018-01-09 at 18.04.53

Screen Shot 2018-01-09 at 18.05.22

Selfie !!!

The next meeting is on the Feb 12th

logo LASAG

http://www.lasag.org/ 

Support Groups
East London/Essex
Toby Carvery Moby Dick, Whalebone Lane North, Dagenham RM6 6QU at 11 am – 1 pm.
Held on the last Thursday of every month
For further details please contact Yvonne Miah at yvonne.lasag@gmail.com/07917 194454
Kent
A.R.C.A Hall (Ashford Road Community Association), 151 Ashford Road, Thanington Without, Canterbury CT1 3XR 2 pm – 4 pm.
Held on the second Tuesday of every month
For further details, please contact Marika Townsend at marika.lasag@gmail.com/07880 201751 or
Alison Blake at alison.lasag@gmail.com/07585337230

A Diary Of a Mesowarrior Living With #Mesothelioma #Asbestos –Wonderful News of a #Mesowarrior and Nano-Bots Im getting very scientific

The Biggest even for me this week was the publication of the story of a Mesowarrior Danielle Smalley

It was great to share her wonderful news. Our Youngest Mesowarrior at last I have been with her right through this wonderful young Woman’s Journey egging her on to get well again and she has made it.

I picked her story up from the papers some time back and made contact with her. I just couldn’t understand why a 23 year old had mesothelioma showing so early.

She doesn’t really know where the asbestos was whether it was in her school or her home.

 

 

 

 

 

 

 

 

It was wonderful when she got through the Operation for Peritoneal and then see her move into her own house We are so proud of our wonderful Meswarrior. Please take time and read her story she is amazing.

http://www.dailymail.co.uk/health/article-5234379/Woman-cancer-caused-asbestos-gets-clear.html

 

 

 

 

 

 

 

 

I received a message from a young man that has taken me into studying Nanobots. Gosh I do get involved in many weird things. Nontubes has come into my world as reports are published about the next wave of Asbestos like substances and I had been told how golf balls burst and nanotubes are inside as well as tennis rackets etc .

Mrs. Nye I am trying to contact and connect with experts in the field of Nanotechnology & Nanomedicine to discuss the feasibility of using nano technology to help in the removal of asbestos fibres and silica particles from the body.

How do you feel about such an endeavour as this?

You are such an inspiration and a hero to so many.

Well it so happened I’m in touch with Brunel Uni as you know from my asbestos pictures from my visit there so I contacted and from that I was able to write a article on LinkedIn.

 

 

 

 

 

 

The feasibility of using nano technology to help in the removal of asbestos fibres and silica particles from the body.

I had a great conversation with a young man yesterday that had me thinking as he had a theory and you know my mind is always searching. He asked me – Nanotubes be used to target asbestos fibres and silica particles in lungs and in theory could they potentially latch on to fibres and guided them to the faeces to be excreted out of the body or gather in a location to be removed in a biopsy like procedure with the fibres and particles attached or inside them that would be an incredible achievement.
They have used this to remove tumours from Mice could they pick up fibres in a persons body. Would it be safe. Would they go berserk and damage in the brain. ???
https://nano-magazine.com/news/2017/11/24/biodegradable-nanobots-could-help-treat-cancer
I contacted my friends in the Brunel Uni and the wonderful reply came back:- I have just had this answer —
Hi Mavis, The idea is interesting, but the practicalities are very complicated… but hopefully the below will explain a bit more.
Nanotubes
Firstly, when I read the subject header of nanotubes I seen a red-flag, because nanotubes (specifically carbon nano-tubes) are theorised to be the next asbestos. This is because they have a similar physical properties to asbestos, i.e. have a high aspect ratio, are resistant to chemical attack and remain within the body. This following article quite nicely summarises the current thinking of asbestos versus carbon nanotubes https://www.mrc.ac.uk/news/browse/carbon-nanotubes-may-pose-cancer-risk-similar-to-asbestos-and-we-think-we-know-how/. The scientific community is yet to say definitively that carbon nano-tubes are hazardous, but the evidence is mounting up against them.
Nano-bots
Personally I’m not a fan of the word nano-bots, because it invokes images of science fiction and Isaac Asimov’s Fantastic Voyage. I believe a better terminology would be Smart Treatments etc., because the bots aren’t miniaturised mechanoids, rather algae that have a magnetic coating that is used to direct them to a specific area of the body, but it is the terminology that they used so I’ll do the same…To simply answer your questions:
1. the only way the nanobots could be used to remove fibres is if there is a mechanism to localise them towards the fibres. However therein lies the problem because the nanobots within the article are developed using magnetised algae and asbestos fibres are neither bio-reactive or magnetic, so you couldn’t use magnetism or a biological process to draw the bots to the fibres. Beyond these specific nano-bots, when talking about micro-sized asbestos fibres, in order to direct anything against them, a physical reaction is required to localise the nano-bots to the fibres. Given the inert nature of asbestos fibres, this would be difficult to do.
2. However, the nano-bots could be used to treat mesothelioma (and other cancers) and is very much up-to-date with the current research regarding cancer treatment, i.e. developing a way to specifically target a cancerous growth and leave the healthy tissue (more on that later).
3. The nanobots shouldn’t have the potential to get into the brain and cause damage there. However, being an algae, a single celled micro-organism commonly found within ponds, they would be seen as an infection by the immune system, similar to a bacteria or viruses. Therefore for them to be safe, they must be compatible with the human immune system so as not to be seen as an infection (I won’t go into detail now about this as it will send me off on a tangent).
Engineering nano-bots/smart treatments to treat cancers
Currently many anticancer treatments are drugs which stop or limit cell division or metabolic processes (reactions that occur within all cells to sustain the life of the cell) and the drugs work because cancer cells have a metabolic rate which it higher than the normal cells around them. However, many anticancer drugs are administered systemically (to the whole body), resulting in the anticancer drug travelling around the body, and since the drug is non-selective it will affect the metabolic processes that are happening within normal cells. Problems arise when the anticancer drug reaches areas of the body where you have normal cells that also have a high level of metabolic activity, e.g. hair follicles, kidneys and liver, resulting in them being affected by the anticancer drug and causing many of the side-effects of the treatments. Hence, the current concept behind anti-cancer research is to localise a drug/therapeutic only to areas where there are cancerous cells and then release the therapeutic onto the cancer, thus reducing the effect on healthy tissues and potential for side effects.
Within the article that you sent, the nano-bots are guided to the cancer using magnets; I’m unsure of how because I couldn’t find the original article to check. Nonetheless, if the nano-bots can be pre-loaded with an anticancer drug/therapeutic then when the bots are degraded the drug/therapeutic will be released at the site of the cancer. The drawback of this article is that it is only a proof of concert study, hence it is very early stage research. To bring such a concept to a realistic treatment will take decades of more research because, for example:
1. By using an algae to deliver the drug, you are effectively introducing an infection into the body, which would most likely invoke and immune reaction
2. The study was performed on mice (unfortunately animal testing is a necessary evil of modern medicine), which are relatively small organisms, but how would the bots by directed within a larger organism such as a human
3. Would the algae/magnets have any secondary bi-products which could be harmful? etc. etc.
The use of nano-bots, or smart therapies is quite a way off, with many studies being in the proof of concept stage. However, the use of directed treatments, an example could be the immune-therapy that was used to treat your mesothelioma are closer to being available clinically and are going to become more prevalent in the coming future.
I hope this is helpful!
WOW!!! Absolutely Fascinating Dr. Ashley Howkins PhD, BSc. (Hons.) Senior Scientific Officer (Electron Microscopy)
Experimental Techniques Centre
Brunel University London, Uxbridge, UB8 3PH, United Kingdom
www.brunel.ac.uk 

Jason added

It will be interesting if the scientists in China can develop the biodegradable kinds They are working on.

Most of the Nano medicine research has been conducted on mice and rats at this point.

I do hope that the day comes when the technology exists to remove asbestos and silica from the lungs.

Nano medicine seemed like the best possible solution to the issue.

You have my permission to use my name publicly for the theory too. I seem to be the first one to suggest this approach or at least get the conversation started.

I came to this idea after getting emotional about the various firefighters and other first responders and volunteers who unknowingly inhale asbestos or silica on the job and never know about it till diagnosis.

Within the next decade this could potentially be a game changer in the treatment of asbestosis, mesothelioma and silicosis. If the nanobots could guide them to the faeces to be excreted out naturally or gather in a location to be removed in a biopsy like procedure with the fibres and particles attached or inside them that would be an incredible achievement.

 

 

 

 

 

This really is science fiction stuff to me but I’m really fired up on the research that can happen now and wouldn’t it be great

A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos –A look back on 2017 so much exciting News And now the Orange Fox Bikes have joined team Mavis !!

2018 happy New year

I wish everyone a very Happy  New Year as I look back on 2017

So much has happened the biggest being the Launch of the Mavis Nye Foundation which I cover in Photos later on in this blog.

 

 

 

Then today to celebrate 2017 going out I have just had this wonderful Announcement put on my Face Book  By Mark Goodwill.

Happy New Year Peeps! Hope it’s a good one! 2017 has been much easier for us and I’m genuinely really buzzing for 2018. Lots planned but one of the most exciting is deciding to support a charity this coming year – The Mavis Nye Foundation. A lot of my friends will know

 

 

 

 

 

 

 

Nigel Shaddick who was diagnosed with mesothelioma cancer towards the end of 2016, more on mesothelioma and the Foundation in a later post. Nigel, a very handy endurance athlete always was an inspiration to me and many, many others and is an indisputable all round top guy. But since diagnosis he has been incredible and a fantastic ambassador to the Mavis Nye Foundation. I think the fact Nigel completed the Welsh Iron Man, one of the toughest Iron Mans in the series, with at least one lung completely non functional, just weeks before diagnosis about sums up Nigel’s tremendous courage and determination, which has continued throughout his treatment. So, how am I going to raise money this year….. To be frank, I think this charity is worthy of support any way, but I’m looking to get back into my endurance sport and aim to run 2000km and cycle 3000km in 2018. Including a few challenges (bike and running) and perhaps an Ultra marathon or two…. Not big numbers for many of you but for me who has done very little for four years and is now 20kg overweight along with the day to day it will be a challenge and anyway targets are meant for beating….
Have a look at the link and please please please it would be BRILLIANT if YOU also felt able to join me raising money for the Mavis Nye Foundation in 2018…. two heads are better than one 😉
It’s on FB – that’s me committed!!
Wishing you all a very happy, healthy and fun 2018

http://www.orangefoxbikes.co.uk/about-us/

I already have some riders in the Prudential 100 Mile I will have to get round this wonderful group to join in the Race.

 

 

 

 

 

 

 

Before I go any Further I would like to thank everyone that came to the Launch and made it such a great Event. In just coming you gave me so much backing and I will remember that evening with love although 2018. The money raised the fun and laughter and even the tears. I loved every minute Thankyou xxxx

So lets look back on 2017

It started with me having a very bad cold and cough. As I had a Scan and collected the results

I went in and got my blood’s done and the Ray joined me for the Doctors appointment.
Still in remission. At 208 days after last Keytruda
We all laughed. but she said please take life easy and rest as the bug hasn’t done any damage at all, your scan is very clear now.
She listened to my lungs and to my heart and is so happy with me.
I went up to Oak ward to meet my friend and his wife (I can’t mention names as they haven’t said anything on F/B yet. But a dear friend, I sat with them until they went in to get scan results and they were in there so long. Ray paced back and forth as I sat and talked to the last man standing on the 128 trial, he has had a great result of 80% and has many months still to go.
When the Mesowarrior finally came out it was to tell me he was off the trial. It was a sad moment but immediately they are talking about what the next step is and where to find the next trial. I love such positive people.
I keep waiting for them to tell the warriors but they are in shock really they just wanted Keytruda to work. I said to Our Doc yesterday they really have to find out why I have such good news and they don’t he just held my arm and squeezed it and then the Mesowarior involved. It was a very emotional moment x

So please to say the Mesowarrior is still doing well and has just had another good Christmas

alan

Here he is disguised as Father Christmas he played the part very well.

pantomime

The Motorhome all loaded up we set off Saturday to the Park and Ride at Canterbury where we met all our friends in the Camping and Caravan Club as they arrived or already there to travel down to the City to see the Pantomime. UK’s most popular TV stars, Stephen Mulhern and Marlowe favourites, Ben Roddy and Lloyd Hollett.
The theatre is lovely as it is very new and we admired it as we sat and had a coffee.
When it was time to go in we really enjoyed the whole show. The 3 D show they put on was so great as things shot out at you.
A 3D scene – glasses are provided – works brilliantly and has young and old alike squealing with delight – once again reminding us that 3D continues to work as a visually stimulating treat in any environment when the experience of the audience and it’s ability to intrude in their space, is put as its very raison d’etre.
Stephen Mulhern (Billy) – returning to the theatre after a gap of a few years where previously he was in a supporting role – is now the lead man and it’s hard to do anything but warm to him. He’s charismatic and disarming and some of his illusions will have you mesmerised. Lisa Davina Phillip (Fairy Bow-Bells) is worthy of praise for her high-flying role too.

book 11

A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos. The Book Is Launched What a lovely Christmas Belated Christmas Present. The postman came and a parcel was there on the floor. Ray has been saying a present, he has been waiting for to give to me hadn’t arrived over Christmas, and this was it.
He disappeared and came back with a present, as it was wrapped in Christmas paper.
I opened it and was shocked to find a book with our picture on.
He has been beavering away on the computer daily, but that is normal, so I haven’t taken any notice. Turns out he has been writing my story of the last two years of my trial. Using my blog as a guide he completed it finally sent it off for publishing and it was accepted.
2 Years on a Keytruda Drugs Trial. Fighting mesothelioma an Asbestos related Terminal cancer.
This means we have a trilogy as 3 books are published and have covered the 7 years of my journey.
I was so happy with it and I have to sit down and read it now Well done Ray and thank you for all the hard work as I know how hard it is to have a book published. Every paragraph and spelling must be right. No easy task
http://rayandmave.weebly.com/maviss-book.html
We have a collection of books written and published now with all the money going to Mesothelioma UK, as I support them and all the work they do
http://rayandmave.weebly.com/more-info-our-books.htmlhttp://rayandmave.weebly.com/more-info-our-books.html

doris

Feb saw a visit from Storm Doris that caused damage and sadly piles of asbestos boarding laying around. we must sort that problem out.

school descks

Asbestos in Schools is back in the news with a Gov Report out.
Seems that at last they realise just how bad the situation is and we will have to wait to see what happens now.
Asbestos in schools is a “serious” problem which could threaten the health of children, a Government report has found, as it concluded that thousands of schools are failing to follow safety guidelines.
One fifth of schools which responded to an official survey were found to be “not fully compliant” with asbestos procedures, leaving over a million children potentially exposed to dangerous fibres.
Of those, over 100 schools were deemed a “significant cause for concern” and required government intervention. The Department for Education (DfE) said it emailed those schools and received “reassurances” the asbestos is now safe.

hse

We had the latest Mesothelioma Figures from HSE They were not good The latest information from HSE shows:
There were 2,515 mesothelioma deaths in Great Britain in 2014, a similar number
to
the 2,556 deaths in 2013, and 2,549 deaths in 2012.
The latest projections suggest that there will continue to be around 2,500 deaths per year for the rest of this current decade before annual numbers begin to decline.
The continuing increase in annual mesothelioma deaths in recent years has been driven mainly by deaths among those aged 75 and above.
In 2014 there were 2,101 male deaths and 414 female deaths.
There were 2,130 new cases of mesothelioma assessed for Industrial Injuries Disablement Benefit (IIDB) in 2015 compared with 2,215 in 2014.
Men who worked in the building industry when asbestos was used extensively.

fly tip 42017 seem to me to be Fly Tip year so many health fears.

ASBESTOS is dumped in layby by careless fly-tippers so causing a risk of mesothelioma.

fly tip one mile

This one a mile long has shocked everyone. It cost a fortune to clear up. We have got to do something about this.

Then we came across this skip opposite our local shop skip

Not only is the skip not sealed but the fact is the men that stripped all this out were not protected. Yes That is Asbestos webbing as well.  It is so frustrating.

Ray and I flew to Ireland for the BTOG Conference we didnt see much of Dublin but it was a great Conference.

IMG_20170322_133644

Cure Meso Conference in US

A wonderful Charity Night In Norfolk followed the next day a conference meeting of Norfolk Support Group.

A Asbestos in schools meet.

A thank you for all the Donations including The Royal Pigeon Racing Association to the MNF

pidge

We have had so many donations at the MNF from the Asbestos world like the Face Fitting team of men I’m so involved with and then all the Law firms and Mesowarriors who have all backed the Foundation beyond my expectations. The Launch Night Raised £10K plus and this has gone up since with Donations still rolling in. But one that totally surprised me was this week a Donation of £1000 from the Pigeon world through a lovely Mesowarrior Rita Frances.

It’s funny because as a child the man, a few doors down, owned Pigeon’s and I used to go and watch, as he let them out of the pens and they all flew off together and circled around. They came home and sat on the roof before finally returning to their pens for the night.

Well The neighbour gave me 2 and dad spent a day making a cage for me to them in.. I let them out for a fly and of course they met up with their friends and went home–well they are homing pigeons, but try telling an eight year old that her new friends don’t want to exchange owners. Its funny what memories come back. Thankyou so much Rita and your lovely Pigeon friends.

The history of this lovely club :-

flight

On the 28th March 1896 there was a meeting of ‘pigeon keepers’ at the White Swan, Call Lane, Leeds for the purpose of forming a Homing Union and this led to the formation of what was then called the National Homing Union. Although this meeting took place in 1896, the first Annual General Meeting of the Union was held on 27th February 1897 at The Spread Eagle Hotel, Manchester. The title ‘Royal’ was not added until much later but, even in the early days of the Union, there was a close affinity with the Royal family.
Both the Prince of Wales and Duke of York maintained teams of racing pigeons at Sandringham and raced them successfully in both local and national events and this continued when the Duke of York became King. The family tradition is maintained by our present monarch, Queen Elizabeth II and the Royal Lofts are now well established at Sandringham under the supervision of a loft manager, where a number of respectable racing performances have been recorded.
In many respects the sport has changed dramatically from the early days but in some areas there has been little advancement. Timing clocks, designed at the turn of the century, are still in use in many clubs, whilst other members use modern, electronic and Quartz regulated timers. It is a credit to our administrators that our rules have evolved so that the pensioner with a 1920’s Toulet clock can compete on equal terms with the modern fancier having the latest in computer based technology.
The first pigeon races were conducted over relatively short distances using motor transport but serious, long distance racing was made possible by use of the railway system. This allowed for cheap and effective transport of birds to the racepoint and led to the establishment of the type of racing that we enjoy today. It was only when the Beeching ‘axe’ fell on the railway system that an alternative had to be found and the modern road transporter became the norm for race transport. Whether this was an actual improvement or not is open to debate and there are many who would love to revert to the former system. Unfortunately, cost and practicalities make this impossible. There have been occasions where the tentative use of air transport has been broached but, at the present time, the cost is proving too great for general usage.

http://www.rpra.org/show-of-the-year-2017-gala-evening/

A Diary Of A Mesowarrior Living With #Mesothelioma #asbestos -December News letter

xmas17December has been a wonderful month to end the year on. I will look  back on the year on Jan 1st but for now I would like to recap on December.

So much Media and of course the launch of Mavisnye Foundation.

dinner 2

An Unusual Speech for me and so near to tears so many times but I did it xx
https://www.youtube.com/watch?time_continue=1&v=03Tm2dqBsOY

dinner 9

The evening came to an end so quickly I have such wonderful memories so many people had been so kind and Donated so much to make the evening so successful
There is one person that totally made my night. I know everyone there was so dear to my heart and had lived my story with me but Paul Robinson from MSD just had to have a special mention as he has been the MK3475 -28 Trial representative for me. Merck and Keytruda have saved my life and made the Mavis Nye Foundation possible

https://rayandmave.wordpress.com/2017/12/11/a-diary-of-a-mesowarrior-living-with-mesothelioma-asbestos-the-mavi-nye-foundation-has-been-launched-oh-what-a-wonderful-night-it-was/

Loft Christmas room

A timely reminder about the dangers in the loft This Time of year we go into our loft to find our Christmas Decorations. We put ourselves into danger as your home has a 50% chance of harbouring asbestos if built before 2000 which could be lethal if disturbed.
https://www.linkedin.com/pulse/timely-reminder-dangers-loft-mavis-nye-bcah/?published=t 

IMG_20171121_165133_preview

There have been so many write ups But Laurie wrote this piece to remind me of my House Of Commons Success.

http://ibasecretariat.org/lka-blog.php#a136
As if by a fortuitous alignment of the planets, between November 21 and 28, 2017, the actions of a British campaigner, a Brazilian engineer, a Colombian Senator, an Australian physician and an Indian school teacher highlighted multiple facets of the global struggle for asbestos justice at places as diverse as the British Parliament, universities in Rio de Janeiro and Bogota, a monastery in the West Australian capital of Perth and a United Nations hearing in Geneva.
On Tuesday November 21, 2017, Mavis Nye, who was diagnosed with mesothelioma in 2009 and is in recovery following treatment with the immunotherapy drug Keytruda, attended a meeting of the Parliamentary Asbestos Sub-Group at the House of Commons.1 During the discussions, Mavis drew attention to the discrepancy which now exists between civil court verdicts mandating that defendants cover costs for non-NHS funded treatments such as those she herself benefited from and awards made under the Diffuse Mesothelioma Payment Scheme (DMPS)2 which only provide a one-off lump sum payment to eligible claimants. For a person diagnosed in her late sixties, as Mavis herself was, the amount paid by the DMPS would be around £168,000, enough to pay for about two years of immunotherapy treatment, were the entire award applied to that purpose.3
As a result of Mavis’ intervention on November 21, enquiries are being made into the feasibility of amending provisions of the DMPS to address this discrepancy. Next month (December 2017), Mavis and her husband Ray are launching the Mavis Nye Foundation “to provide a hardship fund and support and financial grants to aid newly diagnosed victims of mesothelioma in the UK.”4 In an interview, Mavis said: “I was so lucky and believe I was saved from this dreadful disease for a purpose. I hope that the new foundation will enable me to help those still suffering.”
Trevor D Sterling
Partner – Moore Blatch Solicitors ;Chair Mary Seacole Trust ;Chair Mavis; Nye Foundation & Deputy Chair Headway SW London
‪Listen to the inspirational Mavis Nye who explains on Radio 4’s Today Programme how she fought back against #asbestos cancer (Mesothelioma ) and now inspires others. https://lnkd.in/gZYHQ8Z
Pls support https://lnkd.in/g5cGC4Q
as we endeavour to support asbestos sufferers, healthcare professionals & researchers.

brown field

Big Benefits to Brownfield Properties from GEI’s Green Coatings Encasement

December 4, 2017 One of the people I have great respect for is Mavis Nye, the founder of Mavis Nye Foundation. She does wonderful work with her foundation and speaking engagements. With boundless energy, she has a strong commitment to educate others on the dangers of asbestos exposure. She is also a tireless advocate for Mesothelioma patients and works with associated support groups.

Mavis recently asked me, “Would GLOBAL Encasement, Inc.’s green coatings be of benefit on Brownfield properties?”

My answer: YES! Absolutely. GLOBAL Encasement, Inc.’s (GEI) Green Coatings Encasement has a worldwide proven track record for this and continues to be of benefit to all buildings, especially environmentally distressed ones.
https://valqrs.wixsite.com/encasementguyblog/single-post/2017/12/04/Big-Benefits-to-Brownfield-Properties-from-GEI’s-Green-Coatings-Encasement

logo-60-year

This was a very unexpected write up but such a great Council very honoured.

Record breaker
Mavis Nye is the first person in the UK to beat mesothelioma. Belinda Liversedge speaks to her about her new charity and work on raising awareness of asbestos.
Belinda Liversedge meets a mesothelioma survivor who wants us to wake up to asbestos risks

“My talk went down better than I could ever possibly hope. People were so amazed not only at my mesothelioma story but the pictures I showed them of mistakes that are being made in the industry. We discussed with so many how we could change all that.”
Mavis Nye, 75, is a mould breaker. After six years of gruelling treatment for mesothelioma she has come out, miraculously, a survivor. Indeed, she is the first person in the UK to be declared free of mesothelioma thanks to a new type of immunotherapy treatment.
Her story means that mesothelioma need not be a death sentence. But, at the speech she gave at the launch of a new faculty for asbestos professionals from BOHS (the Chartered Society for Worker Health Protection) held in October, it was clear she also blazes a trail as a campaigner against complacency when it comes to asbestos.
https://www.britsafe.org/publications/safety-management-magazine/safety-management-magazine/2017/record-breaker/

cigaretts

I cant believe this one ekkk A smuggler brought in 750,000 cigarettes inside rolls of paper stuffed with #asbestos David Cant CMIOSH on Twitter
https://twitter.com/davidgcant/status/937318146368856065/photo/1

ships 5

India pledges to ratify IMO’s convention on recycling of ships
“To make the ship recycling industry safe for its workers and the environment, draft legislation to implement the Hong Kong Convention (HKC) is now undergoing pre-legislative consultations; I am confident that we will ratify this convention in the not-too-distant future,” Gadkari told delegates at the 30th Assembly Session of the IMO in London on Tuesday
http://www.thehindubusinessline.com/economy/logistics/india-pledges-to-ratify-imos-convention-on-recycling-of-ships/article9976847.ece

court 1

High Court judgment due in asbestos document disclosure case
Court to decide whether historic documents on what was known about the effects of asbestos should be made public
1 December 2017
The High Court will hand down its judgment at 1530 on Tuesday December 5th in the legal fight by asbestos campaigners to force Cape Distribution and other subsidiaries to make public, documents which had previously been provided to the Court following a claim for exposure to the deadly material, asbestos.

The Asbestos Victims Support Group Forum, represented by Harminder Bains, partner in the industrial disease team at Leigh Day, took the case to the High Court for the documents to be disclosed following a legal dispute between Cape and Concept 70 Limited.
High Court judgment due in asbestos document disclosure case

High Court judgment due in asbestos document disclosure case
London, Manchester & Liverpool injury & rights lawyers, phone 020 7650 1200 or 0161 393 3530

ken-takahashi-pix-274x240.jpg.pagespeed.ic.pKBdRgpMAA

Dr. Ken Takahashi and the Asbestos Diseases Research Institute in Australia are leading the charge for a compreh…Australian Group Leads Push for Global Ban of Asbestos
The Asbestos Diseases Research Institute (ADRI) in Australia has intensified its campaign for a worldwide ban on the use of asbestos.
ADRI is producing a special issue for the International Journal of Environmental Research and Public Health that includes the first scientific collaboration of so many global leaders aimed at banning asbestos.
Australian Group Leads Push for Global Ban of Asbestos

https://www.asbestos.com/news/2017/11/30/australian-group-leading-global-asbestos-ban/

brazill

Brazilian Supreme Court Bans Use of Asbestos in Brazil
By a vote of 7 to 2 on Wednesday (the 29th), the Brazilian Supreme Federal Court (STF) banned the production, commercialization and use of asbestos in Brazil. The substance is currently used in the production of roofing tiles and water tanks, but health organizations point to its risk of being a carcinogen.
Brazilian Supreme Court Bans Use of Asbestos in Brazil

http://www1.folha.uol.com.br/internacional/en/business/2017/11/1939473-brazilian-supreme-court-bans-use-of-asbestos-in-brazil.shtml