A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos Whoops caught in Road Rage today and Where do we get contaminated? that is the question

Today has been so hot The poor dog has been wrapped in a wet towel to cool him down. He still wanted his walk out so we went to the shops so I could pop in and get his chews and Ray wanted to stay with him walking him in the shade and on grass as the paths are so hot.

Oh dear a car on the round about tried to push us off the road. He was waving his arms around and another car behind us hooted his horn then passed us and the two cars were chasing one another. Thought no more about it until we got home and on the local group on Face Book there was a photo of the first car and a man was asking to look out for it.

Talking to the man I said I think we are the old folks in the car that was almost pushed off the road.

Bless him he had chased the car to tell him off but the driver was so rude.

What a hero I have been able to thank him anyway.

 

 

 

 

So many times we just don’t know where we were contaminated from Asbestos and I was reading this Blog today so would like to share

The professions most likely to result in a case of mesothelioma
Posted by Peter Olszewski on Tuesday, May 2, 2017 · Leave a Comment
There are a number of ways someone can be exposed to asbestos including, when at work, when working in the vicinity of others using asbestos, when laundering clothes covered in asbestos dust, when living in the vicinity of an asbestos producing factory and when working or living in a building containing asbestos to name but a few.
In this article the professions most likely to be exposed to be exposed to asbestos are discussed.
Laggers
Lagging has been mixed and applied for many years to pipes, boilers, structural steelwork and furnaces etc to provide a heat containing covering to the item.
The lagging applied can be made up of a number of different materials to include fibre glass, foam and asbestos.
It is when people are mixing up and applying asbestos lagging that they are at most risk of suffering from an asbestos related disease such as diffuse pleural thickening, asbestosis, asbestos induced lung cancer or mesothelioma.
The application of asbestos lagging involved laggers pouring large bags of asbestos lagging powder in to a drum of water and then mixing the water and paste together to form a thick insulating paste which was then applied to a surface. The pouring of the lagging powder in to the drum of water caused large plumes of asbestos dust to be emitted in to the working environment which would land all over the lagger. The mixing of the lagging powder and water caused further asbestos dust to be kicked up in to the air.
The application of the asbestos paste to items is also highly dangerous.
Asbestos could also be sprayed in to place in a wet form once mixed which was also highly dangerous due to the amount of asbestos fibres that were sprayed in the air and that came raining down on the worker.

Lagging is one of the most dangerous asbestos professions and laggers are at a high risk of suffering from mesothelioma.
Plumbers and fitters
Plumbers and fitters often encountered asbestos lagging on site when removing old asbestos lagging so the pipes or boiler underneath could be worked on or when applying asbestos to new installations.
The removal of old asbestos lagging usually involved the worker hacking the old asbestos lagging off using a variety of tools such as hacksaws, hammers, crow bars and even their bare hands. This asbestos removal work released millions of asbestos fibres in to the workplace which would land all over the worker and surrounding work surfaces.
The worker would then clean up after their asbestos removal works using tools such as dustpans, brushes, brooms and shovels.  This caused the asbestos dust to be kicked up in to the air again.

When applying new asbestos lagging the worker would either mix asbestos lagging as per the above, or use pre-mixed asbestos putty such as “monkey muck” to pack out asbestos glands.
Asbestos string was also cut and used to seal glands and joints.  The use of asbestos string also released dangerous asbestos fibres in to the environment.
Carpenters
Carpenters often came in to contact when working on installations containing asbestos or when installing asbestos products such as asbestos containing insulation board or “asbestolux”.

Many places contain asbestos board which has been installed as ceiling boards, wall boards and in asbestos containing fire doors. Asbestos was used due to its fire-retardant and acoustic properties.
Carpenters would meet this asbestos when carrying out rip-outs, modifications and repairs to older properties.
Carpenters would also meet asbestos when installing asbestos boards on site.
The carpenters would cut the asbestos boards using wood saws, pad saws and circular power saws. The asbestos boards then had there edges smoothed off using a plane. Holes were then drilled in to the boards to allow pipes to pass through them and for fixing purposes. All of these tasks released millions of asbestos fibres in to the working environment.
The carpenters would also have to clean up after themselves each day which caused further asbestos dust to be kicked up in to the air.
Boiler workers
Boiler workers would often meet asbestos lagging on old boilers they were working on, when applying asbestos lagging to new boilers and when using monkey muck and asbestos string to seal glands on boilers.

Boiler workers suffered high exposure to asbestos on a regular basis due to the fact that boilers and their associated pipework carry extremely high temperature water and steam in pipes which needed to be insulated to contain the heat and to protect people from burns.
Electricians
Electricians were also exposed to asbestos when working on sites installing electrical installations where asbestos lagging was present or being applied.
Electricians also often worked in enclosed loft spaces where loose fill asbestos insulation was in the loft for insulating purposes.
Many electricians also installed asbestos insulated cables on immersion heaters and on boilers.

Electricians would also use pad saws to cut holes in asbestos boards for socket and switch boxes to be mounted on to.
Asbestos is also an insulating material so asbestos board was often cut to shape and secured to walls for fuse boards to be fitted on top of to provide an insulation barrier between the fuse board and the wall.
The above jobs exposed electricians to millions of asbestos fibres on a regular basis.
School teachers
Many schools in Great Britain contain asbestos on lagged pipe work, in ceiling and wall boards, in fire doors and in other places such as cupboards where asbestos boards were used for shelving.
Teachers over time would be exposed to millions of asbestos fibres when slamming doors which caused asbestos fibres to be released from the doors, walls and ceilings, when pinning children’s work to asbestos walls using drawing pins, when leaning against asbestos pipes and when putting things on and taking things off of asbestos shelves.

There have been hundreds of cases of mesothelioma involving teachers.
Vehicle mechanics
Many mechanical items contained asbestos materials. Examples of asbestos containing materials include brake discs, clutch pads and insulating materials in the engine compartment to name but a few.

Mechanics were exposed to high levels of asbestos dust when blowing out asbestos dust from wheel arches with high pressured air lines when changing the asbestos brakes, when removing old asbestos brake pads, when grinding, drilling and chamfering asbestos brake pads to fit a vehicle and when working on asbestos containing clutches.
As mechanics often worked in contained spaces such as within a wheel arch there asbestos exposure was high.
Artexers and plasterers

Artex and plaster often had asbestos mixed in to it as a bonding agent. Artexers and plasteres would mix asbestos based arte up in the same way that asbestos lagging was mixed exposing them to copious amounts of asbestos dust.
Typically artex and plaster mix contained around 3% asbestos.
Roofers

Many roofers were exposed to asbestos when installing asbestos based roofing tiles or when cutting “Big 6” asbestos corrugated roofing sheets to size and then fitting them.
Asbestos tiles would need to be cut to shape and size using hack saws.
Asbestos corrugated sheeting would need to be cut to shape and size using power saws and then drilled for fixing purposes.

The cutting and drilling of asbestos roofing materials caused copious amounts of asbestos dust to be released in to the air, especially when circular saws were used.
Other professions
Many more professions were exposed to asbestos on a regular basis to include shipbuilders, shiprepairers, emergency service workers, members of the armed forces and construction workers to name but a few.
If you or someone you know has been affected by an asbestos related disease following exposure to asbestos in the workplace please contact us on 0800 884 0718 or email IDClaims@boyesturner.com.
– See more at:  https://www.industrialdiseaselawyers.co.uk/news/professions-mesothelioma/?platform=hootsuite#sthash.XSwYWeoH.dpuf 

A Diary Of A Mesowarrior Surviving #Mesothelioma #asbestos – Goodnight to Kirsty List our Youngest Mesowarrior UK. It is not an old mans disease Ban #asbestos from our schools Please !!!

kirsty 1

It has been a sad week for the Mesowarriors Uk as we have had to say goodnight to Kirsty who at 33 was diagnosed with Peritoneal Mesothelioma.

Why do they call it an old mans disease when so many younger people are being diagnosed.

I contacted Kirsty after she appeared in the newspaper.

http://swns.com/news/single-mum-becomes-one-of-the-youngest-to-be-diagnosed-with-asbestos-related-cancer-at-33-81621/

I gave her all I could about Peritoneal and even gave her the name of Doctor’s that could help her but she was so worried about leaving her daughter to travel to London for trials as she was a single Mum. But Mesowarriors have learnt it is the only way to get treatment we have to travel long journeys to find trials.

It is Kirsty that I had in mind when drawing together why I wanted to Raise a Mavis Nye Foundation I put in the hardship grant. I want Mesowarriors to be able to travel but realise we have commitments. Children at school, Aging parents to look after and even Dogs to walk.

I stayed with Kirsty and messaged her as she became weaker and  weaker. She asked for advice on what to do for Aimee that she would remember her by and we talked about a memory box. She bought one and started to fill it up with things.

Back in January I asked —

How are you do you feel better today

4 January 11:31

Morning Mavis. Not great unfortunately, think it’s safe to say that I’m having a bit of a crash. My chest and back are hurting and sleep wasn’t my friend last night. Not feeling good to be honest I don’t get fluid build up. Pain is mostly in my ribs/diaphragm and lower back. I don’t have regular scans any more, I’m purely on Paliative care now xx xx

But she fought on she began to lose weight and I gave her advice about eating little and often.

Being on her own she didn’t have the strength to cook so I said buy frozen meals then you can eat what you fancy when you come to eat. She emptied her freezer and filled it up with frozen meals bless her, But she found she could eat better but she lived on crumpets.

She wanted to know how she could raise more awareness and I said she was doing great as she was I the newspapers. Then Kirsty did her famous woman’s hour.

Kirsty: ‘Yes, Mummy’s dying’
Cherry Healey meets Kirsty to discuss single parenthood and illness and how being diagnosed with asbestos cancer has affected her family.
Release date:
26 March 2017
Duration:

http://www.bbc.co.uk/programmes/p04xw33v  

I spoke to Doctor’s and asked if they would see her and of course they wanted to help.

Then I stopped hearing from her and I saw she had gone into a Hospice and had become so weak. She was allowed to have her dear daughter with her that must have been really precious time spent together. You can’t imagine what was going through her mind knowing she must leave Aimee.

I kept in touch through Face Book  and that’s where I learnt she had died her battle was over.

Rest in peace you were a wonderful young lady and now you are an angel in heaven watching over your daughter –Aimee.

This is so sad and a reason why we must clear asbestos from our schools. Young Lungs are hurt to easy and Mesothelioma diagnosis is shorter. It’s not an old mans disease.

The story of a Young Mother with Mesothelioma.

Kirsty, who has a five-year-old daughter, Aimee, was diagnosed with mesothelioma – a cancer of the lining of the body’s organs – after she began feeling unwell in September 2015.
She was initially diagnosed with gallstones but doctors discovered a tumour around her gallbladder when they attempted to remove her gallbladder during surgery.
The 33-year-old has tried to keep her spirits high (Photo: Exeter Express & Echo)
Kirsty, of Exeter, Devon, told the Express & Echo : “It was only when they went to take out my gallbladder that they found a tumour around it.
“They left my gallbladder in and did a tumour biopsy.”
Six weeks later she was left stunned when doctors delivered the devastating news.
She said: “My consultants said I was suffering from mesothelioma. I was incredibly shocked because it’s something you hear in older people, not younger people. I didn’t know anything about asbestos disease.
“The problem for me is there is very little information to parallel me with anyone and work out any prognosis. Most people with asbestos are old and are men.”
Asbestos is a natural fibrous rock that was widely used within homes and other buildings until 1999.
Kirsty believes she was exposed to it either when she was a pupil at school in Reading or North Devon, or while working in pubs.
There are three types of asbestos-related lung disease and the type Kirsty has peritoneal mesothelioma which is cancer of the abdominal lining.

To treat the disease, Kirsty has tried five different types of chemotherapy but she says none worked to any great extent. She received her last course almost a year ago and had been on palliative care since.

Last December Kirsty was told she does not have long left to live.
She said: “It was a conversation I asked to have with my consultant and I felt ready to know.
“I said, ‘I don’t know if I will see next Christmas’, and my consultant said, ‘I think that’s about right’.”
Kirsty said her health has been gradually deteriorating since her diagnosis and even within the past two weeks she has noticed a difference.
She added: “It’s the pain and exhaustion that’s so hard to live with. I’m on quite a lot of pain medication and I feel tired all the time which makes it hard keeping up with my daughter, but luckily her dad, my ex-partner, is very involved in helping out.
“I walk with crutches now because I can’t walk very far without having to sit down.
“I do have a wheelchair but I’ve not braved using it yet. I have been on a mobility scooter in Exeter city centre but I felt like people were looking at me and wondering why I was using it at my age.

“At the age of 33 it’s kind of embarrassing. To look at me you would think there’s nothing wrong and it makes me feel like having a sign on my back saying, ‘I’m dying, leave me be!’.
“Knowing how you’re going to die and you’re just going to waste away is horrible. I will quite literally waste away. I have already gone from a size 16-18 to a size 8.”
Kirsty is focusing on keeping life as normal as possible for her daughter.
She said: “Aimee knows everything up and understands that I’m dying, and most of the time she is okay about it.
“There’s no hiding from the fact that she is likely to be six-years-old when I pass away.”
The mum has received a large amount of compensation from the government for having an asbestos-related illness. The money has been put into a trust fund for Aimee.
In the future Kirsty hopes more will be done to raise awareness about where asbestos is to help keep people safe, and not suffer like she and her family is.

She said: “I would not necessarily want asbestos to be taken out of all buildings as I know that would be incredibly impractical. But I would like to see it become part of everyone’s induction process when people start a new job.
“If asbestos is in a building everyone should be aware of where it is and how it should be treated to keep themselves and other people safe. It has to be a group effort.
“The asbestos register should also be overhauled to make sure reviews are ongoing.”

http://www.mirror.co.uk/news/uk-news/mum-dying-asbestos-related-disease-9763451

dragonflydragon fly candle

http://www.mesothelioma.uk.com/news-and-events/news-2017/first-national-mdt-for-peritoneal-mesothelioma/   

http://www.mavisnyefoundation.com/

mnf 1 ba again

GoodNight Kirsty I have kept my promise to you and raised awreness of your story !! xx RIP

A Diary Of A Mesowarrior Surviving #Mesothelioma #Asbestos Visiting ESS Safeforce Talking to the FaceFit Companies

I had an invitation to speak ESS Safeforce  and we set off for Welling in the motorhome as Daniel had said it would be great for us to park in the car park the night before instead of the camp site we were going to book into.

The Journey can be crazy on the M25 and M1 so we just couldn’t risk travelling up on the morning.

We arrived in good time and parked in the car park, all to the amusement of the Office girls. They were just a bit worried as there had been problems before about Travellers so we convinced them we were OK.

They all went home and we had a lovely quiet night and slept well apart from an occasional Juggernaut going off on their journey.

Louis loved all the walks he got.

Next morning we got up had breakfast, walked Louis and we were nice and fresh to start the day.

The welcome was just great and we all introduced ourselves and settled down to listen to each other.

IMG_20170608_092231

face-fit-testing.jpg

Daniel Hill Branch Manager Opened the day by giving us a history of the  Face Fit Testing Company’s success.

The ACOP recommends that the initial selection of tight-fitting face-pieces should include a fit test. This is to ensure that the selected respiratory protective equipment has the potential to provide adequate protection for the user.
WHAT IS FACE FIT TESTING?
It is a method for checking that a tight-fitting face piece matches the person’s facial features and seals adequately to the wearer’s face. It will also help to identify unsuitable face pieces which should not be used.
SPECIALIST SERVICE:
No other fit tester can quantitatively test all types of respirators – Gas Masks, Self-Contained Breathing Apparatus, Respirators and even Disposable Respirators. If the mask requires fit testing then our PortaCount Pro+ fit tester provides the fastest and easiest approved fit test method. Self-contained breathing apparatus users who rely on their positive pressure mask to keep them alive require a quantitative fit test.
ON-SITE FACE FIT TESTING SERVICE:
ESS Safeforce is able to carry out Face Fit Testing on-site. Our qualified respiratory support experts will ensure that the test is carried out correctly and a report is generated detailing the fit test results.

Lee Skone ESS Safeforce HSEQ Manager

Spoke about Face Testing in the eyes of the HSE

http://www.hse.gov.uk/respiratory-protective-equipment/fit-testing-basics.htm

This point came up time and time again

A note on facial hair
Many masks rely on a good seal against the face so that, when you breathe air in, it is drawn into the filter material where the air is cleaned. If there are any gaps around the edges of the mask, ‘dirty’ air will pass through these gaps and into your lungs. It is therefore very important that you put your mask on correctly and check for a good fit every time.
Facial hair – stubble and beards – make it impossible to get a good seal of the mask to the face.
If you are clean-shaven when wearing tight-fitting masks (ie those which rely on a good seal to the face), this will help prevent leakage of contaminated air around the edges of the mask and into your lungs. You will therefore be breathing in clean air, which will help you stay healthy.
If there are good reasons for having a beard (eg for religious reasons), alternative forms of RPE, that do not rely on a tight fit to the face, are available.

https://www.ess-safeforce.com/

Alan Murray spoke about Updates to BISF

The British Safety Industry Federation (BSIF) is the lead association for the Personal Protective Equipment (PPE) Directive and is recognised as a Competent Authority by the Health & Safety Executive (HSE). The BSIF has active links with many government departments and over 130 representative Trade Bodies.

Set up in 1994, the Federation currently has some 160 members, ranging from manufacturers and distributors of safety products through to test houses, certification bodies and safety professionals. Membership is accommodated within a number of sector trade associations.

Murray Chief executive Officer British Safety Industry FED

https://www.linkedin.com/company-beta/2331396/

Paul Chamberlain Of WE FIT RIPE FACE

FIT Tester and Trainer. We have been friends for a long time and I then met him at the Contamination EXPO Last Year and he demonstrated the machines to me.

Paul is very adamant that beards are a NO NO!! It breaks the seal and stubble damages the seal.

http://www.wefitrpe.co.uk/

We had a break for lunch where we had the best Bacon Rolls we have ever had well done !

I came next and I realised that it wasn’t the place to talk all the medical terms. They just want my story and I showed Slides of my journey through Chemo and then the wonder drug. I talked about the new trial that has given me world publicity alongside Dean Fennel.

I spoke about my involvement in demolition and all that dust that falls over the crowd.

Second hand masks and the dangers. Also different pictures of where they find Asbestos.

Also why I decided to have Mavis Nye Foundation and what I hope to achieve.

mnf 1 ba again

http://www.onestopmesothelioma.com/mavis-nye-foundation.html

Tristan Oliver of Lead Risk Management gave a great talk about Lead Dust

Once again its a danger to children in Schools

School repairs, maintenance and refurbishment are liable to generate ‘significant’ lead exposure risks for contractors, teaching staff and children where old and ‘buried’ lead-based paintwork is present.

In particular, children with special educational needs (SEND) must be considered to be a ‘super vulnerable’ at risk group. This is because their condition may already be partly due to pre-existing elevated blood lead levels.

Although there is no “safe” level of lead exposure there is no routine UK screening for child blood lead levels as part of SEND determination and statementing.

http://www.lipsa.org.uk/id41.html

Lynne Morgan  Spoke about the Breath Easy Campaign

homepage-header

Breathe Freely, a summary.

Background
Breathe Freely is a BOHS initiative, aimed at reducing occupational lung disease in the UK, which causes significant debilitating ill-health and an estimated 13,000 deaths per year.  Breathe Freely is about raising awareness both of the problem and how to do something about it: we can protect workers’ health and prevent most of these diseases and deaths. It is not just “the right thing to do”, it is good for business as well. And broad acceptance of this is part of the solution.
Occupational hygiene is the preventative side of occupational health: recognising the health hazards in the workplace, understanding the real risks these pose to workers’ health, and then controlling their exposures to them. It helps employers and employees to understand the health risks, and then improve working conditions and working practices through suitable, inexpensive, effective and practical exposure control measures.

The building blocks for good business
Finance – the benefits to the bottom line.
Employee relations – support, consultation, communication and training: look after your employees, and your employees will look after your business.
Social Responsibility – making a positive impact on society.
Reputation – a virtuous circle: linked to the other three building blocks and essential to long term success, the reputation of a business is built on reliability, trust, customer focus and leadership.
The business case for occupational health and hygiene is strong and convincing. It can bring a significant return on investment, improve employee relations, demonstrate social responsibility, and enhance a company’s reputation. But, it must also be central to the organisation’s vision and goals.  Here we corroborate the case: good occupational hygiene = good business.

Building occupational hygiene into the business case

http://www.breathefreely.org.uk/

Maxine Dolloway Direct Sales Specialist UK and Ireland Portacount 8018

Spoke about a new product coming out No other respirator fit tester can quantitatively fit test all types of respirators-gas masks, SCBAs, respirators, even N95, P1 and P2 disposable (filtering-facepiece) respirators. The PortaCount®   Pro+ Respirator Fit Tester 8038 eliminates the guesswork associated with tedious and error-prone qualitative fit test methods. If the mask requires fit testing, count on the PortaCount Pro+ Fit Tester to provide the fastest, easiest and best HSE (UK) and OSHA (US)-compliant fit test method.

http://www.tsi.com/portacount-respirator-fit-tester-8038/

Eugine Buchner Fenco Group gave a talk about his Vacuums.

VAC M240 21L M CLASS Vacuum Cleaner 1400W 240v

Product Code: VAC M 240
“V-TUF VAC M 240… a HSE (Health and Safety Executive) approved and required product in construction – full M CLASS CERTIFICATION” – the safe choice!
Please note: M CLASS filtration is the minimum requirment for construction and wood dust.
V-TUF VACM240 has a powerful 1400W TWIN TURBINE bypass suction 240 volt motor, a 21 Litre IMPACT resistant collection tank. The powerful suction along with the full H CLASS CERTIFICATION of the V-TUF VAC M240 gives you maximum dirt removal whilst saving lives from fatal dust inflicted diseases. Scroll down this page to view the VIDEO and see how you can sweep up with a V-TUF VAC M without creating dust.
HELPFUL LINK – Are you aware of the dust problem? View this link or download this helpful guidance from: http://v-tuf.com/beat-the-dust-2016-v-tuf-brochure

I loved these and could see that people with Allergies  would benefit from one of these and Eugine showed us a smaller one for well under £200 these have a place in the Home Market.

http://www.fencogroup.com/

Chris Pimlott Territory Manager Scott Safety Spoke about Scott Safety Product Preveiw

https://www.scottsafety.com/en/us/Pages/ProductHome.aspx?value=PRODUCTS 

Richard Bearsley Area Sales manager Alpha Solway

COMPREHENSIVE PROTECTION
Alpha Solway have been protecting workers since 1984. Our innovative range of disposable Respirators have been designed to overcome resistance to wearing RPE and are manufactured to provide an exceptional fit level as well as provide enhanced comfort.
Alpha Solway Respirators constantly outperform other brands when “Fit Tested”, this means greater protection against harmful dusts, mists, fibres, fumes and other particulate hazards.
The products form part of a comprehensive range of disposable RPE solutions that cater for the majority of applications and individuals regardless of their face size or shape.
We are extremely proud of the feedback we have received regarding the performance or our respirators.

We had to join in a demonstration and then we were allowed to bring a mask home which will be very handy when doing DIY.

http://www.alphasolway.com/respiratory

So Daniel bought the exciting day to a close and talked about doing it all again next year.

IMG_20170608_091111

We said our goodbyes and drove to our Son and DIL to stay over night. We drove Home today and came through some heavy rain although it has cheered up tonight.

 

A Diary Of A Mesowarrior Surviving #Mesothelioma #Asbestos — Sunday June 4th 2017 National Cancer Survivors Day


 

 

 

 

National Cancer Survivors Day is an annual Celebration of Life held in hundreds of communities nationwide and around the world.
In 2017, NCSD will be held on Sunday, June 4. On this day, thousands of people will gather to show the world that there is life after a cancer diagnosis – and it’s something to celebrate.

Cancer has touched so many people so many friends and family.

We live our lives scared of the big C. Then one day you are in a Oncologists Room in the hospital looking at the Computer screen being shown that dreaded scan that you don’t really understand what you’re looking at. You hear words Mesothelioma ? Palliative Care all alien words.

We come to terms that we are going to fight this monster, it isn’t going to get you. You become hard and very inward. No one saw me cry I never cried. I wasn’t going to be weak in the path of Mr Nasty.

We Mesowarriors don’t seem to see we are surviving Cancer but if we live longer than the prognosis we were first given with Palliative care, Chemo and Trials, then we truly are surviving. If only 1 day or many months we must enjoy today this day and hug our families. It’s a hard journey but we are strong together as we share the journey together.

Macmillan: Cancer rates show people are living longer
Growing worldwide cancer rates show people are living longer. The World Health Organisation predicts the number of cancer cases will rise from 14 million to 24 million a year by 2035.
Mike Hobday from the Macmillan Cancer Support said that the cause of the rise was “ironically… good news.”

Improving Your Prognosis
The general prognosis for someone diagnosed with pleural mesothelioma is often unfavourable. However, making informed decisions about treatment, lifestyle changes and overall health can improve survival and quality of life.
Prognosis and diagnosis often are confused. A prognosis is the likely outcome of a disease, like a forecast of how the disease will affect a person. A diagnosis is the medical classification of which disease a person has. A pleural mesothelioma prognosis usually is not favourable, but may vary depending on the stage of the cancer.
Diagnosing the cancer in the early stages offers a more hopeful outlook because doctors can still perform curative surgery to remove tumours.
People diagnosed with this type of asbestos-related cancer can improve their chances of survival. Many have lived well past their life expectancy by electing treatment and improving their overall health. That could include lifestyle changes, and following the advice of knowledgeable specialists and experts.

Immunotherapy is now playing a part in our survival and Mesowarriors have all played a huge part in where we are today with treatment.

So many brave people have signed up for trials, Cancer Research says :-  More than 25,000 cancer patients joined one of our clinical trials last year. so the medics have learnt so much and can improve year by year and one day they will find that cure.

So we remember all those that have passed and send a prayer to them in heaven and we hug those suffering today and welcome all new comers  that are lost we will share our knowledge of the disease.

So lets celebrate our lives on June the 4th we are still here and life is so precious so very precious. It is also a day to draw attention to the ongoing challenges of cancer survivorship in order to promote more resources, research, and survivor-friendly legislation to improve cancer survivors’ quality of life.

https://www.cancerresearchuk.org/home

Source https://www.pleuralmesothelioma.com/cancer/prognosis.php

A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos. — A Morning in the TV Studio

It has been a wonderful warm day today so great to have summer at last.

Of to  Medway Campus to video a speech for Brachers supports Action Mesothelioma Day 2017

doves

Action Mesothelioma Day 2017

​Key details

Date: Friday 7 July

Time: 11.30am – 4.15pm

Venue: Royal Dockyard Church, Chatham Dockyard, Chatham, Kent ME4 4ST

A Dove release in the presence of the Deputy Mayor of Medway will take place at 12 noon.

Followed by a Public Meeting to discuss:

  • Asbestos Victim Support Patient Care and Treatment

  • The National Centre for Mesothelioma Research

  • Asbestos in Schools Asbestos

  • Legal Issues

Speakers will include:

  • Professor Anne Bowcock – Imperial College

  • Jeremy Horton – Brachers

  • Dr Helen McGee – Hospice in the Weald

  • John Reeves – Kent National Union of Teachers

  • A message from Mavis and Ray Nye, Asbestos and Mesothelioma campaigners

Refreshments will be available.

We found the Gillingham Building (H2) – School of Journalism and the barrier was down. A nice young man said we were in the right area but we needed a pass to go further.

Phoning Alan who we were meeting but he didn’t answer his phone. Didn’t know he was having to travel from Canterbury. A kind lady said to go to the barrier and explain we had no passes but we have a disabled spot booked in the car park and that’s what we did.

Another kind voice said to go to the parking bay and up the barrier went.

At the reception desk we wasn’t booked anywhere but a great man came and met us he introduced himself as Gerardo (Swoon) who took us to the Studio that was booked. I couldn’t believe it we were KMTV Studios.

I didn’t know this was going to be so big. Josie Hannett took me through how I would like it done and I was very happy to do it as an interview, no notes needed and answering her questions became natural.

Alan McKenna arrived and he and Gerardo disappeared into another studio and we sat on a red settee with a huge telly by the side of us and lights glowing everywhere. As we didn’t take any photo’s all I can find is this one so I will be putting the recording on here after the 7th July.

studio

The scene on the walls is of Oast Houses in the village of Ickham ickham

With a wrap up we said our goodbyes with a promise to do another interview later on as so much was talked about. My Trial, my story, Rays story My involvement  with the Asbestos industry today, The Mavis Nye Foundation. So much going on we could have filled a month of recording.

We left there and travelled into the Dockyard where our story started. Ray was very nostalgic looking at the building where he learnt all about ship writing.

I went into the shopping outlet and bought a lovely new top for my next speeches and then went handbag shopping. so many to choose from I was lost. I found a good one that was a bargain. I had lots of fun choosing the right bag and I got it from £49.00 to £19.60.

It was time for lunch at an Australian café.

Then we were soon on our way home. Grabbed Louis and took him to the park and he had a lovely run.

Today was a great day.

 

 

A Diary Of A Mesowarrior Living With #Mesothelioma #Asbestos –Bank Holiday I Actually Chilled Right Out

We actually got away for the Bank holiday in the Motorhome.


 

 

 

 

 

 

No need to pack any food as we were going to Quiet Park and they have a lovely food barn with fresh food. Potato’s and carrots straight out of the earth wonderful Ice cream made local with cheese. Pots of home made jam it was a real pleasure stopping off and stocking up.

Moving on then Ray drove onto the field where we were parked up all weekend.

The field was packed with Caravans and Motorhomes.

We were with the East Kent DA  Charity meet With Stewards Ray and Marilyn and Malcolm and Sylvia who welcomed us warmly and soon settled in and got the camping chairs out as the sun was beaming down

Had a good walk with Louis up to the tower and around the field.


 

 

 

 

 

Chilling right out and it was just great.

Next morning we watched the children play all day with water pistols. Not a phone in sight just good old-fashioned playing together. Bought a good book about Liverpool Au Revoir Liverpool.Boot fair

Sunday at 11am right by the side of our M/H so didn’t have far to go, the money raised was for charity the Kent Air Ambulance.

Washed the M/H as well inside and out Louis has had a great day as well lots of dogs to watch and play with. He was excellent and our friends noticed the difference in him.

Saturday night, well Sunday Morning really a huge bang and the skies lit up. Watching the storm through a Heike is a great experience.

I have found some footage on Face Book Enjoying the thunderstorm tonight!

At last we did get to sleep and Monday morning the rain soon dried up again as we walked Louis around.

A silly thing did happen as I was cooking. There was a weird shhhing noise and I realise the water pump was running. water was gushing into the oven and turning to steam.

We rushed about turning the pump off and then had to dry the bottom of the oven out. Crazy.

So we have to put the M/H in for repairs to a water pipe. Why it has happened is a puzzle that wont be solved until it is looked at, Ray has taken the sink out but the pipes run off through a hole and behind the oven. Being Gas we didn’t dare have a look further.

So soon had to pack up and come back home where the washing is done and packed away as we are looking forward to doing it all again.

I have had to spend the morning writing speeches to cover meetings in  the next few weeks.

The next two speeches have  Asbestos details to it rather than Mesothelioma.  Face fitting of masks and the dangers of the workers who today are working with the Asbestos.

 

 

 

 

 

 

 

A Diary Of A Mesowarrior Living With #Mesothelioma – The Confirm Trial has so much TV Coverage So much hope now for #Asbestos Patients

mnf 1 ba again

This is the official video of the BBC News coverage for the Confirm Trial that certainly hit the headlines with a bang. I have never known anything like that as the excitement was so high all over the weekend. It has also bought so many new Patients to seek me out and I have added them into the Mesowarrior groups on Face Book and give them so much hope, That’s what we are about.

I had a lovely email on Monday

I would like to say a massive thank you to everyone who helped make this happen. A particular thank you to Mavis for allowing us to tell her story and to Gareth for doing all the interviews on Friday. A personal thank you to Andy for helping manage the media activity while I was out of the office on Thursday and Friday.

BBC South Today – Short packages on breakfast and lunchtime and full package on evening programme.

BBC Radio Solent – Pre recorded interview with Gareth on news bulletins throughout the day and live interview on Drivetime show

BBC South East – mentions in breakfast, lunchtime and evening programmes

BBC Radio Kent – Live interview with Gareth on Breakfast show and then mentions throughout the day on news bulletins

BBC Radio Jersey – mentions on news bulletins

ITV Meridian – mentioned on lunchtime programme

Heart Radio – mentions on news bulletins

Breeze Radio – mentions on news bulletins

The Sun

Daily Express http://www.express.co.uk/life-style/health/806849/asbestos-cancer-cure-symptoms-mesothelioma

Leicester Mercury

The Daily Echo

CRUK  are  setting up a trial management group which will be a team of people who are involved in making decisions about the running of the trial. and wondered if I would like to take part as a patient representative. We will meet every couple of months this really sounds interesting.

Today one of the Mesowarriors has just had her Dad talk to his Oncologist who is now looking at setting up the trial. That is great news if we can help to have as many Oncologists happy to set the trial up.

It has spurred me on to make my Foundation work and raise funding for Research we are all set up for a Media Launch. One Board Meeting and that will tie up loose ends.

field_pe

The weather has been sunny and warm so we have been doing the garden. Defrosted the freezers in the shed. Funny how you think you are running down in food stock and when you tidy up you realise you have loads of food. No wonder we waste so much.

I have also been writing speeches as my next two are to the Asbestos Industry which is going to be interesting.

It is hard when everyone knows my story but I will talk about the risk of Asbestos as so many think it wont happen to them and we know it can.

I have a Video to make in the Centre of Journalism University of Kent. We are coming up to Mesothelioma Action Day and so many have asked me to talk. I can’t be in so many places at once but I can make video’s, Thank goodness for todays Technology.

I will be at the JUAC Asbestos in Schools Conference in Birmingham and then travel onto Derby to the UKATA AGM. So much to look forward to.

The lady at Whitstable Station loves asking where we are going and what we are doing  I just say I’m not in charge of my life I’m being carried along and enjoying every moment.