Rays blog as well http://mesoandme.wordpress.com/2011/09/22/dartford/
My Blog for today
We had to get up early today, although I just could not sleep so it was good that I got up at 4.
I had an early Breakfast and worked on the computer until i showered at 7am and then took Louis for a walk.
Ray got up and he was ready so i said lets go as I would rather be early and on the hospital site than caught in London bound traffic jams and having kittens.
Would you believe it the traffic run very easily and we arrived at Blean by 9 took the wrong turning and ended up at Bluewater. I had already read the Darent Valley web site and they did recommend parking in Bluewater as their car park was small and so it would be difficult to park. So we parked outside John Lewis with the hope that we would find the car on our return.
Bluewater was built in a Chalk Pit
We asked for help to find a bus, a very nice lady helped us and we were soon on our way and laughed when the bus climbed out of the chalk pit and the hospital was up the top.
The veiw at the hospital was lovely and we could see the Dartford Bridge
The hospital is very modern
We were very early over 2 hours but I said lets book in and make sure they know we are here so we walked into the Out patients where they have a self booking in computers.
Very easy to use but the computer said no!!! It didnt know me.
We asked for help but the receptionist agreed the computer said no. She got her supervisor who said this often happened with Dr Shahs patients as he traveled from Maidstone.
A really nice lady came out to see us, the Access manager and she took all my details and told us to go for a coffee and she would put me on the system as they had phoned Maidstone and Dr Shah had my file with him.
We did as we were told and went to the cafe where we waited and returned at 10.35am to the out patients and guess what the computer said no!
We waited and kept try until just before 11am the computer said yes and issued us with a number that we had to wait until we were called dead on 11.30.
My friend Sonja, who lives near by and had read on my blog, where I would be, so she drove over to find us and kept me company, when I moved to the red area, where I was weighed and had to sit to go to see Dr Shah who after 30 mins called me in and welcomed Ray and I.
He went through all my history and said my story of washing clothes made me a text book case.
He agreed that I was very suitable for Vinorelbine a Chemo drug taken in tablet form day 1 and day 8.
I could also go on the trial with a drug called NGR-h TNF which is Phase three stage.
The NGR is a protein which targets blood vessels in tumours, The h TNF is a biological substance which we produce in our bodies to fight infection and cancer. For the study this has been biologically engineered and combined with NGR protien by a pharmaceutical company to deliver larger amounts to cancer cells.
It all sounds very good and he has given me a paper to read and if Im happy phone his office and talk to the Research Nurse who has taken over his work while he is away for the next 2 weeks, she will get my scan done and blood tests so they are all waiting for his return and I will be in treatment. This will mean visiting every week once a week to receive a 1 hour infusion and so it will involve a lot of hospital visits for tests and scans.
I was amazed that there are only 390 patients going on this throughout the world –that is amazing.!!!
I will be very happy to do this as it is again helping the future and I have the back up of a Chemo so I see it that I have nothing to loose and everything to gain.
We said our goodbyes and went to the waiting room to collect Sonja and she drove us back to Bluewater where we had another coffee and shared Rays danish selection.
We walked around John Lewis’s food hall buying things and looking at all the goodies and then it was time to say goodbye and we went to the roof to find the car which was easy.
Off we went and I said we could call in at the Savacentre at Gillingham where I bought a outfit for London next week when we go to the 6th Patient and Carer Day 2011 Novotel London.
I also had a dinner as I was getting really hungry and had Salmon with a watercress sauce, new potatoes, and a salad.
I was really glad to get home then and see Louis and have a rest, it has been a very nerve racking week but I wish the hospitals could put all our info on the computer and each hospital can have accessible information even if we have to sign to say they can have it, files and letters can get lost in the system.